Out of the Ordinary IDC

GrandmaWolf

Out of the Ordinary IDC

GrandmaWolf

For all the information I read about ILC everything refers to OncoLynk,  hormone positive...and what are best practices.

I am driving myself crazy trying to find information on my personal ILC.   It is unusually stage 1, low mitotic 1 grade two..yada yada for all those features common to ILC.  All the info says chemo isn't always useful for lobular, while hormone treatment is the gold standard. Here's my kicker...I am triple negative ILC.

Is there anyone reading these that has this type diagnosis and would have information?  Currently I am on taxol and cytoxan...

As this is a 2nd primary, my first being IDC, again stage one 8 years ago, and an MRI disclosed a 3rd stage 1 grade 1 primary in the original breast.... a bilateral is looking like the way to go after the chemo.... I know the chemo isn't doing anything for the 3rd primary because that is hormone positive.

I know there must be more breast cancer Mutts like me somewhere out there, and I'd love to hear from you.

Grandma Wolf aka Dakota