Just diagnosed with IDC

lemonjello

I live in the Buffalo area and I want to go to Roswell.  I'm glad someone here has talked about having a good experience there.  I went to a suburban doctor and I feel like a walking breast there, since the surgical biopsy and path report, I have not spoken with him.  All I talk to is the girls in the office or technicians and I saw a doctor today who told me to get a second opinion.

Please tell me more about your experience at Roswell.  Who is the doctor, what goes on...PLEASE i need info.

comingtoterms

Lemonjello,

I haven't checked the site for a few days and feel badly that you have been waiting for info.  I wrote a letter to an Amherst breast surgeon who was so unkind, indifferent and cold to me.   However, I did get into Roswell, met Dr. helen Cappucino, had a breast mri on the 5, am scheduled for a core biopsy on the other breast on the 10th and then will meet with kind, her again on the 20th. She is WONDERFUL.  As soon as I met her I knew that she was the doctor I would connect with.  I only wish she hadn't vacation plans before the 20th - it is a VERY long time to wait for test results and  to see her!!  I can offer only limited info, because I am really still in the same place you are, but Roswell seems like a comfort zone - it's what they do; they are cutting edge, heavily into trials etc.  I don't think any single breast surgeon in the area could possibly have the capabilities that they do at Roswell.  Call the Breast Clinic - average wait time for an appt. is approx. 2 weeks - they won't give you an appt. until they have ALL of your records - so be diligent in seeing to it that every pathology report, mammogram, ultrasound etc. is in their hands as quickly as possible.  I can't say enough for how Dr. Cappucino put me at ease.  I feel that no matter what the outcome of all these tests, , she will take care of me.

I wish you well and will make a point to check here every day to see how you are doing.

Tammy

kim40

I too have been d/x with IDC back on the 6th of January.  I had a mastecomy on the 13th (5 days before my 41st birthday) and received my path report on the 28th.  I still do not know the ER/PR/HER results as of yet, but I had 14/19 nodes affected and widespread vascular invasion which is scaring me to the point that I can't think of anything else.  I am scheduled for a CT scan on the 11th of Feb and bone scan on the 23rd.  I also am meeting with the rad.onc the same day.  To say that I am scared is a total understatement.  Everyone is trying to be so supportive.  I try to be strong but I have my moments when I lock myself in the bathroom and have a good cry.  Does anyone else have vascular invasion?