PRO-Active or RE-Active???

1Cathi

I hope that I can explain and ask my questions of you all that have so much more wisdom than I without totally confusing you.

I am waiting on biopsy reports (should have results 9/16) from 2 complex cystic lesions in R breast - 1 very close to nipple, the other on chest wall - biopsy was done 9/11. Original DX 06 ILC in left breast also LCIS & ALH.  Lumpectomy, 6 nodes negative, 33 rads, tamoxifen a short while, and now nothing.  In the past 2 years including 9/11 biopsy of the 2 areas, I have had biopsy x5 in R breast - all B9 - YEAH!!!

My concern of coarse is recurrance, I have been reading and re-reading some of my past reports today (I am very concerned about the chest wall lesion), and I see that most of the DR always talk about survival - I have come to learn I WILL SURVIVE(Sounds like a song) But my fear of recurrance is strong,  and for the better part of this last year I have wresteled with mastectomy.

I found this blurb from one radiologist in a report which leads me to believe I may be right  -seems like my odds are pretty high for recurrance???

"The patient has no family history of breast cancer(mother died of Liver cancer unknown primary) She gave birth to first child @ 20. Her lifetime risk for future breast cancer based on GAIL model is 24%. This most likely underestimates her risk as it does not take into account details of her pathology" 

I have been BRAC tested - negative.  I know that mastectomy does not comletely take the risk away, but I have also read that sometime multiple B9 breast cysts can be a future indicator as well,  any doctor or tech who has ever examined me always remarks on the # of cysts that I have in my R breast -  innumerable!!!!!!

I am only 48,  I know so many of you have and are going through far worse than I,  but I can't help but wonder if bilat is not a sound choice for me,  everytime I have a follow-up there is something else to biopsy -  I am certian one of these days my good luck will run out, and I know that BC does not have to be a death sentance as I once thought -  but I also do not want to wait for "the other ball to drop: if I can help it.

Any imput would be great -THANK YOU ALL