Big day tomorrow

liveit56
liveit56 Member Posts: 196
edited June 2014 in LCIS (Lobular Carcinoma In Situ)
Big day tomorrow
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  • liveit56
    liveit56 Member Posts: 196
    edited May 2009

    Well, I go for the MRI and I am a little scared...hope it goes good and helps set my mind at ease some.   Think good thoughts for me....I will be thinking of all of you and how you all have made it through test and worse.....you all are my strength right now....will let you know how things go as soon as I know anything.

    Thanks to all of you again.

    Liveit

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  • Stonebrook108
    Stonebrook108 Member Posts: 237
    edited May 2009

    Liveit,

    Best of luck with your mri. Keep us posted.

    Ann

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2009

    liveit--praying you get good results soon.

    Anne

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  • Makratz
    Makratz Member Posts: 12,678
    edited May 2009

    Liveit, good luck tomorrow.  I will say some prayers for your tonight.

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  • leaf
    leaf Member Posts: 8,188
    edited May 2009

    Best wishes Liveit.  I'll be thinking of you.

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  • CAZ
    CAZ Member Posts: 678
    edited May 2009

    Liveit,

    Thinking about you today and wishing you the best.

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  • liveit56
    liveit56 Member Posts: 196
    edited May 2009

    Well, I went and I am so upset with myself....I couldn't do it...they put in the IV and then took me over to the MRI room and it was an open and wide machine but, no one told me I would have to lay on my stomach and put my breast in these holes and my face in what looks like a divers mask ....I knew I was in trouble when I saw it but, I got in position and the technician said that she was putting me in the machine and I was doing OK until my back hit the top of the machine and I went into a total panic and screamed to get me out...if felt like I was being squashed and I lost it....they said for this kind of MRI I could not be sedated and I was told I could take my Valium but, she said who ever told me that was mistaken.

     They were very kind and understanding and told me not to worry that now my doctor will just have to make other choices for me...what they are I don't even know.

     Now I don't know what I am going to do...just one more thing that has gone wrong. 

     I know it is not like this for everyone but this is serious for me.

    I am not liking myself right now...and wish I had never heard of LCIS.

    Thank you all for all your kind thoughts...they meant a lot to me.

    Liveit

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  • leaf
    leaf Member Posts: 8,188
    edited May 2009

    Hi there Liveit.  I'm so sorry you had this awful scare.  I would have screamed at the top of my lungs too.  Its certainly not your fault.

    I have LCIS too, and have never had a breast MRI. Even though many LCIS women here seemed to be followed by MRI, I was advised from the Major Institution that I had too much scar tissue from my excision, so they wouldn't recommend being screened by MRI.

    Its so hard having uncertain diseases.

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  • Kimber
    Kimber Member Posts: 384
    edited May 2009

    Liveit,

    I'm so sorry!  It is so stressful.  Let us know what your next step is.  My dr gives me some valium when I have an MRI.  It really helps! 

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  • Mykidsmom
    Mykidsmom Member Posts: 1,637
    edited May 2009

    Liveit - A breast MRI is not a walk in the park, but it can be done. I would suggest you talk to them seriously about valium or something before the test. You can do it! Hugs. - Jean

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  • liveit56
    liveit56 Member Posts: 196
    edited May 2009

    Jean, you are so right it can be done and I have done it with sedation but this time they told me I could not be sedated, that I have to be able to answer questions and follow directions.

    My other MRI was on my back and I laid with my arms out in the open and my head lifted on a pillow and I could see outside and see my husband and the tech....this one was like being stuck in a tube and I could not take it..being severely claustrophobic and having panic attacks doesn't make things easy for me.

     I thought that if it was open and wide I would be able to do it with my Valium but, as snug as it was I would not been able to do it with out being really sedated and my faced in the mask and being on my stomach was another problem. 

    I was told when I spoke to them on the phone that I would be able to take my Valium and no one told me how I would have to go into the MRI even after I ask...they just reassured me it was open and wide, which it was, they just left out all the other stuff, maybe they thought it was for the best not to tell me,

    This has all been a horrible nightmare for me and I am tired of dealing with all of it for now.

    I wish you all the best and a happy and healthy life...we can only do what we can do and one day at a time. 

    Thanks to you all for your kind thoughts....you are all wonderful and courageous

    blessings to you all.

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