Malignant Phyllodes 2003 now Inavasive ductal carcinoma

btatmom

Hi, I am new to the board.  I have read a lot of posts and all have been helpful!  I had a double masectomy on 1/14/09 and just recieved the pathology that indicates in the right breast a second smaller IDC of .7mm in the same breast that was diagnosed in December with IDC of 4.8cm and a benign phyllodes tumor in the left breast that had the malignant phyllodes tumor in 2003, there was also LCIS in this breast.  I am looking for information about the reoccurance of phyllodes along with the occurance of IDC.  This would include experiences and doctors who have seen a phyllodes tumor that I may contact for information, there were not many in 2003 or now.  I live in Arizona and went to California in 2003 but I now have two small children so it's not as feasible for me to travel as far for treatment.  Thank you!!