The Chemosabe March Cruise
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Hello everyone! I've been reading but not posting lately. Hope everyone is feeling better.
Had a really bad 'emotional' day yesterday, but better much better today. Haven't been sleeping well as I'd like so I'm tired. Finally broke down and took the Ativan onco gave me and it's been better. (I know, should have been taking it before it got this bad.) My boss was so very sweet. She asked if I needed to go home, but I told her no because work was keeping my mind off things so going home would only make it worse.
Going home to do some laundry so I don't have to do it this weekend, and to pack my bag for tomorrow.
Onlygirl I have my firt tomorrow too. 8am. Not sure how long it'll take, though. Mine is t/c.
As for projects, none yet. Planning the garden in my head, but haven't gotten to the prep stage yet because of too much rain. Maybe next weekend. -
Angel: Your jet propulsion and your collage gave me a great belly laugh. Thanks for the boost to the immune system.
No projects for me except work and thinking about the taxes due in a little over 2 weeks. And I was going to do them in Feb!
playwright: I'll have to pick up the Prairie Home Companion CD -- I about choked over the example you gave. LOL Sorry, Iowa.
Don't worry too much when we don't hear from people. I know I've taken a couple of days off from "IT" myself. Though it's been kind of hard to get away from IT this week -- everyone wants to discuss MRIs, genetic testing, and everything else covered by Katie Couric and Oprah's guests. Enough already -- I'm not an instant expert!!
Hillary -- Thanks for the tip on the Colace vs. the Senekot.
musicmom -- Count me in the group with the leaky noses. I thought I was just getting more hay fever than usual.
1stlite -- Glad to hear #1 went well and you like your onc nurse.
Smooth sailing tomorrow to Onlygirl, Maliha's mom and Jann.
Linda and Steph -- Hope today went OK. Please keep us posted over the next few days. Those of us with tx 3 coming up will be very, very interested! Linda, did you take any of your own hair with you? -
Here's a big project we just finished a few months ago if anyone wants to see. Redid the entire house from top to bottom.
http://users.adelphia.net/~angelflight1/AngelsHouseRemodel.html -
Onlygirl...It's not that hard to use the ladies room during chemo. My nurse showed me how to unplug my IV (runs on batteries) and you just take it with you. The only thing for me was I couldn't zip up my sweater (due to the port) and part of my breast was exposed. The gentlemen that where sitting by the bathroom became my instant friends. I even think they ask to have their next chemo tx the same time as me. That was the only draw back but I didn't let it stop me, you'll do just fine...rosebud
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Angel - I enjoyed the pics of your remodel! I want to have my next round on your patio!
Marshabel -
GrammyNancy,maxgirl,zigzag,playwriter, thank you all for making me feel so welcome to stay aboard, I can swim, but really didnt like the idea of being shoved overboard.
News now is, I go to the hospital on monday and fill papers out for the drug companies for Emend and Zofran. The advocate gets them in, they said I may be able to do chemo next week. I cant afford the meds, so this is why they want to get it approved first. Hmm, I am not a medical expert, but you would think they would have figured this out long ago while I was waiting to heal and waiting on the muga and this could have been all set up and ready to go. Silly me for thinking them thar smart college people would do the obvious. Oh well, guess my sense of humor is getting short these days. Then I have my mother saying have chemo on a tuesday and you will be up and ready to be normal on a thursday.
Whine, whine, and no I dont have cheese to go with that LOL.
Ok I seen tonight Dannon Activia is suppost to strengthen your immune system. If this is true, maybe its good for more than the big D. I think I will get some tomorrow and start with it ahead of time. I quit drinking the mountain dew and now its juice and green tea. I think its stress, but went from insomnia to cant get enough sleep. Amazing what stress does. Good luck to everyone tomorrow and I am thinking of all of you, praying for the ones that are having a hard time, while in the back of my head hoping I wont be one of them, but then knowing my weak stomach is going to want to see some action. Wow, think I will go to bed, I am kinda depressing myself now.
Love you all and dont know what I would do without this group.
Dawn -
Checking in, back from infusion 2, all went well. Only bad thing is with the TC it takes 3 1.2 hours for the infusion.. Came home, feeling droggy from all the premeds, Kytril, Benadryl and steroids they load you up on, then the T and them the C. I'm surprised I can walk out of there on my own two feet with all the crap they put in your veins. Took my compazine ate some fried rice and egg drop soup and went straight to bed. Now 4 hours later I'm wide awake!! Must be the steroids during the infusion. So far no nauseau at all, just that wired feeling. I know the gassy days are coming around the bin, and i agree with you Angel, I want that stuff OUT, so let er rip is right!!! I've made my husband proud, you now how males take pride in how gross they can be. I'd match myself up against anyone !!!
I am taking a couple days off of STD around chemo days to rest and enjoy before going back to work. Spring is here and everything is beginning to bloom and look so pretty. I love photography so plan on taking the camera out and getting some good pictures this weekend. The majority of the hangings on our walls are from pictures that I have taken. I love taking landscapes animals shots. We have 4 cats that i follow around with the camera. A couple of them are little hams, the others run amd hide from me!
Well can you tell I'm on a buzz?? I wonder if vacumming at 1:00 will piss the DH off !!
I hope everyone has a good day tomorrow !!
hugs to everyone .
Linda -
Dawn, you hang in there, dont let your mother tell you how you are suppose to feel! You don't need that stress right now. There is so much good advice on these boards that I hope it keeps you one step ahead of the game. You do have to stay with us, most of us are going to be cruising for a long time, so you will still have plenty of company. My last cruise date isnt until May 10th, then on to rads after that.
Hang in there!!
Linda -
Rosebud
Laughing so hard at your new found friends by the bathroom. Hey I say if it makes them happy give them the thrill......it's just too bad they don't know we don't have anything else inside there except the port..lmbo
Marshabel
We use that patio so much. It's on the cool side of the house and we get into the 120's sometimes in the summer. The fans keep the flies away and the netting helps when I'm out there with the laptop if the bugs really bug me.
Dawn
The stupidity of some people who work at these places amaze me. I guess they pass out some of those degrees in Cracker Jack boxes these days cause that's the only way I can see some of them with one. I'm amazed at your patience with these inept people but when you're in the situation you and I both are we don't have much choice.
Tell mom to stick a sock in it.....in fact I'll load your lifeboat with tons of them, since her comments seem to keep being thrown your way.....Let me at her for 5 min ok...I need to kick some butt anyway...........j/k
We need to get you a state room with caller ID so you can screen her calls..while we give her the poop deck if ya know what I mean........lol
lindaDK
Glad the 2nd infusion went well. At least this time around we all kind of know what to expect and will be more prepared.
I have been doing almost all my cleaning from 1-4am...lol
The vacuum is the only thing I havn't done at that hour, but the house looks great and all the glass is dusted and polished. 3am and Windex seem to go hand in hand for me.
Spring here has been a bit earlier than usual but everything is blooming. The whole neighborhood lost all the palm trees from the freezes we had but I just cut mine all back and they're green already. Been hanging outside as much as I can right now because I know the cold days aren't over with yet.
Angel -
Taurie...hang in there. You would think that doctors could multi task but that does not seem to be the case, I think that is why we have to wait so long between test and getting results...they just don't have a clue to how important these things are to us. You will get your sail date and all of this will just be a bad memory.
Angel...love the house...your husband must be pretty handy. Mine is...he finished off the basement even adding a bathroom.
Linda DK...happy for you that #2 went well. Mine is next Tuesday and I've got to say I'm getting a little nervous.
Maybe we should keep a list of bar reservations each week...I see that they are doing that on the Feb thread.
Hair continues to fall......
Hope everyone has a great day!
Nancy -
angel -- wow! your house is lovely! the patio looks so inviting, and i love yr bedroom furniture. everything is decorated so lovingly.
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Lisa and Maxgirl - thanks for the shout outs and concern about how I did with treatment.
Linda - glad to hear you made out okay with #2 yesterday. I am typically up with the decadron as well, but this time I decided to use the Ativan and I actually slept through the night. Like you I am also taking a few days off next week to relax and rest before going back to work.
Dawn - I hope you get your prescriptions taken care off, so you can get your cruise on the water. I had some issues getting my Emend yesterday and I found it extremely frustrating, and that is just not something we need!
Prior to AC #3 yesterday, I was extremely irritated by one of the front desk chicks with a bad attitude. She was rude to me when I signed in, and then while waiting on her to call me up for my co-pay, I overheard her telling one of the other receptionist how I was late, blah, blah, blah. When she finally called me I let her know that I heard what she said, and curtly explained that the reason I was late was because the nurse TOLD me to wait at the pharmacy (a short walk away) until we got the Emend Rx straightened out. I also let the onc know how aggravated I was, and he said he would handle it because patients don't need to be harrassed before tx with everything else we are dealing with. I just don't get it with the front desk, while the docs and nurses are so great, some of them really need attitude adjustments! So there goes my rant for the day...
Once I calmed down, the treatment itself was uneventful, once it got started. I watched a DVD (The Holiday with Cameron Diaz, Jude Law, Kate Winslow, and Jack Black) and tried not to focus on the kool-aid red Adrimycin that always freaks me out. The rest of the stuff (Aloxi, decadron, tagamet, saline, and cyclophosphamide) is colorless, so it doesn't look so bad. I make sure the nurses always drip the cyclophosphamide for over an hour to make sure I don't get that awful headache I got with AC#1, and it has been much better. After tx, I received an Aranesp shot for RBCs - which were a little low and to help with fatigue. Then I drove myself home for the 1st time after treatment letting DH off the hook, as I now know what to expect.
Last night, I ate before the nausea set in and took my meds and went to bed. This morning I am at home feeling a just a little nauseous. I am trying to avoid taking the compazine because it makes me really tired, and I may go into the office for just a couple of hours.
Good luck to Beth (Onlygirl4) and JannM on your first treatments today!
Im wishing each of you a peaceful and restful Spring weekend.
Steph -
Steph, so happy things went well for you yesterday...sorry you had to deal with the front desk snobs who think they control everything.
Good luck to Onlygirl and Jann...thinking about you and sending lots of positive thoughts and prayers your way. Let us hear from you when you can.
Oh well, took a shower and washed my hair. Big mistake, it was like I was being attacked by the killer hair ball. Still have some left but not much. Oh well....this too shall pass.
Hope everyone has a wonderful weekend!
Nancy -
Dawn - I know how you feel about your mom's comments. My mother is making similar ones.....For example, I mentioned the killer headache I had with treatment #1, and she insisted that it was just stress, not the drugs. (OK, I wasn't looking for an argument, anyway!) Not looking for a pity party, either, but how about a little empathy or compassion? I guess it's just her way of dealing, cuz I have been her mode of transportation for the last 3 years and she is probably worried, (even tho I have 4 sisters to take up the slack!)
Nancy - I am also being attacked by the killer hair ball....
Still under Neutropenia precautions, and today I started having lower back pain. No other symptoms, no fever, etc. , but wondering if this is something I should worry about?
Marshabel -
Nancy - thanks for the sympathy regarding the front desks snobs. I think my Dr. spoke to them because when I went in for my Neulasta shot today, they were much more polite. Good for them because I was ready for them today!
Dawn and Marshabel - I, too, know how frustrating it is to receive a frustrating comment from your own mom. My mom is usually pretty supportive, but when I told her I buzzed my hair, she replied, "Why do you keep cutting off your hair!" I was truly outdone, as surely she didn't think it was my lifelong dream to sport a bald head (or as it has been recently called a "Britney Spears"). But just hang in there, sometimes I think it so hard for the moms to see their "babies" suffering, that they try to minimize things for their own well-being. Does that sound like a good explanation to you??? Heck - it's the best I can come up with.
Speaking of hair, Nancy and Marshabel, sorry you ladies are under attack. Take it from me, it's just much better when it's gone versus the constant shedding and scalp pain. I thought I would be totally depressed, but I ended up relieved in the end.
Well, although I didn't make it into work today, I haven't gotten a lick of sleep either. So I am going to try to grab a quick nap before picking up my kids.
Steph -
Hello everyone. Sorry I have not posted this week but I have been really busy with work. I own my own business and although I have the freedom to come and go as I please it is hard to stay away for to long, as it is my gravy train.
Angel your home is absolutely lovely. I envy all of you in warmer climiates as it is still cold here. I need spring. I loved the collage too!
Steph I am glad your 2nd treatment went so well, good for you doing it on your own. I am to much of a baby to go alone.
Linda Hope your tx went well too
Taurie I saw your ad for this cruise so you can't leave me...... or us....... we need our cruise representative!
Jann & Onlygirl I am so sorry you had to join us but glad you found us. Good luck and let us know how it goes hugs...
Maliha's mom hope all went well for her.
1stlite I am so glad as well the first tx went so well. It feels so good to have one under your belt.
musicmom My nose has been running all week. I was sneezing so much I thought I was coming down with something.
Holly Sorry for the d that is so frustrating. Hugs back......
Playwriter Sorry your not feeling well hope things get better soon.
MisShapen how is the house arrest going? I feel for you....
ZigZag Nice to have a rn with us. I feel better already
Lisa Thanks for worrying about me that was sweet
GrammyNancy your cat fight story totally cracked me up. I still have my hair and I am counting the days I will still have it.
marshabel How is your house arrest going?
Rosebud you and I seem to be doing ok. Strange as we are taking the same tx and we are the same age. We are a good vintage year! your story of the guys checking you out never gets old I laughed again.
I know I have not posted to everyone but I will soon. I am thinking about you all. hugs.
I do have a topic I would like to open up though. I am having some stress at home. I find this is more harder emotionally than physically. I know my loved ones have justified feelings but I have so much on my plate right now I just can't take the weight of their issues as well. Had a blow out with the dh last night. He is being real sweet so don't get down on him just hard since his mom died of bc. So he is very emotional. I just can't take on his stress and mine. Last night I slept alone and it was awful. I also had my first real big cry. I have had tons of the mini cries but last night was an award winner. Just wondered if anyone else is having these issues.
thanks for listening. -
Hi fellow cruisers. I just got home a little while a go from my first treatment and I don't feel a bit different. When is it going to hit me? I'm getting a bit nervous because I know it can't last. I go for my Neulasta shot tomorrow. I even joked with them about just having saline in those bags. The only thing I felt was a bit dizzy with the Benadryl and my legs got very jumpy. I was tired but I couldn't sit still.
Rosebud - It's always fun to make the guys look even under these circumstances. I tried to wait in between bags to go to the bathroom so I wouldn't have to take the old IV pump with me. That seemed to work pretty well.
Whitecotton - I understand what you mean about emotional issues at home. My 17 year old has always been a challenge but seems to be doing better since my diagnosis. My 7 year old is really difficult because he doesn't really understand what is going on. He is extreemly hyperactive and sort of crashes at the end of each day in mini tantrums. My DH helps but not as much as I need. He also lost his mother to BC within 6 weeks of diagnosis. He realizes that times and treatments have changed but I'm sure it plays a part in how he is dealing with everything.
I guess the bottom line is that you have to be straight with the people in your life and let them know what you need without guilt. I think you have to lay it all out there as calmly as you can and then expect to get it. Make sure your DH knows that you understand his fears but that right now you need his support in a big way. Talking about how you and he feels right now is very important for your relationship more than ever. Don't sleep alone. You need those arms around you especially now.
Beth -
HEllo ladies!
Back from session one. Went pretty well but it was five hours. Slept through a lot of it because they gave me ativan, zefron and one other antinauesa I can't remember as premeds. The Taxorele was fine, and the cytoxin was slow enough that it didn't give me a headache. Got a Nuerolast (sp?) shot at the end. I'm feeling tired, but not too bad, really.
Angle, Wonderful house! You did a graet job!
Whitecotton: I understand about the emotional stress at home. My mom is very supportive, but I know she's scared and emotional about all this. She dealt with my Dad's prostate cancer and treatment years ago, and she looks on this the same way. I try to tell her that the things have really changed since my Dad, but she's doesn't get it. My meltdowns, unfortunately come at work or in the car to and from so no one has to see and it doesn't put any stress more sterss on them.
Steph- glad to hear #2 went so well. I'm impressed that you were able to drive hoem on your own! -
Evening ladies. My white count and neutrophils are way down today, this in spite of having Neulasta the day after chemo last week. It really bummed me out as we were supposed to go to a show tonight and the orders were "avoid crowds or wear a mask". I'm also not feeling great, so we just decided to bag it tonight. Hopefully, I'll be feeling better tomorrow. NO fever, that's good. Just a headache and achy all over. Hope everyone has a restful, healing weekend.
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White..44 what a great age..LOL Stress seems to be the underlying issue here and here's my story. In Dec of last year my boy friend of almost two years made the leap of faith by moving in with me. This meant moving from his home of 7 years, moving to another town and from his friends. One month later in Jan the cancer came into my life. He just made a huge move of his life and now was faced with a sickness he didn't ask for or even knew how to handle. Now lets throw on medical bills and a women who has worked all her life now faced with not be able to work. And, the company she worked for for 25 years being sold and wages being cut and not to mention all the medical deductibles having to be re-payed. Just to stir things up, my daughter is getting married this Aug and I can't help in the money dept when she needs me the most.
Some guys would have ran screaming from this, I know I tried too..LOL I guess what has gotten us through all this so far is that life is an adventure and we don't get to pick what trip we go on. If things didn't happen to us we wouldn't have stories to tell eachother..LOL My friend told me to think of it this way..Do you have everything you need to get through today? and then you take it one day at a time.
I am blessed each day! And every day above ground is great and I'm going to be 100% HERE. My boy friend knows this, he loves me. Talk to your hubby, maybe he needs to know you're 100% here. Oh, and thanks for letting me go on and I return you to your schedule forum..LOL Hugs Rosebud -
Hi ladies,
Just checking in and glad to see that our chemo girls for today are mostly doing great. That's always great to hear. Glad you liked the pics of the house. We worked hard on it.
My daughter will be coming into town from Wy a week before Memorial weekend in May. Can't wait to see her. We're getting together with the sister-in-laws to have a 4night 5 day weekend together just to do all the girlie things we all never get to do. I can't wait to see all of them. It actually gives me something to look forward to besides chemo and now I can keep my hands busy with gifts for goodie bags etc. We're going to do our hair, nails, toenails, play girlie games, sit in the jacuzzi at night and roast marshmellows by the fire outside. I'm looking so forward to it I can't tell you. Any and all suggestions for that 4 day affair would be appreciated as well.
I'm having issues with my hair and scalp. The entire top of my head is really hurting like a burn from a bad perm. I'm assuming this is from the chemicals burning off the roots of the hair or something although never knew there was pain involved with the hair loss. It's shedding pretty good (day 16 right now) and I'm wondering if I buzz it if the pain will stop or just when it falls out? For those who have lost theirs already can you tell me if the pain will stop after it falls out completely or when I buzz it. I'm sick to death of finding hair in my food, on my clothes, and in my mouth all the time but wanted to wait till I really need to buzz.
Dawn,
Come back to me!!! I was only kidding about kicking moms behind.....lol My mom used to do the same thing to me too. It's just an annoying thing between moms and daughters I think.
I still feel like a million bucks and the weather outside was 85 today so it was nice to be outside today but lots of pollen right now. I even sewed a new canopy for the boat. Hubby's been after me to do it for weeks now. Guess he's gonna launch it Sunday and I'll be glad to have it out of the driveway for the season.
I'll be doing my second TAC on Wednesday this next week and have absolutely no apprehensions about it this time. Just hope it goes as well as the first one.
Hope you all have a great weekend.
Love
Angel -
Hello fellow cruisers!
I haven't checked in for a week or so, but this insomnia thing is taking its toll this AM and I just got caught up. So glad those of you who were missing have checked back in, those who were feeling bad are feeling better, and those who are feeling good continue to do so! I loved the collage, Angel, and admire all of you, especailly those who are continuing to work. I went to talk to my boss this week and I have finally made the decision to stay on disability throughout the chemo........it's been hard on me, as I have always worked. And I have felt so good that I feel like I'm playing hookie, but I'll just have to get used to it! I have had minimal side effects since first A/C on 3/20, and am ready for #2 on 4/3. Have not had any hair loss issues yet, but the wigs are on the stands waiting, as are the hats & scarves. I got the same wig in 2 different colors - one is a frosted blonde and the other is a brunette w/ red highlighs. I am normally a brunette so I plan to have fun with this! I have been enjoying the beautiful spring weather, did a little garden cleanup, have been walking and organizing my team for Relay For Life in July, still working on DH bday party, spending as much time as possible w/ grandkids and loving being alive every day! I am trying so hard to remain positive........my son in law's father, John, who was dx with stage 4 lung cancer 1 week before me in December 2006 passed away last night. It's been such an emotional roller coaster - I feel like we both started at the same point, and his path just kept going downward as mine goes upward. I think he might be one of the reasons I remain positive - I am so thankful for how well things are going for me, but on the other hand have felt so incredibly sad and frustrated as he continued to decline. I have been able to receive excellent care locally, while he felt he needed to travel to Chicago for treatment that was not, in my opinion, even very good, but that's another topic altogether. His body will be flown home on Sunday - I can't imagine his wife Donna's pain right now - and I am worried about my daughter and son in law. They both were with him last weekend, and felt he was improving, then Weds the Dr said he would be gone in 2 days - and he was. This is a big, loving family who are all rallying together, but John was only 48 and had so much more life to live........I find it interesting that all the bible verses that comfort me right now come from the book of John. Sorry I am rambling all over the place here but it's 5 AM here and I'm really tired and just needed to vent - and knew you girls would understand! Stay strong, stay well, and stay POSITIVE - even thought his ship might hit some choppy waters for all of us, keep your focus on that beautiful tropical island where we will dock and enjoy drinks with umbrellas in them, warm waters, blue skies, each other's company and life itself! -
dmk,
I am soooo sorry to hear of John's passing. May the angels watch over him right now and may peace be within the family soon. It's always hard when someone dies especially someone so young with everything to live for. I will say a prayer for you all that you will be comforted in this time.
I'm so glad to hear that you're doing well.
Angel -
Dmk,
My prayers are with you and your family. We don't have much say when our adventure of life ends, God does. May you find comfort knowing he is with Him.
Rosebud -
Hi Angel, I am out of the Jan Chemo group and I saw your ? about pain during hair fall out. I had the same thing, the burning as soon as I had my DH shave it back the pain was gone within an day. Not grant it, it was tender as he shaved it but just grit your teeth and know it will feel better. Mine hurt so bad I couldn't even lay on a pillow, so getting rid of it was the answer. Good luck and the head get chilly at times! LOL
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DMK, I'm so sorry for the loss that your family is going through. My prayers and thoughts are with your entire family. May they find peace.
JannM and Onlygirl...I'm so happy that things went well for you yesterday. Remember to continue to drink and drink and drink.
Whitecotten, it is so hard to handle all this stress. We by nature are caregivers and we want to make things right for our families. During this battle for our lives it is sometimes hard to try to make things feel good for others. It was probably good that you finally had that big cry..we all need that every once and awhile. I think a good discussion, where everyone honestly speaks their feelings, fears and hopes would be benefical. I think you need to tell your husband just what you said in your post.
Here is to a wonderful weekend for all.
Nancy -
Bar reservations for the week of April 1 - 7.
Tuesday: dmknanny, GrammyNancy
Wednesday: Angel
Sorry if I've missed anyone. Let me know and I'll undate the list. -
Dmk - prayers of peace for your SILs family.
Angel - yes, my hair hurt as it started to fall out. I buzzed it after about 5 days of gelling and glueing it down with hair spray, and then buzzed it. It is still a tad bit tender - but not as painful as it was.
My particular 'cocktail' was suppose to take every hair on my body in 7 days, but I am on day 17 and still have quite a bit on my head as well as no loss anywhere else. Don't know why? Jacque -
Dmk - prayers for your family. It seems when it rains . . .
An update - second day after first tx. Yesterday I felt like I was hit by a truck. No appetite, no get up and go. Went for Nuelasta shot. Today, the truck hit me. I can hardly move and have a migraine from H$%$%#! No appetite. But slamming the water back like mad. Maybe I will flush this crap out of me. lol However, no nausea, big D, or other symptoms I have read.
I am glad to hear that my buzz party may save me some pain and discomfort.
Must go lay down. Everyone have the best day you can. A nap should perk me up. -
Charlie, here's too you that the truck gets out of the way quick. Try to eat a little, it will help keep your strenght up. Sending you positive thoughts and gentle hugs for a speedy bounce back.
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- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
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- 586 Alternative Medicine
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- 50 Immunotherapy - Before, During, and After
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- 109 Welcome to Breastcancer.org
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