~* The Waiting Room *~

chrissyb

Hey Bettyboo you most certainly can join the waiting room.  Sorry to hear that you are having some problems, and until all testing is done, a final dx is hard.  With this disease, because of it's sneakiness anything is possible but I'm sure hoping it's just a muscular thing for you.  Please let us know the results of your CT.

Love n hugs.  Chrissy

BettyBoo

@chrissy, thank you so much, I am hoping for an innocent explanation, too, it's hard to keep it to myself, but my kids are 10&12 and I don't want to worry them, my DH is scared, too!

chrissyb

Betty, I hear you. It gets hard when you don't know what's going on Nd you're trying to stay strong for everyone. That's what these boards are for.



Love n hugs. Chrissy

Hope60

chrissy - so sorry you've had some progression, but glad you can continue on Femara.  You were so kind to me during my recent scare...hugs to you.

Bettyboo -  it's so hard to go through testing and waiting.....sending you positive thoughts and keeping my fingers crossed for good results!

Jessica42

  Bone scan came back showing a small fracture on my spine, and that is what is probably setting off my higher alkaline phosphatae levels.  So no sign of cancer, just gotta keep up on the calcium!

chrissyb

Yay Jessica!  That's great news!!!!  Big sigh of relief!!!  Funny or not, how our minds always turn to BC when we have an ache or pain but such a sigh of relief when it turns out to be something else..........even if that something else is not too good.

Thanks Hope for the hugs.  I always hope I'm wrong but at stage IV, I'm generally right when it comes to aches and pains being the beast................I think it's better once it's confirmed though as it takes the guess work out of things....you know?

Bettyboo, any word yet on what's gong on?  Still hoping it's nothing for you.

Love n hugs all.  Chrissy

Hope60

Jessica - great news!!!

Chrissy - I hear you....as bad as the "knowing" can be, the "waiting to know" is somehow worse. Hoping that your latest round of treatment will keep the beast far away.....

Halah

Hello ladies! I am definitely in the waiting room. I have to wait two long grueling months between CT scans before any biopsy can be attempted. It wasn't the idea that was so shocking (okay maybe it was, the spot on my liver). What was shocking was the low tone in my ONC's voice when he told me, and recalling the rad tech's demeanor after the test. Not sure if I am just being paranoid or what.



Chrissy, glad to hear the progression is small and that you are staying on the femara!



Jessica glad to hear it wasn't cancer! But ouch, a fracture on the spine... Hope that heals up fast!



I am glad I found you guys. It is great to know I have somewhere to turn.

chrissyb

Mindy, whenever the docs see something suspicious they tend to lower there tone of voice. I think for them it is a reflex.  No matter how the news was delivered, it's hard to take and even harder when no-one knows just what it is because of its size.  The bottom line is, that no matter what, it can be treated and you can survive for a very long time with a good quality of life even if it is a met.  We are here with you....all the way.

I'm good with what we decided and hopefully, those new little beasties will take there time growing so I can stay on the Femara for another year...........well, that's the plan anyway.

Love n hugs.  Chrissy

BettyBoo

Hi, just had my breast MRI as part of my follow up for ILC, no word re the CT yet, it's more waiting I suppose. But chest X-ray & bloods for LFT's ok so I sort of assume all is ok and CT is just confirming that!

Halah

Hi Bettyboo! Glad to hear about the good results. Keeping my fingers crossed on the CT!



Chrissy, I will try and be more optimistic! TY so much...

readsalot

Hey all. I was diagnosed with pneumonia the Wednesday after Christmas and they did a chest x-ray. Well, my dr called me to say that they saw "something" on the chest x-ray and "with my history" wanted to do a CT. Did the CT last Wednesday and unfortunately didn't get the all clear. Nine "spots" in the lungs and enlarged lymph nodes. I'm going in tomorrow for a mediastinal biopsy of the lymph nodes in my chest and while I'm trying to keep a realistically positive outlook since spots on lungs can be from a number of things and lymph nodes may still be enlarged from pneumonia (even the cardiothoracic surgeon that's doing the biopsy pointed out that metastases with my original diagnosis are unlikely) I'm still moderately terrified. I've been told that they'll have the results of the biopsy before I'm out of recovery-so at least I'll know one way or the other by this time tomorrow. I keep trying to remind myself that until we know it's something, it may be nothing. Sometimes it even works. I knew you ladies would understand-which my loved ones really don't, no matter how supportive they are.

BettyBoo

Readsalot, keeping my fingers crossed for you, it's such a strange time, this waiting, but like you say, there can be other causes. I also had clear nodes and my surgeon said it almost never recurs. Hope he is right...

Halah

Hi Readsalot, I can understand the waiting and also the fear. My thoughts are with you and hoping for good results. Hang in there.

chrissyb

BettyBoo, real happy to hear that your bloods came back good, which to me is always a good sign so here's hoping the CT just proves it.

Readsalot, pneumonia can leave scars on your lungs which could look suspicious on xray.  Here's hoping that your CT confirms that and your biopsy is just from the infection.  Your doc is so right when he says most unlikely to be anything else concidering your stage.  Holding your hand while we wait.

Mindy, how are you feeling today?  Hopefully a little more optimistic. 

 A lot of this fear of stage IV comes from what used to happen and we were aware of as children, because back then, there weren't the drugs for treatment that there are now.  Even twenty years ago they were not available but we are the lucky ones as now there are so many options for treatment we can live a near normal life for a long time.

Love n Hugs to all.  Chrissy

Halah

Hi Chrissy, I am doing much better thanks. I am trying to stay busy and hope for the best. You have such a great attitude and hopes it rubs off on me.



Forty more days to CT!

readsalot

Hello ladies-just wanted to give you an update.  Had my mediastinal biopsy yesterday and it's all clear.  Doc came in before I even got out of recovery to tell me "NO cancer!".  Thank you to all of you for your support.  Now I can take all of that energy that I was using to keep myself sane to send out positive thoughts to all of you still waiting for your tests/scans and hope that you all get the same results as I did. 

Blessings-Kris 

chrissyb

YAY!!!!!!!! Kris that is great news!!!!!!! Now you can breathe that huge sigh of relief.

Love n hugs. Chrissy

Halah

Great news, Kris! You must be so relieved!

shar1225

Readsalot Just noticed your message my daughter was dx in july 2010 with IDC stage 1 grade 1 had lumpectomy and radiation.  Went to hospital with severe chest pains in sept this year did not find anything but pleurisy. Had same thing lymph node swollen and lung noduleds lit up. Had biopsy of lymph nodes. No cancer but didnt say what it was for sure. They are thinking it might be sarcoidsis Finally to my question  she still has chest pains not as bad as before.but off and on. Did you have any sharp pains in chest that moves around?  It still worries her because dont know what it is for sure. I guess yours is still new so may not have any answers for me. She was in hospital in Sept for five days on strong pain meds. and did all the tests. Finally was put on predisone which she said would never do again if at all possible because of severe side effects.

readsalot

Shar-I sent you a PM.

Kris

BettyBoo

Going to see doc on Wednesday re mammo and MRI result, GP said the preliminary report says fat necrosis and inflammation found. Still waiting to hear re CT, have constant pressure feeling in right abdomen where GP found the nodule, combined with on/off nausea and dull ache, I am worried.

Halah

BettyBoo, I'm surprised they don't give you all the test results over the phone. To have you wait... My clinic calls me when they have results. My last CT was at 11am 12/27 and my ONC called me at 4:30pm on the same day.

Here's wishing you great results to the tests and that there is nothing for you to worry about. I wish this for you and hope you can find some peace of mind until then.

chrissyb

Betty, keeping my fingers crossed that everything is as the prelim report said.  I agree with Mindy, this waiting for days on end is just not fair!  What would happen if you pushed a little to get the results over the phone?

Hanging in there with you.

Miny, what's happening with you now?

Love n hugs.  Chrissy

Halah

Hi Chrissy, I was just now thinking that perhaps on Friday (1/27) I ought to reward myself with a little celebration because that will be the one month anniversary date of my last CT (12/27) and then one month later will have my follow up CT (2/27). Whew! I'll be halfway there come Friday.

chrissyb

Mindy, celebrate, celebrate, celebrate!....lol.... any reason is a good reason to celebrate and half way is better than the beginning.  It's amazing how time, even though it always moves at the same pace, can seem either slow or fast depending on what the anticipation is?  Hope it's moving fast for you.

Love n hugs.  Chrissy

BettyBoo

Thank you for your kind words of support. Here you very rarely get phoned with results, it really is a long wait at times!

chrissyb

Hanging in there with you Betty!

BettyBoo

Thank you all for your encouragement, have had my check up, bc surgeon had quick prod of the area and is confident it's scar tissue from my lipofill reconstruction op last year. So no further tests needed, and he says no further check ups needed either, I am discharged from the Breast Clinic two years after DX. Odd, that's it now!

chrissyb

Congrats Betty! That's great news! I'm so happy for you. I know you are going to feel adrift for awhile but it will pass. Just think of all the things you can do with all that extra time!



Love n hugs. Chrissy