Bottle 'o Tamoxifen

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited January 2012

    Carolanne and Tappy welcome to our quirky crazy group here. Hope we can help you out or that you can have some fun with us even we tammi is not agreeing with us.

    Thanks all for the prayers, I really appreciate it.

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  • momof4girls
    momof4girls Member Posts: 34
    edited January 2012

    Tappy - don't start worrying yet! Side effects are different for everyone and you may not have many if any.  I started Tami three weeks ago taking it every night before bed and I have not had any side effects.  Maybe I should wonder if it is working but I am not going to let my thoughts go there.  It's so easy to fear the worst (which I did) but life never turns out quite like we expect it to.  I hope for you that you don't have an SE but if you do this sight is very informative and full of support and wisdom.  Best of luck!

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  • Panmars
    Panmars Member Posts: 299
    edited January 2012

    Welcome CarolAnne and Tappy to our crazy wonderful group! 

    Tappy, momof4girls is right, don't worry just yet. I have found, after nearly a year on tamoxifen, that side effects come and go, and they are manageable. And some women have few, if any, noticeable effects. Hopefully you'll fall into that category!

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  • June2268
    June2268 Member Posts: 1,202
    edited January 2012

    Welcome newbies.....Tappy I wouldn't worry too much about the SE either.  If you do get some, we will help you get through them and who knows you might be lucky to have none at all....

    Well happy Friday everyone hugs and kisses to you all......oh and Paula if you ever think of leaving us, you know we will hunt you down......we need you and most of all love you!

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  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited January 2012

    Hi girls, JUNE glad to hear mom is fighting ! 

    Welcome to all of the newbies sorry you are here but glad to have you.  You have found a great group of girls.

    I have gotten some bad news regarding hubby's health.  He has a rare blood disorder where his body is making too many platlets.  So he is on an asprin a day and an oral chemo which will attack his bone marrow and stop it from making too many.  It is called thrombocytemia.  My fear is this can turn into leukemia.  Meet with the hematologist again Monday.  Trying to get more information.  He had to have a bone marrow biopsy that was very scary for him.  Thankfully no cancer cells.  Send up some prayers girls.

    Happy Friday !

    Alicia 

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  • tinkertude
    tinkertude Member Posts: 2,047
    edited January 2012

    Alicia.. so sorry to hear about your husband. Will defitenly be praying for him hugs

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited January 2012

    Alicia will def be praying for you guys.

    Happy Friday as June says.  Have not slept well this week after getting back on tammy so I am looking forward to taking a sleeping pill tonight and snoozing.  I don't have to be anywhere in the morning.

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  • Panmars
    Panmars Member Posts: 299
    edited January 2012

    Alicia, sending hugs your way!

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  • June2268
    June2268 Member Posts: 1,202
    edited January 2012

    Alicia you guys have been through hell and back.....praying for your hubby!!!

    Where's the drinks Jo and or food???  Chabba where r u???

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  • Paula66
    Paula66 Member Posts: 1,728
    edited January 2012

    Alicia praying for you and your family!

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  • jo1955
    jo1955 Member Posts: 8,543
    edited January 2012

    June - I am soooo tired tonight.  I am on my way to bed but before I do, I leave you lovely ladies with some drinks and good food. 

          

                                 

                                   

    Sorry to be the party pooper but still trying to adjust to a new pain medicine.  Can hardly keep th peepers open.

                  

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited January 2012

    just flying by tonight on my way to Pinterest.  My neice got me on the website and I love it.  Of course now I have projects I want to do.  Tomorrow is house cleaning day. 

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  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited January 2012

    Call me a party pooper tonight, too.  Thanks for the drinks, Jo.  Mixed with pain meds and ambien, I just might have a good night!

    Saw my PCP today, talked about the pain, fatigue, depression, etc etc etc.  She told me I need to address the pain issues first - might help everything else.  She is probably right, but I have just been too stubborn and not wanting to use pain pills because I guess that means I am taking meds so I must be sick... and I just don't wanna be sick!!!

    So, new week, new attitude, gonna listen to my PCP (she is WONDERFUL!).  Gonna take the pain pills, see her again in a month, and chill out a bit more for now.  I told her I just didn't know what the plan is regarding BC treatment and surveillance, so she talked to me about the last note from the MO.  Basically, 2 years tamoxifen + 8 years AI, no scans (they have missed lots anyway for me!), just address any new symptoms if they occur.  Something I can live with in 2-3 month blocks for the meds - or maybe just the 24-hour rule as needed.  I just can't really even fathom 10 years of meds, but I guess it's like any chronic disease at this point. 

    Enjoying a glass of the finest Merlot with DH tonight.  Hope the rest of you enjoy the evening - I will be checking in to see how many of you have hangovers tomorrow!!!  Wink

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  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited January 2012

    Alicia....good grief!!!! enough already!!! Pop over to the bonfire and toss in this new load....more fat for the fire....arms here to hold you if you need 'em!

    Maria- GRR! You go gurl!!! Tammmom to the rescue!

    Jo, Linda...hope the new meds work and that you sleep and feel rejuvenated!

    no pillow fight tonight....just soothing hugs coming your way

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited January 2012

    Linda hope you can get your pain under control.  I am with you on the Ambien tonight.  Have not been sleeping well since getting back on the tamox. 

    Sandee where have you been?

    Here is breaking news on a cancer vaccine.  Maybe this will replace hormone therapy in the future.  Who knows.

    http://www.wgrz.com/news/article/152242/37/Roswell-Park-Makes-Major-Announcement-on-Cancer-Vaccine

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  • chabba
    chabba Member Posts: 5,065
    edited January 2012

    I know computers get viruses and spread them to ither computers, but I begin to suspect they spred them to people too!  It sounds like some kind of sleeping sickness it rampant here tonight.  It is just after 8:30 here and I'm about ready or bed.  May we all sleep well and wake up rested.

    Good night. ((hugs))

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  • JustmeAlicia
    JustmeAlicia Member Posts: 1,529
    edited January 2012

    Morning girls !  Hope you all got some rest.  Hubby and I had a birthday party and got in real late for us old timers 12:30 am.  We snuggled till 8 am woo HOO !  Still exhausted but it is a brand new day.  Thanks for the well wishes and prayers you are all the best.

    Healing hugs for all !

    :)

    Alicia 

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  • jo1955
    jo1955 Member Posts: 8,543
    edited January 2012

    Been sleeping very well since I switched times taking the nortriptyline.  I take it in the mornings now and this new medication has the pains under control - FINALLY!  Only been dealing with this issue for a year now so Linda I know how you feel girlfriend.  I don't like the idea of taking another medication but I don't want to live in pain either.  Damn rads!  They did this to me.  Maybe I will jump over to the bonfire and throw that in.  On the other hand, I may have already done that and am having a case of CRS - LOL!

    Hope everyone is having a good Saturday.

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  • nancygv55
    nancygv55 Member Posts: 32
    edited January 2012

    Greetings, wonderful women.  I'm new to this group but was part of the Rads and other groups earlier.  Question:  Have any of you found yourself more prone to catching colds and other minor illnesses while on Tamoxifen?  I'm on Day 9 of a horrid cold and am not feeling any better even with rest, liquids, etc.  I've been on the Tamox for 10 weeks now.  On my sheet with SE's and other info it does say the Tamox lowers resistance  and ability to recover from infections but I was really hoping that was not going to happen to me.  Thanks for any insights you can give me.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2012

    nancy---took tamox the full 5 years and was pretty healthy overall, no increase in any illnesses at all. Hope you feel better soon!

    Anne 

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  • achpurple
    achpurple Member Posts: 290
    edited January 2012

    Tink:  I just found out on Friday that my DD has mono also.  She had a "stomachache" for several days but nothing else.  I'll have to let you know how the school is with her absences since they tell me for the next three weeks it might be "hit or miss" and she's already missed several days or partial days before we found out.  

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  • tinkertude
    tinkertude Member Posts: 2,047
    edited January 2012

    Achpurple... so sorry to hear your DD is sick too. It takes so much out of them. This is her third bout with it and the worst yet. Hope your DD does OK and the school is helpful and supportive.

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  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited January 2012

    Hi Sherry!! Here I am!!!

    Ladies, I have just invested 29.00cdn dollars for a machine that spits out sound...birds, waves, thunderstorms, white noise..gonna try it tonight and see if it will stop me from waking up in the middle of the night....keep you posted!

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  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited January 2012

    Sandee, good for you!!! (wow, you are SOOO extravagant!!!).  I had a "sound-soother" that I loved - it helped drown out the TV (which I keep telling DH that it asbolutely contraindicated for any type of sleep hygiene - especially hard on us with troubles sleeping).  The only thing I didn't like was that it had the sounds of the ocean but a stupid lighthouse horn kept going off periodically "in the distance" but it startled me out of my almost-asleep every time!  So I used "gentle rain" setting - very boring, soothing, no startling changes of birds, thunder, horns, etc.

     Sleep well tonight, all you insomniacs. 

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  • Sandeeonherown
    Sandeeonherown Member Posts: 1,946
    edited January 2012

    a foghorn!!!! tooooo funny!!! it would be like sleeping at Peggy's Cove...on the rocks! well...we shall see how this all works out. I am quite excited and plan on going to bed early to ry it out...my naturopath and I are trying to wean me off zopliclone ...enough already!..so I am hoping this helps. Such an extravagance!!! Aactually, I almost didn't buy it because I thought....$29...really? seemed silly somehow....then looked at the gaviscon and grass fed-no anti-biotic chicken breasts had in my arms and thought '''hmmmm...same thing really "...health is important! Sleep health expecially

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  • Linda-n3
    Linda-n3 Member Posts: 2,439
    edited January 2012

    $29.... how long would it take to spend that on sleeping pills?  A bottle of melatonin costs about a third to half of that, and this little machine should last a lot longer, so a good investment, I think!

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited January 2012

    Sandee I hope the sleep sounds work for you.  I have always wondered if those work.  I like things so quiet when I sleep.  Sometimes I wear ear plugs to drown out any noise at all. Keep us posted if it works.

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  • sgreenarch
    sgreenarch Member Posts: 528
    edited January 2012

    Hi, Ladies. So sorry i have been in absentia. Been very busy with my father at the hospital, helping Mom with shoping and cooking. Lots of driving. Been away from DH and kids for 2.5 weeks already but they seem to be surviving without me. Glad i can be here to help and have time with my dad. The only good news is that in all this craziness i havent had time to think about BC. Pop that little pill in each night and then back to the home front!



    Alicia, wishing you well. We have all become amateur hematologists by now. If you need the name of some good ones in the NY area that we have been pleased with, or just want to talk, PM me. My husband has a cousin who has what your has and hes been doing fine for years.



    Tried melatonin since i've been here and its helping a bit. Is there a limit on how long you cankeep using it?



    Sherryc, wishing your neice some strength and peace.



    Love to all my tami friends, new and old, shari

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  • sunangel27
    sunangel27 Member Posts: 310
    edited January 2012

    I'm STAYING!!!!!! hheheheeeeeee

     Sherry!!!! I am so sorry to hear about your neice and will keep her and the family in my prayers!! I know how that is.......my step daughter got preg at 17 and still in school, it was hard to go thru......but anyway.....she did make it thru school !

    June, I am so sorry about your mom, will keep her and you all in my prayers also!!!!

    Carol.......welcome!!

    Well the new med is doing ok so far no side effects, but we all know ya gotta take them more than a few days for the s/e 's to kick in!! :(     Hopefuly they won't be as bad as the tammy ones were tho!!! it is called aromasin ...... haven't heard of it before, but dr. says good things about it anyway!     Have to have a bone dinsity test on the 24th. says we have to watch that! . and he's doing another ct scan on my chest too........oy!!!! I wish they would just quit and let me live!!!!! :)  I get so tired of going every six weeks and him telling me more crap is needed.....

    Well, Randy and I are doing great!!!!! :) I have met his grandmother and she just loves me! :) Which is a great thing :)      He is taking care of her and she is so important to him! :) Met her on Saturday and yesterday spent time with her having dinner and then we went to a movie, and I even slept thru part of it.....and he laughed!!!!!  It was pretty funny! :)

    Well, I am worn out, done laundry today and got some other things done, so gonna get off here and get to bed. Work tomorrow :)
    Have a good night ladies, and I will be back soon! :)

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  • jo1955
    jo1955 Member Posts: 8,543
    edited January 2012

    PaulaM - So glad you decided to stick around.  I have heard of Armoasin but did not get to try that one after Arimidex and Femara were both no goes for me - too many tummy issues.

    I think I am also heading to bed.  Had a very busy day and it was a long one - close to 10 hours.

    Have a wonderful night ladies.  Smile 

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