Tamoxifen and bone pain

helena67

I was just wondering if anyone else has experienced bone pains with tamoxifen (not aromatase inhibitors). I just started tamoxifen and developed an annoying pain in my right hip in the groin area. I know that joint pain etc is very common with aromatase inhibitors but I don't know about tamoxifen. Or maybe it could be the Herceptin? Thanks much!

helena67

Maybe I am the only one then? In that case I will just blame it on old age (40). I am falling apart!

mmm5

Helena

I posted right under you with a right hip pain too, I am on herceptin and AI, many said hip pain from Herceptin and some from AI. What does yours feel like? I worry myself that it is bone mets. The ONC says if I am worried we should scan it, and I would like not to scan if it is just usual SE.s Seems to be a common SE I am 43.

If you go under my thread you will see a few responded that they have hip pain from Herceptin.

dmh2418

I had a lot of joint pain, knees, hands and hips.  My onc said Tamoxifen didn't have any se's but I ended up stopping for awhile anyway.  I also had a pelvic US and found out I had a large ovarian cyst on the same side as my hip pain so now I worry if it's the hip or my ovary.  I would talk to your onc and at least get an x-ray done and possibly an US.  I'm going to another onc, maybe one who will believe my se's.

klp

I've been taking Tamoxifen for almost 3 weeks...have not noticed any SE as of yet

helena67

mmm5, it feels stiff as if I pulled some muscles, which I didn't. Will bring it up to my onc next time. I definitely suffer from canceritis at the moment. Also finished radiation recently and feel tired and achy all over. Every time time I feel some pain, in my back or between my shoulders I think mets. Regarding the hip, I hope it's just arthritis.

mmm5

Helena, Canceritis is such a good word I have aches and pains all over too, that friends who have been on AI's say is AI pain or Tamox. Still on Herceptin too, and some say pain from Herceptin. It just bothers me that the hip pain is on one side, it definitely is in the joint sid of hip and is not constant just more like twinges of radiating pain.

I brought it up with my ONC and they are used to my Canceritis and they said we should scan it to give you peace of mind, however I just went throgh that with some other tests and the waiting just about killed me. It turned out to be nothing.

3boys4me

I'm convinced that Tamoxifen has been causing my pain - legs, lower back, shoulders... however, my onc says that pain is not a se of Tamoxifen.

Funny, though, I went off the Tamoxifen for a few days when I was getting my DIEP and the pain went away.  I started back on Tamoxifen and the pain has not yet returned.

The only other thing I changed up is I started taking Mona Vie juice - could it be the wonder juice they say it is?

My onc schedule me for a bone scan just to make sure something else isn't going on.

fightinhrd123

I have pain in one side of my hip,had an xray, it was fine, not on tamoxifen, but on herceptin.

kayakgirl

I have had a flare up of my arthritis in my hands causing moderately severe pain. It started about 2 weeks after starting tamoxifen. I put myself back on my glucosamine and chondroitin and also started taking fish oil supplements (currently taking 1000 mg Fish Oil twice a day). These OTC meds decreased the pain a great deal. My oncologist said it was OK to take the fish oil and glucosamine and chondroitin.

RMagdahlen

I have been on tumoxifen for 3 1/2 years. A few months ago I started having pain in my feet. Had it checked out, told by my doc that I was fine. The pain has gotten worse. Recently I developed right hip pain and now I have pretty good pain in my hip, lower back and knees along with my feet. I thought I was tolerating tumoxifen pretty well, but now not so sure.



I also had a frozen shoulder for about a 15 months in all. It would get better, then worse, I finally quite physical therapy and it slowly got better on its own.



I don't like to be a complainer, but I am getting a bit concerned that whenever I bring a concern to my doctor or oncologist I am told that it could not possibly have anything to do with tumoxifen. I try not to refer to the Internet because I think that can lead to a lot of misinformation.



I suspect that I don't have joint pain as this pain is getting worse by the week now, and I eat a non inflammatory diet and exercise 5 days a week



Anyone else have this sort of issue?

Anonymous

I too have been on tamox for almost 4 years now, and after the initial onset of pain and hot flashes, I settled into minimal side effects that have been mostly related to hot flashes and insomnia.  Lately though, and I was just communicating this with my onc's office prior to my 6 mon follow up in 2 weeks, that the last few weeks I have been noticing an increase in lower back /hip pain, and shoulder / neck pain which causes headaches, as well as more and more leg and arm cramps, wrist pain.  Seeing a chiro helped, but I can't go that frequently due to insurance coverage.  I've been taking Aleve / Motrin and it helps, but I do think that there is accumulation of the drug that over time, causes this.  I am very active, I travel and am physicial for work as a marketing director for a medical device manufacturer, and try to be active walking on treadmill, biking, etc., but feel that over the last couple of months, my aches and pains are just increasing.  I am hoping to hear back from the onc nurse about whether I should take a tamox vacation or if they want me to wait to discuss with my onc in 2 weeks.  Every time I ask about something that is going on that could be a side effect, I am told, "No, it can't be the tamox."  Well, why can't it?  It's the only thing I am on that could cause these kinds of effects!

Vickster66

I have had pain every day since my first treatment of herceptin alone. I am finished with herceptin now but tamoxifen has not been any different. I hurt everyday. I am on pain meds but oncologist says never heard of pain being a side effect. Anyone else put there having pain after herceptin and during tamoxifen?

Moderators

Hi Vickster-

This is an older thread, so it's unlikely you'll get a response from the original posters. You may want to try posting in our Tamoxifen thread, which you can find here: https://community.breastcancer.org/forum/78/topics.... It's a very active, extensive thread with lots of information.

Hope you find some answers!

The Mods

Thicket

hey there, this is my first time posting! I have back pain due to bone Mets(being treated to strengthen and is working) however I have been on tamoxiphen for 2weeks now and my pain has worsened in the hips, however advil does help relieve to just an annoyance 🙃. (🙃=Still happy me just upside down for awhile) love to all

Lovinggrouches

been on tamoxifen for about 7 months and if I sit too long, I have difficulty walking at first due to bilateral hip and lower back pain. I was asked about joint pain with my MO visit and she typed it in. Gave me two refills on ambien, even though I don't go back for four months, think they are trying to wean me down on them. I've tried a few weekends not taking it and got about 3 hours sleep. Trying to sleep with just half a pill. I hate being reliant on a med to sleep but the dang side effects of this crap are horrible. I sure am nervous if I forget to take my medicine though!!!

Wholenewworld

I have been on Tamoxifen for 7 months. Mine started with stiff fingers in the morning after 3 months. I just wiggled fingers and it goes away in a few minutes. I spoke to another woman who had the same thing at 3 months exactly. I now have pain on and off in legs mostly but also hip and arms. I asked my surgeon and she said musculoskeletal pain is a side effect.

Pipermac1

I had the same effect as you and I was on Tamoxifen , not anymore !