Anyone doing Clinical Trials for IBC?

pamtriv

I have been diagnoised with IBC and have entered into a clinical trial. It is in phase 3. I am wondering if there are others who are doing clinical trials? Also all of this is so very new. I have tons of question and the MD answederd lots of them, but more keep coming up, is this common? Does any one know what all of the info in my signature really means, the negatives and positives? I had my first chemo treatment yesterday. This is my first post here, but I have read other postings and have found them to be very imformative.

Thanks!

Pam

shrink

I'm stage III IBC so I wouldn't participate in a clinical trial unless I had mets and no other options were available.  If the doctor is telling you that this is a very promising drug, you'd want to know how this varies from traditional treatment.  ER+ means your tumor was estrogen positive and you can benefit from drugs like tamoxifin and arimidex, etc. (AI inhibitors) after chemo, surgery and radiation if that what the plan is.  PR- means it was not progesterone positive and HER2- means you won't benefit from Herceptin treatment after chemo, surgery and radiation.  Everyone is frightened and should be asking lots of questions. I am so sorry you had to join this club but we're here for you.  There is also a lot of information on ibcsupport.org.

Rovergirl

I am participating in a clincial trial that supports both locally advanced and IB cancers.  The trial is phase II and the investigational drug is called sunitinib.  Your research coordinator and the oncologists should answer your questions regarding treatment, pathology reports and the such.  I am very excited about participating in the clincial trial as it can help me and future BC patients.