TYKERB (FATIGUE ISSUES)

WILDRIDE2005

I'VE BEEN ON TYKERB FOR ALMOST 3 MONTHS.  I DESCRIBE MY LIFE LIKE A ROLLER COASTER RIDE.  I'M UP AND DOWN ALL THROUGH OUT THE DAY.  I WORRY THAT THIS FATIGUE IS GOING TO GET WORSE.  I WOULD LIKE TO HEAR FROM OTHERS ON TYKERB.  HOW LONG HAVE YOU BEEN ON IT AND HOW DOES FATIGUE AFFECT YOU. 

victorygirl

Im just gonna be starting Tykerb with Xeloda as my Herceptin has finally failed.

besides Fatigue, are you having any other side effects?

Victorygirl 

WILDRIDE2005

THE MAIN SIDE EFFECTS TO TYKERB ARE DIARREA, FATIGUE AND THE TYKERB RASH.  IMMODIUM SEEMS TO WORK FOR THE DIARREA.  FOR THE RASH, I HAVE USED AQUAPHOR ( IT LOOKS LIKE VASELINE).  MY SKIN FEELS DRY SO I AM ALWAYS PUTTING LOTION & CREMES ON.  DON'T KNOW WHAT TO DO ABOUT THE FATIGUE.  SOME DAYS ARE OKAY AND OTHERS I JUST HAVE TO LAY ON THE COUCH.

pondfrogs

I am on a study that involves taking tykerb. had to go off it for 3 weeks becasue of the extreme diarrhea but am now back on it this week. the fatigue is terrrible. I don't feel like myself. always tired and body aches. was hoping this gets better with time and when I'm off the taxol but if you are 3 mths into it and still having a lot of fatigue it doesn't sound promising

WILDRIDE2005

09/2005   BREAST CANCER, 8 POSITIVE NODES

               4 A/C, MASTECTOMY, 12 TAXOTERE, 9 MONTHS OF HERCEPTIN

02/2007 BREAST CANCER SPREAD TO BOTH OVARIES

             HYSTERECTOMY, STARTED MONTHLY INJECTIONS OF FASLODEX

12/2007 CT SCAN SHOWED ENLARGED LYMPH NODES IN PELVIS & ABDOMEN

             6 IXEMPRA TREATMENTS, CT SHOWES NED

             START TYKERB 04/2008  

MAYBE I SHOULDN'T BLAME THE TYKERB FOR BEING TIRED, MAYBE ITS A COMBINATION OF THE LAST 2 1/2 YEARS.