Again with lemonpie

lemonpie

Again with lemonpie

lemonpie

I've posted several times since my original diagnoses in March 07 and a few times since my second occurance April 3, 2008.  I have changed my user name from mmc to lemonpie.  Why?  because mmc was soooooooo boring and I love lemonpie!!!  Anyway, I am not on the boards as often as I would like to be, nor do I respond to very many of the posts from others....so I figure that is why I dont get alot of responses when I do post, but I do read virtually every post on the board. Anyway.... I would like to hear what others think of my current situation.  I was originally diagnosed with stage 3C, IDC, with lymph & vascular involvement, several postive nodes, triple neg., large tumor 8.5 cm... I took 6 rounds of TAC and at the time of surgery there was no sign of the tumor and all 18 nodes removed were neg.... went for my first check up and had a mammogram on the remaining breast and 2 suspious (sp) areas were found along with a swollen lymph node.  The 2 spots in the breast turned out to be b9 cyst but the lymph node is positive for breast cancer cells.  i have had mammogram, ultrasound, and MRI and no tumor can be found. I am currently taking 12 weekly pacitaxol....and I'm now scheduled for an MRI guided biospy even though no other areas have been detected based on the ultrasound, mri, and mammogram..... All my treatments are and have been at MD Anderson and I do have confidence in that they know all about cancer but I am beginning to wonder.....  I guess I just cant believe that my cancer came back so quickly after having had a complete clinical response to the first round.... I am now having to have the port reinstered next week, which I have often wondered why my onc decided to take it out being that I'm triple neg and all......Anyway, i know this is long winded and may not even make any sense but if anyone can make heads or tails out of this and have had a similar experience I would love to hear from them.   Thanks.....

formygirls

Lemonpie,

I do like your new name. I just wanted you to know that I have read all your posts as mmc. My dx is today is pretty similar to your original dx as you can see from my signature. I am still going through chemo and have surgery and rads ahead of me. I find it  cancer your newvery surprising as my onc are trying to convince that the chance of recurrence in the other breast is very low and my big concern is mets. Are they treating your lymph node as a new primary? What are they doing a biopsy of if no lump was found in the breast? I thought the biopsy already showed the lumps as b9. I am confused. As you said, the MD folks know what they are doing..but makes you wonder.

lemonpie

Hi Formygirls, 

I am confused too.... it seems that MDA wants to biospy the same spot that they have biosped twice already, only this time they want to do a MRI guided biospy.  They have assured me that there is nothing new to biospy but they say if the lymph node is positive for breast cancer then there has to be a primary tumor....  My onc and surgeon both told me the chance of reccurrance in the good breast was very slim and seemed quite surprised when it returned.  another thing that I don't understand is why they havn't suggested doing other scans to see if the cancer has spread to other places, after all, that is what triple neg is known for.  I know I should ask them about that but I'm really NOT wanting to find anymore cancer.  I can't get a clear answer if this is a new primary or a what but I am heading up there next week to have the port put back in and I am going to try to get more info...... I did call my onc earlier this week and of course I could only talk to his PA and she told me it is from the first cancer and not a new cancer.....  I really dont know what to think anymore and I'm not sure MDA knows either!!  Thanks for answering and I really wish you the best.  Mary (lemonpie)

TenderIsOurMight

Mary,



I'm sorry for the current mayhem in your breast cancer saga, and for the upset and natural fear it is causing you and yours.



You are very clear here as to your questions, and I trust you will find your voice when you return to MDA next week so that you may be given answers, and means to answers, as much as humanly possible. At times with this disease, there is an element of uncertainly. The goal of clinicians and patient's alike is to have that degree as minimal as possible and MDA will work with you to this end.



Please know I will keep you close in my heart for a productive visit, and also for some peace amongst your current storm. I'm sorry you are possibly fighting the beast again.



Tender

Rachel4623

Please take a look here!

lemonpie

Thanks formygirls & Tender for thinking of me... I am heading to MDA today and will probably be there the whole week.. Seems like I have something scheduled everyday... I hope to get some answers to all of this.  So far to date I have received my 3rd round of Paciltaxol and to date have not had any se's to speak of .  A little burning on the bottom of my feet, it seems like the steroieds give me the most issues.... cant sleep well and I feel like a linebacker!! I wish you both the best and will be thinking of each of you. 

Mary (lemonpie)