Neg biopsy follow up question

runalot08

My skin and tissue biopsy for IBC came back negative. (Previous post) We were holding our breath. 

My incision looks good, however, I now have a dot on my skin that looks like a pimple almost but there is nothing in it.  The skin is a little flaky at the red point.  It is not very big about the size of pin top.  Those little plastic balls on the top. Maybe 1/4 in.  Doc said today that she thought it was from the adhesive of the bandage after surgery clogging a duct.  It showed up at day 3 or 4 after surg and has not gone down.  Neither have my nodes or the swelling.  (the swelling before the surgery)

My doc now has me on a nerve blocker medicine.  She thinks that maybe my implant is doing something to a nerve in the pectoral muscle or on the chest wall.  I think that since my biopsy came back negative Her thoughts are that I am all in the clear.  I know that they are not always right it really depends on if they get the right spot. 

My question is does it sound right to think that the implant is causing all of this through nerves.  I understand that if it hits a nerve then it causes pain.  If I had just pain then I would have no problem but would it cause the swelling (when the breast is swollen the nipple is flatter), swollen nodes, firmness of the breast, and the redness that comes and goes? oh and the red spot?

Sorry guys I have no one else to talk to abut this stuff and some of you are so knowledgeable.  Has anyone else heard of someone with these type symptoms being releived by nerve medicines.  Obviously, if the nerve medicines work then I will have the implants out and problem solved.  But really I think it is something else.  Any ideas?  I am stuck here with no second opinion and no where to go.  I keep thinking someone here will give me an idea then I can take it to the doc and say what about this? 

Anyway thank you for letting me vent a little.  I was crying in the doc's office today because I am so tired af all the pain and not knowing what is going on.  The pain is so bad sometimes that I am on Vicadin to dull it.  Anybody else in that much pain?

nowheregirl

Hi Runalot,

                

I responded to your post that you posted in the thread named "Follow Up" on "High Risk Women" board and listed some hospitals/clinics/doctors that you might be interested in. They are all located within/near Okinawa island. Feel free to PM me if you want more help.

       

xo

Fumi

runalot08

Thank you Fumi I just got the info and posted.  I really hope anyone else with problems in Japan will see your helpful posts

Vickie

runalot08

Praying for you,

 Thank you for your support.  I have not had a mastectomy.  Believe me I think about it often with the issues I have had over the past year or so.  With my family history my doc offered it to me 4 yrs ago,  my husband thought it was extreme.  I think that he feels I should wait till I actually get it once.  That was what I thought too till now I just want them gone sometimes.

The nerve block I am on now is Neurontin.  So far it is not helping but she said it takes a while to get in the system.  I only take it at night for the 1st week too.  Maybe the nerves are it.  That would be nice compared to what the other possibility may be.  I would not worry at all if it was just pain.  We will see how it works out.  I have an appt on the 10th to see how all the meds are working.  I really need an MRI to put my mind at ease.  Do you think that is the best for IBC detection? 

Thanks for your kind words (even if you are not in Japan  

"Friendly hearts have long arms when someone they know is in need of a hug". Vickie

Runalot