Bottle 'o Tamoxifen

Faithroad

Jo1955,

Glad to hear you found a solution for your joint pain!!!

It's so great when something actually works!!  Yaay!!

jo1955

Valgal - One of the first things I did was have my vitamin D level checked and it is okay.  I do have a history of osteoarthritis and Tammi seems to be making it worse.  I did some research and one of the SEs of Tammi is joint pain - UGH!  

faithroad - Success stories are the best.  I tend to take even the smallest of victories these days. 

Sherryc

tink so glad your daughter had a better day at school.  Sounds like things are improving altho I know it can be a slow process.  I continue to keep ya'll in my prayers.

Jo-When I first went on tammi one of the many SE I had was joint pain specifically Hip joint.  Anyway my MO put me on glucosomine chondroitin.  He said the joint pain is really bad with the AL's and he has had good success with his patients taking glucosomine.  He had me take the liquid as he said it absorbse quicker.  I started out at 2Tablespoons 2 times a day.  I am now taking 2Tablespoons once a day.  I think I am going to keep taking it for another month and then cut it out and see what happens.  I can always go back to taking it if I need to. But maybe my body has adjusted and I don't need it anymore.

jo1955

Sherry - The glucosamine/chondroitin seems to be working well and the added benefit is that it has 2000 IUs of Vitamin D.  I am taking the Osteo-Biflex.  Have used it in the past with good results.  Don't know what my MO will say about all this.  I just decided on my own to stop taking the Lyrica and give this other a try.  I don't see him until mid June.  Hopefully by then, I will be off the Osteo-Biflex.

tinkertude

THanks Sherry!....

Faithroad....welcome!

Faithroad

Thanks tinkertude! 
I love your name, so fun and cheerful!

June2268

Welcome Faithroad and as far as Tink goes she is so much fun and very cheerful!!!  Miss you Tink and  am always thinking about you and your family!

Ladies I miss you all and just wanted to pop in for a quick hello......

Sherry, so sorry about your Dad, please know I am thinking about you.

Jules, I am praying  that the wait does mean good news.  Your poor hubby.....

Jo, Jeez I don't even know what to say to you, so  sorry you have to be going through so much BS.  I miss you and our slumber parties.....

Sandee, Alicia, ECG,  Sunagel, hope you are doing well and miss ya all......

Been sick again this week with a head cold and now loswt my voice and cannot talk.  I think my family is loving that one....ha ha  My cousin is in from Washington and staying with my Dad this month, so I am relieved some that he has someone there and is not alone and she can take care of him.....he finalized all his arrangements, got his casket, tombstone and finished his Obit.  I don't know how I would have been if it wasn't for all you ladies out here.  You are really good people and I am so thankful to have you in my life.....Thank you all for all your advice and more importantly your friendship!  Luv ya all!

June2268

So much reading, so I am so sorry if I missed someone, not intentional.....miss ya all!

JustmeAlicia

I have to catch up too ~ glad to see some new faces ~ and some regulars back.  JUNE hope you feel better ~ you have been missed.

I am getting depressed as usual after surgery.  I am still hurting a bit not too bad but in enough discomfort to be annoyed.  Tomorrow I have to travel to the plastic surgeon at Sloan Kettering to get my bandanges off my nips and get trained on how to dress them and bandage them for another week.  THIS will be the big reveal.  My hips where they cut skin off really hurts.  OUCH.  So enough complaining from me, I am just glad it is over.  4 surgeries in less that 2 years is enough for me.  Monday I see my Oncologist for tumor markers and all that good stuff.  Pray for good results my friends.  Hope to be back in the loop soon.

Miss you all ~

HUGS<

Alicia

Sandeeonherown

Faithroad- My day was ok, thanks...I am getting frustrated at my lack of my usual 'oomph' but the frusration is anger which is a good part of greiving a loss and moving on right? (so I have been told@)

Jo- I am awaiting my vit D results (plus estrogen and he heart stuff). What should my vitamin D be according to what your doc has said?

June- I am glad your dad feels a modicum of relief to know tha thos big decisionas have been made adn that he has a say in  it...has he decided where he is going to be buried? Can you plant flowers or bushes in cemeteries in the States? if yes, any special plant he would like? Take time out each day for you June....it will help you to recharge your battery...even a walk around the block

Alicia- sorry you are sore....healing going on i suspect....this too will be over soo. You have made it this far...good luck my dear!

hugs to all. Seems like a day where everyone I have come in contact with needs it.

jo1955

Sandee - My onc does not test for vitamin d levels.  I told him I was taking a split dose of calcium with vit d - 1200 mgs a day and he said that was enough.  Told me my GP should do the test.  I am due to see my GP next month along with the MO so, I am going to ask both again and make someone do the test.

Sandeeonherown

jo- ok. we can compare then. Mine won't be in until next week I think. I am curious! If=t is also good for heart health so bring it on!

tinkertude

Junieb!!!!!!!!! MISS YOU TOO!!!! Sorry to hear you are not feeling great. I know you too have been through so much and all that is going on with your dad... thinking about you always too my friend hugs!

Thanks Faithroad... i try to be cheerful and when I am not these wonderful ladies here always manage to put a smile on my face... you will lovethis thread.. awesome group!

Alicia... so sorry to hear your so sore.. I remember that after I had my nip made...just getting used to sleeping on my side and then nope back to the back....although my hips looked like someone took a bat to them i was purple black and blue from the lipo he did to fill in... guess he will be doing that agiain in July....oye... feel better soon!...hugs to you!

Jo how are you feeling tonight? hope you have gotten some relief.. hugs

Sandee.. hope your doing well too! you give such good advice

Well ladies a friend of mine emailed tonight and she is going for a biopsy the16th. Doc said it didnt look to good.. had 2 mammo and an ultrasound....  will keep you posted...

Hugs to all my tammyladies....

pillow fight Fri night???? I will go easy on the happy juice so I dont fall asleep before I even get started lol!

jo1955

Tink -- Feeling a little better this morning.  So much happening all at once and just too overwhelming to completely handle right now.  Everything will work itself out in time.  I think all of us need a good ole pillow fight on Friday night.  We haven't had one in awhile and we deserve it.

How is your daughter doing?  Hope she is feeling better.  How are you these days? Really miss you on here. 

tinkertude

Hi Jo I think your right we do deserve one. I am going to send you an email!

oh and.................WHACK.... hehe just practicing!

jo1955

Tink - You are sneaky this morning.  Glad you are feeling better.  Healing does take time.

Don't think you are getting on easy missy!  WHACK WHACK  Now that's better. 

phxsunshine

SherryC, glad your dad made it thru the surgery so well, what a relief and Valgal, thanks for that Vit D hint on feet.  My naturopathic Onc has been working on that issue. I had a score of 27, she raised it up to 67 on 5000IU/day, but cut that in 1/2 in Feb to see if I stabilized.  Ironically, I am just back from having a Vit D test this morning!  I have been getting cramps in my feet when I do yoga, that may be the reason?!  I'm busy and have not been on here as much as I'd like, still taking care of my brother's estate and it's a lot.

What I really want to share with all of you is this: I spoke at the Central Phx Relay for Life on Sat night.  I shared my story and encouraged the relay teams by telling them how important the research $ are, that my care is better than my friend who had it just 4 years ago. Anyhow, I did good, I spoke to over 600 people, if I'd have known that going in, I might have declined, but once I got there and saw all the survivors standing there, I knew I could not let them down.  It was an empowering experience. I left the sad, cancer girl on the track when I took the Victory Lap. I did not bring her home with me. I remembered who I am, an otherwise healthy person who just happens to have breast cancer.  What an unexpected blessing.  God is good.  Happy Mother's Day to all of you.  I will be with my kids at my son's college graduation next week.  Belated works for me when I can be with them in person.  I'm sending you all a big, loving hug - Boooosh!  Ya, I feel good again and it my 1 yr diagnosis anniversary is coming up the end of this month.  Stupid cancer, you picked the wrong wench to mess with.

Sherryc

Well I went to the bathroom at work a little while ago and dropped my iphone in the toilet. Not ready for an updgrade so it will cost me $$$$.  I thought maybe I could blame this on tamoxifen as well.  That or for my DH calling me when I am trying to unzip my pants and I try to hold the phone on the my shoulder.  Now we know that does not work.

 Funny thing was my DH thought I was mad about something and hung up on him.  Now he is laughing and on his way to the AT&T store to get me another one.

jo1955

Sherry - That is too funny - talk about trying to multi task.

 

Sherryc

yes jo I thought I would have learned before now that I don't multitask all that well.  Just need to quit answering the phone when I am in the bathroom

jo1955

Sherry - I am told if you remove the battery right away and put everything in a bag of rice overnight the phone should work again.  This comes from someone who did the same thing.  You may want to give it a try before going out and replacing the phone.

Sherryc

Jo the battery cannot be removed in a iphone.  You have to take it to an apple store and in my case that is Austin or San Antonio. so I would have to take the day off of work just to deal with it.  But maybe the AT&T store will have a solution.

surfette

My friend dropped her iphone in the toilet and she said after she let it dry out, it worked again. So I would wait.

jo1955

Sherry - See how much I know about these new phones.  Mine is go basic - I just need to make calls.  I don't even know how to send a text message.  I am pretty good on the computer though.

Blinx

Question for those that have/had been on tamox for years... I'm at the 3 year mark and I'm ready to throw in the towel. I think things leveled out after 6 months or so and I just got used to all the SEs. Now it seems that they're getting worse! Achiness, irritability, depression. Wondered if anyone else had leveled out and then got worse.

swanseagirl

Hi ladies,

Daughters results came back saying all indications of benign lump. Will follow up in 3 months. So they are watching it. Grrrrr!

DH just signed contract for new job. Yipee!!!!!!! Will be in Austin this time next year or Colorado.

I started my Live Strong 6 week program out of the local hospital. I have a diet and exercise sheet to track everything. Heading out for maragrita's so I will start tomorrow. LOL

Hoping I can get rid of the knot in my back now.

Trying hard to do the day to day and not think to far ahead.

Tink, how's your daughter doing?  Hope it has been a good week for her and you. Hugs xxxx

Jules

jo1955

Jules - Hooray on your daughter's B9 results.  Crossing fingers that it stays that way.

Sandeeonherown

Tink - you are sounding more chipper!!! Whee ha....I will keep your friend in my thoughts....oy....hard to even process that

phxsunshine- i have been waking up in the middle of the night with a charlie horse..think I need to eat more bananas...and CONGRATULATIONS on your speech....you did it...you did it. Hip hip hooray!!! and you are indeed back.....yayayayy!!!

Jule- excellent news....excellent...that they want to keep an eye on it is a blessing not a curse....it means they are keeping an eye on your baby!!! I am soooo relieved for you! congrats on your DHs job and your new program..things are moving along and you are indeed living the 24 hour rule right now....good for you....though you are right...not easy at all...

Jo- Sent you a pm..thanks so much for the encouraging words....like jules..trying to take one day at a time and not get too frustrated with my low energy...have wept two nights in a row...exhaustion I think....taking tomorrow off and gettin gmy hair trimmed and highlighted I think...I need a change even if it is cosmetic...

chabba

Jules, so glad your daughter is OK and they want to follow up and be shure she stays that way.  Yes, I was concerned about you too but I think the thought of a possible threat to a child strikes fear in all of us.

My thoughts and prayers are with all that I have met on these forums and I rejoice with each of you when you report good news. 

peg119

Great news Jules.  I am glad they are watching her even though it is very frustrating to just not be done with it.