CALLING ALL SURVIVORS .... AND THAT MEANS ALL OF US

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  • Yazmin
    Yazmin Member Posts: 840
    edited March 2009

    Hugopsalm91, you wrote:

      ".....Funny thing is i have never looked or felt better in 5 years, honestly try the barley and wheatgrass girls, its disgusting but it is amazing, i have lots of energy.

     I have turned down chemo, radiation and herceptin, as i do not believe that this will add any time to my life.  As my onc, is not prepared to give me a yearly figure now just baseline of 50/50%."

    I was on my way out just now, but I took a peak in here and saw your remarkable post, so I am not going out so fast, after all.

    I join Flalady in congratulating you for taking your health into your own hands. You are an inspiration, indeed.

    Like you, I have changed my lifestyle 180 degrees and it bears repeating, even if I end up sounding like a broken record on this board: I am feeling much better than I did when I was in my Twenties (and did not care one bit about nutrition, exercise, and natural healing in general, which I am now fanatic about).

    I have noticed that your tumor is HER+, receptors negative.

    God knows I am anti-chemo-and-Zap-Them-All-With-Every-Substance-That-exists-on-The-Market, etc....

    In your case, however, I wonder if you might think about considering chemotherapy? I am just wondering if chemo might actually be advantageous for your type of tumor (I am thinking that this is just about the only type of tumor for which chemo could conceivably make a sizable difference). Also: Vitamin C infusion (I call it "natural" chemotherapy) is looking very promising right now. There is an abundance of information about Vitamin C infusion on the net.

    Anyway, congratulations again and all the best to you. You are one of kind, indeed.

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  • Yazmin
    Yazmin Member Posts: 840
    edited March 2009
    Sorry: I had to delete the above because it was meant for another forum. Thank you.Wink
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  • Yazmin
    Yazmin Member Posts: 840
    edited March 2009
    Yazmin wrote:

    Hugopsalm91, you wrote:

      ".....Funny thing is i have never looked or felt better in 5 years, honestly try the barley and wheatgrass girls, its disgusting but it is amazing, i have lots of energy.

     I have turned down chemo, radiation and herceptin, as i do not believe that this will add any time to my life.  As my onc, is not prepared to give me a yearly figure now just baseline of 50/50%."

    I was on my way out just now, but I took a peak in here and saw your remarkable post, so I am not going out so fast, after all.

    I join Flalady in congratulating you for taking your health into your own hands. You are an inspiration, indeed.

    Like you, I have changed my lifestyle 180 degrees and it bears repeating, even if I end up sounding like a broken record on this board: I am feeling much better than I did when I was in my Twenties (and did not care one bit about nutrition, exercise, and natural healing in general, which I am now fanatic about).

    I have noticed that your tumor is HER+, receptors negative.

    God knows I am anti-chemo-and-Zap-Them-All-With-Every-Substance-That-exists-on-The-Market, etc....

    In your case, however, I wonder if you might think about considering chemotherapy? I am just wondering if chemo might actually be advantageous for your type of tumor (I am thinking that this is just about the only type of tumor for which chemo could conceivably make a sizable difference).

    Anyway, congratulations again and all the best to you. You are one of kind, indeed.

    Courage!
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  • D-Ann
    D-Ann Member Posts: 37
    edited March 2009

    Hello, Ladies!  I am newly diagnosed bc, triple neg, 4cm, poorly differentiated...and that's all I know, so far.  Meeting tomorrow early with my onc team to find out what they reccommend.  I'm a believer in the body's natural design being self-healing, was lacto-ovo vegetarian for a while, and have used nutrition-based paths to treat a host of ills over my 50 years.  Also saw chiro when everyone still said they were all quacks.  That was also when several MD's decided I was just hysterical.  Chiro worked.  CAM is not new territory for me.Smile

    HOWEVER, I have two things to contend with, right now...well, maybe a few more than that.  heh

    1. I am recovering from 8+ years in a really debilitating marriage, and the subsequent separation just 8 months ago.  Life is simpler, less stressful, and I am filled with gratitude for all the provision I'm experienced in this change.  I am still a bit drained, though, and brain fuzzy from the intensity of it all; still recovering from a lot of mental and emotional trauma.  Have excellent therapist, but it'll take a while.

    2. I am completely overwhelmed, emotionally, by the diagnosis.  Even my onc was surprised when the biopsy came back positive.  And in the meantime, I've stopped walking (8 years ago), started drinking soda - again (after 1 year without it), and can no longer afford to pay for the organic foods I used to live on. 

    Fortunately, I still have insurance - there's no legal action in the near future to change that.  My mom - who is my best friend - now lives 2 doors down from me, and she's very supportive.  And I'm soooo gonna get the Living Cancer-Free by Bill Henderson.

    The point of all this info?  I'm just having a hard time picking a place to start making changes.  And I vascilate by the hour, from trying other things BEFORE stadard treatments (surgery, chemo, etc) to just throwing my hands in the air and shouting (like the Red Queen in Alice in Wonderland) "OFF WITH THE BOOBS!", then letting the 'experts' doling out the treatments just do their thing.  Since this is opposed to my lifelong attitude about traditional medicine, perhaps this illustrates just how far the emotional pendulum is swinging on me, right now.  I've been exhausted by unrelenting stress and other health issues for so long, and now I have another long battle right in my face!

    It's not hard for me to pinpoint a number of ways I could have sabotaged my health and arrived here; the list could be exhaustive.  But that's not the whole story; most of my relatives lived with utter disregard for 'healthy' choices and never contended with cancer of any kind.  So, I figure there's plenty of/multiple reasons available for ending up at this crossroads in my life. 

    I'm here now, that's the point.  Figuring out how to make intelligent decisions is what's making me nuts! 

    Any suggestions on where to find the first thread to pull, on this convoluted knot, so I can start thinking straight and making decisions I can live with...no matter how long that might be?

    One of my friends told me to start with alkalyzing, before I do anything else, and then go from there...

    I REALLY don't want to submit to the destructive processes in standard treatments, haven't found statistics on survival past 5 yrs to be terribly encouraging, lots and LOTS of posts about terrible destructive probs from chemo and surgery, etc...and REALLY don't want to pass up something that actually works, however contrary it might seem to my own sensibilites....

    On the other hand, CAM doesn't have statistics available, so I'm thinking this isn't really as much of a rational process of choices as instinctive...seems nobody really KNOWS very much, mostly just a lot of experimenting and guessing...

    I'm struggling to just find one little spot to plant a foot on, one tiny place to start...

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  • D-Ann
    D-Ann Member Posts: 37
    edited March 2009

    Sorry, I removed my post.  Think it needs to go on another thread!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2009

    I am a vegetarian...I read labels-no excuses. 

    I'm pretty much an organic purchaser... right down to my skin scrubs and shampoos...

    I walk on a treadmill every day during the winter, and walk outside (wearing high SPF sunblock) on the beach.

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  • Yazmin
    Yazmin Member Posts: 840
    edited March 2009

    theprettiestmess, you said?

    You sound pretty cool, calm, collected and totally in-control to me........

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2009

    Thanks, Yazmin! I like to think that I am in control...most of the time! I think that how we respond to treatment is all a matter of attitude...and faith that you will come out on top of this monster and you will prevail! 

    My 2nd husband gave me the nickname "prettiest mess" ....said he saw it online somewhere and felt that it "fit" me! I love it! 

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2009

    I'm loving all of the scripture verses here! I consider scripture an addition to alternative and formal therapy... If it's ok, I'd like to post one that's carried me through this journey...

    "If you'll hold on to me for dear life," says God, "I'll get you out of any trouble. I'll give you the best of care if you'll only get to know and trust me. Call me and I'll answer, be at your side in bad times; I'll rescue you, then throw you a party. I'll give you a long life, and give you a long drink of salvation!" Psalm 91:14-16 (The Message) 

    Robin 

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  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited March 2009

    I love your post let's start a thread for healing scripture in this section.

    Flalady

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2009

    Sounds good to me!

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  • marejo
    marejo Member Posts: 1,356
    edited March 2009

    Robin, while going through treatment I read Psalm 91 almost everyday.  Also reminded myself daily of Romans 8:28 which says "for we know that in all things God works for the good of those who love Him and were called according to His purpose."  Also, Psalm 139:16 reminded me that God knew where I'd be since before I was born...that brought me great comfort as well.

    Isn't God's word awesome and isn't He awesome how He gives us just what we need at just the right time.

    Hugs,

    Mary Jo

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  • Estepp
    Estepp Member Posts: 6,416
    edited March 2009

    AMEN!

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  • living4today
    living4today Member Posts: 215
    edited March 2009

    God is so good!  Thank you all for posting such encouraging words and scripture.  Our family is facing many challenging trials at this time, in addition to me going through chemo...seems like every week there is one more challenge we are to overcome...today, I found myself a little battle weary.  So glad I came here to read up on you all!  I keep a little notebook with positive scripture verses to read during my infusions, I am going to add all of yours to my book.  Thank you all again for being a positive light!

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  • CindaD
    CindaD Member Posts: 120
    edited March 2009

    I'm loving this thread,  will start rads this coming Monday and am looking to see where I will go from there!  I now have a whole list of supplements to research, my rad onc told me I'm not allowed to take anything until after I finish rads, he said sometimes the supplements will make radiation not as effective.  I've always had a pretty healthy diet and have been exercising, so I stepped that up, except on chemo weeks.....pretty much turned into a couch potato for a few days!  What has helped me is more me time, I spend more time fooling around with art projects and am waiting to get into my gardens, gardening is the BEST therapy!  You ladies are an inspiration, have a great weekend, glad I found you!

    Cinda

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  • FloridaLady
    FloridaLady Member Posts: 2,155
    edited March 2009

    Welcom CindaD 

    I think many of use can not wait to get into our gardens.  Here in Florida we are only about three weeks away.  Yes!

    Flalady

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  • IrishTwin
    IrishTwin Member Posts: 50
    edited March 2009

    My sister was diagnosed almost a year ago.  She finished tx in mid December.  I am so impressed by how she has changed her life.  She has dumped all the refined foods she used to love (chocolate donuts were her favorite food and she had no wholewheat flour and no veggies in the house). Now she makes everything from scratch and makes it from healthy ingredients. She consumes a lot of fruits and veggies including the veggies and spices she previously eschewed (she was a picky, nonadventurous eater so tumeric, garlic, kale etc were totally alien to her old life).  She makes homemade vegetable soup every day for lunch, has cut back on red meat and meat in general, buys organic, read books on foods that fight cancer and has built her diet around the philosophy "If it doesn't fight cancer, I'm not going to eat it."  She walks an hour a day about 5 days a week, takes naps, prays at least an hour a day, focuses on the positive and stays away from stress. She has lost 50 pounds and has completely changed her life.  She is an inspiration to me.

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  • marejo
    marejo Member Posts: 1,356
    edited March 2009
    Wow...she's in inspiration to me too.  That's awesome.  I wish I could be that diligent.  I do well BUT not that well.  I still eat the things I enjoy.  Not as many of them but I won't give it all up.  Good for your sister.  I bet she looks and feels great.  Thanks for sharing.  She is an inspiration to us all, I am sure.
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2009

    Hmmm...I was orginally diagnosed on March 16, 2007.  I do make a point now to eat better, get more rest, and pace myself.  I do water exercise twice a week.  I take supplements now that I wouldn't have given a second thought to before.  I am very vocal in helping those around me and ecourage them to get screened.  (My younger sister, in fact, had a biopsy done recently and is scheduled for surgery soon.)  I no longer expect that there is a tomorrow...I certainly value things more, and don't let things that got on my nerves so easily before rough my feathers now.

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  • amyob
    amyob Member Posts: 99
    edited November 2009

    Just thought I'd post this website about growing your own brocco sprouts.  Haven't tried it myself yet, but seems like a great idea!

    http://www.broccosprouts.com/find/homekits.htm

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