first chemo done

Onehalf

I don't know how I got here, but I did...I had my first Chemo on November 5th.

I have been reading through and you guys are right the is a great group of women.

My treatment is the same as Pinklady...(Love the name) The cocktail is Taxotere and Cytoxan.

Got to brag...my treatment went good and the side effects weren't too bad. I did have one day with of light headiness, which happened when I bought my wig....told my family it was the purchase of the wig that did it ( itthe spending od the money LOL!)...this light headiness only lasted for a couple hours...next day I suffered not being able to focus...just a little fuzzy head...Hey, best time to pay bills...I pay on line. I just pushed buttons and clicks...told my husband how much $'s I spent and I hope it all went out right....LOL! I do this each month and it is all automatic so I'm sure I did well. After all I haven't heard from anybody not recieving a payment.  The other side effect was a day in a half of bowl movement changes...first i had one often (soft) then the next day it went into diarreah....but this is what imodian is for.

I too have to take the decadron...starting day before for three days...yes, it does wire me a little,,,,and I can't sleep, so I do take a sleeping pill for those three days.

I have joked that because of the side effect from Chemo, you need to take a pill, then a pill to help form the side effect pills....and with this is over I wonder if I will need to take a pill for taking no pills. The only pill I do not get to take is the one I would be glad to take....and that one would be for hair lose. But from what I hear a lot of women report that their hair comes back better.They have color change, but they feel their hair is heathier....Hey I could use and will wait for that little plus as I had my hair for 48 years....it's time to start fresh.

Remember Healing begins in the mind....so I totaly agree with the oncologist who says there is 90% of healing with additude.

On a note please ignore mis-spelling as I started decadron today( 2nd Chemo tomorrow) and I type too fast and yet don't want to take the time to correct...sound like being wired?!

Denise

jill323

Hello Ladies !

What a great way to start the day.  I logged on this morning and found Debbie's, Kristi's and Denise's posts - and started laughing so hard I nearly spit up my coffee.  My husband thought there was something wrong with me.  

Denise - first let me say "welcome" and you definitely "belong" on this thread with that attitude.   Gotta try bill paying on drugs,  If nothing else, I won't care as much about all the money I am spending !    And I hear you about the pill thing.  I often wondered the same thing.   There are so many chemicals running through my body, I think it will be in shock when there are no more chemicals.   You know, with my luck, my hair will come back entirely gray.  I had some gray when I lost it (looked "naturally" highlighted), but I have this feeling it will take over when coming back.   The funny thing is, I have "spots" on my head trying to grow hair - which is really weird.   Before I looked like Yoda - now, given the random spots on my head, I look a little like a Chia Pet that is not growing so well.   Oh well.   BTW, I think we should all use a special "highlighting" when typing under the influence of decadron.   How about in Bold (seems appropriate)?  Or we could use Italics when under the influence of something more mind altering.   

Kristi - Glad to hear about the therapist.  Having trouble with vulnerability aspect?  Hmmmm.... that sounds familiar.  Also, not real surprised that a woman having trouble with the vulnerability aspect was never "into the therapist thing".   Not sure if you saw that, but it is completely consistent.  So... you may want to give yourself a pat on the back for even making it this far and "trying on" the therapy.  If you don't then, I will.  Congrats !     As for taking you off decadron - not surprised at that at all given the intense sleeping issues you had.   I am sure they will monitor you very closely.   BTW, my hubby also gets a little "jealous" of this board, but when he hears me in here laughing hysterically, he knows you all are not "bringing me down" - but quite the opposite.   Also, I am trying to imagine us all doing the chemo thing together.  I have a feeling they might kick us out for being too raucous!   But, at least it would be more fun ! 

Debbie - Yea!!!  So glad to hear from you.  You know, I decided if I ever wanted to launch a sitcom, I would hire you as head writer (or at least as my star).   The way you describe things...very funny.    I can picture you going in that MRI machine asking for more Valium.   I will be thinking about you and I hope everything goes well.    As for your Botox idea... you go girl !  (But ask the doc first).   You know, I spent seven years in Venezuela - the world capital for plastic surgery (why do you think they keep winning the Miss Universe pagents?).    Plastic surgery was everywhere and cheap.  While I never did the Botox thing, I am not too proud to say I did take advantage of some things while I was there (hey, it was cheap!).    Never had a prayer of looking like any of those Venezuelan ladies, though !    Damn genetics.  

Jerri and Deb - Thinking about you today.   Hope all goes well for both of you.

Anna - Did we scare you away?!  Gosh, I hope not. 

Cristl -  Thinking about you for both chemo and hair reasons.  Glad your Dad is taking you. 

Take care ladies, and keep the attitude !

Jill   

sewbutton

I can see the importance of drinking a lot of water, but what I am wondering...in-between the chemo do you have to drink 8 glasses (my doc says 2 or more liters) a day for the whole time you are on chemo or maybe just the first week after chemo? I'm not a big water drinker but do get it all down before bedtime. And have given up coffee just because I know I would need to drink another bunch of water to make up for the coffee. And another question does juice, such as cranberry juice or lemon-aid, replace a glass of water?

jill323

sewbutton -

Hi.  I can only tell you what my doc says.  She says it is especially important to stay hydrated before chemo and the week following.  Not sure what her rationale is, but I can ask her next time I see her.   She also says that any liquids (other than alcohol) "count" in the equation.  She includes coffee as well.  

Hope that helps.

Jill

sewbutton

Thank you Jill...It sure helps to see it in writing. I swear I have asked my doc several times and still feel confused on exactly how much liquid I should be drinking. I should probably start taking notes when I see them.

Colleen 

PinkLaddy

Hi All.

I'm back from my 1st Chemo. Doing good. Just tired and I really burn when  I go to the bathroom so I called the Doctors office and the stated it's due to the Cytoxan. I'm drinking LOTS of water and my stomach is floating. The doctors office called out Pyridium which is an analgesic to relive pain, buring for the lower urinariy tract. Now go back on Friday to get the Shot. They did give me Frozen Mittens for my Nails when the Taxotere was going in as well. So I think ALL bases covered. Just hurting in my joints from the dang old DECADRON. The nurses stated I could take 2 Xanax's to sleep with since I take them in the evening as well.

Otherwise I do Hope my NEW Friends are doing GREAT. I smell Pumpkin Pie cooking now so I know wht I will be eating for dinner. I hope you know My Wonderful Husband Fixes the Whole Thanksgiving meal. What a DOLL huh??? I think a Keeper!!

HAPPY THANKSGIVING ALL

Jerri

jill323

Hey, Jerri -

Congrats on getting this first one done !   Sounds like you are weathering it pretty well so far.   One thing I learned early in this was that you don't get points for "braving it" without the meds.  So, if you feel comfortable with it, take what ever med they give you.  I am finding the docs are generally pretty good predictors of what can happen and prepare you for it.

Yes, your husband does sound like a doll.  What a guy -  Fixing Thanksgiving dinner - Wow!  It was all my husband could do to buy the turkey (and he agonized over that).   My Dad and I will be preparing Thanksgiving tomorrow (I am so grateful this is an off chemo week).    I don't mind.  I actually like to cook as does my Dad.  Normally I wouldn't have help, but he insisted.  It is a treat for him.

Well... let us know how you handle the decadon drop off.   And let that wonderful husband of your take care of you.   Get as much rest as you can. 

HAPPY THANKSGIVING to you too.

Jill

Debbie1218

Hi everyone! Happy Thanksgiving to you all! 

Well, I know I have a heart, since I did see it beating today during the echo- even let a "newbie" practice finding valves. Tried to find out if I had a brain, but they wouldn't tell me. I was sitting in the lobby waiting to be called, had already taken 1/2 a valium, felt nothing, so took the other 1 1/2 pills I had left. My husband looked at me and asked if I took all of them, I said at 6 dollars a pill, - yep. He shook his head, thinking he'd need to roll me out to the car. Anyway, they called me back, I remembered no IV in my right arm, went in for the test, the tech put a washcloth over my eyes, added somthing to the top of my head, asked if I was ok, and left the room. No velcro ties- the one thing I was scared to death about, and the only reason I took those pills. Go figure. Goes to show that the things we are most afraid about, sometimes never even happen. Good thing too as a total of 10 mg of Valium didn't do much. Of course after we were done I finished off a frappachino. Maybe the espresso counteracted the valium, because i couldn't even take a nap. What a total waste of 6 bucks. 

Went to get a "quick" in and out blood draw- was not quick, called me back, and I swear they poked that needle clean thru my port. Sure did hurt. She hit the one capillary i have in the area. Now, why can I not to something with those odds when gambling?

I asked about prescriptions before my as yet unscheduled chemo, and she said she didn't know of any. All meds are done thru my IV when i come in. So, not sure about the oral decadron. But not yet sure of most of the procedures. Maybe it's based on the chemo drugs we get.

I came back to my house where my kitchen was clean, 4 homemade pies were finishing baking, and homemade rolls were rising. Oh, to be 33 again. I can remember those days, as I did the same thing. She gets it from my side of the family..ha. Only thing left on my list is heat the ham. And she will probably do that too. All the rest is being done at my sisters.

I did ask my husband - when putting on my moisturizer - if he thought I would need to moisturize my head after my hair fell out. Unfortunately he had just started gargling, and I thought he was going to choke to death on his bubblegum flavored mouthwash. So, I called his Mom, and she didn't laugh at me (but told me she did put some on since it's so dry in Ariz). In the meantime, hubby just shakes his head. Jill, maybe you've hit on a million dollar idea...a Chia Yoda. You'll have to ask and let us know why some hair would start growing back. Your hair sounds like mine- multicolored, like I had highlights done. I do hope mine comes back the same color.  But I feel selfish for wishing it- like I should be grateful if it grows back in at all....

The kids have been a wonderful diversion, giving hugs and cuddling whenever I needed it. It has been wonderful. The weather has been in the high 50's, clear skys, also beautiful.  Even the 4 dogs are getting along. And if you knew our monster yorkie, you would know why I am in awe of it all.

Denise, welcome!! I would love to try bill paying while drugged, but it sure won't be from valium. Would have to take a ton of the stuff. Your story made me laugh, so thank you for that. I did try one time, many many years ago to let my husband take over the bills. First, I told him I needed him to mail them. (baby steps you know). So, he held them over the burner, and actually burnt the edges. He said if they were burned up, we'd have more money. needless to say, he has never done the bills since.  

Kristi- you are soooo much braver than I as I would not have even gone to see anyone. You seem to be very much the same as the rest of us- you don't want anyone taking care of you, since you always take care of everyone else. You definitely deserve a pat on the back for going.

Colleen, I'm thinking of bring my tape recorder to my chemo sessions, and leaving it running the whole time. That way, if I fall asleep, I'll know what was said, since my hubby won't remember a thing, and I'll also know if he told any stories he should not have. Jerri- please let me know how the Xanax worked, as I sure hope it's better than valium. And congratulations on finishing round 1. Next week, i'll be able to say the same.  

Anyway- I hope you are all feeling well enough to enjoy Thanksgiving with all your family, friends, and of course all the food. Have a blessed day- all of of you.

Debbie  

Onehalf

Today was round two of my Taxotere and Cytoxan. Treatment went well in the clinic......sitting here waiting to see if any side effects are going to kick in. I did tell the onology nurse about my last round and side effects ( well she asked first) and we both agreed I had a easy time....she made a comment thats good, because your next treatments you should experience the same...Whoohoo! I hope she knows what she is talking about...I like easy....the only thing is the lady across from me was asking me questions and we were talking....the nurse asked my "are you on decadron" (duh!, I already told her) I said "yes I am, and I'm wired"....but so was the lady across from me so we talked for three hours.

The down side, my doc said from my blood test, my WBC were high, and my Liver Emyzynes (sp?) were elevated....but not to worry she might have to adjust my dose next visit, but the plan was to stay the same today....I didn't think to ask the Doc what did adjust mean....so I asked the nurse...she said usually it means just lowering the dose, then I asked will this change how many time I need to come, will my treatments be extended, she said no....so I'll see. I am a little worrried about the Liver, but am putting my trust in the doctor....She comes highly recommended and talking to her she is very knowledgeable...I like her.

sewbutton- About the water, I am not a big water drinker either. My weakness was Pepsi. Three years ago I quick the Pepsi Leaded (regular). And I started to drink Propel....Propel has flavor in it. And all the numbers on the back are much better, then what Pepsi has. Sugars for a 23 oz. bottle is 6g....heck a lot less then the brown stuff I drank.  So I'm suggesting if you can't tolerate straight water. Try a flavored water. But watch those numbers on the back. In my opinion. Propel is the best.

Jill323- I did not know about the drinking the water the week after too. I only thought it was important the day of right after Chemo...thanks for the info, as I suck on more water and now I need to break for a minute....it's potty time. Which is every 30 minutes . Aaaaah! much better....but don't worry I promise I will not be on here for another 30 minutes. About Thanksgiving dinner...I have a husband and a sister in the house who is so worried about me feeling good that they are taking over making the dinner. I will help some, but now I'm thinking that ...ssssh! I might play it up a little and let them go for it. My way of supporting their needs to be helpful...LOL! after all it is for a good cause.

Pinklady- About the frozen mitts, I can not get the Doctor or nurses to agree that there is any benefit in the mitt idea, but my Doctor said if I want to do it, then go ahead. The only thing is they don't have mitts...they have zip-loc-bags and ice I can use there or I can bring my own items. It's funny because I have read of a few women who swear by this....Where did you get the mitts from. I might just give up on this idea...I have already had two treatment and (hopefully) only two more to go. My fingernails are still growing, I had to cut them again today, and I just did this a few weeks ago. No color or any other changes.

I learned something today about my Chemo and meds...My first treatment when I got home my face was flushed. In fact it was this way for a few days...I actually like it, it gave me a nice color...made me look healthy...LOL!. Well we thought it was from the Chemo. Today my face was flushed before Chemo....the nurse said that was a decadron side effect.....so the healthy color will be gone in a few days.

I hope all of you have good treatments on your next round, And Happy Thanksgiving!

Ok got some things to do before the next potty trip.

Later, Denise...By the way...I had a Lumpectomy. My sign on name does not reflect my condition...it is a spin off of my last name. I thought of this after I signed up...I went "wait everyone is going to think I had a breast removed"...ha, ha

sewbutton

Thank you for the tip on recording. I will do that in the doc's offices too. Also thank you for the info on flavored water and watching the sugar. I suppose using Crystal Lite in my water will work too since I have been loving lemon aide. HAPPY THANKSGIVING TO ALL!

PinkLaddy

Hi Good Friends,

HAPPY THANKSGIVING!!! I think we Lots to be Thankful for. Our Friendship and Us getting Healthy Soon!!!

I do hope this note finds you all digging into a Wonderful Feast!!

I'm a bit more tired today and quesy but will be okay. Get that Neu. Shot tom. AM. If anyone has anymore helpful Tips Please pass them on!! For some strange reason I am craving Real Sodas today.

Anyway You All ENJOY the Day!!

Jerri!!

Deb-from-Ohio

You and me both, Got my A/C Weds....am very tired of course I think that's the zofran.....and queasy, I did manage to eat though.......chemo ain't robbin me of Thanksgiving!  Only advice I have give you is to drink water, drink water, drink water....I had 5 bottles along with everything I else drink Weds, and have had two so far today.......don't let yourself get dehydrated........Oh and if youdon't know this already, take a claritan tonite, tomorrow and the next nite for the Neulasta shot......generic works, I use our store brand that says it compares to that, wards off alot of the joint pain from the shot........

luv, Hugs and prayers

Deb

jill323

Hello Ladies !

Glad to see the posts coming in and everyone doing relatively well.  Here I am pleasantly exhausted.   I outdid myself this year (she says modestly)!   You know, I think it was more important for me this year to put up a good front.  Got a lot of questions about the cancer (the head scarf was a dead give away), but everyone seemed very happy with Thanksgiving.   I made a turkey, and a turkey breast (two different recipes), mashed potatoes, candied yams, baked onions, green bean casserole, stuffing, corn pudding, rolls, caesar salad, and a gravy that would knock your socks off!   I am pleasantly stuffed and buzzed on wine.   What a great holiday (even if the football games sucked).  

One down and one to go.   Got another party Saturday night with about 25 people.  We have this one every year.  It is a long story, but we have a family camp about three hours north of Toronto on the Georgian Bay of Lake Huron,  and the camp has its annual meeting the Saturday after Thanksgiving.  Got a boat load of (my husband's) relatives coming into town, and some of them staying with us over the long week end.  Sigh....   But, in a way, it is a little comforting that the cancer has not changed the "routine" - even as exhausting as it is.  

Take care ladies.  I will say more later.  Right now, I have dishes, and dishes, and dishes......

 Jill

kristifromsandiego

Hello everyone,

Yes it is good to see that everyone is doing well.  Remember everyone that we need to start drinking water come Sunday for us chemo people that have our Monday chemo, I think that's quite a few of us.  Also, my hair is starting to fall out.  It is really really odd, I might buzz it on Saturday, I have not decided.  I do not know if I can mentally go through loosing my hair on Monday and getting chemo on Monday, so I might do the hair thing before.  We had a great Thanksgiving, except for a bit of an upset stomach, my intestines can't quite find their place in the world.  We went to see the 007 movie and I got to forget the fact hat I had cancer. 

Have a ton of fun Jill, you fun over doooooer.

Welcome to sewbutton and Jeri, keep your spirits up!

Good luck to everyone on Monday.  Kristi

Hey it has been raining in San Diego off and on for nearly three days - that's a record!!!

Deb-from-Ohio

Had my second done on Weds, A/C.....drank a ton of water the day before, weds and yesterday......and also overate yesterday which I hoped no one else did......boy did I have a stomach ache last nite.

So far so good, pray it keeps up that it doesn't affect me like it did last time......although I can't remember if it was Thurs or Friday when it hit me......I gotta run down today and get my Neulasta shot and the doc has already ordered liquids for me if i need it.....although this time and I Thank Jill for this, I have drank, or rather drowned myself in water so I hope I don't need it. I also have a sneaking suspicion that last time it was the chantix that added to the nausea....I have since quit taking it. But yes Jill, I will keep up with the water!!!!! LOL..........I've also noted that this time, I haven't gotten the coated tongue, don't know if it was the water or not......I do know however that IT WAS THE WATER the got me up 3 times last nite to use the bathroom! ROTF.......

And Kristi, I still have my hair, it's starting to fall out, I can run my hands thru it and pull out several strands but so far no large clumps.....I truly think I am going to use Elmers Glue as conditioner....people will think it's mousse! LOL.........I just can't bring myself to shave my head..

Jill you are an overachiever! LOL......I cooked our dinner Tuesday nite, Thank the Lord......His daughters brought us over a turkey dinner yesterday they had bought from Meijers....OMG. Bless their hearts but that was the worse stuff I've ever eaten.....The turkey was roasted and then refrozen.....had to reheat it...and i swear it wasn't done enough....mashed potatoes, gravy and stuffing were all microwaveable....and it resembled pudding.......ugh...don't recommend anyone buying that dinner from there. They had already ordered it so  I didn't have the heart to tell them I had already cooked, it was nice of them to think of us though.....

At any rate, keep yer fingers crossed that it doesn't hit tonite like last time!!!!! Man I sure hope it doesn't......2 down, 2 to go on these rough ones!

Love, hugs and prayers

Deb

jill323

Good morning, Ladies -

Sitting here in a quiet house (kids still in bed and hubby out) in what can only be considered "the calm before the storm".   I am enjoying getting caught up on all your posts.

Debbie - After the problem I had the other day, I have learned NOT to drink coffee while reading your posts, lest I risk spitting it all out and ruining my keyboard.   As usual, you did not disappoint.  I am really happy that you made it through all your scans unscathed, but sorry about you being needlessly $12 poorer.   Evidently, the part of the tin man is out for you given they found a heart, but on the upside, perhaps you still may be qualified for the part of the scarecrow (kidding).    As for the drugs - I am finding different docs treat this differently.  My doc gives me drugs both orally and for good measure in the IV.  Your doc may be playing it a bit more conservatively given the regimen you are on or other factors.   Also in terms of moisturizer (and I see your husband has the same problem I do with you making cracks while drinking liquids) - YES, YES, YES you will need this.  This is why my darn head itched so much.  I even developed a rash on the back of my head that required anti-biotic ointment.   I found some stuff at a beauty supply shop that is in the African American hair section of the store - it is used to treat dry, tight scalp associated with tight braids and the like.   This stuff is the best I have found.  I put it on in the shower in the morning.  It consists mostly of oils and it is somewhat thick.   But, it stays with me all day and protects my scalp.  If you get to that point, let me know, I will let you know what the name of it is (too lazy to run up to the bathroom right now).    Who knows, maybe this stuff is the reason I am growing hair in spots !

BTW, your husband sounds so much like mine, it is a little scary.  Mine is also a certified goof ball with a heart of gold.   Money is not his strong suit either - which is why I pay the bills and manage the investments.  I am notorious for squirreling away money - even started him an IRA that he did not know about (not sure what he thought he was signing).    But, talking about investments in this current environment just depresses me further, so I will get off that topic.

Denise - Glad to see your treatment went so well... And, I liked your devious "everyone take care of me routine for Thanksgiving".  I was not smart enough to think of that !   I hope it went well for you and you have not hit the decadron drop off yet !   Let us know how it is going.

Kristi - Hi.  Sucks to have an upset stomach on Thanksgiving.  But, other than that, it seems to have gone well for you.   I never saw anyone so excited about rain, but I guess if I lived where you did, I might be as well.  Yesterday was a glorious, clear fall day here with the temps in the 50s.  Today it is gray and dreary.  Oh well.  BTW, I think I am a couple days behind you guys.  I go in Wednesday for my treatment.  So...  I will be there for moral support for those first couple of days for most of you and then go in myself.    As for hair... you know what I went through on that one.   Just watch for the shedding.   If you don't decide to buzz, hats do come in handy for containing it long enough to take it off over a trash can.  But, then you will be vaccuuming your hat, like I did !  Let us know what you decide.

Jerri - Hope you are hanging in there. I know it is tough a couple days afterwards.   If you find yourself getting bone pains from the Neulasta shot, the combo of Claritin and Aleve worked well for me.   You will know it if you get the bone pains.  For me, they started in the lower back and kind of "pulsated" around the sides.  Other women get pains in their femurs.  Hopefully, you won't get any of them. 

Deb -  You do sound a whole lot better than last time.  I remember when it hit you last time because you and I were talking through it and going through the process simultaneously.  Friday kind of zapped you and then Saturday it really knocked you.  Did your doc give you any better drugs this time ?   I remember last time they were hesitant to give you anything.   As for Thanksgiving at Meijer... Hmmm.. That was sweet that your daughters tried to take care of you.  But, not that surprised that Thanksgiving dinner would not be a Meijer forte.  I got my patio furniture from there !    But, I guess it is the thought that counts.   I hope you are doing better today.  

Well.. my son is up now.   So, I lost my quiet little oasis.   Got lots of errands today (but NOT going any where near a department store!!!!).   Take care ladies.

Jill

Deb-from-Ohio

No Jill, she didn't give me anything differently.........she also stated that the chantix might have caused some of the nausea.....I think with just drinking all the water I have and staggering the Emend and Zofran it's just been better.....Still sort of queasy today, but made it to get my shot and then to Meijers afterwards........I might just take one of those extra nausea pills afterwhile if it doesn't settle down somewhat.....did drink a malt, made it a little better..........

Hopin I don't hit a brick wall later on today!!!!!!!

Love, hugs and prayers

Deb

PinkLaddy

Good Morning ALL,

Just reading everyones post or still trying to get caught up. Had to get my first Neulasta Shot. Took my Claritin but lucky me my Doctor was there when I went and I am Allergic to ALL NSAIDS so he was kind to give me Vicodin and more Phenergan to take with the Zofran. My only problem is a bit of Constipation but I hear from you all is pretty normal. I took Milk of Mag. last night and still nothing. I tried to drink a Coffee and about Vomited it so if any of You Wonderful Gals have any Suggestions PLEASE let me know.

Sounds like everyone survived Thanksgiving and got to Enjoy a little. I usually pig out but had a Very Small Plate but LOTS of left overs.

Much Love to My New Friends,

Jerri

jill323

Jerri -

Kristi had a similar issue, and her doc recommended Miralax for constipation.  (My doc recommended the same thing if I needed it).  This is the same stuff they give in front of colonoscopies, so you can imagine how "effective" it can be.  If you read further up in the posts, you will see Kristi's experience with this drug (which she called a "miracle").    But as with all drugs, probably best to check with your doc first. 

Jill

Deb-from-Ohio

Still hanging in Jill.........Have felt pretty queasy at times, and really tired and sleepy but still not as bad as last time........Still have one more zofran to go today and 3 more tomorrow......I think what's makin me feel so bad is the low white blood count..........but wanted ya to know, so far it hasn't been as bad as last time, still trying to suck down alot of water.........

And instead of the laxative/stool softener, I used mylanta, it not only settled my stomach last nite from all the turkey and junk, the magnesium in it works as a laxative only with less cramping.......

Luv, hugs and prayers

Deb

Onehalf

Day after Thanksgiving

Thanksgiving day went well and clam....me giving directions...thanks to the decadron ( part of my personality, but more enhanced by the pills, except now everyone accepts this ) I did help in the kitchen....in fact this Thanksgiving I feel is the best I have had in many years. Everybody chipped in....at one time we had four adults in the kitchen when the kitchen is small and having two at the same time is pushing the limits. But there was a lot of, "please, could you hand me, careful, don't back up." At one point I felt like I was in somebody else's house.....Guess cancer makes us ALL realize how lucky we truly are.

As far as my treatment and side effects...treatment was the day before Turkey day....My mind is running in turbo speed from the decadron, but my body is relaxed and tired....I think because I have to tell myself don't go as fast as my mind....I would be one of those that would have an accident....heck three years ago while shaving my leg in the shower, I was wound up and in a hurry because of a long road trip ahead and I slipped and hurt my knee. It has taken me all this time to heal from that. The constipation is trying to sneak up....but last time I took a stool softener...and then rolled into diarrhea. Oncologist said no stool softener this time....as the diarrhea will come as soon as the decadron is stopped. Then it's Immodian time. Which I have by the economy size...and chewable..LOL!

So far my only down fall....is I do have sleeping pills because of the decadron....I can take 1-2 tabs at bed. One did not help as much as last time. So last night I took 2. I got some sleep, but not solid. My only worry is that this time because of the holidays, it was not a problem, but round #3, I will need better sleep as I will plan to go to work on Thur and Fri (Treatment being on Wed.)  So I will take it again tonight and see what happens....if not then I will have to see if there is something else for next time.

Water....ugh! There is another problem....I take a water retention pill, so I don't drink water too much before my Chemo, but why I am there and after wards I am pouring it down me....I do already have to pee at Chemo at least twice...Well three times. Once before the hooking me up, once while I'm in the chair, then once right afterword's....then it's a race home. Then I'm peeing every half hour....aaaah! so much work. Nobody told me about this part...LOL!

  dcaudill- Hair..You made me laugh with the Elmers Glue. I did felt the same way when it started coming out.  On a Monday, a few strands, by Thurs more, by Friday I really need to shave, but pushed it one more day as I wanted to have the weekend to have time to deal with it. I don't know if I would describe it coming out in clumps. When I heard that description I had vision of having large bald spots on my head. For me it was like more of heaving thinning coming form all over. Everytime I ran the comb in my hair, I would get more and more hair on my comb. By Saturday morning, just taking the comb once I would say I had enough hair for a 1/4 cup. Then on the other side and back same thing...Then after my shower there was half a cup at the drain. After my shower I told my husband to get the buzzers...he was so cute he stood there and said "maybe you don't need to shave yet" because he too did not see bald spots, just thinning. I took the comb and just combed gently once and a handful was in the comb....his eyes went big and all he said was "wow"...we buzzed and I am glad I did....in fact I now understand what everybody who has shaved have said....the worry and stress is now gone. It's going to happen and there is no stopping it.

Still on the no hair issue....Call me crazy, but I am kind of enjoying it now......new hobby! something to play with. I am waiting for my order of hair halo's to arrive, hopefully toady. (from tlc)

Next worry is he eyebrows...hopefully I can keep those, but if not. I have a class to go to through  on Dec.10th and if I don't like the makeup idea...I'll buy fake...why not my hair on my bald head is.

Oh darn, it's pee time....

later, Denise

kristifromsandiego

Ladies 

Denise, thank you for your insight on the hair thing and yours also Jill.  I have yet to shave mine.  Peoples eyes just pop out when I go up to my hair and grab a strand and 10 come out.  I have a tentative appointment to get it shaved tomorrow but am not sure it I am ready, or for that matter if I will ever be ready.  It still looks OK and is not driving me crazy yet.  It kind of tingles all over.  Once I do shave it can I put regular moisturizer on it?

Jerri - I am the constipation King.  I had it immediately after chemo for the first time.  I tried all the ever the counter stuff and bought ever piece of Fiber this and that at the store.  Nothing seemed quite right until the doctor gave me Miralax (prescription).  It worked pretty god for about a week but I still was not right.  So my friend told me about this natural stuff ordered over the Internet Dr. Schulzes Formula #1 intestinal.  I bought it and the first tablet worked great.  It worked so well I decided to take another one the following night.  Well it was a bit over powering for me so I had a little bit of the "other" problem.  Now I am just trying to find a balance.  Maybe I will take it every 4/5 days if I think I have a problem.  I would try the miralax first but order the other stuff if it doesn't work.  Also, not to be to gross but I had a bit of blood also but they said not to worry about it.  Sorry this is really kind of personal......I am glad this is over the Internet because I am a bit embarrassed.  If any of us ever meet please disregard this conversation, I will swear we never had it.

I have a tooth ache.  Any suggestions.  Has anyone had a dental appointment while on chemo?  It is on a tooth that has had a root canal so I do not know why it hurts.  I pray I did not crack the root, otherwise it is a huge ordeal.  I have bad teeth,

I will start the drinking tomorrow in anticipation of chemo on Monday. 

Talk soon  Kristi

Onehalf

Kristi-

Don't be embarrassed. It is all natural human functions. Being striaght forward is the best way to ask, that way you get answers or comments to exactly what you are asking.

About constipation....do as they say and take nothing else. I had asked about Metamucil...They said NO way! adding that to my diet will react with the Chemo and will cause a "plug" one that will have to be forced out by fingers...yikes! I guess they will no. It is all chemicals reactions that the doctors and oncology nurses have the education on. So my message is take nothing except what they say to get and get everything Ok'd.

About the bleeding...I  had started my menstural a few days after getting my first Chemo. My period will change my BM's...I get loser. So I went from constipation to diarreha. Which caused hemmroids...I had bleeding hemmroids(sp) Never experienced this before. It scared me but Prep.H became my best buddy for days.

Hair yep! My started the same....10 strands, then more...I suggest don't shave till YOU are ready. You will know. But be perpared it may need to happen by the end of this next week. I have read where some women have hung onto their hair...they had little strands of bangs up front...this is not for me. I have to buy fake anyways....might as well do it all over.

Your tooth.. by any chance...Are you taking anti-nausea pills before the Chemo and after. I am taking Decadron....it has a stroid. Which wires you up....hopefully you are just gritting on your teeth....I noticed my jaws clamp more when I take these pills....and I have to mentally myself....don't move as fast as my brain.

Kristi take care...by the way where are you from?

Denise

jill323

Kristi -

What conversation ?   Actually, I am really proud of you for putting yourself out there.   If someone can benefit from your experience - as bad as it was, then a good thing comes out of this.   I hope that helps.  But, I will tell you I am being a bit of a hypocrite.  There are some things I want to ask about, but am too chicken - even on the internet.  So, I admire your courage on this. 

As for the Dentist - My onc. made me get a full work up at the dentist before I started chemo (and boy, did they do a full work up - my mouth was sore from all the Xrays).  The dentist also gave me some special toothpaste to use at night to strenghten enamel for use during chemo.    After starting chemo, I was "allowed" to go back for a simple cleaning.     But, I did have to check with my onc. first.   So... I guess the answer is, you better check with your doc.  

Good luck on deciding what to do with your hair.  Not an easy decision - and it is crazy when you can reach up and pull out hunks.  As for regular moisturizer.  I tried that and it seemed to aggravate my scalp more.   But, that's me.   I ended up having to get an antibiotic cream because I developed a rash.  So...I am afraid my situation might not be the most useful for you. 

Denise - Yikes !  You have been through the gamut on the intestinal stuff.  Good thing you are staying in contact with your doc on this.   I am really glad to see you being so proactive on this.   But, to show you everyone is different, my onc. told me to keep taking my Metamucil through chemo.   However, I have pretty severe diverticular disease, and if ended up in a severe contstipation scenario like Kristi did, I am likely looking at a hospitalization.  I have had some minor flare ups (that they put me on prophylactic antibiotics for this last time).   But so far, (knock on wood) I have been able to stave off the vascillating constipation/diarrhea scenario and the resulting aggravation on my diverticulitis. 

Anyway... I forgot to tell you guys that I was going to my high school class reunion last night.   Much to my great surprise, I had a ball !   It is amazing that no one has aged as well as I have !(kidding).  The weird part was that most of them recognized me, even with the hat and head scarf.  I wonder what that means.  I did not do so well at recognizing folks.   It was nice to catch up and not think about cancer for a while.  There was dinner, dancing and (too much) wine.    So there, Cristl (had my own wild week-end!).   Paying a bit for it now, though - and got this camp party tonight.  But, it was worth it.

Hope folks are hanging in there today.  

Jill

P.S. As "embarrassing" as it might be for all of us, I would love to meet you guys in person some day !

kristifromsandiego

Hello,

Debbie, I am from San Diego.  It has been a cold 45 here in the evenings and only got up to 72 today.  I called my dentist about my tooth ache this morning and she told me to call my oncologist, even if it is a Saturday.  Mine was not available so I talked to the on call oncologist.  He told me if my tooth got worse to go to the emergency room and have them do my blood work up to see how my cells were doing and then he would decide what to do, maybe antibiotics.  I still think it is a cracked root.  My dentist will look at it on Tuesday.  I am now on a soft diet because my teeth are just horrible, I was in the process of getting an implant on my right side when this all started so I could only eat on the left, now this is on the left, so both sides have issues.  I am going to eat a lot of pasta!  I guess that is good because I need to gain a few lbs.

Glad to here you party ed it up this weekend Jill.  Cristl will be proud and so am I.  OK so I had to ask, which reunion was it.  I have not been to one in years, you are so daring to go with scarf and all.  I don't think I would have been strong enough. I miss having my glass of wine but it now gives me a head ache, or either something is giving me head aches.

Thanks for the constipation in put.  I did check with the doctor before I tried the "natural" stuff.  He said it was OK, I just wasn't sure how many days in a row I should take it, now I think I have it in order.  I will let you know next week after chemo # 2.  I am starting to drink 64 oz of water today and tomorrow, then chemo on Monday.

 I also appreciate the input on the hair thing.  I was going to get it shaved today but my lady closed her shop early and left.  It is OK because I was not sure if I was ready.  My hair has thinned considerably but I still have enough to cover my scalp.  When I get bald areas I will shave it.  Might not be till Tuesday because that is the day the shop is open again.  If it looks bad before then, I will have to find just any shop to do it.  It is a bit sore.

My son goes back to college tomorrow, very sad, I will cry.  He is my sensitive child.  My daughter (16) and husband will watch over me next week.  Hope all is well with all of you.

Talk soon  Kristi....going to bed 11:00pm

Deb-from-Ohio

My Goodness I think once again I am going to live.......and Jill with NO trips for liquids.......I don't think it's the chemo that's kicking me so badly, aka nausea, I think it's the lack of white blood cells.......just very weak.........bout all I wanna do is sleep......am awake this morning for the first time in a few days and was able to come in here so hey that's an accomplishment!!!! Yaaaaaaay for me.....Have had Rick home from work since Weds, he went back today.....and I do have to admit, he  made an awesome nurse. Although If I had to hear one more time "Drink more water" I think I woulda shot him. Water is just plaiin ucky on an already sore stomach.......

Hair is still there, coming out by the handfuls, guess I will soon join the ranks.......it's already getting messy.......ugh and I had it cut so short......I didn't think it was possible for anyone/anything to shed more then my long hair German Shepherd, but I believe I whopped him in that dept.

Just can't wait till the coffee tastes good again!!!!!!! wooo hoooo.......

Love, hugs and prayers

Deb

jill323

Kristi -

Good morning !  Only got 'up" to 72, eh?  You must be suffering - says the person from the midwest who is dealing with dreary cold rain.   (OK.. I am jealous...again).    Sorry to hear about your teeth.  It is miserable when your teeth hurt - and with chemo to boot !  Argh.   Not surprised they had you talk to the onc.   The mouth is a notorious place where infection can enter.   So...better to deal with the pasta than risk that.   I know not what you wanted to hear.  But, I for one, am glad you are playing it conservatively.   (BTW, I would love it if I "needed to gain a few pounds"!).

As for hair - you know, I was too chicken to go to a salon to get it done.  And by the time I needed to (yes, needed.. not ready) there was not much hair left anyway and I was getting really aggravated by the shedding.  So, I just got me a set of those electric clippers at the beauty supply shop and did it myself.   After all, there was no need to be pretty about it.  Did not take long.   

As for the renunion - this was my 25th reunion.    I went to a relatively small high school - about 200 in my graduating class, and a lot of us were together from kindergarden all the way through our senior year.   I grew up in a very small town in south western Ohio.  Both parents were school teachers.   So, even though I have not seen some of these people for literally 25 years, it was if the years had not passed.   They were concerned and polite, but did not seem to care a lick about my loss of hair.  In fact, one lady said something to the effect of "I would recognize the men in our class if they had not all lost their hair".  And I said "well, I have no hair and you recognized me!".  She just busted out laughing and said... "I grew up with you".    It was nice just to be myself around these guys and not worry about it.

Anyway, sorry about your son going to back to college after the holidays.  I guess that is both the good and bad part about holidays.  You are about 4 years ahead of me in that department.  So, I can only imagine.  I have not heard you say much about your kids, but from what little you have said, they sound great !    (My son, btw, is also the "sensitive" one in my house).    Does your son at least go to school somewhere near by ?   Oh, and not sure you recognized this, but you seem to have made some peace with letting others take care of you.  That is a big step forward, given where your mind was a while ago.  

Deb - Yea!!!!  Sounds like this time around is going better for you - at least so far.  Your husband deserves special recognition for keeping your liquids up.   Sleep when you want to - my motto is that is better to be unconscious than sick !!!  I can already tell you are doing better than last time, because at this point last time you kind of dropped off and I did not hear from you for a while (you have my numbers if you need something).    Take care.

Oh.. btw, my "party" last night went very well.   I am absolutely exhausted, but pleasantly so.  No more parties for a while.   We had nearly 30 show last night - mostly my husband's relatives who are CRAZY (and I mean that in a nice way).    Today I will be working on this computer we just upgraded to (you guys are in trouble now... this machine is SWEET).   

For those having chemo tomorrow.... get your liquids !   I will be thinking about you.  And at least for the first couple days, here for moral support.   I go in Wed. myself.   And then we can all commiserate together.

Jill

kristifromsandiego

Thanks for all your support!  I am drinking lots today, and taking no drugs.  I will be doing chemo without Decadron this time.  I hope it will be OK.  Jill, good luck on Wednesday.  Hang in there! Keep smiling everyone!!  Kristi

Debbie1218

Hi all...

Just thought I'd hop on for a minute, and complain that my daughter and her family left this morning. we are down from 4 kids and 4 dogs to 2 dogs and a tired husband. I'm just missing the noise, hugs, and my 2 yr old grandson telling me i was HIS grama. Sigh.....my son is also the "sensitive one- and didn't get to be here so he was feeling lonely all weekend...and there is nothing like a 35 year old thats grumpy because he couldn't be here to bug his sister

I got called back in to re-do labs Friday- remember how they drew blood from my port and it hurt like the dickens? Well gee, they forgot all about there being heparin in the line, and then couldn't figure out why my bleeding time was so abnormal...duh....

I hear you all talking about losing your hair. I cannot imagine my cutting mine short after the fallout begins. If I did, i'd have to be constantly hearing about if it was my hair or the dogs, as we have a tempermental yorkie that looks like he's had a weave. So, if I ever get started on chemo (no they STILL haven't scheduled me) I'll pin or clip my hair up on my head - I wonder if clipping it up will make it fall out faster??? And like I said if the bangs go, so does the rest of it. We have several sets of dog clippers that should take care of the buzzing nicely. 

I am sooooo lucky - I only have one more orafice that has not been poked and prodded, and to remedy that I'll make a trip to the gyn tomorrow. Maybe he can call and find out what the heck is going on. Nobody wants to tell me anything...whine whine......probably delayed because of the drug trial. And then I saw the new stuff on blood clots related to it, and need to find the research nurse and find out more. Wouldn't that be just the greatest thing to have happen in the middle of everything else.

I'll be thinking of you all tomorrow and Wednesday, knowing my turn is coming. Take care and  drink your water. After the last 4 days, I'll refrain from any comments regarding weight, but will say that if it's only the 25th reunion Jill, you're just a baby!!!  Just wait until it's been 37 years (I graduated and got married the same year). It was a rather popular thing to do back in those days even when you weren't pregnant - notice I specifically mentioned my son's age above- you may re-read if necessary - and he is my oldest of 2 :-).

 Have the best week you can!!

Debbie

jill323

Good Morning Ladies !

Kristi - I will be thinking about you today.   I know it must be a bit unnerving to go in without the decadron, but you seemed to be very sensitive to it.  I am sure they will watch you like a hawk.   I am sincerely hoping you have a better reaction this time because of the precautions they are taking with you.   You seem to be doing all the right things.   I know we may not hear from you in a while.   But, I know you will be doing all you can to take care of yourself through this.  If you get a second to at least let us know how it is going, I won't be as worried about you.  But, of course, only do that if you feel up to it.

Debbie - Saw your post and immediately put my coffee down.  You are wonderful for my ego.  I have to admit that I LOVE it when the docs keep calling me "young".  Evidently, 43 is "young" by breast cancer standards as well.   I have found this to be a double edged sword in that the younger you are, the more likely they are to throw the book at you in terms of treatment because a) the recurrence risk is higher, and b) "you can handle the tough stuff" (so they say).   This is one reason why I had to be so assertive with my doc to not go crazy with my treatment regimen - particularly when I came back highly Her2+++.   You should have seen what she wanted to do with me at first.  Sheesh....    

Anyway, you haven't got any of your test results back yet ?   And chemo not schedule yet either?!   Hmm.. more hurry up and wait. I will tell you, though, in my case, once they moved, they moved.  It was like a whirlwind.  You are probably at the calm before the storm.  Also.. if you have been reading the posts above, did your doc talk to you about visiting the dentist before starting chemo ?   (What the heck, one more orifice).   My doc told me to get a full dental work up prior to chemo and get any problems taken care of.   Going to the dentist during chemo can be a hassle.  

As far as the math... let's see, you were roughly 20 when you had your first child.  I cannot even imagine.  At that time, I was in college still trying to figure out how to manage to get my hands on liquor and wondering how I could get that cute guy in my Chemistry class to notice me.   I did not have my first child until I was 29, and even then my husband's biological clock was ticking faster than mine (he is three years older than me).   But, like you said, a sign of the times I guess.  And your kids sound great.  I am so glad you got to see your daughter and grandchildren.  I remember there was some consternation about them being able to come to your house.   

Denise, Jerri - I hope you guys are hanging in there too.   I know you probably hit the wall this last week end.

Cristl - I have heard from you via your care page (great little feature that it informs via e-mail when you update it).  I hope things are looking up for you and you had a nice Thanksgiving with your Dad.

Deb - Hmmm... Last time you went dark on this board, you were being rushed to the hospital in an ambulance.  I sincerely hope that is not happening this time.    But, I hope you can see why I might be a little paranoid about that.

Well... gotta go to work.  Take care ladies.

Jill