Just Diagnosed, IDC, Stage 2

samiam40
samiam40 Member Posts: 416
edited June 2014 in IDC (Invasive Ductal Carcinoma)

I posted this in the Just Diagnosed Forum too, but thought I'd do so here also since at this very moment I can use all the help that I can get.

I just got the call an hour ago.  Honestly, I'm devastated.  I was prepared (as you can be) for DCIS, but not prepared for invasive.  I am a 40 year old mother of 4 young children.  I need to be around to see my babies grow up.

The second guessing is killing me.  I knew when I was diagnosed in '02 with LCIS and ADH and chose surveillance over mx or tamox that I was taking a chance.  But I thought I was taking a chance of getting a DCIS--I never dreamed it would be invasive or Grade 2.  Plus, although I got a baseline MRI about 4 years ago, I also elected not to get follow up MRIs for at least the last few years due to claustrophobia and cost concerns.  Seems pretty ridiculous now.

The only good news is that the doctor described it as small.  I didn't get the actual size as I am meeting with her tomorrow and she said she would provide a copy of the pathology report then. 

I just can't stop crying right now--and feeling sorry for myself is not in my nature. 

I made up my mind even before I got the call that if it was any kind of cancer I was going to do bilat mx with reconstruction.  I would not be able to handle the stress of worrying about recurrence--that much I know.

Anyone who has been through this and can lend support and their experiences as to what I can expect going forward, I would greatly appreciate.  This board has been so helpful to me.

-Samiam

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Comments

  • maryannecb
    maryannecb Member Posts: 1,453
    edited January 2009

    Samian,

    so sorry for your recent news.

    Sounds like you caught it early....and have done what is considered reasonable to do so. Try not to beat yourself up over waht would be different...deal with now!

    Now you will gather info and determine the best attack.

    The crying will stop when you feel more in control. That will happen as a plan is developed and you get on with the plan.

    MANY women survive to live long happy lives after this diagnosis, chances are with a small tumor, you will be one of them.

    Good luck with your decisions.

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  • shabby6485
    shabby6485 Member Posts: 679
    edited January 2009

    Hi Stacy,

    I was so sorry to read your post.  I was thinking about you today and wondering how you did.  I don't know what else to say.  If you need to talk, let me know. I know this board will be of tremendous help to you too. God Bless.

    Shabby 

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  • fairy49
    fairy49 Member Posts: 1,245
    edited January 2009

    Hi Stacy,

    We all know on these boards how devastating news like this is, we are ALL with you in spirit and are sending cyber hugs and prayers.  You have to remember to breath, you WILL be ok, once you have your path report you will feel more in control, check in with us tomorrow so we know you are ok.  I totally feel for you, waiting for results etc is horrid. 

    Lorraine ox

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  • lovinmomma
    lovinmomma Member Posts: 1,879
    edited January 2009

    I am so sorry. I also have young kids and they are a great motivator. Cry, yell, vent, scream and then take a breath, meet with the doc and take it step by step.

    Prayers for you.

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  • flash
    flash Member Posts: 1,685
    edited January 2009

    Treatment has changed dramaticaly in the last few years.  It's already way different from when you first dealt with any of this.  So, take heart, take one day at a time and go kiss your babies.  Life is good.

    Hugs to you.

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