i understand what NED IS, But

ekenny315
ekenny315 Member Posts: 68
edited June 2014 in Triple-Negative Breast Cancer
i understand what NED IS, But
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  • ekenny315
    ekenny315 Member Posts: 68
    edited June 2008

    what does it stand for?

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  • Wink333
    Wink333 Member Posts: 143
    edited June 2008

    It stands for "no evidence of disease". Meaning that no cancer shows up on any of the scans or blood tests the doctors run on you. They can not see any cancer anywhere in you. If it is there it is too small to detect. At least this is what I understand about NED.

    Wink

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  • ekenny315
    ekenny315 Member Posts: 68
    edited June 2008

    thanks wink

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  • Lee27
    Lee27 Member Posts: 69
    edited June 2008
    I just had my 3-month NED reports. They were good.  Happy Dance here.;-) My doctors wish me to be tested every 3months for the 1st 2yrs.
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  • Lee27
    Lee27 Member Posts: 69
    edited June 2008
    I just had my 3-month NED reports. They were good.  Happy Dance here.;-) My doctors wish me to be tested every 3months for the 1st 2yrs.
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  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited June 2008

    Great news Lee!

    happy dance

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  • Gorilla12
    Gorilla12 Member Posts: 63
    edited June 2008

    I am officially 3 years NED this July 2008!! Whoo-hoo no more tests until April 2008! Also, both my kids just graduated - son from 8th grade and daughter from high school. We are having a big party this weekend to celebrate!! GOD I am so happy!!!

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  • guitarGrl
    guitarGrl Member Posts: 697
    edited June 2008

    what kind of tests do they do to find you NED??

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  • Shirlann
    Shirlann Member Posts: 3,302
    edited June 2008

    Hi lovey, usually, at least in an HMO, just a mammogram.  Some docs/oncs do tumor markers, but they have a fairly high rate of false positives, so some docs/oncs don't like them.  An MRI, would be nice, but no hope of that for me.

    Hugs, Shirlann 

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  • HollyHopes
    HollyHopes Member Posts: 497
    edited July 2008

    Hi Shirlann...i love this new format...what do you think?  So much better than the last time they changed it...glad to see you are still active here.  I have been not checkign the boards as much lately...what a difference from a year ago!

    Sending love to you...and to all on this TN board. 

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  • Shirlann
    Shirlann Member Posts: 3,302
    edited July 2008

    Hi Holly, so good to hear from you.  I love the new boards, I think they are great.  And I am so happy you are moving on, as you should.

    I keep telling these guys, this is a doable, recoverable disease, and it makes me feel so good to hear from the wonderful women like you with success stories!

    Hugs, and kisses, Shirlann 

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