Can we have a forum for "older" people with bc?

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  • MCBaker
    MCBaker Member Posts: 1,555
    edited March 2019

    Elderberry,

    I am 69, and six months have passed since that mammo. Can I blame mammograms?

  • nanette7fl
    nanette7fl Member Posts: 469
    edited March 2019

    Hi elderberry and welcome. Sorry you have to be here but I know you'll like this lively group!!

    CarolH I hope you have a wonderful evening out with your hubby!! What a nice treat

    Keywest glad your feeling better! Honestly I loved your after surgery note...made me giggle

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2019

    Elderberry -- I like your name too/two. Had to stop and think what it actually made me think about which was believe it or not, gooseberries. They are something I really love, but if you accidentally try a green one your mouth won't recover ( un-pucker ) for a month. Anyway I am glad you found us and hope you will check in a lot. Don't tell anyone, but we do talk about ' you know ' the c word here now and then. It is a great place with wonderful people and has been on my favorites list for a very long time now.

  • Beaverntx
    Beaverntx Member Posts: 3,183
    edited March 2019

    Elderberry, welcome. Let us know how we might help on your journey. Great place for support and information.

  • jo6359
    jo6359 Member Posts: 2,279
    edited March 2019

    elderberry-welcome.

    Carolh- enjoy your night out on the town.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited March 2019

    Welcome, Elderberry, from one 68-yr-old to another.

    Keywestfan, might I interest you in some gelato at Frio next door to Blind Faith after lunch? I’ll PM you when I get back to Chicago.

    NOLA seems to have the same crappy weather right now as S. Central TX, though it did dry out today and might hit 65 tomorrow and 70 on Monday. We’ll be flying home Tuesday night to temps in the 40s, which is an improvement over the last couple of weeks.

    Had a personal best yesterday: “closed all the rings” on my Apple Watch, in fact overlapped them (activity, exercise, standing). 12,000 steps—never did that before! (Of course, reaching Midway at 6:30am might have had something to do with that—I normally sleep till the crack of...10am). Did the Irish Channel St. Patrick’s parade this afternoon, which was a hoot and a half

  • keywestfan
    keywestfan Member Posts: 338
    edited March 2019

    ChiSandy- you’re on for Frio. Actually, though I was at Blind Faith tonight-not exciting- and am often at the Murphy Fit? shoe store, I’m a Frio virgin. I have the first Apple Watch, but never really got the hang, because of having to have my iPhone on all the time to connect with it. Prefer the Fitbit Charge 2, but then I’m way behind in knowledge about newer Apple Watch versions. Will show u my Fitbit if you’ll show me your watch. Enjoy the rest of your time in warming up NOLA

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2019

    May God grant you always...
    A sunbeam to warm you,
    a moonbeam to charm you,
    a sheltering Angel so nothing can harm you.
    Laughter to you.
    Faithful friends near you.
    And whenever you pray,
    Heaven to hear you.
    - Irish Blessing

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2019

    There is a lovely sun outside and it will be another gorgeous day. Our temps. appear to be holding well and will see an increase starting soon. Definite that Spring is doing all it can to work its magic. It is my time of yr. Our Rec Center is closed on Sunday so I will likely take a walk around here and there outside today. We have very light traffic out here in our area so it is an almost perfect place. As well some gentle inclines here and there to 'help' you work just a little. Not too strenuous, but putting some challenge, even if small. We use to try and walk a couple miles a day, but haven't done that for a long while. I'm not sure Dh could do what we use to and not sure I could either though it would be much easier for me I do think. I'd have to work up to it though.

    Will go back to do Buddy and Mooch and at some point my trip to Walmart will have to take place. Sigh !!! At least as of late I've not had to go everyday so I guess I shouldn't complain.

    I hope you all have a stunning day. Heart

  • Elderberry
    Elderberry Member Posts: 993
    edited March 2019

    So good to hear from all of you ladies. It gives me a little courage. I go between optimism and despair. Awful to think "Just give me those five years" I will post as I journey down a path no one should have to travel. Waiting to meet with oncologist soon. Just diagnosed so it is all new. Happy to be a Canuck so health care/costs is not looming on top of everything else., Nice to hear you like my name! I already feel I have some friends out there --- but so lucky to have good friends and family here as well.

  • Wren44
    Wren44 Member Posts: 8,585
    edited March 2019

    Elderberry, Your age is an asset. It seems to be worse with young women. I was 71 at diagnosis and have completed 5 years of anastrazole with very few side effects. Do you have a plan of action yet? That was the worst time for me, waiting to see how serious and what would happen to treat it. Once there's a plan it's just one step in front of the other until you're on the other side and trying to get back to normal. Are you in eastern or western Canada?

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2019

    Material possessions will rust away, wear away, or depreciate, but your inner resources—character—must never depreciate. In seeking success you must also seek fulfillment. Ask yourself not only what you want to be, but who you want to be. -Elizabeth Dole

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2019

    We are having such lovely days now. I know at some point more rain is likely to come, but it does seem that ( save for nights ) that the temps. are fairly good now and don't dip like they were, going from extreme to extreme. They now seem to inch upward more than anything. 51 degrees today and come week-end time about 10 degrees higher. I can do that easily.

    I hope you are all going to have a beautiful day.

  • Tappermom383
    Tappermom383 Member Posts: 643
    edited March 2019

    Elderberry, I’ll add my welcome to everyone else’s. The wise women on this forum have been of invaluable help to me. I was a bit older than you - 70 - when diagnosed two years ago. I was already going to fitness classes and continued to go except for a couple of weeks after my lumpectomy. Those classes have made me so much stronger - my surgeon and RO were amazed at how well and quickly I healed!

    Best of luck to you as you begin this adventure that no one wants to go on. Keep us posted - we’re here for you!

    MJ


  • carolehalston
    carolehalston Member Posts: 6,887
    edited March 2019

    Hurray for the no-rain forecast this week. Maybe our yard (and the golf courses) will dry out enough for walking on them.

    Off to the gym this morning.

    Such a lovely post, Tappermom.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2019

    Life is made up of a series of challenges designed to bring us
    to fullness of growth. Meeting them with hope in the future
    is the real test of the spiritual person.

    Joan Chitister

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2019

    Some sun this morning, but it has been muted. We may have clouds enough to keep it muted too. I just hope to have some sun even if it is not too bright. Hoping for it to stay dryer though we could get some rain tonight. Maybe this afternoon I'll do some little bit of yard work. Those leaves could use some mulching. Hopefully we won't get a rain that pours and washes out any freshly un-covered lawn.

    Anyway the week-end ( 60's warm ) will be nice and offer some time I think to work out of doors. Will be doing 7 more days of my cat sitting.

    Hope all of you have a wonderful day.

  • pingpong1953
    pingpong1953 Member Posts: 362
    edited March 2019

    Elderberry, as you can tell by my signature I'm a Canuck too. Where are you located?

  • jo6359
    jo6359 Member Posts: 2,279
    edited March 2019

    A rare day in Miami. Heavy Rain and cloudy all day. If the rain diminishes this evening I'm going for a run. I love running when there's a light rain. My flowers are loving this rain.

  • Sueter
    Sueter Member Posts: 3
    edited March 2019

    I have a med onc, radiology onc, and a surgeon. Don't misunderstand, they are all wonderful but my personal opinion is things would be more consistent and easier to deal with - with one doc in one location. Just saying.

  • jo6359
    jo6359 Member Posts: 2,279
    edited March 2019

    sueter- I agree with you. Wouldn't it be wonderful to have only one physician to take care of all of her needs. I was fortunate my primary, breast surgeon, oncologist and PCP for all in the same building. Today was my last day at Mount Sinai Medical Center because my insurance refused to renew their contract with Mount Sinai. So I have to diligently find another facility. The negative is the list of providers are rated very low in terms of cancer treatment . Fortunately I'm only seeing my oncologist every 3 months . Im not allowed toself pay the doctors because I have insurance. I cannot switch my insurance until January 1st of next year. I will find a solution to this problem. When life gives you lemons it's time to make lemonade or a nice glass of wine. Have a great day

  • Elderberry
    Elderberry Member Posts: 993
    edited March 2019

    Pingpong195 -Wren44 -- I am on West Coast in Burnaby in a wonderful neighbourhood called The Heights. A six block "High Street" area on Hastings with everything you could possibly need. This forum has been a lifeline. I hear over 60 years is the worse time -- but then again -- if I can get 5-10 years out I'll be happy. I am getting better at not feeling totally out of control. I am HER2 + so I am terrified about how fast it can grow. What I can't believe is how big it got from feeling nothing lathering up in the shower to WTF! I see great results with women with 6+cm. There is a saying in the military that there are no Atheists in foxholes. I guess the same goes for us ladies. I belong to no particular faith but I believe in spirit and I do believe all my friends,sisters pumping out their versions of prayer/chants and even spells will help. If there is an upside from all of this, I have discovered how very loved I am.

    I now feel like I have new friends walking the same path. Will continue to post for your amazing support and to update on what is next. I am taking a close female friend with me to the oncologist. She can pay attention while my mind spins off into the ether. My husband would be as bad as me .




  • HikingLady
    HikingLady Member Posts: 650
    edited March 2019

    Sueter I hear you! I have a medical oncologist, had a breast surgeon (b c specialist) for BMX, and also a plastic surgeon for my care. I'm grateful that each one is a 10 min drive from my house. I chose them for how great they are, and also for being easy to get to.

  • nanette7fl
    nanette7fl Member Posts: 469
    edited March 2019

    I just got the call from my PS office. Now I'm crying... haven't cried in month. Tuesday April 2nd is my date for my cancer surgery. Surrendering murderous left to my BS and poor healthy rightie to get matched pair. PS will insert temp expanders and close me up. He uses air and not saline in expanders and said that his ladies have less pain, pressure and issues with the air

    So is it okay for me to be scared and worried now?? I feel like the reality bus just showed up and it's all becoming so very "real' right now.

    So much to do now pre-OP visits, blood work and pictures at PS office to boot.

    I need more tissues!

  • MCBaker
    MCBaker Member Posts: 1,555
    edited March 2019

    Question: Do you really want to sacrifice healthy righty just to get a matched pair? Remember the loss of sensation. That has been tough for me.

    I think air instead of saline at first is standard. It is lighter, therefore less stress on inflamed tissues.

    As for tissues, be glad you can cry. I cannot cry tears. I can feel like I am crying, but without tears.

  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited March 2019

    Crying is a good relief valve so have a really good one. Hopefully you will feel a bit more peaceful afterward. I think crying is like a really long walk. Your spirit and nature take over after awhile and you have the emotions, feelings and best of all information you need to move through whatever dilemma/dx exerted all the pressure, confusion and angst in the first place. It puts you in a much calmer place. Thinking of you Nanette and wishing you well.

  • jo6359
    jo6359 Member Posts: 2,279
    edited March 2019

    Nanette- when the procedure is over with all you are going to feel is incredible relief. If you feel like crying Cry Girl. I have to agree with Mary I can only recall crying twice during the past 15 months. There were times I wanted to but it just didn't happen. I think crying is a healthy release. I also struggled with removing a healthy breast but I have no regrets. I chose to remove the breast. So keep us posted. If you want to vent go for it.

  • Sueter
    Sueter Member Posts: 3
    edited March 2019

    My thoughts and prayers are with as you try to make sense of insurance, doctors and hospitals. Thank God for all of the advocates that came out of the woodwork when I first was diagnosed.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited March 2019

    I'm lucky that I have a great care team of med onc, rad onc (who "set me free" after those treatments were over) and breast cancer surgeon (just added an oncoplastic surgeon to reduce my "healthy lefty" to match the smaller but perkier-looking lumpectomied "rightie" this coming summer). It's possible these days to reconstruct after a uni mastectomy to match the healthy one as closely as possible--or alter the healthy one to look more symmetrical. I wouldn't ditch a healthy breast unless genetic testing indicates the need for a prophylactic mastectomy--you can always decide later to remove a healthy breast, but once a breast is gone, it's gone--and even the most skillfully reconstructed breast has no inner sexual sensation, no matter how it feels to the touch. (In fact, with a 2cm tumor, lumpectomy should be an option unless your breast is already rather small).

    One-stop shopping is fine if you can get all your care in one location--but each aspect of your care from a doctor who specializes in that aspect. Unlike having a family physician or general internist as a primary care doc, having just one "general oncologist" to handle surgery, radiation and pharmaceutical therapy is a terrible idea, one that IMHO hearkens back to a more primitive era of less effective treatment and poorer prognoses. You know what they say about a "jack-of-all-trades..."

  • keywestfan
    keywestfan Member Posts: 338
    edited March 2019


    ChiSandy. Welcome back from NOLA.

    So, day when the pathology report from lumpectomy came back. 1.9cm, stage 1, grade 2, Er+, Pr+,HER2-.All still the same from biopsy,except for one item which has me crazy “Lymph.Vascular invasion. Suspicious.” What do I do about suspicious? See MO for first time Thursday. Afraid and think he will say radiation, but at 85 in a few weeks, do not want to do that. Hoping for just the horrible, but good, Arimidex..Thought age was a benefit here with lumpectomy,no rad, no chemo,just arimidex for 5 years, but don’t know now.Am old, but in very good condition otherwise.And afraid of radiation


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