Anyone have chemo for < 1cm IDC

cindy1cpa

I received a copy of my pathology report after having my mastectomy on Feb 3rd.  It turned out to be IDC along with the DCIS and LCIS.  My pathology is pT1b and the tumor is < 1cm and is grade 2.  No lymph nodes involved. I am 38 years old and my mom just completed her chemo for IDC.  ( I had a mastectomy because of her dx and that's how mine was found.)

I'm just wondering if I there is a possibility that chemo will be suggested for me.

Emily2008

It's likely it will be recommended based on your age.  I was dx with IDC and DCIS at age 35 and though the combined tumor size was over 2 cm, the larget tumor itself was .8 mm, so I was stage 1. I had the Oncotype test done on the tumor, which gave me a recurrence score.  This is often done on women with a hormone receptor positive (ER/PR +) and lymph node negative cancer.  The test gives an idea of how likely it is the cancer will recur in 10 years.  In my case, the recurrence score wasn't high, but 2 oncologists recommended 4 rounds of chemo since I was so young at dx and had multi-focal tumors.

 Just to prepare you, not to scare you.  Ask about the Oncotype test.

cindy1cpa

How long did it take for the oncotype test to be done on the tumor?

Anonymous

What is your hormone status?  If you are triple neg, they may recommend chemo for you.

Alo123

yes...I am having four rounds of chemo due to oncotype of 26...the test took about 2 weeks to come in.....

CindyB

Cindy - I had chemo, along with lumpectomy, radiation, and herceptin.  Of course, I was HER2+, which was the biggest factor in deciding to have chemo.  My impression is that they try to be very aggressive, particularly in treating younger women.  I wish you the best.

Emily2008

2 weeks for the Oncotype results to come in.

cindy1cpa

Can anyone else share their experience?

jill323

Hi, Cindy !

Yes, I have (or had) a similar situation to yours.  It is rather a sordid story.   But, I did end up going through chemo due largely to my age (43) hormone receptor status (weakly ER positive, PR negative), and Her2 status (highly positive).   Despite my small tumor, I keep finding myself on the wrong side of all the prognostic indicators for recurrence, which is why my doc kept pushing the chemo.    

Instead of boring everyone here, I have posted below another thread where I told the whole sordid story.   If you are interested, please take a look and I am hopeful it can give you some additional perspective to consider.  

Here is the link (if it does not work, just paste into your browser):

http://community.breastcancer.org/forum/80/topic/729388?page=1#idx_6 

Best of luck with your decision and situation. 

Jill

koshka1

Hi,,,,

I had a 1mm and a 4 mm idc grade 1,,,found with my grade 1 dcis....My ER was 3/3 and PR 2/3 and her2 -. 

With that...they advised no chemo and gave me Tamoxifin.

I did not do oncotype as they said that the sample was too small.

Hugs....Kosh

koshka1

Woops....and I also wanted to add that I was 39 when diagnosed....

Onc thot that with a small <1cm tumor that the risk vs benefits with chemo were high and that I would benefit more from tamoxifin.

I hope that helps......

noellech

I had chemo/herceptin for my 5 mm grade 1 tumor only because it was Her2+. My onc told me that if I had not been Her2+ that my risk of distant recurrence would only have been about 2% and they would never recommend chemo for that. But since I was Her2+ it was more like 10% so there I went. Good luck.

knowledgeforpower

My tumor at surgery was 7mm, However, the core needle biopsy got a huge chunk and there was some discussion the size might have been a little more then a cm.  My oncotype came back today at 26 and I am having chemo.  The tumor was grade 3 and showed anaplastic changes which means it was fast growing and the cells did not look like normal cells.  So, I start 4 cycles of adriamycin/cytoxane next Tuesday.  With a oncotype of 26 my chance of recurrence was 17% and the oncologists felt I should have chemo.  I am 58, but I have a  15 year old son and plan on being here for another 25 years so I felt the decision to have chemo was the right decision.

LizinKS

The Oncotype DX test typically takes 10-14 days to be completed.