Past post from Beesie on understanding DCIS

anghub

bump!

catherine1028

Thank you dsj!! This will help me get through Memorial weekend, then on to my Oncologist visit next week.  I hope Beesie doesn't leave just when I get here. Much love and hopeful, Cath

Beesie

Bumping for nwshannon.

NotAgain2015

bump for notsure

dianef

I am confused...what's with all the bump??

prayrv

we post a "bump" to bump a thread to the top of the active threads

winter1NY

Have I missed something on my path report? I have been over them several times but can not find anything about HER status?? Path reads:   "Receptor studies performed on the duct carcinoma in situ are found as follows:

Estrogen receptors: 3+positive in 94% of tumor cell nuclei

Progesterone receptors: 3+ positive in 86% of tumor cell nuclei" nothing about HER??

Many thanks to all of you and especially Beesie for sharing her expertise; I have learned a great deal from all the posts.

AmyD

Bump

prayrv

Bumping to put back on page 1

prayrv

bump

rianne2580

NIH State-of-the-Science Conference:
Diagnosis and Management of

Ductal Carcinoma in Situ (DCIS)

Conclusions: The diagnosis and management of DCIS is highly complex with many unanswered questions, including the fundamental natural history of untreated disease. Because of the noninvasive nature of DCIS, coupled with its favorable prognosis, strong consideration should be given to remove the anxiety-producing term "carcinoma" from the description of DCIS. The outcomes in women treated with available therapies are excellent. Thus, the primary question for future research must focus on the accurate identification of patient subsets diagnosed with DCIS, including those persons who may be managed with less therapeutic intervention without sacrificing the excellent outcomes presently achieved. Essential in this quest will be the development and validation of accurate risk stratification methods based on a comprehensive understanding of the clinical, radiological, pathological, and biological factors associated with DCIS.

mom3band1g

If they change their minds and say what I had wasn't cancer....then I want my breasts back.

prayrv

I had no risk factors other than I did not breast feed my children and I am a woman.  My DCIS was low grade but everywhere in my breast by the time it was seen on mammo (only skipped one year when I was 42).  In that time it morphed into 8mm of IDC that was NOT caught on mammo, MRI, or Ultrasound.  It was only after my unilateral mastectomy that IDC was found. 

The definition of cancer are cells that change and grow uncontrollably(sp).  In My Opinion, (and my doctor's) DCIS Is Cancer.

I apologize for my soapbox but this is a touchy subject for me.  I only bump this thread as Beesie has such a wealth of information for all "newbies" that I feel very strongly that this thread should be at the top of the DCIS active topics.

beatingit2

I have DCIS grade 3 and I'm having a mastectomy next week.  I've been told I will not need radiation, is this because I'm having a mastectomy instead of a lumpectomy?

mom3band1g

beatingit2 - it all depends on your margins.  If you get good margins with the mast (and it's all DCIS) then you won't need rads.  If your margins are not good you may need rads.

prayrv

bump

Beesie

Bumping to the top of the "Active List" for those who are newly diagnosed.

CarylC

Thanks for all of this information but there's something that is confusing.  If you can't have DCIS in both breasts - or am I misreading that? - than why would they want to biopsy my microcalcifications in both breasts?

marie5890

Carly,

Yes a person can have DCIS in both breasts for sure 

Eloise

CarylC, what you might have been reading was that since DCIS is not invasive, it can't move from one breast to the other.  But you could have two (or more) separate areas of DCIS in both breasts at the same time, or get it in one breast first and the other one later....it's not the same cancer though. 

CarylC

Thanks!  This is all so confusing.  

Hindsfeet

This is an interesting educational video for newbies dx with dcis or breast cancer.

http://breast-cancer.supportgroups.com/sgv/breast-cancer/breast-cancer-pathology?utm_source=feedburner&utm_medium=twitter&utm_campaign=Feed%3A+supportgroups%2Fsupportgroups+%28Support+Groups%29&utm_content=Twitter

prayrv

Bump!!

prayrv

Bumping for the newly dx'd

sweatyspice

bump

LisaAlissa

This needs to get bumped back up again.

momma_of_3

Bump

kathyob

Thank you all for the wonderful information. It is wonderful to not feel alone in this. I have a question, wondering if you can help me. I was diagnosed in Jan '11 with DCIS, grade 2, 5 cm. No invasion. I had a re-excision on Feb 15 as one margin was within .5 mm. So many on here had masectomies and had their nodes tested. I am a little concerned about the fact that none of my nodes were tested, but is that because they can tell that it is pure DCIS? I am concerned with my decision to have a lumpectomy even thought they say the statistics are very similiar . I had an MRI before my first surgery. I completed rads 2 weeks ago. Just hoping I gave myself the best chance at this not coming back as DCIS or something invasive. Is it true that they cannot see well on a mammogram after you have been radiated and have scar tissue?Thanks!

Deirdre1

Bump - let's keep this near the top until Beesie is around to answer directly - busy lady   Beesie thank you for all you do!

ritaz

bump