Can we have a forum for "older" people with bc?
Comments
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Anne! I remember "spotting" before Daughter #1 was born.... I was so scared, but old Dr. Brown, said that it was probably nothing, and to just keep an eye on it...
About Tamoxifen.... I know we were talking about that.... Am I wrong, in thinking that it doesn't block the estrogen, like some of the Als do.... but instead, binds any cancer cells, so they do not get to the estrogen? I haven't taken a thing since I stopped the Tamoxifen.... never had hot flashes, even after I was old as dirt... Never knew when I went through the "change"..... I know I was lucky.... I took "the pill" since 1964.... and had a hysterectomy when I was about 45.... because I thought that would stop the periods.... It did THAT, but then I started having severe skin rashes, welts, from stopping the pill!
Finally after about 3 years of trying EVERYthing, I was put back on a low-dose Premarin....and the skin problems stopped after 3 months. I took it until I was about 62, with no problems. I KNOW Estrogen is supposed to cause breast cancer, I have heard, but like my Mom, SHE never took the the pill, nor estrogen, and did have breast cancer.... So no-one can say WHAT will cause our BC.... Just our cells go nuts, and something happens.
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Got the car back, they cudn't find anything wrong, at the dealership! If It happens again, this is the second time, DH says we get a new car!
Contemplating canceling the gall bladder surgery. Can't face the possibility of living with diarrhea again, now that gluten free has helped my IBS. Don't want to be afraid to leave the house. Only thing that makes me hesitate is I have a polyp, which can lead to cancer , as with bowel ones. The GB itself isnt causing any problems since the beginning of the month. EEny , meeny , miney mo!
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I don't blame you guys....! We can only take so much! There IS something wrong somewhere, and unless they find it, you will always have the same worry.... See about getting a "car fax" report before you buy a used car.... No problems with a new car, but there are so many now, that are getting "recalls" about one thing or another! But the dealer pays for those repairs!
I know one thing.... whenever I need my oil & filter changed, I will take it back to that dealer... I trusted them.... And it isn't that much more than from those "faster" advertised places.
Can they treat your "polyp" any other way? I'm glad the GB problem is better!
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bonnets, not to start trouble but my Dh has G.E.R.D. and has had some G. bladder issues, but no one has told him to "ditch" it. To be fair, the subject did come up, but the Dr.'s chose not to follow through with it. So, ( and I'm certainly not a Dr. ) unless the Dr. can give you a super good WHY removal should happen I'd be leaning on the side of trying to keep it longer. That is just me though.
Now I'm crossing my fingers with my car. So far it runs perfectly well --- only had that issue of it locking when I don't want it too. I have to go back to the dealership later ( some time in the next few days ) and pick up the little btl. of paint they got for me. so will ask them then --- why the car would do what it did and to help me set it up for recording my mileage etc. See -- you know me and computers don't get along well and many functions on this newer Chevy is operated through a computer. Just more things to go wrong in a way but I'll try to make it through.
Jackie
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The differences in human life depend, for the most part, not on what people do, but upon the meaning and purpose of their acts. All are born, all die, all lose their loved ones, nearly all marry and nearly all work, but the significance of these acts may vary enormously. The same physical act may be in one situation vulgar and in another holy. The same work may be elevating or degrading. The major question is not "What act do I perform?" but "In what frame do I put it?" Wisdom about life consists in taking the inevitable ventures which are the very stuff of common existence, and glorifying them.
Elton Trueblood -
Jackie, I don't remember if you have the owner's manual for your car or not...
http://www.chevrolet.com/content/dam/Chevrolet/nor...
But I can set mileage with the lever on the left of the steering wheel.... It should have different "trips" for you, and gives you a lot more information with the "menu" also.... Even gives tire pressure, and shows which tires are "low"... Plus the gas mileage, etc.....
Also when I park my car in the garage, I don't lock it.... and it stays unlocked until I get back in, and start it, and shift it into gear. It shouldn't lock by itself.... ever. Even when we are at the car-wash, I take the key out, set it on the seat, and we both wash my car..... If you leave the key in the starter, the bell will ring when you open the car door.... You have to remove the key to shut that bell off....
Write down all the questions you have about your car....
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Been reading research on gallbladder polyps. It seems <5mm, mine is 4mm, there rarely if ever are cancerous, and sometimes just turn out to be a stone! I haven't had any symptoms since the first of the month from my stones, and the prospect of possibly having to deal with severe diarrhea, after I have gotten my long standing problems with IBSD calmed down is just too scary! Always being afraid to leave the house is no way to live. So I may call surgeon Monday and cancel Tuesdays surgery.Gastro guy has said the surgery is up to me, didn't tell me I need to have it. So that's my story, and I think I'm sticking to it.
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Ade, glad to be of help. The depression symptoms you describe were exactly what I had with post-partum depression 31 years ago--I didn't want to commit suicide, but Inremember looking out the window and thinking "if a wrecking ball were to come through and suddenly take me out, maybe my baby could get a better mother." I got help, thank God. There is no dishonor in seeing a shrink and taking antidepressants. I still do both!
AIs don't block estrogen. They actually prevent your adrenals and fat cells for making it, by inactivating the enzyme necessary to make estrogen. Tamoxifen and raloxifene work by a mechanism whose biochemical specifics are still not known (there's a pathway there but it isn't fully understood) which sort of "clogs" the estrogen receptors on tumor cells so they can't take in the estrogen they need to grow and divide. Think of aromatase inhibitors as saboteurs at the Twinkie factory, stealing the sugar from the pantry and throwing it in the river; and of tamoxifen as your jaws being wired shut so you can't eat the Twinkies
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Happy to find this discussion group- seven yrs ago had my first BC diagnosis- went through lumpectomy and radiation without any real problems/ in October was diagnosed with another type of BC in other breast/ was I ever surprised- thought I would be ok since I had hysterectomy and my cancer was receptor positive- with this second bout of BC had lumpectomy and radiation and are on Arimidex- developed painful Seroma and arthritis worsened/ I'm miserable- can't switch from Arithmidex because of drug interaction with other meds I need to take for other medical problems- had Seroma drained to find it came back even larger- any advice for painful breasts and arthritis would be most appreciated- feeling down and out/ so happy I found this group for "older" women like me who can relate to one another- by the way, I never felt older until I got this second diagnosii
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Morning Nanagirl! What was/is your diagnosis? I only know about a Seroma, since I had one after my Lumpectomy also... Everyone said it would gradually go away, and it did! Yes, it IS painful, but filled with fluid, and should be absorbed into your body. I didn't have mine drained.... but it DOES shrink, and you can still see where it was on a mammogram, but it is not filled with fluid.... just an empty pocket.
I'm thinking your Arimidex is partly responsible for your flare-up of arthritis! Does your Doctor know this? SOMEtimes we just can't take all the side-effects... Others can tolerate it good, but maybe have no under-lying problem LIKE arthritis. Talk to your team.... Tell them they are all nuts if they think you can stay on something that hurts you all over....See if they will work with you....
Don't go feeling all down-and-out.... we are always here.... just talk to us.... maybe if we can't help what hurts you, we can fix your car!
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Thank you Chevyboy for responding/ I was first diagnosed with DCIS and now with ILC- both early stage so I was hopeful- now that I have pain it's a daily reminder that I had/have BC- am confused and am waiting for it to come back- any suggestions for helping me to put it behind would be appreciate
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A greater poverty than that caused by lack of money is the poverty of unawareness.Men and women go about the world unaware of the beauty, the goodness, and the glories in it.Their souls are poor.It is better to have a poor pocketbook than to suffer from a poor soul. - Jerry Fleishman
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Nanagirl, so sorry you're having all this misery, thanks to bc and treatment. You may not be able to tolerate arimidex. That would not be uncommon. Discuss the situation with your bc dr. or drs. In some cases the side effects lessen. In some cases, the se's come and go or get worse. There's no definite pattern. Sure hope you get to feeling better.
I slept late and am having my first cup of coffee. I plan to go to the gym this morning for the first time this week, thanks to being ill and then recovering from the intestinal virus. This afternoon I will go to visit my mother at the nursing/rehab facility.
Bonnets, I agree with your decision about the GB surgery. You can always reschedule if the need arises.
Happy Saturday.
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Nanagirl, WELCOME and we are glad you found us. All of us here are young but have had that nasty interference called a cancer dx. I took Arimidex for 5 yrs. and did ok with it. Had a few issues when I was switched to generic Arimidex which is Anastrozole for about three months. So --- I was wondering how long you have been on your Arimidex. Sometimes after a while, our bodies seem to adjust to this medication. Sometimes some adjustments can be made. Maybe a better time of day when you take it or something.
That said, I do think a lot of Dr.'s just don't do a lot of research on some of the se's that come with these drugs for some patients. We are all different so our response can be quite different too. It may take some trial and error, but you are ultimately in charge. I hope either time or some adjustments can make a tolerable difference for you.
ChiSandy, I got a big kick out of your description of how some of the drugs we use work. You are very knowledgeable about them.
Raining out this morning, finally. We knew it was coming -- just not quite when but was cloudy most of the day yesterday. It will be cooler for a while and then re-warm as the rains slide out of here.
Going to work later. Don't know if I mentioned here that my little friend is back in the hospital with a UTI . Mainly just age related. So, today is the 6th. day. She will I think ( when her Dr. decides ) be transferred back to the same nursing home/rehab wing where she was the first time around. I do get more work as it is usually daily until she is back home. Good for me, bur I'd much rather she be ok.
Jackie
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Mornin all
Welcome Nana. What type surgery did you have? I had a BMX, with no recon. About a year later, I had a second surgery to remove the pockets under my arms. They were so painful, I had to wear a sports bra to bed at night to keep them compressed. I am not sure if they would be classified as seromas. I developed lymphedema after surgery, and I don't know the difference between that and seromas.
Reading about the car issues, I couldn't resist sharing this. I have 2 cars- one in Fl, one in Ga. I bought them in 2013 and I am now kicking myself for buying two different makes and models. Each time I go from one car to the other, I have to relearn how to use the radio, the GPS, etc. And to make things even more confusing I switched them around last Thanksgiving. Right before I switched them I did something with the Bluetooth phone connection in one car that changed the voice to French. I know sort of know what she is saying but she doesn't understand my directions, and keeps asking me to respond in French. I have no idea what I did or how to fix it. My SIL and I sat in that car for over an hour yesterday, with the owners manual. We tried everything. I came in and went to the manufacturers website to see if the had a support or help tab. The only thing they had was an email address. So I sent off a tense email, telling them I needed end help now! I went back outside to tell my SIL that I had sent an email to Rosen Electronics because the website didn't have a phone number. He has a way of looking letting me know I'm confusing him. Then he said "Why did you send an email to Rosen? This is a UNAVI system." I knew that, I had the UNAVI manual in my hands. Can I blame it on chemo brain two years After chemo?
Everything else seems to be okay otherwise. One of my long-time friendsalso has a daughter living in GA. The girls were best friends starting in middle school. Anyway, Jo texted me Thurs, asking when I was going to be in GA again, she was coming up yesterday. Since I am already here, we will meet this week for either lunch or dinner and a movie.
Anne
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Hi Anne- I had lumpectomy both times/ it was suggested that I have a double mastectomy with reconstruction but I didn't want to go through that and thought I could decide at a later time to have it done- I can't imagine going through reconstruction now/ I'm close to 68 and thought about a mastectomy without reconstruction but read about other issues I can have- all genetic testing I had came out negitive (25 genes) so I guess I'm just taking the less extreme approach/ I'm on generic Arimidex so if SE continue thinking about possibility of trying another manufacturer but I guess the SE are showing me that the drug is in my system - maybe I'll be one of the women whose SE decrease over time- as far as cars go I drive older models so I'm not confused going from one to another anymore/ I hold on to cars for yrs- couldn't imagine going keyless- have a nice da
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Nanagirl......Sorry about the pain.... I wouldn't take any of those strong prescribed pain meds, unless you can't stand it... Take something like Aleve.... That's what I did...
Nah, don't wait for it to come back.... You COULD get something worse... I fell and broke my hip.... lost my hearing.... and I'm still here! Do something everyday, to take your mind off of yourself.... I mean go for a walk.... Go to Starbucks.... find someone to have lunch with, or go to a movie.... Don't let this run your life....
Jackie says we are all "young".... Hah! If 78 is young, then yes I am! But I sometimes don't "FEEL" like it...
Yes.... Arimidex worked for Jackie, but sometimes, after putting up with barely being able to walk, it might not be for you. Carole is right.... You don't have to take something that causes you to be miserable....
YOU decide what is best for you.... I mean people take those meds all the time, and either don't get cancer, or they do.... I had my diagnosis when I was 72.... about 6 years ago! And I only took Tamoxifen for 1 1/2 years... stopped after it caused a small stroke and I lost most of my hearing. BUT I didn't get cancer again.... after stopping Tamoxifen.
So see? Now I'm out in my gardens, or shopping, or just doing things we WANT to do! Our life-style changes.... like our eating habits.... like what we don't WANT to do, compared to when we were younger. We can say"no" when we don't feel like doing something....
But we go on! Life could be so much worse.... So enjoy ever minute of every day! Even if you have temporarily lost your "mo-jo"..... So now I have to go up-stairs to finish the room up there, for when our Grandsons come stay with us! Make the pull-out sofa, fix a snack-tray, and run the vacuum! YOU know.... important things!
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Chevyboy thank you for helping me put things in perspective - I need to think straight again-
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Chevy, I love your spirit. Nothing gets you down for very long.
My workout at the gym was short. As in nonexistent. There was NO parking space!! Cars were parked up and down the street leading to the parking lot. In addition to T-Ball games, the YMCA was having a garage sale. I will have to go earlier on a Saturday and beat out all those parents with kids.
I came back home and looked up a pancake recipe and made pancakes for breakfast. Now I'm getting laundry done. It's a muggy day with air so heavy you can scoop it with your hand when you walk outside. Time to leave Louisiana and go to MN.
Hope the rest of you are enjoying crisp air.
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Carol.... You know what we think is best? The frozen waffles and pancakes!! I KNOW the time-consuming homemade buttermilk ones are supposed to be better, but if you put on enough butter, fresh cooked berries, syrup and sour-cream, you can't tell the difference anyway!
Nana.... you are still just scared.... we all have been there, and know the feeling.... BUT, I was more afraid last month, when I got sick with Bronchitis & Asthma.... PLUS I think fooling with the next-door chickens in their nasty coop for over a week helped me get this OTHER fungal thing from the droppings and hay.... So no-more chicken-sittin' for me....
I am just NOW feeling good again! We don't like being feeling sick and puny.... and depressed and morose.... I know that's a word......
Take good care gals!
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HI peeps, I've been off a while, dealing with Passover and focusing on my job because I had a poor performance review. My boss is my coach and what we've been doing is working because I got a bonus check. Taxes take almost more than half; it's so pathetic.
I'm listening to a Prince CD; I'm so saddened by his death. He helped me through some difficult times in my life; his music just makes me wanna dance and laugh.
My newest situations are: I went off Anastrozole because it made me manic for 4 days and I couldn't sleep or eat. I'm starting to eat more plant based foods and walking a little bit. Next, I'm going to look into essential oils that help prevent cancer, like francincense. At the Passover Seder we went to, my friend's best friend is into essential oils and using her blender to make green drinks. I'm hoping to get together with them again soon to learn more.
This week I noticed that the "hard" skin over my incision is increasing from the right side to the front. I'm calling my nurse advocate next week about this. Not sure if it's seroma or whatever it is. I just looked the word up and am not familiar with it.
I'll try to be better about poppin in to see how you all are doing.
Sandy, it's so cool you're doing breastcancer.org concerts. I'm going to a Cancer Center in Geneva called Living Well for counseling and some classes and just had a massage. It was wonderful.
Have a great weekend.
Linda
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Thank you Anneb1149 for the welcome! So glad to hear that Anna & baby should be fine. That is a scary thing for sure.
Thank you ChiSandy for your kind understanding. I have felt SO much better these weeks off the Femara that I have hope a new med will work better for me. We'll see Thursday what the Dr. says. Can't get a prescription filled until after I get the Part D Medicare complete but that shouldn't be long after I turn 65 Tuesday. (Love the Twinkies analogy!)
Has anyone here had DIEP Flap reconstruction? I watched it performed on YouTube and it was pretty scary but I haven't ruled it out. Could surely use the tummy tuck! I've read about so many failures concerning implants but know many of you have them.
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Hi Nanagirl. I'm new here too. Was on Letrozol for 3 1/2 months and then 3 weeks ago experienced all over body pain with severe mental problems - depression. I just couldn't take another pill so went off the meds and am doing SOOO much better! Maybe your meds causing the arthritis pain? (I have degenerative joint disorder). I used to take Celebrex for the DJD and it worked like a miracle. Then I'd read it can cause heart problems and with my Dr's permission weaned off it and amazingly was ok. BUT - when this pain hit I found my old bottle (yes I know you don't do that, but I was desperate) and the pain had been drastically reduced. I will discuss the going off Letrozole and getting a new med Thursday and see if I can continue for now on the Celebrex. I'm so sorry you're having such pain. See what your doctor says and hopefully he/she will have a solution for you. Anyway - welcome from one newbie to another!
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I deal with the joint pain from letrozole by continuing my long-term routine (ever since a muscle tear over a year ago) of two long-acting Tylenol at night and a Celebrex in the morning (actually, generics of both drugs). Haven’t had any mood problems yet.
Linda, sorry to hear about the anastrozole effects. Have you discussed another AI (letrozole or exemestane) with your MO? They shouldn’t interfere with your current meds (e.g., tamoxifen and certain SSRI/SNRII/SNDRIs interact badly--those antidepressants interfere with the pathway by which tamoxifen blocks estrogen from getting to the tumor cells’ receptors--but AIs work differently by interfering with estrogen production). And the difference between a seroma and lymphedema is pretty huge, although the former is a risk factor for developing the latter. Seromas are essentially serum (the clear fluid in blood) with a little blood and maybe lymph, that fills the space left empty inside solid tissue after something has been surgically removed or there’s been some kind of heat or friction--a blister is a sort of skin seroma on a much smaller scale. Seromas always go away--sometimes quickly, sometimes slowly. The only relationship they have to a SNB or ALND is that they form in the space where the lymph nodes were removed. Try to be patient and avoid irritating yours (easier said than done).
Lymphedema results from the lymph system being compromised because nodes have been removed. It is lymph fluid that has been directed from the cluster of nodes of which one or more are missing, to an area subject to some sort of physical stressor (heat, pressure, injury, skin break, etc.). It seeps from the lymphatic vessels (similar in structure to blood vessels & capillaries) into the interstices between cells in the tissues in the area that has been stressed, in order to surround and immobilize the injury (or perceived injury), sort of like Nature’s splint. But because there are lymph nodes missing from the cluster to which the lymph fluid would normally flow back upstream after the stress has abated, the lymph fluid tends to pool in some of those interstices downstream. Once you have it, you have it forever and can only manage flareups and try to keep the condition from progressing. The only way to reverse it is a delicate surgery that transfers lymph nodes from a part of the body where they’re less-critically needed. It’s controversial, doesn’t always work, and is a last resort--almost never done when only a few nodes were removed during SNB or ALND. Lymph fluid is neither blood, serum, nor water--it is a separate fluid containing proteins and immune cells.
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Nanagirl, Several different manufacturers make generic Arimidex. Sometimes the other ingredients are the problem and switching to a different company helps. Also the people who make the brand name stuff have a patient assistance program which helps you get the brand name for as little as the generic. When I started taking the generic, I couldn't stay awake. So now I take it at night along with Claritin, which seems to help with the joint pain. Claritin is an antihistamine. Be sure not to get the decongestant one, just the plain.
And to second ChiSandy, getting help for depression is a good idea. Counseling and a temporary antidepressant can get you out of the hole and then you can carry on without more help. If you need to keep taking the medication, so be it. All it does is make you your normal self again.
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Anyone know why or how Claritin (loratidine) works on bone pain? (Obviously, it’s an off-label use). If it works via the same antihistamine pathway as the other non-drowsy 24-hr antihistamines such as Zyrtec (cetirazine), maybe that’s another reason I’m not getting bone pain from letrozole: I’ve been taking a nightly Zyrtec for years. (I like it because it works better against pet dander than do Claritin or Allegra, aka terfenadine).
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Hi everyone-I am in the "scared period" but reading your posts I am feeling better- thank you for all of the information- hoping each day will be better than the day befor
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You guys, Nanagirl is scared.... gotta let her know we are all around her. It's okay to be scared... I remember hearing those words.... "Well it lookslikereastcancer,butwewilljusttakeitout, youwillgetradiationand be donewithit.! And it zoomed around in my head, and I went back to put my clothes on, and hit my head on the wall a couple times.... I WAS SO AFRAID!!! But then I couldn't show it.... because I didn't want my Husband or girls to know this... So I talked about it as if they were going to remove a toe-nail! Seeing everyone around me more relaxed, made ME feel better!
ChiSandy... So interesting to have you explain Lymphedema... I just had 3 nodes removed during CA surgery... but then about 3 years later, I fell & broke my left hip... same side as surgery... They put the rod & screws in, and doing okay, but I SWEAR, since then I have Lymphedema in my lower leg, around my ankle! I have to wear the compression stockings, and it doesn't swell or hurt unless I am on my feet a lot. It CAN'T be just "Edema".... And if I slowly and lightly massage my leg, starting at my ankle, and moving up my leg, the pain goes away! Most of the time I sleep with the stockings on.... and my ankle/leg doesn't swell. !!
I just didn't know you could get Lymphedema years after having nodes removed... but all that mess with my hip, probably brought it on...
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