IDC, STAGE 1,GRADE 3, TRIPPLE NEG
Hi, finnaly found this site. I have IDC, stage 1, grade 3, tripple negative on receptors. As I read I began to be scared about being tripple negative. I keep asking myself, if the chemo & rad does not work... there looks like there is nothing else out there. I am frightened andn surgery is scheduled for the 22nd (8 days). My mind in overwhelmed with trying to hope that I will live and what will i do with all the bills....will I be homeless? I have insurance but my jobe is switching to a much less good insurnace on January ... just before rad begins i think. I am so lonely and all I have are my dogs to comfort me. I have one sister who is supportive & one who doesn't talk to me. ... but other than that I am a single childless woman who has no close friiends (save one pen-pal) and boy am I lonely now. If I could only take back the last few years... there are a few things I would so like to do.... like have a life. Well, it sounds like there are poeple here who are beating this. Is this a hard road to take? Can there be a future for me?
Comments
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Hey Daisy, Sounds like a rough night for you...Thought I might be able to help a bit. I am 3-years out stage 1, grade 3, triple neg...just like yourself...There are a lot of us here, and most of us are doing pretty good.Reading your post brings back so many memories of my high emotions when the bc journey first began. As i'm sure you've been told, the beginning is so brutal, so unbearable. Do consider anti-dpressants, do consider tranqs...When I finally relented and took Lexapro, I was so relieved to finally stop crying...I hated the crying part. Yeah, those days before surgery, I never did anything so hard in my life...the waiting part, that is....I also remember, I never felt so lonely, so completely removed from the rest of life...My only relief was in speaking to other bc patients...especially those who had made it. Your words so mirror my feelings back then and I wish there was a way I could make you feel less alone, except to tell you, you will get your life back. Have a little faith...Stage 1 offers so much hope for survival. Triple negs actually do very well, and our survival numbers improve with the years. There are many ideas on how to improve those numbers: low-fat diet, supplements, and especially daily exercise (walking is a must)....I know you are in that dark bc place....Please try not to feel too alone...We here have all been there and you will get out and you really will laugh again and be you again!, best wishes, P
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Hi Daisy,
I'm also single bc lady. I have a more aggressive bc and found as stage IIIc. I had treatment for the last three years and still have a full life and things do move on even with cancer. Like Pennylane as mention we are pretty much take something for depression and sleep for a while. The diagnoses is always very hard. But things do get better...one day at a time. As for work... don't panic yet, a few of us were able to work for the first part of our treatment. As for me I worked through out my treatment. Hopefully your employer will be supportive. Please find a good support group so you can talk to other who have cancer and hopefully you will find someone else to help support you thought this difficult time. Your cancer clinic should have information about support and also what to do about the finance side of this. Please start reading about other cancer survivors and what they did to beat this beast. Get some good reading material for night and weekends, for some reason this are the hardest of times to get through.
Your cancer was found early and that is the best thing that could have happen for you. There is no reason you can't beat this. All the other "stuff" will find it place. Your job is to fight this disease.
God Bless and may you find peace that you CAN do this.
Flalady
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Hi Daisy,
I am 1 year out and have the same stage/grade as you. I think finding the cancer early is a good start. It doesn't change the fact that you do have BC. My onc has been very positive w/my therapy and feels that I've done great and life goes on. I just have to believe in it and keep living. I think having the support helps. I agree w/Flalady in the support group. I have been to a couple of meetings but am very busy w/3 kids and sports. I go when I can. They keep me up to date and are very supportive to me when I am not there. Stay positive. Hang around positive people and keep doing what you're doing (except when you need to take a break...take one!). You can beat it! Keep the faith.
Carolyn
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Also IDC, Stage 1c, Grade 3, Triple Negative. Had double mastectomy 11/20/08. This week I meet with my oncologists to discuss treatment and the possibility of getting a port. I've joined a breast cancer support group at our local hospital, and it has helped immensely. Please let us know if you are able to join a support group and create a loving community around yourself. If not, I would be more than happy to be your penpal through this. You posted in August - what is happening in your life now? Thinking of you -
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Hi there,
Also TN, but Stage 2 Grade 3, tumor 2 cm. I recently had my lumpectomy on 11/5. All of my 20 nodes were clear (Yea!)
I totally can relate to your anxiety and worry. But there is hope! Treatment is so much better today. No matter what insurance you will change to, you will have to be treated. Keep all your documents and be a strong advocate.
I agree w/ everyone else. There are good support groups in many local hospitals. This site has been my support group. I suggest faith based support too. Reading the bible and prayer has been volatile to my spirit and sense of being. You do have your days of course. Please PM me anytime.
Keep us posted.
Prayers & Hugs,
Jeannine
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hello,
there is so much more you can do after chemo that can help keep you recurrence free.
I was first diagnosed with an aggressive TN in 2001. I am still here!
I changed my diet to a low fat diet, exercise at least 4 times a week, eat ground flax seeds with my cereal every morning and take 2000 ius of Vitamin D daily.
The diet and exercise has been proven to reduce your risk of recurrence by as much as 50%.
The treatments are so much better now for TN and they are studying even more. The San Antonio oncology conference will be revealing lots more good news.
Good luck with everything!
hugs
g
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hi dear - i am also single and deal with this by myself. i wasn't single when this all started - had a lovely boyfriend of thirteen years (an MD) who bailed halfway through my rad tx...such a betrayal. now i feel that at least i know who i can count on - me.
come here a lot for tons of love and support.
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