ILC 4 1/2 years out

spar2

I was told Invasive lobular cancer has 30% reocurrance rate, I am 4 1/2 years NED now.  Has anyone out there had a reoccurance?  How many still NED like me?  Hope all is well with all of you.

HensonChi

Congrats to you...I hope to be writing whe I am 4 years out!

NancyNY

Me too Spar.  I was diagnosed May 13, 2004, so it is almost 41/2 years for me too. Hope we're all here for 10, 20 and even longer.

lolmarsha

I don't think there is many of us here. so happy for all SO long. Just 1 1/2 years for me.Guess it depends on our signature.You are doing the RIGHT thing.Really lifts the hope. Thanks.

spar2

I hope we are all still posting many years down the line!!!!!!!!

LUVmy2girlZ

SPAR !

I am SO  pleased to hear about your 4 1/2 year mark...I think many sisters just don't post for a length of a time. 

You are closer to your 5 year...then what are the percentages ???

I am keeping my fingers and toes crossed for you...I LOVE it when people post their marks...it brings a little sigh of relief to the rest of us!

I will always remember you, and our adventures together!!!

Cheers to you sister !

Much LUV

spar2

I will never forget you Luv my sweetie, we have had some funny good times together and I do love ya.

Maire67

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Gitane

3 years from my diagnosis.  Still NED.  Hope others post, too.

Little-G

I will be 3 years out the end of this year.  No re-occurance..knock on wood!!!!!!!!!!!  I also tend to come and go on the boards, but I do like to pop in and see how everyone is once in a while.  Here's to hearing from all of you many more years!!

g

LUVmy2girlZ

(((HUGS))) to you Spar!

Love ya back!

Much LUV

spar2

ROFLMAO

Anonymous

I was dx'd in July of 2005...that's makes it just over 3 years for me! Time will tell. Best wishes to all of you Elite Lob Girls.

Trish03

I was dx in September of 2003. I can't believe that this year marks 5 years. I'm doing great...NED so far. My wish is for many, many more years for all of us.

Hugs,

Trish

Jani_

Hi ladies!

I was diagnosed February 2007, so 1 1/2 years NED for me. Hoping for many, many more!

Thank you to everyone who has replied on this post. It really gives me hope!

God bless,

Janine 

moonie

I am just a little over 3 months shy of my 5 year mark!!!!

Just had a bone scan which turned out to be arthritis---still NED!

Best of luck to all of you!

spar2

It is pretty wonderful that we are NED and want to stay that way!!!!  Thanks everyone for posting.

GrammyNancy

Thank you for posting this....I'm  1 1/2 year since diagnosis and NED and it sure gives me a great deal of hope to hear your stories.

Nancy

snicklefritz

Hi everyone:

 I'm almost a five-year survivor.  Was diagnosed with invasive pleomorphic lobular and node positive.  Yes, there is not only hope but we are all solid proof that great progress has been made and we all play to win.  To spar2, Nancy and all of us, we will make it and won/t take no for an answer.

Love to all, Mary Jane

althea

I'm getting close to 4 years since my diagnosis.  I went through chemo first, then surgery, then rads.  It's nothing short of a miracle that my nodes had no involvement.  I should've been dx'd sooner. 

Back in those days, I didn't know there was more than one kind of breast cancer.  Apparently, the doctor I was seeing didn't know this either.  My tumor got an extra nine months to grow because of him.  Well, and because of me too, because I believed what he said.  Mine was very slow growing, and thankfully so. 

As I learned about lobular, it concerned me about the recurrence rate.  Still does.  I've been making slow, yet persistent, changes in my food choices and I hope it's enough to keep that nasty cancer from ever coming back.  I took tamoxifen for 2 years.  I just couldn't see how I could hang with it any longer.  I stopped.  Now I'm educating myself about alternative treatments.  I have a feeling my choices would be very different if I had to go through another round of treatments.  Hopefully, that will be a choice I don't ever have occasion to make.   

Harley44

Spar,

I didn't know (probably just don't remember, I guess I forgot... can't remember anything these days!)  But I didn't know that you are Lobular... My bc was IDC...  I think that is the most popular type...  lol 

Great to hear that you have been 4 1/2 yrs!!!   I read on the beach thread that you will be undergoing some add'l tests, and scans...  Just want you to know that I'm thinking of you!

Love ya,

Harley

LUVmy2girlZ

BEST of LUCK !!!! Spar....keep us posted w/ good news!  We will have to go "celebrate" okay?

Love ya Spar! 

spar2

Thank you guys.  Hope we get to celebrate with a party on the beach.  love back at you luv and harley, you guys are good friends.

pinoideae

spar2

I am praying for an all clear on my pet imaging friday.  Hope we all stay ALL CLEAR and drink from the bottle of cancer free.  good going summer

Anonymous

spar--my mom had ILC; lumpectomy, radiation and tamoxifen and is now a survivor of over 21 years without a recurrence! Good luck on your tests on Friday--praying you get good results.

Anne

sue_blue

I was diagnosed 13 months ago. I had my first 3 month check today after completing bilat mast, chemo, and rads. The check-up was good. I hope to be there with the rest of you, many year out from this.

Harley44

spar,

I'll be thinking about you on Friday, and I'm praying that you get the "all clear"!   You are such a good friend!!   Love ya, Spar!

Just a little side note:

I'll be getting an u/s of my 'sick' breast on Oct. 2nd...  Seems I have a lump there, and my surgeon wants to check it out.  He 'thinks' it is a cyst.   So just a note to any of you out there who got a bi-lateral mast., or even just a single mast., you still have to be vigilant about doing bse's, because you can still get lumps on, under, or near the breast.  I had reconstruction too.  My surgeon once told me about a woman who had reconstruction, and he had to take out a lump which was located near the implant...  tricky surgery since he didn't want to burst the implant.  He said that it was benign, so now I'm thinking that is what they will say about my new development, only I don't want to have to have surgery again. 

Harley

Gitane

Harley,

I had bi-lat mast, implant reconstruction, Harley, and I just read your post.  To be honest, I'm always checking because I'm just that anxious.  Now, I feel like doing a bse without breasts really makes sense.  You are so kind to post this, as it's very important to all of us.

Too bad you have to wait until Oct. 2nd to get the u/s.  Seems like a long wait.  Hopefully surgery won't be needed.  I'll be thinking about you and checking back.  Dang! 

Sniklefritz,

I'm really glad to know you are going strong.  There are so few of us PILCs.  Thank you for coming here to share the good news. 

spar2

awb, that is just awsome and gives such encouragement to others to know you can be that many years out with lobular.   What a blessing.

spar2

Harley, I think you and me are gonna be fine, we have just a few little bumps in the road but girlfriend we are tough and we will be OK!