New Triple Neg

Gagal

Just wanted to stop in and say Hi. I was diagnosed triple neg with a biopsy 2 weeks ago. I'm scheduled to have surgery on the 13th of June, lumpectomy and nodes. I will have an MRI and echo next week, they think I have a 1.2 cm tumor grade 2, I know I will feel better when I know for sure. I've already talked to onc who recomended TAC and also suggested a clinical trial with TAC that included Avastin and VEGF. I'm learning so much on this site I'm glad I've found you. You are all such an inspiration Thank You.

cmb35

Hey Gagal!

Welcome and I'm sorry to hear about your biospy results. Sounds like you have a plan of action, and a great attitude. I'm also triple neg, didn't have a biopsy, started off with a lumpectomy (now that I know a little more that should have set alarm bells off for me - duh!) Sounds like you're having your lump and a sentinel node biopsy at the same time - that's great, mine were done as separate surgeries. If I had known more, I would have gone that way. Some hospitals are even able to check out the sentinel node while you're still under, and either close you up or proceed to take out additional nodes based on the sentinel node. (I had 3 separate surgeries, which was just a drag in general, and delayed the start of my chemo by about 6 weeks.)

Anyway, best of luck to you. There is great information and more importantly great women on these boards who can and will help you every step of the way.

Hugs to you...

tos

Hi and welcome, although I'm sorry to hear you've been diagnosed. You'll find alot of help and support here,
feel free to write and ask or talk about whatever is on
your mind.
I hope your surgery goes smoothly and good luck w/your tests next week. Let us know how it's going.
Sounds like you are right on the ball w/plans, that's aways a relief when you know what is going on and what the plan is, sometimes the waiting can be awful,

ravdeb

Hey Gagal...
That is a good chemo combo she is recommmending and I'm sure you'll know for sure once surgery is over and more information is in your hands.

The clinical trial is great. I would go for it if you can.

I recommend, however, to get a second or even third opinion on treatment plans. You learn a lot this way and it's good to hear what other oncologists think.

I wish you the best of luck and the best of health!

This is a great forum of people who have been through it, read a lot and are very supportive. It will help you get through the rough spots.

Charlie451

Hi, too, am a new triple neg. Just left a post on the efficacy of Adriamycin thread regarding my upcoming chemo and a possible clinical trial. Any info would be appreciated.
Linda

LisaSDCA

Welcome Gagal!
Your treatment plan sounds awesome! You will kick some major cancer-butt with that. I am a triple neg. having #5 of 6 TAC this week. The clinical trial you mention was not offered to me at the time I started, but I would jump on the opportunity. Maybe ask if they can do your port insertion at the same surgery as your lumpectomy/sentinel node. I did, and it saved an extra surgery and recovery.
All the best to you
Lisa

Gagal

Thanks for the welcome. I have a MRI this afternoon and echo later this week, then on to surgery for lumpectomy next week, will check on the port insertion at that time. Since I only had a brief discussion with oncologist didn't get all the info on clinical trial but I think it was 4 TAC and avastin, am concerned if that's aggressive enough I've heard of others having more and DD (sorry if this doesn't make sense I'm still learning). Anyway thank you so much you have all already helped me so much. I will report back when I know more.

2curvy

Welcome and good luck with everything. I'm triple negative and only am having 4 Taxotere/Cytoxin. 1.2cm, grade 3, triple neg. I really hope they are doing enough for me. That clinical trial sounds great!

Idamaria

Hi Gagal,
I am triple negative grade 111 Idc they say it looks like Meddulary but I had sugical biopsy margin not clear so opted for Mascectomy on april 26. SNB no positive nodes. Had port put in after first chemo. My 2nd AC was Monday it is going ok. I think I am only having 4 dd AC every other week. It sounds like yours will be more agressive cehmo good for you. Let us know how you do. this is a great board for information and support. Hugs and prayers to you in your days a head of fighting the beast. sounds like you onc had a great plan for you.
Have a good day.
Ida

ravdeb

I wish all you new triple negs the best of luck in your chemo adventures. My only advice is to go as aggressively as you can. I keep reading research that says that the Taxanes (Taxol and Taxotere) are showing promise for triple negs. They keep reporting new things all the time. Nobody really knows what is the best or the most aggressive or if we need to be so aggressive.

Whatever your onc and you agree on and you both feel comfortable with, that is the way to go. The only thing they do feel is that chemo is the only way to treat the triple neg.

Be well everybody and good luck.

Renairis

Hi Gagal and welcome
As you can see you are not alone with the triple negative diagnosis! I try to get my information from these boards because the outlook is very positive and the information most relevant.
I too am triple negative and have done already 5 treatments of Carboplatin, taxol and Avistin. It seems to be helping, and the combination is manageable.This is my second round of chemo,I did not receive taxol and carbo as I should have and you are lucky you will be getting treatment more suitable for triple negative.
Good luck,
Rena

yukyuk

hi can you pease tell me what triple negative is im trying to find out what my chances of survival are i was diagnosed last year with invasive lobular grade 2 lump size 2.5 cm had macectomy no lymph node involvment had three cycle of chemo did not finish the six also have not taken the tamoxifen anyone shed any light i have herd so many different things and story's im scared and alone i have been free for year now , also due for reconstuction having macectomy on other side ... as im eastrogen and ostrogen positive. [list] [list] [list]

ravdeb

Well...you are not triple neg. Triple neg means that you don't have receptors for estrogen and progesterone and no her2.

I don't know your chances of survival. You would need to speak with your onc about the statistics.

Be well...

2curvy

When coming up with a treatment plan, my doctors told me I was HR pos. Well, I figured they knew what they were talking about. Went ahead with 4 rounds of T/C. Done now! But discovered that I'm triple neg. I often wonder if the treatment would have been different. . .
Colleen

HollyHopes

I'm triple neg and had DD AC (4 tx) followed by Taxol (4 tx) am getting ready to start rads. I have been quite optimistic because our cancer responds better to chemo than the + gals....