Intrevenous Vit C Therapy

makingway

Has anyone here treid this approach? I am considering it. Also I was told not to take Vit B, C, and E for 2 weeks before my surgery. Has anyone else heard of this?

Anonymous

I know a woman who had IDC, 1.1cm, node negative, er/pr+, her2 neg, grade2 tumor. 

She chose this approach in lieu of tamoxifen.  She did not have chemo, and her doc did not order the oncotype test (don't know why).

So, she did vita C intrevenous therapy as well as supplements etc.

She now has bone mets - 2 years after original diagnosis.   Has had radiation to her spine, and T/C or A/C.  

She is now doing both alt. and conventional treatment, but does not think the vita c therapy was worth it.

She is an amazing woman.  She is also the reason that I chose to do chemo and will try tamx and hope to have minimal side effects.  My tumor was HIGHLY er+ .As high as it could possibly be per my oncl.

PM me if you want to chat with her - I know her from a different board and she is not on this one!

As far as surgery, I was told to cut supplements and chinese herbs a week prior to surgery, and avoid the antioxident and herbs thru chemo.  As you can see, I am taking the alt and convention approach as well.

Susan

makingway

Susan,

Thanks for sharing the info concerning your friend ,and yourself. Her dx was more promising than mine. My tumor is 5.9 cm and I have ILC. I haven't yet been referred to an oncologist, but I was told that my cancer doesn't respond to chemo. I think they are going to want me to do Tamoxifen. I really don't want to, but after reading your info, I will have to reconsider...The IV therapy is $100.00 a week. I don't think I can afford to go as often as they'd like me to. I did order a slew of vitamins and minerals etc. I'm not sure of the dosages. I will have to do more research.

What does the oncotest look like or tell you?

They don't know if it's in my lymphnodes. I kinda suspect that it is. For 2 years I've had this weird sensation with my eye. It feels like it's drooping and that side of my neck feels like I have nerve damage. I also have a mild pain in my right hip. It's hard to pinpoint the location, but it started bothering me a few months ago-about 4 months after the lump on my boob appeared. Can you ask your friend what the symptoms of bone cancer are? I have my Mx June 1st. 

I just read your diagnosis. Why do they take 3 nodes if there is no cancer in the sentinel node?

Thanks for sharing

anondenet

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And I know three people in my town who did everything conventional, chemo, rads, Tamox/AI. And they still got mets within three years. So you really can't make a case that your friend's disease progressed because of not doing conventional treatment.

Anecdotes are very misleading. If everybody who refused conventional adjuvant therapy had disease progression then you could make a case. But that isn't true. Cherry-picking catastrophic anecdotes doesn't make a good case for either side.

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Anonymous

Makingway - regarding the nodes, good question!  I think this is my breast surgeons protocol.  I beleive the sentinel node biopsy procedure was developed at the cancer center that I am going to, so that is the way they do it. They take all that light up.  I noticed that you are in Southern Cal- my friend is also there - I don't think in Orange County, more like Santa Monica.  I will pm you and you can send you an email if you like.  

Anomdenet - no kidding.  There is no guarantee in this crazy cancer world.  My point is - I am lucky my cancer was found at stage 1 - doesn't mean cases like mine don't progress.  They can and do - following conventional or not.  However, FOR ME (my case, my opinion) I feel much better doing all I can conventionally and naturally to avoid any progression.

 I am not making a case at all - just reporting the facts in my friends case.  The question was "has anyone heard of  intrevenous Vitamin C therapy" and this is the only case I have personally heard of (not read about, actually KNOW her) so thought it was important to share!  If it had been a positive outcome, I would have shared that too!  No sides here, just this fact in this case.

ANECDOTES ARE MISLEADING:  that goes both ways!  If I had been singing the praises of this alternative therapy I wonder if you would have written this?  Things that make me go hmmm. I am sure there are some women that have had the vita C infusion without cancer coming back.  I hope we hear from them!

anondenet

April,

Okey-dokey!

I did take IV C drips when I was first diagnosed as part of a more comprehensive alt med protocol. But it was only considered a "bit player" back then. Now they give much more C in the IV.

But look into liposomal Vitamin C. Some docs think it is more effective than IV C. And much cheaper! It comes in little packets from www.livonlabs.com There is a video on the website. I don't understand the technology of how it gets directly into the cell. 1,000 mg Lypo-Spheric is supposed to equal 10,000 oral C.

I expect Life Extension Foundation will start carrying it. They get stuff about a year after people learn about it. They even carry Iodoral now.

makingway

aprilgirl1-thank you for your non bias information. I know that just because your freinds result didn't turnout the way she wanted you weren't negating doing IV therapy-you were just reporting the facts and I do appreciate facts. I can then make a better judgement as to what choices I need to make.

anomdenet- I will definately look into that Vit C. It sounds easier and cheaper than sticking an IV in my arm! I hate pain. I just got my vitamin shipment. I thought I ordered some iodide, but can't find it. The one I found on webvitamins had 2 forms of iodine in it. They were both high in mg. and cheaper than the iodoral. I'll look later when I have some time and post the brand name.

Thanks again Ladies! And that's with a capitol L!