Taxotere, Carboplatin and Herceptin

Moonflwr912

Well, I hope the order makes no difference as they gave it to me TCH 3/4 tx, and once cth! I didn't even think anything of it, but the nurse said oops. LOL.

Laura5133388

Dance, My Herceptin was given last, and I, like you, used that time as part of the 4 hours post chemo. I think the majority of us are given the H last.

mt4ever

They give me my Herceptin first because I can take that 30 minutes after getting my pre meds versus waiting an hour before the other meds can be given (then I get T then C).  I have not had any problems with it! 

Msbelle

Anyone's eyes twitching? Wondering if one of these poisons are causing it? Driving me crazy!

Relda

My eyes and my left thumb. Constantly twitching. Driving me insane

dragonfly1

Hang in there everybody if you are having twitching eyes or watering eyes. It's definitely from the Tax and will come and go the further you are into your chemo cycles but it will eventually go away completely after you finish. I found both issues to be really annoying during the last few TCH cycles but it was gone a month or two PFC.

lago

I had the twitching and tears from Taxoteares too. The twitching is particularly annoying when the get out of sinc. I had to stop playing video games at treatment because my eyes watered so much. Artificial tears (not the kind that says get the red out) might help. Your eyes water because they are dry or your tear ducts might be clogged. Do tell your onc.

My eyes are now drier because of  tax. My ducts clog up (with oil) according to my ophthalmologist.

dancetrancer

OMG, yes add me to the d*mn eye twitching club!!!   My R eye twitched for about 3 or 4 days post this 2nd TCH.  Seems gone today...knock on wood!   I use GenTeal eye gel for eye dryness (fantastic relief), but it didn't seem to have any effect on the annoying twitching.  

christina0001

My left eye twitches quite a bit. I did not know chemo could cause that. I figured it was just stress.

Today I had TCH #5 and I had the herceptin, then carboplatin, then taxotere. I think that is how they usually do it.

Kelloggs

I always had mine in the same order, TCH.  Don't know if it matters or not.  I also had the eye twitch bad.  I think it started after tx #3.  I am now 6 wks PFC and it is gone.  I still have a little bit of the taxotears, but they seem to be clearing up a bit too.

dougieswife

I had/have the tears and twitching. It is getting better. I am 6 weeks out. My MO asked me if I was getting enough sleep. No, I am not....I get up 3-4 times a night to pee.



I go Thursday for my herceptin and appt with the MO to talk about survivorship. I'm not sure if I am happy or anxious about that. Maybe a little of both.

AmyIsStrong

Lori- what do you mean, to talk about survivorship? I don't remember ever having a talk like that.....

dougieswife

Amy - My MO started a program that deals with survivorship but I'm not completely sure what that means. I think he is going to talk to me about things I can do to improve my overall health and "keep cancer away" and also signs and symptoms not to ignore and what the plan is going forward.  

Also...you are not that far away from me!!!  I'm about 1 1/2 hours outside of Baltimore!!!   I actually go to Frederick for all of my Dr's.  

Relda

Well ladies its been a pretty bad 11 days post tx #3.  11 full days of queasy.  Had really really bad GI issues once again, a high fever for 2 days (over 102) that until today was unexplained (cultures clean, no infection, CBC good) taste buds all out of whack, horrible body aches, a yeast infection, bloody noses 2-3 times a day, overwhelming fatigue and another flare-up of a very rare SE of the Neupogen shots,  something called Sweet's Syndrome - a horrible burn/rash on my feet and hands.  That's what caused the fever as well.  Google it if you're interested, it ain't pretty

So all this has led me to decide, with the blessing of my onc, to stop after 4 tx's.  All the SE's are just too much to deal with this time around and we both feel that the 4 is enough.  So one more tx and I am done.  I think its the only way to get me back in the chair, knowing its for the last one.  UGH.  This has been SO different from the first time around when I breezed through AC/Taxol and Herceptin, working full time with barely any SE's at all.  A total 180.  I'm so happy we were in agreement, I love my onc!  He decided to switch to Aloxi for tx #4 (I was taking Emend) and we're going to split up the infusions - Tax one day and Carbo and Herceptin the next.  Also no Neupogen unless my counts go down.  I'm very relieved.

Moonflwr912

Relda, sounds like you have been through the ringer. I am glad you found a solution that works for you. And 4tx, does seem to be an alternative anyway. Good luck.

dancetrancer

Oh good gracious Relda!!!!!!!!!   I can't believe all that you have been through the past 11 days.  That is just too much!    I agree, enough is enough.  I am most likely going to stop at 4 treatments, too, and I haven't had nearly the issues you have.  I'm so relieved for you that you have a plan you feel comfortable going forward with to get through through that final 4th tx.  Major HUGS to you!!!  

Omaz

((((Hugs Relda)))))

YaYa5

relda, i'm sending hugs your way, too.  

Omaz

Hi yaya!  How are you doing?

YaYa5

hi, omaz!  i'm doing great.  feeling better every day.  how 'bout you?

Relda

Thanks ladies!  Having a great day today, ate a normal lunch and dinner and went for a swim

dancetrancer

That is great to hear Relda!!! 

Msbelle

Relda I got Aloxi and Emend before each tx. Plus IV decadron. Have they tried this for you?

Relda

My insurance won't pay for both Emend and Aloxi.  It's one or the other.  I also get Zofran and Decadron in the pre-meds and I get Kytril pills to take at home, which I did every day for 11 days.  I shudder to think how I would have been feeling without the Kytril

dougieswife

Relda...There is a patch, the Sancuso Patch, that you might be able to get a prescription for.  It is Emmend in a patch form that releases for 7 days.  It is expensive, but hopefully you can get your insurance to cover it and your MO to prescribe it.  It's nice!!  You can't take Kytril with it but you can take Zofran with it.  Hang in there!!!!!  Almost finished!!!!!

dancetrancer

That really stinks about your insurance not paying for both drugs Relda.   I like Dougieswife's suggestion - hope you can find something to help further so that your 4th one is more manageable. 

Kelloggs

Hugs to you Relda.  I'm so sorry you are having a bad time with SE's...cancer sucks!

Amelie_Rose

Hi all,

Just wanted to pop in and give a big sisterly hug to everyone on this board.  To all the newbies and those going through tx right now, hang in there.  Those SE's really do go away after treatment.  The further away you are, the better you feel.  A big hello to Yaya, Omaz, Lago, Amy, SpecialK and Dragonfly.  All you ladies rock!

lago

Amelie!!! sounds like you are doing well

Amelie_Rose

Lago, I am.  I have a lot more energy and overall feeling of well-being.  Herceptin is a breeze.  I had, and am still having, some post-radiation pain and swelling.  My radiation onc said that some women do and this might continue for a while (I finished rads mid-February).  I am seeing my MO later this week and will see if she concurs.  Honestly, I have been psyching myself into considering a bilateral mastectomy when everything is done, maybe next year....  I was in too great a shock and panic to consider one when I was diagnosed last April.  Are you happy with your results?