Can we have a forum for "older" people with bc?

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited December 2014

    GG,

    Just saw your good news.....Fantastic.  Hoping for an decent result and easy fix for your next tests. 

    I'm looking forward with high hopes that everyone will have a good New Year's.  I don't really do resolutions.  In fact, it has been a few years since I even bothered to think of days gone by when we simply had to do something special for New Years -- and sometimes it was just going over to someone's house.  Now -- I'm far too "sleepy" far too early to wish to do much but just veg out in my own living room and trot off to bed almost the first moment my eyes blink twice in a row.  It's safer, you never have a hang-over, and no taking two days to get yourself back realistically feeling good and more or less wide awake. 

    Sort of makes you wonder why you ever bothered making it such a big deal.  The first couple of times you do it "like" an older person it makes so much sense you just don't ever want to do " the routine " again.   It is for young or maybe I should say younger people.  They can tolerate the loss of sleep and though the hangover may go down hard, it is forgotten soon enough -- or maybe remembered REALLY, REALLY well  so there is lots of care and caution used the next year -- or even the next party.

    Anyway -- I'll be back tomorrow.  See you then.

    Jackie

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  • carolehalston
    carolehalston Member Posts: 6,887
    edited December 2014

    Garden, GREAT news!!!  I'm happy for you!

    Cammi, I'm so sorry about your brothers.  Hoping for the best outcome for them. 

    Rita, how wonderful that you're going to FL for 3 mos. this winter.  I know you and your dh will enjoy yourselves.  Where in FL?  DH's sister and her dh (live in Decatur, IL) have a condo near Naples and they've been having good weather. 

    DH and I will stay home tonight.  One couple we enjoyed going out with have moved away and another couple is out of town.  Plus I would just as soon not spend a lot of $$$ and eat and drink a bunch of calories.  We'll be in bed before midnight. 

    I cancelled on golf today because it was cold this morning, high 30's, and the golf courses at our club are wet from all the rain.  But I may play tomorrow.  It will warm up and maybe the ground will have gotten drier and firmer. 

    DH will be playing golf shortly before noon today.  So I have a whole day to do whatever.  It's bright and sunshiny outside.  Jackie's kind of weather! 

    Sandra, I am concerned about your dh.

    Happy New Year's Eve to all my oldies friends!!!!

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  • MomMom
    MomMom Member Posts: 523
    edited December 2014


    Garden gumby, Congratulations!!!  So, so happy for your good news.  Sandra - you and hubby in my thoughts and prayers.

    May this be a happy and healthy New Year for all of us!!

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited December 2014

    Sorry i cant comment on individual posts, hope u all have a wonderful night whatever u decide to do..

    image

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  • ritajean
    ritajean Member Posts: 4,223
    edited December 2014

    Taking a break from packing and just had to jump on and see what everyone is doing. Every time I think I am getting close to being finished (except for the last minute things) I remember something else that is important.

    Carole, we are going to Cape Coral, Florida. This is our third year on the Cape. Before that I went to Fort Myers Beach. I loved staying right on the beach but the traffic was terrible getting on and off the island. We still like to go over there for a day and do the beach and the shops. There are many fantastic places to eat there, too. Naples isn't too far from us and we always go down to the big golf pro shop there a couple of times each trip. This cold temperature snap has me ready to go!

    Sandra....sure hope hubby is doing better! I am hoping that his news is good!

    Well I need to organize my golf things next so I'm off and running again.

    HAPPY NEW YEAR to all of you!


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  • sandra4611
    sandra4611 Member Posts: 2,913
    edited December 2014

    Sweet Blondie, what a lovely sentiment. Thanks for posting it.

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  • MagicalBean
    MagicalBean Member Posts: 362
    edited December 2014

    Blondie-you made me smile, with a tear in my eye. Thanks

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  • carolehalston
    carolehalston Member Posts: 6,887
    edited December 2014

    Love your post, Blondie!  What a true message! 

    Hope you have a safe trip, Rita.

    Happy New Year's Eve!

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited December 2014

    Blondie,

    I too am very moved by the words in your graphic.  I have had the good fortune of meeting a large group of BC. Org people from another thread -- the one that Rita started a long time ago.  It was a great treasure to me, but only in that I did get to see these people.  The ones here that I interact with on a daily basis here are just as real, just as wonderful and just as caring.  I can't say either group comes first -- they have equal importance to me and both mean as much as the other. 

    Rita,

    Isn't this the pits.  Oh my --- I don't like the cold snap at all.  Even though we already had two snows -- I rather expect things to be a bit dicey at that time.  Somehow stepping outside this morning just seemed nearly brutal, with no real good reason.  We were fortunate to have sun all day, but it was only mildly better later on in the day.  Hoping this will only have a few days duration but who ever knows with the global warming just how things will go.

    Got a couple days off to nurse my back a bit.  Hoping I get it under control.

    See you all later. 

    Photo 

    Blessings

    Jackie

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  • gemmafromlondon
    gemmafromlondon Member Posts: 138
    edited December 2014

    Thanks ladies for welcoming me. Doing better now and feeling a bit more normal after the massive dose of penicillin that went down my throat to sort out the infection and dodgy suture. One question to you all if you are on Femara or other aromotase inhibitors have you noticed any change in your body odour? I think I smell horrid and cannot think what else could be causing it. I get very bad hot flushes (they are called flushes not flashes in the U.K) so this med certainly is having a big effect.

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  • sandra4611
    sandra4611 Member Posts: 2,913
    edited January 2015

    Mike's hematologist called. The tests are back and he does have Myelodysplastic Syndrome (mi-low-dis-plastic) which is a type of bone marrow cancer. He spoke with her so I didn't get a chance to ask her any questions and Mike didn't understand much of what she said. He said she was upbeat and said that we would discuss all the details as well as when or if chemotherapy and other treatments are needed at the appointment with her next Wednesday. It must have been caught early because she said there are lots of things that can be done at this stage and he shouldn't think anything but positive things will result. He doesn't seem scared. He said, "Well, whatever it takes, I'm going to beat it." The National Cancer Institute articles say depending on the staging, which we won't know until next week, the median life expectancy is 12 years for the lowest stage and the next stage is 5.5 years.

    This is worse than getting my own diagnosis 16 months ago but I'm glad I have all of you. He doesn't want to tell anyone, which is of course his choice. He doesn't want me to put it on Facebook or tell our friends so again, I won't. But I needed to tell you.

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  • Wren44
    Wren44 Member Posts: 8,585
    edited January 2015

    Sandra, Thanks for sharing here. This was my only outlet since I only told a few people about BC. Hugs for you. Is this what some TV person had last year? Robin Roberts maybe? I'm sure Mike will beat it. He's way too tough not to and has a great attitude. Perhaps when he has more information he'll be willing to share with some people. I'm sure you have friends who would support you both if they knew.

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  • Teka
    Teka Member Posts: 10,052
    edited January 2015

    Sandra, yes we're here, and Mike probably needs time to work through information.

    *Hugs*

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  • Teka
    Teka Member Posts: 10,052
    edited January 2015

    Cami, hope brothers are feeling better!

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  • Teka
    Teka Member Posts: 10,052
    edited January 2015

    Gardengumby, pleased for good results.

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  • Teka
    Teka Member Posts: 10,052
    edited January 2015

    Blondie, Thank You for a pleasant New Year's Eve!

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited January 2015

    Sandra.

    Well, was hoping for better news, but in fact, it doesn't really sound 'dire'.   I do though think ( as Teka mentioned ) that most of us  needed some time to digest the information that we were fine yesterday more or less and are walking around today with a REAL cancer inside of us.  It is daunting -- even when you have some suspicions from what you were told at a previous Dr.'s visit.  In time.  I do think too with a strong and positive attitude -- you start out from the get-go with all systems on go and hopefully things will go well for Dh. 

    I use to say positive attitude all the time -- then someone said to me that does nothing.  Well, for me I think my "mind-body" connection needs to hear it.  I look for the bright side and the good answers and live with higher hope and great expectations -- if they don't show up -- well then it was meant to be, but I'm going to be ready for not just good, but great.  .

    gemmafromLondon,

    I thought we had lost you, but glad to see you are back. I had Arimidex when I was taking the pill and as far as I know had no odors.   I never noticed anything and no one else ever said anything.  I think I have heard this complaint somewhere though -- I just don't know for sure where!!!!!!  Maybe there might be a way to settle the effects of your medication down -- you could check with your Dr.  Taken at a different time or maybe a way to adjust the dosage -- but that would all be up to your Dr.  

    Hope you keep doing well  and will come back to see us.  As this is New Years Eve, don't know how many people may be on here this evening. 

    Jackie

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  • blondiex46
    blondiex46 Member Posts: 5,712
    edited January 2015

    I am here not going out anywhere 

    Sandra, sorry bout mike but at least u know, we r here, let us know what u need

    Jackie hope u r back is better

    Happy newcyears to all.

    Hey there teka

    Welcome gemma

    Wren...hugs

    Sandy

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  • sandra4611
    sandra4611 Member Posts: 2,913
    edited January 2015

    Wren, yes it is what Robin Roberts had. I've been reading everything I can find for a couple of hours now. Bad news: there is no cure EXCEPT for a bone marrow transplant. Good news: even with a more aggressive type, it often can be managed with chemo & meds. In some lucky cases all the patient needs is regular blood transfusions for life. We won't know what category he falls in until next week but we have every reason to be hopeful.

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  • gardengumby
    gardengumby Member Posts: 7,305
    edited January 2015

    Ah Sandra, so sorry to hear the diagnosis, but glad to hear that there are treatment options.  Hoping that he has the least bad kind  :(

    On a happier note...

    Happy New Years to everyone.  Hoping the new year brings everyone as much happiness and as little sadness as possible.  You are all in my thoughts.

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  • Di2012
    Di2012 Member Posts: 925
    edited January 2015

    Sandra, So sorry to read of Mike's DX.....Did he ever have chemo or radiation? Meeting Mike last fall I know he is a tough guy and will fight when he knows his path of healing. For bone marrow they have found that siblings, not children are a better match.

    I was told by my Hemo/onco that he thought I had MDS and gave me a booklet on it, this was in Oct 2013, I ask what are we going to do about it & his reply was "Watch & Wait"........(that I later found out is what they do fo early stage) I waited 8 full months before I had my bone marrow biopsy and bone marrow aspiration and was sign up to go to a MDS symposium in Seattle at Fred Hutchison Cancer research Center. I cannot tell you how much I learned about this disease.....I begged for a blood transfusion and he said no,,,,not yet.....my RBC was 3.2.......it turned out I did not have it or leukemia......but called me a mystery........since I never had Chemo or radiation,,,,which can cause it.

    A good source of info is from the MDS foundation.....in washington, DC.....they sent me a very large packet of info....it took almost a month to receive it.....(the website is not so great)

    Sending hugs to you guys!

    Love,

    Di





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  • Di2012
    Di2012 Member Posts: 925
    edited January 2015

    GG........great new on your CT and bone scan.......YEAAAA!!! Just tne "roter router" scope at both ends left to go.....The prep was the worst part for me in November.

    **********************************************************************************************************************

    I had 2 CT scans within 3 weeks and a Dexa scan....Yikes....I must have been glowing too!

    "Still waiting for the results of my echocardiogram that was done on the 22nd of Dec.....last week my doctors nurse said she the doc would call on MONDAY sinceshe was off last week......no call.....no...no call on Tuesday......I called again today and never heard from her or her nurse today.....I am scheduled for a 4 1/2 hour revison surgery on January 20th....but NOT it my heart can't take it.....so I would really like to know.

    Happy New Year!

    Hugs,

    Di





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  • Teka
    Teka Member Posts: 10,052
    edited March 2015

    I'm staying up until the ball drops in times square!

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  • Teka
    Teka Member Posts: 10,052
    edited March 2015

    Happy New Year from the North Country!

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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2015

    Sandra - Sorry to hear the news of Mike's diagnosis but it does sound like there are some good options for treatment. I too told very few people so like Wren, this site was my outlet. We'll all keep sending prayers & hugs.

    Di - how crazy is that to wait for an echo!! They know the darn answer by the time they finish the test. Hope the results are good.

    Happy New Year to everyone. The posts are lovely.

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  • Di2012
    Di2012 Member Posts: 925
    edited January 2015

    Crazy....Yes Minus!

    I had a silent heart attack sometime between my BMX and my first revision in July 2013 and the echo was to find out how much damage it did to my heart.Can't understand the secret!

    Di




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  • AussieSheila
    AussieSheila Member Posts: 647
    edited January 2015

    Happy New Year from Down Under ladies, I hope it comes with the seeds of all your dreams and brings you flowers by the end.

    Gemma, I have been on most of the A.Is and found that I could smell a weird odour on my body in the morning after hot flushing all night long. It doesn't leave in the morning either, nor does cold weather stop it from happening. I found that cool showers were the only antidote and a body spray afterward or....change meds, which my Onc didn't agree with.

    Being English born myself, it could be some genetic abnormality of sorts.

    Sorry that's all I can suggest, maybe someone else will have a solution for you soon.

    Sheila.

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  • MomMom
    MomMom Member Posts: 523
    edited January 2015


    Di, Hope you get good news on your echo and can proceed with your operation. 

    Sandra, so sorry about the diagnosis for Mike, but good news that his doctor is so optimistic.  We are all individuals and many of us diagnosed with any kind of cancer can do amazingly well.  If I've learned nothing else from reading posts on various threads during this past year, I've learned that. 

    Blessings to us all in this New Year.

    Paula

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  • MomMom
    MomMom Member Posts: 523
    edited January 2015

    PS - Jim and I are at our beach rental house in the Outer Banks of NC celebrating the New Year with kids and grandkids.  We are dreaming of going someplace warm - maybe somewhere in Florida? - when it's cold in Northern Va during Jan.  I'm looking at your comments Rita - never been to Naples, but everyone seems to love it.

    PPS - Blondie - Lovely, lovely post. 

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  • Puffin2014
    Puffin2014 Member Posts: 961
    edited January 2015

    Happy New Year to everyone, here's hoping for a healthier year for all of us.

    We went to a friend's house to celebrate last night, lots of good food and laughter. After all that good food I'll be putting my new FitBit to good use.

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