Supporter who wants to get the word out on ibc

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Caseysmom
Caseysmom Member Posts: 507
Supporter who wants to get the word out on ibc

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  • Caseysmom
    Caseysmom Member Posts: 507
    edited October 2007

    I just spoke with a college student at University of Oregon who is writing a book to bring IBC to the fore front.  To make a long story short.  Her best friends mother was dx with ibc and none of them knew that there was such a disease. 

    Libby want to know how many people have heard of IBC. So she did a survey of about 90 people and out of that 90 only 3 people had heard of ibc.

    She had a posting on another web site looking to talk to other women either going through treatment or who have finished treatment.

    I give Libby allot of credit for wanting to get our stories out into the public eye

    If you are willing to discuss with her your road through IBC here is her e-mail

    Libby Whittemore

    e-mail mwhittem@uoregon.edu

    Just wanted to share this with everyone.  I think Libby is doing a great thing for us.

    Hugs from Michigan

    Laura 

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