OUR RIGHT FOR PRIVACY HERE!
Comments
-
go to moderator messages topic - i started a conversation about our security and privacy issues on this board anyone here who is upset about what happened to beth PLEASE post there so our voices wil be heard i say that the person who did this to beth violated everyone of our rights here to share our knowledge and experiences with each other!!!!!! and should be BANNED from continuing on this site by the moderators
I for one will make sure i do not post anything personal again until this is resoved
-
go to moderator messages topic - i started a conversation about our security and privacy issues on this board anyone here who is upset about what happened to beth PLEASE post there so our voices wil be heard i say that the person who did this to beth violated everyone of our rights here to share our knowledge and experiences with each other!!!!!! and should be BANNED from continuing on this site by the moderators
I for one will make sure i do not post anything personal again until this is resoved
-
I really don't want this to be made into a huge issue -- I already have enough drama to clean up here.
I deleted all my posts from the mojo without matrimony...
But, I just can't bring myself to erase the what do I tell my potential boyfriend thread...
Honestly, that's my story. It's raw, real, and unedited. And I know its not professional, and can technically be used against me, but I think those posts are really helpful.
I'm getting no feedback from the moderators here either.
grrrr.
-
Here's what I think, my chicas, FWIW....
It's absolutely awful to even think about the fact that someone here (and I guess there must be evidence that it was a poster and not some random "visitor"?) violated Beth's privacy by communicating the nature and content of her posts to her employer. Yes, it's despicable and very, very scary. BUT, I do think that we need to be realistic here. As much as we enjoy a warm feeling of intimacy among us here, we are, for the most part, powerless to really and truly know one another well enough to be completely safe in sharing confidences and intimate details, unless we're aware that these might be used against us in some way. There are many, many wackos in this crazy world and I'm sure this venue has its healthy share of them. Having breast cancer does not make anyone immune from mental illness or from being truly evil, in fact.
So it's a definite risk, for sure. Whenever you "publish" something....anything.....in a public forum, it becomes public property and anyone at all can do whatever s/he pleases with it. So, although I'd love to think that we are just a close-knit community of wonderful women sharing a common goal...to help ourselves and one another through the awful breast cancer experience....it's just not a realistic view because it doesn't take into account those who do not have this goal or even benevolent intentions.
So let's be careful, my friends, and carefully consider what we say here. For my part, I feel entirely comfortable with what I put out here, but I made that decision, with my eyes wide open, from the very beginning. Anyone who wants to quote me or discuss my opinions or details about my love life....well, they can effing bite me!
~Marin
-
marin well said thank u
-
Marin: the word "benevolent"... killed me! LMAOL!
-
Beth......I haven't really spoken out about this but I think we should ALL read the negative post and if we don't like it ignore it like it was never there. Can we do that.??????
Oh by the way, some bitch called my boss and whatever, he laughed about it but he does want me to omit my last name. Fine, I realize now.....I shouldn't have done that in the first place.'
I need a drink.
Hugs girls,'
Traci
ps I went out with my OAOA Eric tonight to the fair, the air was chilly and we rode some rides and it was fun and then.....I took him home.
Deep sigh......
-
These words have served me well over the years and I have them posted on my bulletin board at work:
IF THE WORLD DIDN'T SUCK, WE WOULD ALL FALL OFF!
Need I say more?
Namaste, my chicas
~Marin
-
I have posted pics of me, dd, my dog and other fam members but for the most part, my avatar is not me, my real name is rarely used but it's out there. I really try to never say things that could be 'used' against me but we are all human. I am not in a business where the things that I have posted would harm my job. I don't think any of us have done anything immoral or unethical. For someone to try to hurt is just plain mean.
For me, the only person I occasionally think about is my ex .... I don't make postings as to where I will be or anything in the future .... I just need him to decide one day to be there. I am quite sure he is "over" me but I don't need the drama if I have my dd with me.
-
At one time, I frequented a board that had a few forums that were "for registered members only" and you had to be authorized to visit that forum manually. So the admin could admit you after your character had come across from your postings.
-
This is pissing me off to know end. I'm boring have nothing to hide, and like Marin write with my eyes wide open. But there are alot of new women who come to the site who don't know about this so I hope they read these posts and realize there is an asshole out there who is trying to hurt us women. What the hell do they think they are doing I'm so angry about this I want to read all the posts I can and try and find a common denominator to try fiquire out who would be this nasty. I just don't get it. Why the hell don't the weirdos go to weirdo sites and leave us alone. Pearl!!!!!!
-
"IF THE WORLD DIDN'T SUCK, WE WOULD ALL FALL OFF!"
Love it!!!
-
I've been tied up with family problems and haven't had much time for the boards as usual. Now I find this and I have no clue what's going on but it must be big!
Am I to assume we have to be very careful from now on and not mention anything personal about ourselves? Do we have some sicko's on this board now.
I put some very personal information on here in the past. No that worries me...I might go delete it. I don't know what's going on but I can tell its not good. This ticks me off...all some of us have is these boards to talk to others that can relate with us. I don't have anyone to talk to so I depend on these boards. But I guess that has changed. There always has to be bad apples to ruin it for everyone.
Chelee
-
I know Chelee cancer is boring I need all the juicy gossip I can get, I wonder what happened too what ever it is it makes me want to change my avatar in fact I think I will replace it with a drawing instead of a pic.
-
I don't know what the post said either; however, if one just goes to google and puts in their name, all your posts on any boards will show up. That may have been a way that this someone got info off this board, without ever entering this board. Just a bit of info I thought I'd pass on.
Edited to read: I just tried it and it's not your name, its whatever your user name is on the forums you post on. Jesus, my names all over the place,shows the posts I have made on this forum, anything I commented on in newspapers, etc. Wow - pretty scary!
Linda
-
I agree!!! It's wrong what happened, but unfortunately it did. We support one another in these forums, but there are those who don't have the same goals as others. I send out ((HUGS)) to BethNY, and anyome else who feels their privacy was invaded
-
BethNY you have never been anything but helpful and supportive from what I have seen and it truly sucks that someone out there would seek to bring harm and chaos into your life. I am truly sorry you were violated in this way - of all places here. For some people, it's not enough that they will pay eventually! I hope Karma is not good to them NOW!
-
Just wanted to remind people to look at the dates -- this all happened more than one year ago. Chelee's post (5 comments up) was on March 25, 2008, followed by a post from DV8Q on March 29, 2009.
The indicidents described DID suck, terribly, and the reminder to take care to protect our own information is a good one.
Bethie1 and Navygirl, very well said!
-
Thanks Ann, I did not catch that last night...but as you said, the need is still there for us to be careful.
Have a GREAT day!
-
I got to thinking of something while re reading these posts. Could BethNY email the moderators and let them know what happened? Unfortunately, the internet is public domain and anything and everything gets said, done, etc, but if a policy could be put into place on here to prevent "abuse" like what happened to BethNY, maybe we can prevent it from happening again. Good idea "sisters"??
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team