How Many Stage 4 Girls are getting SS disability..

Frap

Thank you Chicagoan, I couldn't have described the life sucking stress better and believe me I've expressed all the following SE effects: HFs, cramping, diareaha, joint pain, mouth sores, sleep disruption, fatigue, weight gain as many of you are suffering through as well..

Thank you Momchichi for your first hand on the job advice at SSA. Unfortunately I haven't quit working for fear of my app being rejected, I just keep plugging along at work. Fortunately I'm working at home and have 2 great guys working for me to cover during all the medical appts/scans etc. 2 more years to go b4 retirement though if I can bump it up to disability all the better.

Anyways, thanks ladies for your input and many blessing to you and all cancer survivors.

NineTwelve

Last week my second disability application was approved and I received my first payment, post-dated back to when I stopped working in March of 2020. I should not have been denied, but I think, looking back, my assumption that MBC is automatically approved every time was part of what led my claim to be denied. There was an earlier post advising applicants to get their own medical records and supply them. I didn't do that. I also minimized my symptoms and underreported pain and concentration issues, both with my oncologist's office and during the SSDI interview. (We always have to be such brave little soldiers.)

Getting denied was really stressful and so demoralizing that I went to one of those legal services which help people get their claim approved. They did collect a fee, but I think it was worth it for the peace of mind that this support gave me.

candy-678

NineTwelve- Thank goodness !!!! I always hated to hear you were initially denied. Government can be so frustrating. Why do they have to make it so hard for some. I had no trouble at all. And I hate to hear of other MBC sisters that have to fight for their right to get what they truly deserve. Congrats !!!!!

KBL

NineTwelve, I thought about you all last week. I was going to come here and ask. You must have read my mind. I’m so very glad you were approved. What good news. Thank you for coming back and letting us know.

NineTwelve

Thank you, candy and KBL. I let myself exhale after I got the news! Retirement feels official now, even if premature. I'm relaxing for the first time in months, enjoying the change of administration, and to celebrate, I'm watching a musical every day for 30 days. (Currently on day 4. Suggestions welcome.)

cowgal

NineTwelve - I suggest Cat Ballou and Grease.

KBL

It’s been a while since this post has been active, but I have a question. I just realized when I go, my husband could get survivor’s benefits. I hadn’t even thought of that. I am wondering how that works. Being on disability, I get the full amount I would have received at 67, but I’m 60. He just turned 61. When I die, does anyone know how it would work for him? Would he get a percentage of my full retirement? I have no idea how that works and would like to be able to let him know what to do when that time comes.

SeeQ

KBL - I think the spouse can get whoever's amount is higher, not both. For example, before my dad passed, he and my mom were both getting SS. After he passed, she was able to keep just his SS payment, which was higher than hers, but not both.

KBL

Thank you, SeeQ. What I’m wondering is would he get my disability amount, which is the full amount, or what I would have been getting at 62 if I filed. Right now I’m making the most I could get.

SeeQ

KBL - I was curious about this for my husband, too. I found this: https://www.disabilitysecrets.com/resources/social....

There are two additional categories for people carrying for kids under 16, and disabled spouses that I didn't include here.

• You are at least 60 years old but not yet full retirement age.
  • You will receive 71.5% - 99% of your deceased spouse's SSDI benefit.
• You are at least full retirement age.
  • You will receive 100% of your deceased spouse's SSDI benefit

But...

Own retirement benefit. For widows who are of retirement age, the benefit that they could receive based on their own work history may be higher than the money that they receive from their deceased spouse's SSDI benefits. You can choose to receive whichever payment is higher.

Working. If you work while collecting a widow's or widower's benefit, your monthly benefit may be reduced, depending on your age and your earned income. For more information, see our article on working and survivors benefits.

KBL

Thank you, SeeQ. Still confusing, but I did tell him to apply for survivors benefits right away. Hopefully, we still have plenty of time

tangandchris

Do we get extra monthly for dependent children with our monthly payment?

kkcita

yes, your dependent children receive an SSDI benefit monthly. My experience was that when I made my own application and was approved, then they started the kids’ applications.

candy-678

Bumping this Thread.

I have been getting SSD for 3 years now for my MBC--- Compassionate Allowance Program with Social Security Disability. I just got a notice that Social Security is doing a review of my case. I have forms to fill out. Now I know that this may just be a formality that the Government does, but have any of you had to do this too? Should I be concerned that they will review my case and kick me off of SSD? I am still under continuous cancer care--- seeing my MO every 3 months, scanning, and taking active treatment.

I hope this is just a formality.

Moissy

Candy - I’ve been getting my SSDI for several years and have not encountered this yet myself. However I do remember there was someone who posted a few years ago who had received a notice like yours. She filled out the forms and her coverage continued. As long as you are metastatic there should be no issue with continuing coverage

DivineMrsM

candy, I never had a review like yours, but since you are on active treatment, and scan and see your oncologist regularly, and as a stage iv patient, it seems likely you will be given the green light to continue with SSD.

I found this on the Social Security page that says the law requires a review every x number of years to determine if you’re still disabled.

https://www.ssa.gov/ssi/text-cdrs-ussi.htm