Anyone ER+/PR- and HER+???

ladysingstheblues

hello

i have been diganosed with breast cancer jan 2010  did 4 TCH and now continue with herceptin for a year. can you please tell me of you also took tamaxofine and how you are doing

 many thanks

ladysingstheblues

hello

i have been diganosed with breast cancer jan 2010  did 4 TCH and now continue with herceptin for a year. can you please tell me of you also took tamaxofine and how you are doing

i had a similar diagnosis to you so would love to hear how it all went

 many thanks

VickyC10

Hi ladysingsthweblues,

I was diagnosed in Feb 2010, similar to you except PR-ve. Had a lumpectomy and sentinel node bopsy (-ve). Chemo was 4 x AC then Taxol + Herceptin weekly for 12 weeks. Only had 11 of the 12 Taxol because of pins and needles in my hands and feet (still there). Now having 3 weekly Herceptin for 9 months. Have recently finished 5 weeks of radiotherapy. I started Femara (Letrozole 2.5mgs) for 5 years after the chemo. My onc said if I could not tolerate Femara he would change me to Tamoxifen for the 5 years. However so far so good. I get tired but do not know if is from the chemo, radiotherapy or what the cause is. Manage to do everything though. I am in Australia so may be difference in treatment regime here. Hope this helps. Vicky

tmf1968

Hi, I just joined this website today, and am posting for my mom. ER 95% +/PR-/HER2++. Dx on 11/6/2010, lumpectomy on 11/23. Dr. stated 95% sure he got all of it (clear margins)and SNB neg. My mom was really  hoping to avoid chemo due to an EXTREME fear of needles. Just met with the Onc. 2 days ago and she gave us stats of outcomes: IF she agreed to 4 chemo, herceptin, radiation, andarimidex she has 25% chance of recurrance, and 50% chance of recurrance if she chooses no chemo. Has anyone else had %ages given to them? The news was a real blow, as you hear of the 97% 10 year survival rate, as told by the biopsy Dr. I guess neither of us expected to hear such high recurrance. Very frightened now. Please let me know what you were given as options and possible outcomes. Thank-you.

dragonfly1

I was diagnosed with ER+/PR+(both 90%)/HER2+ about 2 1/2 weeks ago at age 41 and the tumor is 1.2 cm. Just met with the surgeon this week and she recommended a BRCA genetic test since I'm so young and don't know some of my family history. Now I'm waiting 10-14 days for the BRCA results which is scary. Is anyone else a triple positive (ER/PR/HER2+) and BRCA 1 or 2 positive as well-surgeon says there is only a 10% chance it will come back positive? We are waiting to do the surgery until we know the genetic results because it will make a huge difference in what needs to be done...all very scary to deal with all this waiting and wondering...

Survivors2011

My wife was diagnosed with almost the exact same as you dragonfly. Triple positive. The BRCA test came back negative. At the time it seemed to be the only good news we've gotten through the whole thing. Her diagnoses was Stage IIB, Grade 3, ER+/PR+ HER2+ with a 2cm tumor and was in one node. Because of the triple positive it was obviously a much more aggressive cancer.....however you have to look at it this way. Because it tested positive, there are targeted therapies specificly designed to stop the cancer in it's tracks. We're now going through 6 cycles of TCH, with 1 year of herceptin followed by Taxol. So far so good.From all the research I've done and talking to doctors, it appears that the younger you are the more likely it is to be aggressive. This was our case as she is only 28. However, i'm 100% sure that cancer will not win the battle and i'm expecting her to live long past me. Keep your head up and remember that cancer is not a sentence, it is a word. It's hard to find answers on the internet as everyone's diagnoses is different, and it's even harder finding anything on triple positive patients....trust me, i've spent weeks upon weeks researching and reading medical studies.

It appears that you're on the same timeline that we are on right now. 1/2 through the chemo. Keep me updated i'd like to hear how you are fairing and would like to hear when you get the NED prognosis in the future.