Who else?? 8 cm IDC 11/16 nodes positive

floydwarrior

Hi all-

I love this site but I am scared to see my diagnosis of 8 cm invasive tumor with 11/16 of my right side nodes positive seems to be rare. ( I AM GLAD I HAVEN'T SEEN OTHERS WITH THIS MAGNITUDE)

Is there anyone else out there with such a diagnosis and HOW ARE YOU!?!?!?

 I am starting chemo in 2 weeks.

KerryMac

Check out the Stage 3 Forum....loads of women in the same boat (unfortunately I am one...) and I have got a huge amount of advice and support there. I am pretty new to this too myself, but you will find others several years out and doing really well.

maryannecb

HI, yes come on over to the stage three forum...where women with larger tumors or many nodes...or both hang out.

There are many of us there who have finished treatment and still have NED(no evidence of disease) years later. Being ER/PR positive gives your docs lots of ammo.

My tumor was 9cm...

KerryMac

I was really freaked out when I first came here, as everyone else posting seemed to have these .009mm tumors, grade 1, etc, and I thought I had the worst cancer ever known to man. So it does help to get support from others in the same situation, and there are lots of us.

gardenbird

HI Floydwarrior,

I had a 2.5cm lump and wait for it - 22 of 24 lymph nodes positive.  When I heard the number first I refused to let the information penetrate my brain.  Now however after the whole works regarding treatment, lumpectomy, 35 radiation treatments, TAC x 6, and now tamoxifen, I am two years down the line and feeling great, though of course the fear of recurrence is always at the back of my mind.  I hope we will all be lucky and survive until a definitive cure is found.  The information on this board has been fabulous.

apple

I was in pretty bad shape prognosis wise at diagnosis... I'm IIIc and am tumbling into IV.  still, I feel great.  I had a 5 cm tumor to start with along with supraclavicular and axillary node involvement.  I've had a radical modified mastectomy, 8 rounds of dose dense heavy chemo, rads, and now I'm doing a short course of taxol (chemo) with avastin (to address the still angry outer nodes before starting on hormonal therapy.

i just carry on and pray we can keep this beast caged.  i don't have brain mets, as i thought last week.  that was tres scary.  in retrospect i feel tres lucky.