What can I do to help?

Bailey1

I am so heartbroken after reading these posts. While everybodys story is somewhat different, it seems that time and time again the medical teams failed to take the appropriate steps. Doctors aren't perfect, but any changes in your breast should be taken seriously. It is scary that not all health care professionals know about IBC. I'm a maternity nurse and the other day I walked around our unit and asked our nurses and lactation specialists if they had heard of IBC, none of them did. As a nurse, I urge you all to be persistant. Don't be intimidated by them. Ask them how familiar they are with IBC. I have even mentioned this website to my doctor. You know your body than anybody else!

I went on the Komen website, which is very informational, but realized they don't really mention IBC specifically. Have any of you found that to be true? I know many people use that website, it would be great if they could educate more about IBC.

I all ready sent out an mass email to all my friends about IBC and I'm going to ask my manager to send out a mass email to our maternity unit to educate all of us as well. Is there anything else I can do?

Your stories have had a huge impact. Your strength and positivity give hope to people when they have none. I will continue to keep all in my thoughts and prayers.

Caseysmom

Bailey1:

What you are doing is great!!! I thank you from the bottom of my heart that you have sent out e-mail to your friends and asking you manager to send out a mass e-mail.  I only know of two places that are doing research on IBC is MD Anderson and University of  Michigan.

Again Thank you for spreading the word!

Laura