clinical trials

kimmie39

clinical trials

kimmie39

HI ALL,

Just checking on you guys.   Im getting a little stubble. Im enjoying it while I can Its the first kind of hair Ive had in a year. Ive asked my dad to help me get a pic on this site. It helps to see who your talking to.

I just came back from M D Anderson. Dr C had me go to the clinical Trial dept to see what they have to offer since standard therapy isnt doing so well on me.  My scan shows the nodes under my left arm have doubled and I have new spots on my spine AND the Liver spots have grown plus there are new ones. To be honest the Liver scares the s__t out of me.

Anyway they have a phase two trial the focuses on patients with the BRCA 1and BRCA2 mutations in some DNA, Any beast cancer before age 50 is considered young and Ive had it twicw=e now, Plus my father died of lukemea at the age of 34 and his mother died of cancer in her 60,s.

If I have the mutation they are trying a drug that focuces on that mutation somehow (I dont have all the details yet).

Any interested party can look it up in the M D Anderson web site under clinical trials, The number is 2007-0431. Its being funded by KuDos Pharmaceuticals. Maybe one of you can make since of it better than I can.

So the down side is I have to waight for the genetic testing and they told me two weeks but when I looking on my appiontment schedual Im not schedualed for 3 1/2 wks. Going this long with no treatments I find nerveracking to say the least.

o what cha think??? I can ALWAYS use some friendly advise,

Thanks alot

Hugs from Va

Kim

lemonpie

Hi Kim.. I dont have any advice but just want you to know I read all of your post and have been keeping up with your situation.  Another note... we have the same doc at MDA.... however, I have IDC not IBC.  Anyway... just wanted to let you know I will be thinking of you and wishing you all the best.   Congrats on the stubble!!  I just had to buzz mine off again.... new primary on the opposite side and the new treatment pretty much wiped out what was coming back... Again good luck with the trials.... 

kimmie39

Lemon pie,

Thanks for the support, Sometimes I need it. Good luck with the new primary. This is so un fair.

Kim 

txred9876

Sorry to hear you ladies are having such a rough go of it....(((hugs))) and prayers are sometimes all one can do.

Keep your chin up you two have a great doctor in doc c!

tina

Caseysmom

Kim & Lemonpie:

I'm sending hugs and prays in your direction!!

(((((hugs))))))

Laura