Housework support group!!???!!
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Barbe, no, it's neuropathy from the Taxol and degenerative joint disease. I also have a foot drop on the left. I can get a brace if the PT doesn't help, but I'd rather not have to go that route.
What's Voltaren gel? Where do you get it? How does it work?
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Voltaren is a topical analgesic that you can rub on your sore joints.I use it on my feet and hands almost daily when I am bad like now.I bought mine in bulk at costco but even Walmart sells it.I believe there is a whole thread about it here.I think it is in the LE forum.Alot of us use it regularly..
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Happy Thanksgiving to all my American Dustbunnies.
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Arnie, so tuff for your friends,my goodness. More prayers on their way, I will keep them in my prayers daily.
Dear Jane, I have the same with the feet, taxoterre peripheral neuropathy, very painful and permanent. Sounds like many of us, have the nerve pain. Bless all our lemonette hearts.
Have a consultant comming over to my house to examine me,and review my pains. She is an expert in pain management amongst other things and is the lead consultant with the regional MacMillan nurse centre for cancer care. My nurse made it happen for me, bless her! So I am hopefull that I am finally going to be getting somewhere, as I lay in bed with mega pain in my hypochondrium, which no one has dealt with yet, except for giving me pain killers. We are not looking for more cancer, but looking to fix me.. I bet it will end up being something soooo fixable, which I didn't need to spend a year nursing with pain killers. Anyhoooo, also today got my re referral to chest/thoracic specialist for dec. Yeeeehaaa, maybe will be less of a lemon come January. That would be so good for the family.
Volunteering at/for both infant and Junior school's xmas fetes/bazar, I love it!! andlove the kids, I will help decorate etc and on the day do crafts with the kids. I will pop any and all legal pills to make sure I am fit for the fun. We would love to have all you creative girls over to enhance the festivities with your talents! Arnie, your bottles would just sell sell sell! and Barbes beautiful bird knitting, and Coonie's baking and Faith's singalongs, heaven. Oh and mumayan's fantastic pics!
Ahh nothing like a dream to focus away from pain.
daaalings, I can't do lists, I think of you alllllllllllllllllllllllllllllllllllllllll.
xx nighty night, Sending you all my bestest peaaaaaaaaachiest vibes!
Shiny
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Jane M so sorry to hear about your pain... hoping the Voltaren helps...
Shiny give us an update on the pain management expert, (then send her to my house, kay?) I'm loving it...wish we could all come to help and bring our craftiness...
Thanks for all the prayers for my friends.... I have to tell ya I had the most amazing blessing today. I knew Sandiy could not afford a dumpster to remove all the damaged goods from th house so I got to calling around... I had until 11:00 a.m. to get something going... Well, I prayed and asked the Father if he could make it happen, that Sandiy was His child and I'm His child and I really needed help... I got a call from Canton Waste and they sent a dumpster by 9:30 a.m. Not only that I had requested a 20 yard dumpster and they brought a 30 yard dumpster! When our Father answers he gives more than we were expecting!!!!! PTL!!!! There might end up being a charge but nothing like it would have been from any other company and I'm pretty sure the Good Lord is already working on that one too!!!!
Love you gals... thanks again for the prayers!!!!
((((((((((((((Hugs to my dustbunny friends))))))))))))))))
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PTL Arnie! God is good.
Shiny, so friggin' happy that you are FINALLY going to be assessed!!! It's bloody time!!!! Please let us know what the verdict is. I remember LAST year you said you were going to get fixed and it hasn't happened so don't make me come over there.......hey, I'm just sayin'.
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thank you Barbe! I am really feeling hopeful that this consultant will have some good ideas and plans as to what to do next. And she will write me referrals and then I might have to go private for tests/scans but i am prepared and ready for that now. hope she is brill.
Arnie so glad your friend has you there..!in the face of all arridity, friendship and love are shared and souls are restored". Bless you for taking action and for your powerful prayers.
Well Daaallings, another day begins, must get my smunchkings up, and feed the cats!
All my best.
Shiny
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Happy Thanksgiving to you all.
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I'm thankful for my faith family and friends... Happy Thanksgiving to all my dustbunny gals...
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Happy Thanksgiving to one and all. Hugs and Blessings, Nancy
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Have a "connie style" Wondermous Thanks giving me daaalings accross the pond.
xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx!(ott perhaps? I think not, you are a great many brilliant dustbunnies, and that is one kiss for each cheek each!)
Thank You loveys, and thank you Faith for your so kind and thoughtful picture post. Honestly, I must make conquering the "post pics thingy"in the new year! The consultant I saw today, said she was happy to arrange for me to get a ct. I am hoping they will do the whole body, what the heck, p
once you are in that tube, best keep going I say! She beleives (quite rightly i think) that the non diagnosed pain in the hypochondrium for 1 year merrits more then a blood test and an ultrasound.(she was clearly quite suprised that it hadn't been done by my cancer hospital in London) She is hoping she can get it done asap so that the results are available to the thoracic consultant which I am seeing again in mid Dec, just in case there is a relation between those 2 matters. She warned me that sometimes rarely there are incidences where they can't find a obvious reason. I hope I am not in that category, but I will be pleased to have got the ct anyhow, will feel better about taking pills regularely if I know I have done my best to clarify things..sure you know what I mean, as you have all been there in one way or another. Bottom line, I am still VERY VERY VERY BLESSED.
HUGS AND PEACHY VIBES LOVEYS. Wishing you a painfree hassle free lovely celebration and for my fellow canadian friends just the same, hopefully with some us bunnies to share in their celebrations!
night night.xx
Shiny
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Shiny, it's good to hear that your consult today is going to get you some results. Finally!!!
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Shiny I know what you mean. I'd rather them find SOMETHING than just hear inconclusive.
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Thanks Barbe, Sharron, I know you have been there and done that and pain is onboard with you too. I know you know what I mean. Just waiting for DH to come back so can go decorate the infant school for the christmas event/fundraiser etc tomorrow. It's such fun, getting it all looking so special for the kids. Wish, I had better drugs, just doubled up on everything, so hopefully it will start to kik in soon.
How is your new place? I will check back tomorrow. Sharron, i will try to catch up with you next week. Hope you've been well.
Thinking of you all and sending you my best accross the pond.
thank you girls, you are so fab.
xx Shiny
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We are very happy in our new home, but then, we are happy wherever we end up. We are truly the most flexible people I know!
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Has anyone heard from Hollyann? I wonder how she is doing.
Happy Sunday dusty buns.
I think I'll do some knitting today.
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Sorry I haven't been around. Well, the African trip went off without a hitch and my sister did not bring much back - thank you Lord. If you recall, she took my two nieces and they were a huge hit - in fact, the driver and the tour guide had crushes on them! They only took about two thousand (no exaggeration!) pictures - I will have to post some of them.
My aunt stayed with me for the first week they were gone. Poor thing is profoundly deaf - she would come to the top of the stairs and ask me a question - when I answered her she would say "I can't hear you - I don't have my hearing aides on!" Then stop talking to me from another floor of the house! She was good company but at the end of the week I was hoarse from yelling so she could hear.
My COBRA ended this month so I signed up for a plan that basically will only defray the costs of anything catastropic - it has a $10,000 deductible and that is $500 a month - if I got anything close to the benefits I enjoyed on COBRA it would cost three times that.
For all you Canadian sisters, that's where I will be getting my drugs until I get on Medicare next November.
I, too, skipped about three pages.
Barbe - so glad the move is over - I bet you have fixed it up so cute!
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Good to hear from you Kathleen!!! Yes, the new home is beautiful. I used colours of burnt orange, charcoal grey and a dusty golden yellow. Very chic if I may say so myself!
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And Barbe, we would expect nothing less from someone who helps people furnish new homes for a living.
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I bet it looks lovely!!!!
((((((((((((((Kathleen))))))))))))) so good to see you friend...
Sorry to see the long weekend end....
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Barbe ... I bet it is spectacular! Isn't it fun decorating a new space?!
((((((Arnie)))))))))
((((((PatMom)))))))))
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I'd rather redecorate than clean. I'd rather move than clean. I'd rather....you get the idea!
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I'm here Coonie, been a busy crazy not so much fun oast few months but I am feeling better and survived my first Thanksgiving. Hope all are well, healing, enjoying the good stuff and pretending the other stuff isn't there (I am all for healthy denial)
Hugs and love and bestest wishes/vibes to all!!!
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Healthy denial! ! ! I LOVE it!!!! hehehehehehe
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Hey, that came from my therapist and onc! and I whole heartedly subscribe to that advice
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Fab EWB!
Glad you are back in charge of what you can. I love your saying, and am sure to be borrowing it from time to time.xx
Big hug!
ps: Barbe, am in bed and turnning the light off real soon. Honest!
Shiny
Shiny
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Shiny, any results yet????
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