Starting Chemo in May 07

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  • lizzzy
    lizzzy Member Posts: 285
    edited June 2007
    Hi Everyone,

    Sarah I'm sooooo happy to hear about the clean margins. Thanks for letting us know. And congrats on almost being done with a/c--that must be a great feeling. Are you planning on going back to school in Fall?

    Amy, I hope you're feeling better. If I were you I'd definitely choose sleep. I'd love to sleep through about the first week and a half after my treatments, but then I'd only be awake for about 6 days a month.

    I went to a fund-raiser dog walk this morning and wore my underhair under a scarf and straw hat and it looked cute and was reasonably comfortable even in our strong socal sun.

    HOpe everyone else is having a great weekend--this is my feeling good weekend so I'm going to do as much as I can before #3 on Wednesday.
  • aimster1123
    aimster1123 Member Posts: 200
    edited June 2007
    Hey girls,

    Just checking in. I'm still on the pump--no sign of getting off, since I'm always grateful when I hear it give me a dose, and sometimes give myself an extra on demand. I went without Marinol today and seemed to do OK. MOre nauseated than yesterday, but now that I'm past the throw-up danger (I think) I'd rather be coherent than competely knocked out. Looks like this is going to be my plan from now on, probably. I'll just expect at least 6-7 days in bed, watching DVD's, surfing the web and sleeping. Maybe I'll get up sooner than that, we'll see. Last time it was pretty much 8 days, so I'm hoping I can do at least a little better this time, having avoided the throwing up and ER and all that that took out of me. Don't know if i said this before, but Marinol did NOT give me the munchies. I have my usual VERY low appetite, but I try to eat a little something here and there, whatever sounds good.

    I'm off for a nice relaxing bath, although I can't get my port wet with the pump on there--bummer!

    Keep chilling, girls,

    Amy
  • chumfry
    chumfry Member Posts: 642
    edited June 2007
    Thanks for the update, Amy. I've been thinking about you.

    I had my fourth of 12 treatments yesterday, so I'm a third done! Woo-hoo! This time, in addition to my cheeks getting red the day after, my forearms and part of my torso is also red, like sunburn sort of. They've been backing off on some of my pre-meds, so maybe that's what's going on. Hope I'm not having an allergic reaction. Ugh. Surely an allergic reaction would happen more quickly than this.

    I was just whining about this to my sister on the phone, and then stopped myself and told her: "One of the other ladies on my online support group has had to go to the ER after every treatment because none of the anti-nausea drugs have worked for her." So what am I doing whining about being a little red?

    So you see, I *was* just thinking about you, Amy.
  • sdstarfish
    sdstarfish Member Posts: 544
    edited June 2007
    Hey, Ladies:
    Joining you in the chemo thing, starting on Monday. *GULP*
    Were any of you afraid to see yourselves bald? I did gain a lot of courage by looking at the pics on the member photo site...but I'm still scared. Not like that's gonna stop it from falling out, but still...
  • NeoPat
    NeoPat Member Posts: 102
    edited June 2007
    Welcome to the group, Lisa. Being bald is no fun, but like most of the other steps on this journey, the anticipation was worse than the actual happening.

    I had A/C tx #3 on Wednesday and yesterday I was sooooo tired. I guess that is the fatigue that is talked about. I hope that today will be a little better. The weekend after treatment is always my worst time.

    Pat
  • chemo072
    chemo072 Member Posts: 682
    edited June 2007
    re: being bald - it was exciting at first and a big deal but it gets old fast. The nice thing is that I seem to receive new scarves as gifts every week! Not exactly a wig gal, though everyonce in a while it's nice to wear a wig and notbe immediately labeled as "cancer girl" .

    Neopat - oy, hope you feel better soon. With A/C #4 it's taken to day 11 to feel somewhat better. Yikes.

    and hey everyone, I start taxol on Thursday supposedly and I am more than slightly terrified. Trying really hard not to be, I won't know how my body will react until then, but writing and typing is part of my livelihood and the whole neuropathy thing is downright terrifying. Whew, I feel better for having admitted that. I am however reassured that it will help get whatever cancer cells are still running around looking for homes, but this whole deal is still so ambiguous - there's no way to tell where those dratted cells are unless they hang out in groups of .5 cm or more, and so there's no way to tell if we "got them" and I just find it SO frustrating.

    plus, and I know this is TMI but bear with me - the pelvic u/s (i had ovarian cysts show up on a cat scan a few months back, I wanted them checked out, they're fine) came back with an endometrial thickness of 11 mm, which the physician's asst said was hyperplasia, which can be (but is most hopefully NOT) a precursor to uterine cancer, which raised the whole question of uterine cancer risks, which I have, which means tamoxifen may not be a good thing for me, in which case my med onc said well then oopherectomy and aromatase inhibitors are the option, which is a potential blow because a) I don't want to lose any more body parts thank-you-very-much especially when I can't take hormones to counteract side effects because my tumor was ER+ and PR+ and b) I'm only 39 and I was holding on to a teensy bit of hope about fertility....sigh...... but I guess I won't know about that whole deal until I have an endometrial biopsy and that doctor prefers to hold off on that until all the chemo is done, but I said, ummm...no, I want to know NOW, and they haven't called me back to schedule. Sigh..... but then I read about that sort of thing spontaneously resolving so maybe it would be better to wait....I'm torn, and every doc/nurse I talk to says yep, I'd be torn too. aargh.

    thanks for listening all....I'm a little stressed and just trying to give it all up to god/the universe/higher power/what have you but it's hard....sometimes this stuff just plain sucks to deal with. but it is what it is....:)

    ok, holding on to the vision of being a white haired 80 year old
  • PDXLeeAnne
    PDXLeeAnne Member Posts: 119
    edited June 2007
    Greetings Lisa! There's a members photo site? I never knew.

    The hair thing is a tough one, but I adjusted after about a week of it. Like others have said, the anticipation is as bad or worse than it really happening. The first time I looked in the mirror with my buzz cut (done the night before tx #2 when I was pulling it out like a crazy woman) I did say "wow, there's a lot of me there." It takes away your ability to hide and says to the world that you either a) shave your head because you want to or b)are going through cancer treatment. I suppose it could say other things as well but you get what I mean. It IS emotional, and its messy as well, plus it adds an entirely new dimension to getting ready if, like me, you sometimes wear scarves and have to match them to your clothes. PAIN IN THE BUTT is what that is, but I have it pretty well figured out now.

    Some of us have found a lot of comfort by watching the video at crowningglory.org. I even sent in some of my hair to them, for use in the hair art for Burning Man 2007. There are some other videos on You Tube showing really beautiful women without hair, and their progress on it growing back.

    I think the key for us all is to realize that we ARE beautiful without hair. You'll get there. Here's a link to the blog I wrote about my hair going-away party:

    http://theroadbump.blogspot.com/2007/05/hair-today-gone-tomorrow.html

    I am in a chatty mood this a.m., next subject??

    Amy, I'm so glad you're continuing to do alright!
    Yeah CindyMN for being 1/3 done!
    Pat, the weekend after tx is always my couch time too.
    Liz, love the newest avatar. Maybe I need a new one too!

    Happy Sunday all,
    Hugs,
    LeeAnne
  • PDXLeeAnne
    PDXLeeAnne Member Posts: 119
    edited June 2007
    Amanda, I'm sorry you're having to deal with this all together. I totally understand your feelings about starting Taxol, I'm 2 weeks behind you and will be right where you are. The A/C is a known quantity, even if it does suck, but I do hear that Taxol is better tolerated by many. Hopefully it will for you as well!

    I hope you can get answers sooner rather than later on the uterine issues. I had years of infertility (both of my children were adopted) so I well know holding out that hope. I'm sending you cyber hugs across town!!

    LeeAnne
  • chumfry
    chumfry Member Posts: 642
    edited June 2007
    Amanda, I write for a living, too, so I understand your worries about Taxol. When I did DD ACx4, Taxolx4 in 2005, the neuropathy was the thing that scared me the most. I never couldn't type, but I did eventually have a harder time buttoning up my shirts.

    Make sure your onc knows exactly how bad the neuropathy is because it's the limiting factor on Taxol. If it reaches a certain point, they'll either reduce your dose or stop the treatment. My last Taxol was reduced by 25%.

    The neuropathy also affected my toes and I had no idea how much your toes are involved in keeping your balance! I'm not the most graceful person to start with, but I got a lot clumsier on Taxol.

    After my 2005 chemo was done, the neuropathy eventually went away except for just a tiny, tiny bit of numbness at the very tips of my fingers and toes. I can remember the day when I could feel the nubs on the F and J keys again.

    You can imagine how I felt when my onc said I needed weekly Taxol/Carboplatin for this second tumor. However, the weekly dosage is lower so the side effects have been much less. I have some numbness in fingertips and toes but it hasn't been too bad. I can still feel the nubs on the F and J keys.

    And trust me, you can still type without feeling those nubs. You just have to look before you start, or you'll type a bunch of gibberish.
  • chumfry
    chumfry Member Posts: 642
    edited June 2007

    P.S. Despite the neuropathy, Taxol was LOTS easier on me than AC. No nausea. No headaches. No mouth sores.

  • aimster1123
    aimster1123 Member Posts: 200
    edited June 2007
    Wow, lots of new posts, girls!

    CindyMN you were sweet to be thinking about me! No matter what we each go through, I think it pretty much sucks for all of us, and it's so nice to know that somebody was thinking about you.

    I'm still hanging out in bed, pretty much. I haven't needed Marinol since Friday night. I hate how loopy that stuff makes me. So now I'm just on the pump, which has ativan, benadryl and decadron (if I remember correctly). It gives me an auto-dose every 30 min or so, and I can add a lot more than that about 4 times per hour if I want to. Yesterday the optioncare people had to come and change out the medicine because I had used it all up. But hey, I haven't thrown up once!! No ER! Woo hoo!! I feel like a dishrag! But I'm at home. I made it church today, but had to leave early and took a nap all afternoon. Maybe I'll be up for a DVD later. I'm just not going to push it--based on last cycle, I'll KNOW when my energy is back and then I'll be raring to go. If it's like last tx, I'll start feeling human on Thursday.

    Oh girls, I'm sorry about all the taxane worries. I'm sure I've said this before--my onc's first thought for me was taxotere, but he couldn't get any peace about giving it to me knowing that I'm a professional violinist. The negative effects it could have on my ability to play are greater than just about any other profession you can think of, due to how highly specific my finger placement needs to be. So he decided the better option would be the FEC X6 for me. Let's hope it was a good long-term health decision in EVERY way.

    Hey, CindyMN, is your second tumor a new primary, or a recurrence?

    LeeAnne!! Both my kids are adopted too!! They're from St. Petersburg, Russia. We went through the whole infertility gamut--you name it, we tried it. NOT ONE PREGNANCY. Still, it was hard learning that cancer sort of officially ends our attemtps. We had actually planned a surgery for me for this summer to clean up endometriosis and a bunch of other internal issues, with the doc saying we'd have a 50/50 shot after that at getting preg, but soon after that was scheduled we found out about the bc so the whole thing was called off, obviously, and I don't think we'll be revisiting that issue. More delayed grief to deal with later!

    Amanda, ALL your fears are justified. The taxol thing has got to be scary. Plus, all your info about the uterine stuff is NOT TMI!!!! Give me a break!! This is where you're supposed to vent all that stuff! Bring it on! Maybe you CAN stand it to wait on the biopsy a little, and be spared more pain right now and have a clearer result later. You could give it a few days and see. Maybe talk to your onc about it? Does he/she know about it yet? But if you think your peace of mind is going to be robbed too much right now, then do what you think is best and get it checked out. Just TELL US ABOUT IT, OK?

    Speaking of oncs, my fabulous onc has a new name for me around the office. I'm "the pukey violinist". I said that was fine as long as pukey was modifying ME and not my violinistic abilities. He's heard me play so he said it's definitely referring to ME. Whew. He had two med students with him when I saw him on Thursday, and told them that I've been one of the very worst nausea/vomiting cases he's had in a long, long time. I felt so validated! It's not all in my head!

    Lisa, welcome! I agree with what everybody has said about being bald. It was worse before and during, but once my hubby shaved it I felt so much better. Then I had about a week where it was kind of fun, now I'm bored with it and sometimes feel annoyed with the task of matching the scarf to the outfit or even having to decide anything at all about what to put on my head. But I'm not quite ready to go bald outside (don't think I'll get there, either). I have one wig, one human hair "underhair" (from www.hiphat.com) and a bunch of wigs and bandanas. Today for church I did the hairfall with a bandana and got a ton of compliments. Mine started falling out around day 14 after my 1st treatment, and then I shaved on the eve of day 17. You'll get through it--just post all your details here and we'll support you. We've been there!

    To all of you who have shaved, has your stubble fallen out too, or do you still have some? I still have a fair amount, and got so tired of having a 10-o-clock shadow up there that I shaved again. It feels so good to have a smooth head again! I'm going to keep doing that every few days, I think. It was easy, and my wig feels better on, too.

    OK, enough rambling, girls. Hello to all I missed!

    Amy
  • aimster1123
    aimster1123 Member Posts: 200
    edited June 2007
    Hey girls,

    Forgot to mention that I also took Emend and Decadron this time, in addition to what was in the pump. For what that's worth!

    Always thorough,

    Amy
  • PDXLeeAnne
    PDXLeeAnne Member Posts: 119
    edited June 2007
    LOL Amy, I think you need to add "I feel like a dishrag" to your signature. It kind of says it all about chemo, doesn't it? And yeah for your pump. It's doing its job. (Or is it "Its doing it's job?" Chemo brain...)

    Infertility... I went through 5 years of treatment (including several rounds of both Clomid and Pergonal) and now I know THAT added to my risk of breast cancer. As did not having a child and doesn't not breast feeding add to it also? Just sort of another slap in the face for the infertile. Good news is I have fabulous kids though. REALLY fabulous. Both adopted at birth from right here in Oregon and who I was meant to parent. My heart goes out to everyone who has to deal with fertility issues along with the cancer. Infertility is something that can shake your entire core of being and make a grown woman jump up and down and cry "it's not fair!" more than many issues.

    My head is pretty stubbly too. I keep saying its like the "Daddy's scratchy face" page of the Pat The Bunny children's book. I wonder if it will ever ALL fall out and be smooth on its own. I'm such a dork about my head. I am always bald in my house and last night some new neighbors brought over cookies and introduced themselves and the first words out of my mouth were "hi, I'm LeeAnne; I usually have hair but I'm going through cancer treatment." I seem to feel the need to explain it and I guess I wish I were brave enough to just let it be!

    Hugs,
    LeeAnne
  • chumfry
    chumfry Member Posts: 642
    edited June 2007
    My second tumor was a new primary. It's not even the same type of cancer. My left breast was medullary BC, which is kind of rare. My right breast (18 months later) was IDC. So it's not like my first chemo didn't work.

    Although I tested negative for BRCA, I wonder if I don't have some gene they just haven't found yet. Although there's no history of any type of cancer in my family. I could just have mutated something on my own, I suppose, that makes my breast tissue fertile ground for cancer.

    Two mastectomies later, I have no more breast tissue, so I'm feeling a little more confident about future bouts, but we'll see how it turns out. Both of my tumors were triple negative, which makes for a more aggressive and harder to treat cancer. But Taxol is supposed to be super good for triple negatives.

    The Taxol neuropathy kind of feels like your fingertips and toes have been dipped in plastic, so you can still feel some. I've heard it called "stocking and glove" syndrome. You can still feel, it just reduces your sensitivity. It would wreck havoc for a violinist.

    In 2005, each DD Taxol made my fingers and toes worse. On the weekly regimen I'm on now, it seems like the numbness peaks and then recedes again before each treatment. So that's not nearly as bad.
  • aimster1123
    aimster1123 Member Posts: 200
    edited June 2007
    LeeAnne,

    Check out the sig!

    I would have said the same thing to my neighbor, don't worry. I probably would have grabbed a cap before answering the door, if I remembered (which I might NOT these days).

    LOL, I totally thought about the Pat the Bunny beard page in relation to my head! Remember how it hurt when it was falling out? (at least mine did) My stubble was starting to get long enough that it was hurting that way again, so shaving really helped. Although I'm a little colder now. Ahhh, the mundane details of baldness!

    My kids are totally awesome too, can't imagine not having them. EVERY DAY my 4-year-old gives me a compliment about my head or my scarf or my wig of choice. So sweet.

    Amy
  • chemo072
    chemo072 Member Posts: 682
    edited June 2007
    thanks all....you made me feel much better!! It's great to have a group that listens.

    and aimster..."pukey violinist"...bwahahaha....I laughed until I cried at that one, it just hit my funnybone.

    BTW all, I've been applying for cancer healing retreats - some of which are fully funded apart from the cost of getting there. See http://www.commonweal.org/programs/cancer-help.html and
    http://www.commonweal.org/programs/chp_centers.html

    The one nearest me seems to be http://www.harmonyhill.org/. My sister-in-law stopped by and saw it on the way and said it was beautiful and I should definitely apply. They still have openings in their Oct breast cancer retreat http://www.harmonyhill.org/retreats/cancercare.html
    anyone want to join me? There are "companion" openings as well, so you could bring your main squeeze.

    Have a good week!
  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2007
    Morning everyone!

    Welcome Lisa to our "club". I have to admit, I'm still not used to the bald thing. It certainly feels better than it did at first (not as cold) and it is so easy to get ready in the mornings but in my opinion, it still sucks...however, I am currently insecure about how I look having gained still MORE weight! I feel like a bald blimp!

    Amy, I am so glad that this treatment seems to have gone much better for you! (I also laughed out loud at the "pukey violinist" nametag!) Continue to feel better and better!

    Good luck to all you ladies about to start Taxol...I agree it does sound scary but hopefully the SE's will be minimal! I'm on FEC and that is quite enough for me!

    Liz, love the new avatar...clearly being hairless has had no impact whatsoever on your beauty! You look awesome...actually you all do (those of you with avatars). How do you get your avatar on there? I tried to do one but my picture was about a billion times too big and I don't know how to "shrink" it? Any advice?

    Well, I hope you all had a great weekend.
    Take care,
    Mandy
  • PDXLeeAnne
    PDXLeeAnne Member Posts: 119
    edited June 2007
    Mandy, to make your avatar picture the first thing you have to do is open it in your photo editing software. Somewhere in there will be "edit". You need to crop the picture to something approximating a square. After that you need to resize it so that it is 80 pixels by 80 pixels. Then save it and upload it and we will be able to see you!

    Liz can probably explain it better than I can. If worse comes to worse I'd be happy to make it for you, or for any of you - all you would have to do is email me your picture. PM me if you want to do that.

    LeeAnne

    Good luck!
  • lizzzy
    lizzzy Member Posts: 285
    edited June 2007
    Mandy, Do you have microsoft office picture manager? When I open pictures, they open in this application. Then click on "edit pictures". Then you can click compress pictures. I compress for email messages. They have to be pretty small to use as an avatar.

    Thanks for the compliment on my pic. I'm trying to have fun with the hair/scarf thing. I never was very fashionable, but I'm trying to be a little more creative--with my head wardrobe at least.

    Looking forward to hearing everyone's experience with the taxol. I hope it's easier than the a/c--that seems to be the consensus.
  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2007
    Hi,

    Thanks for the help LeeAnne and Liz but as you can see, I havent' been succeessful in adding an avatar yet! LeeAnne I tried what you suggested and I thought it worked until I tried to load it into this website - it's still unchanged at about a billion pixels!

    Liz, I have Microsoft photo editor - which is apparently useless (or quite possibly it's the user as I am sometimes quite a "technotard"!)

    For now, you're just going ot have to picture me using your imagination...I've been told I look like Bill Murray (really! every girls dream right?) But that was when I had hair...now I resemble Uncle Fester mostly (haha)

    I'll keep trying...
    Mandy
  • lizzzy
    lizzzy Member Posts: 285
    edited June 2007
    Well Mandy, I'll try to imagine Bill Murray as a girl (and I am a big Bill M. fan), but I can see you're a beautiful person from reading your posts. And of course you're a runner which makes us simpatico on many levels.

    If you want to try to email me a pic as an attachment I can compress it for you. (liz.yeh@cox.net)

    I'm going to try to drag my butt to the gym-after I catch up on my soap-but it's getting harder and harder. It's so important to do as much as we can and keep strong.
  • lnmshoes
    lnmshoes Member Posts: 17
    edited June 2007
    Hi all,
    Sarah I am so glad to hear you have clear margins now.
    I have my last A/C on Wednesday of this week. then on to Taxol - I am a little worried about how that will be but will cross that bridge when it comes. My last chemo treatment will be Aug 22, will also have Herceptin for a year. Then on to my implant surgery to replace this expander Yea!
    I just became a Buff owner too, I got the one with a visor. It is realy comfortable.

    time to turn in for the night,
    Keep the Faith,
    Keep the faith
  • aimster1123
    aimster1123 Member Posts: 200
    edited June 2007
    Hey girls,

    I'm STILL on the pump, and feeling kind of depressed over here. I made the definite realization today that my eyebrows are drastically thinning. I'm afraid they may leave altogether, and I'm NOT looking forward to that. Everybody always says that makes you look really wierd. Like being bald isn't wierd enough? I'm just tired of the whole thing--the chemo, the nausea, the pump, the marinol, the baldness, the scarves, the fatigue, my kids being extra-needy from not having me around, you name it. YUCK!!! I'm so overwhelmed thinking about doing this whole ordeal THREE MORE TIMES. It seems to take so long before I feel even remotely normal. I'm wiped out, nauseated, NO appetite, everything tastes yucky. I hate it! I couldn't teach violin lessons this week. I'm 5 days past tx and still feel like crap, and figure it will last til Thursday. This is an all-out whine session, girls!! Where else can I do it? Oh yeah, I forgot, I'm starting to have head sweats at night, too. Is this chemo-pause coming on?

    Since I have nothing positive to say about my own state of mind, I'll move on to you girls. Liz, is that a buff in your avatar? Very cool! Mandy, keep trying--I want to see you! I'm sure Liz can help.

    Amya, have you started to feel any better?

    Lisa, how did your first chemo go??? I hope you're handling it OK. Just take it easy, and CALL YOUR ONC for ANYTHING. Those are orders!!

    All for now, girls. Maybe things will look better in the morning.

    Amy
  • lizzzy
    lizzzy Member Posts: 285
    edited June 2007
    Amy,

    I don't really start to feel better until the first week is over and even then it gets better each day. But I'm certainly not having as many SE's as you. I think I may be starting my chemo-pause. My period was due a few days ago and I'm pretty regular. But as far I can tell, I haven't started hot flashes or anything.

    Yeah, that is my buff. I'm waiting for a new color because I've been wearing it a lot. It is the most comfortable headwear and good for exercise.

    Mary, I'm anxious to see what the side effects of the Taxol will be. I have two more treatments of A/C and then I start Taxol too.
  • PDXLeeAnne
    PDXLeeAnne Member Posts: 119
    edited June 2007
    Go ahead and whine Amy, it's what we're here for after all.

    I have my moments, too. Last night I started crying walking home from the pool with the kids because I was just plain worn out. I push myself to do it all when I have my parenting week, like everything is normal: work nearly a full day, kid-shuttling to lessons/practices and then to the pool. I can't keep up that "normal" pace and it sucks!!! I don't WANT anyone else taking care of the kids. I want to do it and be involved with them and do normal summer stuff! The last 2 nights I've gone to bed before them. Now they are old enough, at nearly 13 and 10, but still.

    Whine whine whine.

    Today I'm going to be sure that I only work 6 hours (I haven't been taking lunches either because I feel guilty about working a short day. Eating at my desk doesn't help) and I'm going to come home hang out outside in the shade. THAT will cheer me up. Oh and I think I have heat rash on my chest and I have no idea how I got it. Hot flashes?

    Positives? It's nice out today. And I got a very cool old silk New Orleans souvenir scarf in the mail from a friend so I have new headwear to sport.

    Hugs,
    LeeAnne
  • chemo072
    chemo072 Member Posts: 682
    edited June 2007
    Hey Mary, hope your last A/C goes well.

    Amy and LeeAnne, hope you feel better. I was telling one of my friends what a slacker I feel like and she called me on it, said you're going through chemo and you're not allowed to call yourself names. Alrighty then.

    ....I'm so behind at work it's not even funny, but I've been so queasy even with Kytril that my ability to do much of anything is limited . Actually talked to one of my docs yesterday about...gasp...medical leave. She said she'd sign any papers effective immediately (did I really look that bad??? yikes). Yes, workaholic me is giving up control of work, for at least a month. And if I suddenly feel better, then there is always the option of going back to work early, right?!

    wishing everyone a good week with minimum SEs!
  • aimster1123
    aimster1123 Member Posts: 200
    edited June 2007
    Amya, Good for you!! I love your onc. Just relax and be good to yourself. You're taking care of yourself, and work will WAIT.

    LeeAnne, I SO feel what you're talking about with the kids. I want to wipe their faces, and kiss their boo-boos, and read their stories, so I do a lot of it, even when I'm down, and then I feel even worse. I've been a little bit of a crying basket-case the last couple of days too.

    Today I went into diarrhea mode, so I'm on Immodium. Still not really eating, still feel sick, blah, blah, blah. But I'm having them take the pump off today and I'm going to go with oral ativan and whatever else I think I might need--maybe compazine. The main reason I want it OFF is so I can take a BATH!!! I NEED to lie in the tub for a long, long time and pray and just BE. Still waiting for that miraculous "turnaround" that I had about 8 days out last time, where I finally started to feel human again. Maybe tomorrow? Here's hoping.

    Hang in there, everybody, and thanks for just being here.

    Amy
  • cinrae123
    cinrae123 Member Posts: 419
    edited June 2007
    Hey girls,,,,,,,,,,,,,,hope you are all doing well. Had my 3rd treatment yesterday and went for my neulasta today. Im feeling ok,,,,,,,,,but all of a sudden I have gotten tired. That decadron doesnt make you tired,,,,,,,but my body is saying I'm tired but cant sleep. So Ativan it is for me tonight. Has anyone had any problems with retaining fluids? Went for chemo on Monday and had gained 5 pounds in 3 weeks, Yikes,,,,she said it was most likely from the fluid retention. She told me to tell her if my swelling in my ankles and legs gets worse and if I have shortness of breath when I am laying down. Good lord,,,,,,,,,,,,,,couldnt she just give me something now to get rid of the fluid? Anyone experience this side effect.......it sure sucks. I eat healthy so I dont think the weight gain is from food,,,,,since my food intake has been down anyway. Usually on Wed is when all the shit hits the fan for the side effects,,,,and lasts a good week. I am remembering my good days when I have bad days. My platelets were very low last time,,,,so she reduced the taxotere and carboplatin,,,,,hoping that would help.
    Hope you all have a good week and keep those SE's under control. Lets all hang in there ok?
    Take care,,,,,,,,,,,Cindy
  • lizzzy
    lizzzy Member Posts: 285
    edited June 2007
    Cindy, I'm going for number 3 tomorrow. I feel premenstrual so yeah, I'm retaining water. My period was actually due yesterday and I'm never late so I'm wondering if I actually am premenstrual or if I'm retaining water like you. I can't say my diet's as healthy as before. The first week after chemo I don't eat much but then the second week I feel better and better and I eat all the things I crave which has been including ice cream lately.

    I was really enjoying feeling good until today. Today I just feel tired and bloated, so maybe I am going to get my period. Did most of you already stop menstruating?

    Hope all is well with everyone.

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