Rash- Inflammatory Breast Cancer/????? Help

JAZZZYLIZ

Rash- Inflammatory Breast Cancer/????? Help

JAZZZYLIZ

Who can share your diagnosis of IBC- how did it start?? I already had surgery for stage1BC estrogen posit, no nodes-  tamoxifen 2 yrs-  had Rads- no problem or rash w/ rads, but have developped rash- to the left side of affected breast and underneath a bruise like patch- now my Oncologist- said give it two weeks and if not better- will have biopsy-( but of what)= there is no lump? the skin?? My radiation oncologist saw it too- said nothing to worry about- I asked about IBC- said not to worry- but I am really scared and worried- the creams( benedryl ) don't help- I next see a dermatologist- but not for a wk= really concerned- In my heart- it doesn't feel like it is just a rash- I never saw anything like it.

kimmie39

I hope its something simple. If not or if you have questions stay in touch.

Hugs in Va

Kim 

heartbroken1

Hi Kimmie

Could you tell me how you got your diagnosis of IBC- ???Thanks

motheroffoursons

I am in the middle of something similar.  Huge red breast one year after radiation.  Drs. are saying most likely radiation recall.  The redness has subsided into a rashy looking skin over most of my breast.  They are not a matched pair, but the Dr. does not seem worried.  I have another MRI in mid January.  First one showed no lumps and a skin biopsy was negative. Look up radiation recall (Complete phrase) to see a possibility of what is going on.  HOwever, continue to get it checked out.

kimmie39

Hi,

Its a long and frustrating story but the most important parts are-  If you feel somethings wrong dont let anyone second guess you!!!!!!!

. Insist on a biopsy or at the very least a MRI. If insisting doesnt work then demand. If I had listened to the first 3 docs I probably would not be here now.

The docs dont know enough and most are to arrogant to admit or even consider it.  I had doctors dismiss my concerns and tell me I was just wrong. In the end I knew my body better than they did (go figure). And Im was unfortunately right.The rest is history.

I hope more than you know that yours is NOT IBC. 

Im sure you are an intelligent women. Dont forget that.

Hugs in Va

Kim 

prattthebrat

I have just found red spots on my breast. Iam not sure what they are. I have had breast pain for a long time . I was told by my doc that it was just breast pain and i will have to live with it. ami the only one that has very bad pain I can't hug or hold my grandkids . If any one can help me with understanding this please tell me . Because right now I fell like iam the only one with this.

kathys333

Hi I am Kathy. Scheduled for surgery 1/22 bilateral mast. same confusing question have a rash as well as a diag of invasive ductal car. not sure what type of cancer i have, doctors say it is a complicated case, i am scared, angry, jealous of women could really use some support, can anyone help me or have any sugguestion?

lexi4

Hi Kathy,

I know how scared you must be feeling. Have your docs biopsied the rashy area? I would think that if they suspect IBC that they may do chemo before your mast. I would definitely seek another docs opinion before the surgery.

Please hang in there and know that we will be here for you. Please ask any questions.

Hugs and Prayers,

Lexi

bburnett

Anyone familiar with the radiation recall? What reactions might develop several mos. after treatment completed? Does it look simialr to early symptoms for IBC? Thanks, BB