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  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited April 2021

    Good morning, Loungettes!Happy TGIF Day! I am ready for a half day with the kiddos, that's for sure. They have somuch energy, it's hard to keep up sometimes. A few kids in the school are from really bad home situations, and one in particular is going through a really hard time and is in crisis often. In my office sometimes 3 times a day, and spending time with the School Counselor (a mental health counselor, not a guidance counselor) every day. Things are coming to a head and I'm worried about what that is going to look like when it blows. Still, most of the things going on are just funny. Like the little guy who told a staff member that his mom "yanked" a tooth out of his mouth, but neglected to say that the tooth was so loose that I had already given him a little tooth shaped container to put it in the day before cuz I didn't think it would stay in until the end of school. So staff member is freaking out about abuse and wanting to call the police. It took the Principal and Me almost half an hour to settle things down!

    Sadie say Hi to everyone!

    Karen--glad you had a good visit and DD is home safely.

    Librarian--we are finally getting the nice spring days here, too. Temps in the 60's, so nice! Going to get the deck cleaned off this weekend. The reward will be sitting on the deck with a glass of wine while doing school reading. And between the kiddos and Sadie, I am laughing a whole lot these days!

    Jazzy--glad you are able to be back in the pool. I've enjoyed the pics on FB. I heard from my Handler that the school district wants me back for the 21-22 school year, and has started negotiations. Which means I can have the summer off, YEAH! So looking forward to that, getting the kayak in the water more than once, and taking Sadie swimming regularly, and lots of other things I missed out on last summer.

    Chi--I hope your DH doesn't get a Windows 10 computer, that's not being supported by anyone anymore, not even Windows. If he's going to make a change he should make one that will hold him for a while, so he won't have to go through the agony of learning a new system too soon. I remember the change from Windows 10, which I LOVED, to whatever I finally went to when I had to upgrade, the learning curve was brutal, and I LIKE computer stuff! You sure did have to do some working around to get a copy of that report off DH's computer! Good for you!

    Goldie--I am so sorry to hear about DH's diagnosis. Badass or not, hugs and prayer from me to you. And from Sadie to you.

    Reader--oh my goodness, what a story! At least you got a laugh out of it.

    Teka--so very true. And something many people need to pay attention to.

    Chevy--good advice for Goldie.

    Chaos - CocktailBook

    Chaos Cocktail

    1/2 oz of everclear alcohol

    1 oz of Bailey's Irish Cream

    1/2 oz of Cherry brandy

    1/2 oz of benedictine herbal liqueur

    1 oz of cream

    1 of maraschino cherry

    Shake, strain, add the cherry and serve.

    From <https://www.cocktailbuilder.com/recipe/chaos-cocktail>

  • karen1956
    karen1956 Member Posts: 6,503
    edited April 2021
    TGIF! Have my 6 month oncology visit this morning. Not worried. Labs looking good - for the first time in a long time, I have lots of questions - nothing really important more curiosity.


    Working this afternoon (generally off Friday) - helping with 4 interviews for a new MH position - we had 4 yesterday - and more next week. So far at least 10 and hoping for 15 positions total. These Mental Health positions are more clinical in nature. Some strong candidates. I'lll get 3 or 4 hours comp time. I really enjoy doing interviews. Yesterday morning I only observed (these are tams of 3 plus our manager). Then in the afternoon, I did 3 SW,SP interviews - (teams of 2) one really gave off weird vibes - off answers on a few questions - hoping she was just nervous. A few weeks ago, interviewed a new SW, finishing up internship - her scores weren't strong, but my instinct told me she was quiet, nervous and give a year or two and she will be strong - thankfully she was hired as she will bring some great insight. After doing interviews for 5 years, it gets easier and you get a better feel for people.

    Up early again this morning - waited till 4:45 to get out of bed. Oncology appointment is at 8, should be home by 9 or 9:30 (also get Prolia shot), then get productive cleaning and cooking, get a walk long walk and interviews start at 1. I'll have time after we're done at 4 to finish up. Just need to remember to call DD#1 before interviews start due to the 2 hour time difference.

    Have a great Friday/


  • goldie0827
    goldie0827 Member Posts: 6,595
    edited April 2021

    ED, you are so right about when we are younger and think nothing bad will ever happen. I do cry, we both cry. I would love to have a hug from you and give one back in return. I'm def. a hugger. It would be a long, strong one! I'm very sorry what your brother and SIL. It sucks getting old when you have issues to deal with.

    NM, I can related to the young one dealing with issues at home. Unfortunatley, they don't always work out. Cute tooth story, but I'm sure that teacher didn't find it so cute in the beginning. Congrats on being asked to stay for the next school year. Give Sadie a hug back from me and one for you as well.

    Karen, good luck with your onc appt. Glad you are feeling good about it.

    DH made a comment this morning about a person we know, early 70's, he goes out walking every morning. DH says "it must be nice". I'm thinking, you never did anything like that. You sit more than anyone I know, even before his health got bad. Got home yesterday and went out after putting groceries away and packed orders. Another busy day with Lori doesn't even have time to eat. Then it gets too late, and I don't want anything. I'll be sure and eat today. Have a neighbor coming to help me with orders. DH is wanting to have our friend that used to be our hygeniest come stay for a few days. I'm tired of arguing with him about it. I try to tell him that just puts more stress on me on top the already stress I have. But, guess I just have to buck it up! He already has himself on his death bed in aboout 6 months. The man's glass is ALWAYS half empty, always thinking the worse. I try to say things to put him a more positive space, but it doesn't seem to do any good.

    Gosh, I feel like such a Debbie Downer. I don't mean to be, it's not my demeanor at all! Maybe I should just not post!!! But I love you all so much. I wish I could change DH's demeanor. I told him he could have a week of feeling sorry for himself, and after that he has to try and focus on more positive things.

  • goldie0827
    goldie0827 Member Posts: 6,595
    edited April 2021

    On a lighter note.....

    It snowed last night...

    8:00 am: I made a snowman.

    8:10 - A feminist passed by and asked me why I didn't make a snow woman.

    8:15 - So, I made a snow woman.

    8:17 - My feminist neighbor complained about the snow woman's voluptuous chest saying it objectified snow women everywhere.

    8:20 - The gay couple living nearby threw a hissy fit and moaned it could have been two snow men instead.

    8:22 - The transgender man..women...person asked why I didn't just make one snow person with detachable parts.

    8:25 - The vegans at the end of the lane complained about the carrot nose, as veggies are food and not to decorate snow figures with.

    8:28 - I was being called a racist because the snow couple is white.

    8:31 - The middle eastern gent across the road demanded the snow woman be covered up .

    8:40 - The Police arrived saying someone had been offended.

    8:42 - The feminist neighbor complained again that the broomstick of the snow woman needed to be removed because it depicted women in a domestic role.

    8:43 - The council equality officer arrived and threatened me with eviction.

    8:45 - TV news crew from CBC showed up. I was asked if I know the difference between snowmen and snow-women? I replied "Snowballs" and am now called a sexist.

    9:00 - I was on the News as a suspected terrorist, racist, homophobe sensibility offender, bent on stirring up trouble during difficult weather.

    9:10 - I was asked if I have any accomplices. My children were taken by social services.

    9:29 - Far left protesters offended by everything marched down the street demanding for me to be arrested.

    By noon it all melted

    Moral:

    There is no moral to this story. It is what we have become, all because of snowflakes.

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited April 2021

    Kim, just a thought on that little kid with problems.... Maybe his folks are the cause of all that this kid is feeling. I remember back, when my folks were always fighting, even hitting each other, and me & my brother hiding in the closet! Him being drunk all the time, Mom mad, Dad leaving, Mom crying, and me and my brother just trying to stay away from them.

    Then the abuse by one of Mom's friends... I was only about 6... And him standing over me at night, when I was in bed on the bottom bunk... and .... you can just imagine.... And how afraid I was to tell ANYbody! Not Mom, not even the teachers... Nobody.

    If this little boy trusts you, that can really help him, thinking that he DOES have a friend! Or else he just might try and hide in himself. I remember feeling like no-body cared... of running across the street to get away from them fighting each other.

    How me and my Brother ever got through those days is a miracle. But we had each other at least.

    Mom & Dad finally moved to California about the time I got engaged. And being away from them, helped me make decisions in my life that helped me stay married almost 64 years! Like NEVER fight in front of the kids.... Don't scream at each other. And always tell your kids you love them, especially before they go to bed. Growing up "alone" hurts little kids.

    I became sort of close to them, after they moved away! I could understand each of them... but I still thought they were nuts for staying together. They DID.... come hell or high water! And Dad was lost after Mom passed away.... Their love withstood all the years & trauma I saw & lived through.... And life goes on.

  • karen1956
    karen1956 Member Posts: 6,503
    edited April 2021

    Lori - love the snowman story!!! Please, please keep posting - it is good for you to do and we are here for you. Let Darrell have have his pity party - ALS is a hard diagnosis for the two of you. And nothing you say or do will change him. As an earlier post (prior page and don't want to loose this) with pretty design said - you need to take care of yourself, or something similar. You need to come first sometimes (I know you can't always and you like to do things your way - which I get). But we want you here!!!! Hugs my friend.

    All went well with oncologist - had appointment before vitals. I had labs 3 weeks ago for other oncologist but phlebotomist insisted on drawing again saying they are different - I didn't argue as I knew medical oncologist labs were drawn as well - CBC, CMP and tumor markers. DEXA scan in August, return in 6 months and Prolia for 3 years so one more year.

    Need to get busy cleaning and cooking - have 3 1/2 hours or so.

    Have a great Friday.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2021

    Goldie- you make a really good point about DH never doing much exercise and perhaps now it is not an opttion. Everything I have ever learned from health classes, yoga workshops, etc. about aging is that you have to create a habit of exercise and keep moving to keep your mobility. Because we are at altitude here in NM, many atheletes come here to train for the Olympics, but I have also met a lot of older skiiers, mountain bikers, etc. along the way who are far more fit and strong than I am being decades younger. They always tell me to keep moving too to stay fit and strong. I think we have all found injuries, hospitalizations, cancer treatment that took us away from being able to move really impacts you so quickly. There have been times I have not been able to exercise at all, but try to find an alternative if I cannot do something.

    And yes, NM I am back in da pool and swam 3X in the past week/140 laps. Gotta keep moving!


  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited April 2021

    Good Morning, Loungettes! Happy Saturday! Waking up to a beautiful morning, the weekend is supposed to be really nice. Going to work on laundry and stuff around the house while I put together my weekly project for school today. It's a PowerPoint presentation this week, something I love to play with, and I got most of the prep work done yesterday so I'm hoping it won't take long and I can get some outside time in today, too. I did get to sit on the deck and drink a glass of wine after work yesterday.

    I needed that drink, too. I saw some of the darker side of being a school nurse yesterday. How parents can say and do some things to their own child is mind boggling and horrifying. And how these kiddos managed to come to school and be all smiles and look happy amazes me.

    Sadie says I should talk to the school about making her their therapy dog so she can go to work with me. I told Sadie she'd have to go through training and show that she can sit and stay and come when called, consistently, and not just when she wants to. She looked at me as if to say "Rules like that do not apply to me." and took of chasing the fat squirrel!

    Karen--glad to hear the onc appointment won't be any big deal for you. I admire people who can interview other people well, and are able to get a good read on people.

    Goldie--Please don't think you shouldn't come post here if you aren't feeling optimistic and on top of the world. All of us here know that life isn't like that. No you aren't a Debbie Downer, but even Pollyanna has down times, and it's a normal reaction to everything going on in your life right now. Let us hold you up when you are down, you've done that enough times for the rest of us to have earned some payback! I think giving DH a week to mope and get it out of his system is a good idea. Hopefully the hygienist will see what is going on and be able to talk to DH abouthis attitude and doing things around the house. And you had better eat today! Now more than ever you need to take care of yourself. And the snowflake story is too true!

    Chevy--You are right, the child's issues are from the home situation, which is being handled by the appropriate authorities. My office is a safe place for the child to go to when overwhelmed, upset, frightened, angry, whatever. I just wish there was something I could do to make the situation magically all better. I am so sorry you went through what you did as a child. Thanks for sharing, that does give me some insight. I will make sure this child, and the others with difficult home lives, know that I care about them and am their friend.

    Jazzy--good points about needing to keep moving, and how going through cancer treatment can really throw a wrench into that habit. Good for you for getting back in the pool! Now if I could just find some of the same self discipline and get walking again, I would be doing better.

    Liquid sunshine cocktail

    Liquid Sunshine Cocktail

    Ingredients

    • 3 oz. Malibu rum
    • 1.5 oz. peach schnapps
    • 1/3 c. orange juice
    • 1/3 c. pineapple juice
    • Splash of grenadine

    Instructions

    1. Fill a glass with ice. Pour the Malibu rum and peach schnapps over the ice, followed by the orange juice and pineapple. Gently stir. Drizzle in the grenadine and let it sink to the bottom. Do not stir. Optional: Garnish with an orange slice, pineapple, and cherry.

    From <https://www.twotwentyone.net/liquid-sunshine-cocktail/>

  • goldie0827
    goldie0827 Member Posts: 6,595
    edited April 2021

    Oh ED, I'm so sorry for the things that happened to you as a child. That's something no one ever once to hear. Did you ever end up telling? Hugs

    Karen, glad things went well for your appt., but you were pretty sure it would.

    Jazzy, that is just what I was thinking. You never did much of it before, why now when it's not an option. Glad you are able to get back in da pool.

    NM, yay for being able to enjoy a glass of wine out on the deck. I'm sorry about the dark situations at school. Surely there is more good than bad. Oh my, Sadie and the kids would both be happy if she could go to school. But we know you just can't do that, due to liabilities.

    Have heard anything from the friend. I had texted her back, but no reply. Which is fine with me, I really don't want company right now. The business is getting crazy busy, I hardly have time for house work, and it's garden season. I did eat. You guys are the best, thank you for being there for me.

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited April 2021

    You know Kim, I think when you are a kid, and these things happen, you just don't have a choice. You know you can't say anything, to anybody... I couldn't say anything to the teachers at school, about the beatings my brother and I got... I would just stand there and cry when Kenny got paddled... then it was my turn.... THEN our dog was barking so loud, and he got smacked!

    And yes, I finally did tell Mom about her friend... years later! And she just said "why didn't you tell me?" And I said because you wouldn't believe me..... And that was it. I forgot about this happening... until I was married and had my own girls, and one day, about the time Marilyn VanDerbur talked about her Dad and incest...And all of a sudden I walked out of the bedroom, and I just started sobbing! I REMEMBERED !!!! It was like a light came on, and the dam broke! It was after that, that I told my Mom when I went to CA to visit them. Maybe she knew? Maybe since I was just a kid, it didn't matter?

    It's no wonder I can't remember much of my school years.

    A little kid suffers when they have no-one to talk to.... because they think they are just kids.... and adults only listen to each other. Kim.... maybe just kind of hug that kid.... tell him "sometimes we have secrets, and sometimes we don't like to tell people, and that's okay.... but always know that I care about you, and I'll just be your special friend and listen if you ever want to talk."

    A kid usually has to stay in their bad place.... What else can they do? Where would they go? So they don't want to leave their only place they know! And we close our eyes so tight at night, and it's like we can black-out everything that happened. And then it goes away.... until the next time. And then we grow up, and hoping for our own life, and promising ourselves to make it better than what we had.

  • karen1956
    karen1956 Member Posts: 6,503
    edited April 2021

    I'm so ticked off - I'm on a few bc fb groups and lady questioned my use of survivor since I'm not stage 4!!! Who is she to judge me or anyone else. To her no one other than stage 4 dies of bc so they are the only survivors. Yes, I understand that, but those of us who are lucky enough to remain NED also have dealt with our own journey. I am grateful everyday that I continue to be NED after 15 years and take nothing for granted. The original poster stated that she was just diagnosed and scared and asked if she was going to die - I responded that BC is not an automatic death sentence and I was still here 15 years later and this person responded (not original poster) that she has a problem with people who are not stage 4 calling themselves a survivor. I don't mean to insult/hurt anyone's feelings here.

    Have a great Sunday

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited April 2021

    Good Morning, Loungettes!Happy Sunday Funday! I'm a little disappointed this morning to be waking up to gray, gloomy, drizzly, chilly and yesterday was sunny and warm. Today Mom and I are going to a local nursery's Spring Fling, and yesterday I was at the computer all day putting together my weekly class assignment. I did get a few minutes out on the deck before the rain started. Both days were supposed to be reallynice according to the weather guesses. Oh, well, it will still be a good time, I'll just have to wear a jacket rather than a tank top, right?

    Sadie is being quite the entertainer. I took advantage of an offer to get a free dog bed and got Sadie avery nice round, furry bed. It came the other day. Got it out and set up, and put it down in the living room to see what Sadie thinks of it. So far, I don't think she's even seen it! She goes right past it to get up on the ottoman where I can poke her with my feet. I'm going to put it in the bedroom. Once it gets warmer she often gets off the bed to sleep on the floor. Of course, she may still ignore it, but we will see.

    Goldie--there is much more good than bad going on at school, you are right. There are only 2 really bad situations, both are being handled by people with way more expertise than I have. I spend way more time smiling and laughing than being upset, that's for sure. It would be fun to take Sadie to school, but, like you point out, way too problematic for liability reasons, possible allergies and fears, and the inevitable "why can't I bring my pet?" hassles. It sounds like you are crazy busy just now. Can you hire someone to do general housework for a few weeks? Make sure you keep eating!

    Chevy--Oh my goodness, what an eloquent description of what childhood abuse is like for the child. I had never really thought about the lack of choice a child has, the fear of not being believed, of having no escape. No wonder children block things out. No wonder you don't remember so much of your childhood. I will make it clear to all the students that I am there for them and will always listen to them and believe them. Hugs.

    Warm Hug

    Warm Hug

    • 1 cup prepared hot chocolate
    • 1 fluid ounce Irish cream liqueur
    • 1 fluid ounce creme de cacao

    Directions

    Combine hot chocolate Irish cream liqueur, and creme de cacao in a coffee glass or mug.

    From <https://www.allrecipes.com/recipe/240557/warm-hug/>

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2021

    Good morning friends and happy Funday Sunday. Hoping you are enjoying a nice spring day depending on where you may live.

    Been nice weather for the most part, except the wind which dries out everything and spreads the pollen around and still no precipation. Read recently our precipe is the lowest since they started measuring it (like 100 years ago?) and watching something on our local PBS station right now about the low surface water here (saw that where I was visiting in southern New Mexico a few weeks ago). Spring is not a time we normally get moisture, it's winter snow pack (winding down now) and summer monsoons that help some. I know for most of you in the west, you know the drought conditions we all have been facing for awhile.

    I had the most long overdue and fun time last night with a good friend to do some belated birthday celebrations for both of us. Exchanged gifts but also had some great drink, food, and conversation. But what was more fun was running in to two sets of other friends, including one set of friends that were mutual to both my friend and I that met up. Most everyone vaxed and actually got some hugs and photo opps together. We were all giddy with happiness to see one another after so long, some since before the pandemic. We noticed everyone was dolled up too, everyone wanting to wear clothing that has not seen the light of day since 2019. We made some more plans and got invited to a lovely spot up north for a weekend outing in June. I am determined to have a good summer!

    Got yard work, winter to spring clothing work to doin the closets, but before then, a yoga class to get to shortly outdoors. Wishing everyone a good week ahead!

    P.S. My DOTD yesterday was something called a Miss Sweet Pea that was a sparkling drink with citrus vodka. Photo below. It was darned tasty.

    image

  • JCSLibrarian
    JCSLibrarian Member Posts: 564
    edited April 2021

    Good Morning! Hope everyone has had a good weekend so far. It is very difficult to hear about the pain many have endured during their youth. It is wonderful that there are helper people around to get them through their situations. People can be awful, but often hidden in there are others that will support you.

    Yesterday I was terribly lazy. Some how last week I injured my back. I am thinking it was washing pollen off some of the outdoor furniture. Then I had to lay on the CT table along with sitting in some hard backed chairs to play cards. Anyhow, I hopped that sitting still would help with the twinges. As long as I am still nothing hurts. Also, nothing gets done! I might clean some more chairs and hope for a different result.

    Next week is pretty open. I have a haircut appointment and DH has a dentist appointment at the same time on the same day. And Ziggy (the dog) will come back for his week of babysitting. DH is unhappy two of his NASCAR races were rained out. They will run them today and he will miss much of the Masters.

    I really want to loose weight. A friend told me that cutting out calories from white wine would help with that. Unfortunately, I LOVE to drink white wine!!! I am trying to limit and maybe drink a vodka tonic instead.

    Take care everyone and I will catch up later.


  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited April 2021

    Hi gals! Yes, those of you who work with kids or adults are sometimes in a life-saving situation! Maybe you don't realize it, but your words, or showing of support can help anyone who is maybe not even reaching out. Especially little kids. See, if they are living in a home with an alcoholic, they think that's how ALL men/women are. And their Grandparents, if one of them is ALSO an alcoholic, well that's just life! Yes Kim, you could even use examples! That you knew someone who was having a hard time, when they were little, but they didn't know any different! Life is what you are living! I used to love to walk to my girl-friends house, because none of them were fighting!

    They don't know that is not the way to live... they just know about the fighting & screaming, and getting spanked just because! And now-a-days, maybe it's drugs along with alcohol!

    And what else can they do? They see differences at their friends houses, or even their own Relations, but just growing up in turmoil is all they know. And maybe mental illness develops, but I think that's it's more not being able to learn the difference between living peacefully & not running for your life, when your Parents start fighting.

    Okay, Karen! Don't worry about someone on FB... Sometimes we follow a group, and after awhile those people go sideways, so just un-follow, or ignore them. We really can't hit them over the head with a cast-iron skillet, so we just have to ignore them, or "hide" their comments... ! Some people are just looking for a chance to show others their perceived superiority on subjects! We don't need them. And yes, there have been a few on the blog here! We just stay away....

    Sorry about your back JCSL! DANG! Back problems are the worst! Use lots of heat, and relax!

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2021

    Chevy- I agree with you so much on the above. I grew up in a family with a lot of addiction issues and mental health issues (the two often go hand in hand). We all learn how to survive growing up in our families of origin, but the hard thing is that as we get into adulthood, those same survival skills we learned as kids don't serve us very well in our adult lives. Took me years to unlearn ALOT from my family and now work to really not emulate some of their very unhealthy behaviors. Helping young people to see another way of being is so important. We have some saints on this thread.

  • Chevyboy
    Chevyboy Member Posts: 10,786
    edited April 2021

    Thanks Jazzy... Yes, I think going through those bad times make us in to what we are today, right? And the crazy part for me was, the guy I met when I had just graduated High School grew up in the same type of family! We went steady, then engaged, for over 1 1/2 years before we got married! But his folks stayed here... Mine were in California! But we tolerated them... Until I finally said no-more. No more signing for them because they had no credit! They didn't care! Almost ruined OUR credit, and we were just starting! Some people are just not worth your time & effort... Geez, reminds me of so many things those two people did!

    The only time we asked them to babysit our 3 yr old Daughter, we came back, and HE had her on his lap teaching her how to smoke! Never did THAT again!

    Oh well our life is how we make it... We grow up, and learn from other's mistakes, right?


  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited April 2021

    I must admit that whenever we go out I have a glass of bubbly (usually cava, as I find prosecco too sweet, and most places charge too much for French "real" champagne). I don't drink every day, and when I eat alone at home my accompanying drink (especially with spicy food) is seltzer with plenty of lime. This is Bob's "Hell Weekend" (one out of 3 weekends he makes it home in time for dinner, another weekend he's either completely off or has to put in only half a day reading echos, and the third weekend--this one--he rounds at all three hospitals and keeps a "go bag" in the car in case he works so late and must be in so early the next day that he stays at a hotel down in Oak Lawn). Last night I ate Mexican leftovers, so lots of seltzer & lime, and an ounce--I measured it, 2 squirts from the Coravin--of The Prisoner red with "al pastor" pork, as DsOTD. This early aft. I walked to brunch and sat outside--chilly but sunny, and my puffer jacket did the trick. Had my usual cava+quiche (no crust) & salad. The patio was full, the indoor was a ghost town. No more alcohol today. (Got some fresh coffee beans I've been dying to try, so I'm headed to the kitchen to brew a pour-over of Pacamara).

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited April 2021

    As to those snotty comments on FB about Stage IV patients being the only breast cancer patients allowed to call themselves "survivors?" Really? That if you've had any kind of cancer that hasn't spread and you're alive to tell about it you're not a "cancer survivor?" Oh, please. By that measure I'm not an ocular melanoma survivor either...until it metastasizes (which it likely will). Or you can't be a "COVID survivor" unless you'd been hospitalized and intubated for it? Some people have humongous chips on their shoulders (or feel a need to claim a status that makes them feel special). I'd call Stage IV patients "metavivors" (there's an organization named that), but IMHO (and that of my oncologists), if you had cancer and are alive to tell about it, you're a "survivor:" you become one from the date of diagnosis and remain one until you shuffle off this mortal coil.

  • illimae
    illimae Member Posts: 5,710
    edited April 2021

    Interesting on the FB survivor thing, most stage IV folks I know, dislike the term, primarily because we are so unlikely to actually survive this. Metavivor and Thriver are the terms commonly used, I prefer thriver myself since that’s what I’m doing despite the disease.

    I made a batch of crabs cakes for dinner and will enjoy a glass (or 2) of sweet red.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited April 2021

    Illimae, "thriver" is the right term. I have a friend diagnosed 17 yrs. ago Stage IV de novo. She still teaches modern dance.

    Done with alcohol for the day. Dinner tonight is mix-&-match Mediterranean, and I've got a fridge full of Bubli to wash it down. I love the pink grapefruit flavor, which my MO says (for drug interaction purposes) doesn't count as "grapefruit." I have some strawberries on their last legs (shrunken & intensely sweet), so I'll slice them & put a few drops of aged balsamico on top for dessert and hope that can suffice as my "sweets of the day." Been late-night eating to beat insomnia (doesn't help that Bob comes downstairs to do the same), and the cravings are always for carbs like Cheerios, paleo granola or dark chocolate. A sign, perhaps, that I need to go back to keto?

    I love crabcakes, but for me the wine's gotta be either bubbly or a fruity yet dry white. Sweet red, though, is dark chocolate's best friend!

  • illimae
    illimae Member Posts: 5,710
    edited April 2021

    Sandy, wow, 17 years! Your friend is incredibly fortunate, good for her, I’m pleased she is well enough to still do what she enjoys.

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited April 2021

    Good Morning, Loungettes! It seems I spoke too soon about yesterday's weather. By the time Mom and I got to the nursery the sun had come out and the sky was clearing off beautifully. The breeze was a tad chilly, making a light jacket a necessity. Mom and I got a couple of succulents each, and I picked up a couple of little unicorn pots to add to my collection of little fun pots at school. I need to find some chia seeds or something similar to grow in them to make it look like they have hair. There were booths with jewelry, maple syrup, whirligigs and even a table selling cupcakes. Very yummy cupcakes. We got some for dessert. Then we went and ate in a restaurant and then stopped in a shop that Mom wanted to check out. All in all it was a very, very nice day.

    Sadie was a little miffed that I didn't bring home a special treat for her. She told me so by sniffing me all over, and trying to empty out my bag when I got home. It took 5 extra belly rubs to make it up to her!

    Karen--looks like we bumped each other into the pool! OK, so that yahoo that posted about only people with a Stage 4 diagnosis are survivors, is she a Stage 4? That's like saying that someone isn't a heart attack survivor unless they had a full cardiac arrest with CPR and shocks. She is full of bologna. Of course, we could always say we are bc TREATMENT survivors.

    Jazzy--Wow, what a wonderful time you had catching up with all those friends!I sure hope this is a taste of how things will be moving forward. That Miss Sweet Pea looks and sounds absolutely lovely!

    Librarian--I hope the back twinges go away soon. It's fine that things don't hurt when you don't move, but it does mean that nothing gets done! Sounds like the week will be a busy one for you.I know you've probably already told us, but what kind of doggo is Ziggy? Why is it that the calories from foods and drinks that we like are so much more fattening than the same number of calories from foods and drinks we don't like?

    Chevy--I can't fathom what life is like for kiddos in bad home situations who, like you point out, don't know any different kind of life even exists. And drugs are a big item these days. All I can do is keep the lines of communication open, provide a safe place to go to, and pray for them.

    Chi--Boy, that is quite the weekend schedule for Bob!

    Illi--I can see where Thriver is a better term than survivor. Never heard of Metavivor until today! Learning something new.

    Failure to Thrive

    2 oz of Bourbon

    1/2 oz of creme de cacao (or chocolate liqueur)

    1/4 oz of raspberry liqueur

    Build in a rocks glass with a large rock.

    From <https://www.cocktailbuilder.com/recipe/failure-to-thrive>

  • karen1956
    karen1956 Member Posts: 6,503
    edited April 2021

    Thanks everyone - I was annoyed when I posted, but I'm so over that woman - Illimae - I love your term. Thriver is a great word. When I was first diagnosed, I was told you are a survivor from the day you heard those horrid words. Everyone is entitled to their opinion. I just don't have patience for people who put others down. Speaking of Metavivor - my birthday is less than a month away (65) and you know how fb does b'day fundraisers, I'm going to do Metavivor for my charity - they do so much good with research. I've been supporting them for year. I have a great hoodie from them I got about 5 years ago.

    Counting the weeks till summer break - 7 weeks! It has been a LONG year!!! I've been a School Psychologist for 30+ years and this by far has been the hardest all around - for kids, for staff. The key to success with the kiddos is having a connection in school - an adult they feel comfortable going to for whatever. Obviously in my position, I see kids all day - IEP minutes, just to talk, crisis etc, as well as assessments, crisis, teacher consult, parent consult etc and of course the dreaded calls to DHS - but over the years they no longer bother me as I know it is best for the child. I truly still love what I do, but glad to be winding down my career - after this year - 3 years, maybe 4.

    Israel says they will open the country in a month if there is NOT an up tick in cases. They are at 0.5% positivity. So there is a slight chance we may get to travel this summer - depends on the quarantine situation. We have been fully vaccinated for 2 1/2 months.

    Canada is a hot mess. Trudeau has really done a job on the country. They are only vaccinating 55+. My daugther was set to get vaccine on Sunday as she teachers ECE but it got cancelled. MySIL got his first shot in rehab but has to wait 16 weeks for second shot. Trudeau says he would rather vaccinate everyone with one shot and wait 4 months for second, then fully vaccinate people. He has terrible under ordered the supply of vaccines. Ontario is on lockdown again. My daughter is beyond frustrated and disgusted about the whole thing.

    Well, I best get busy for the day - need to check emails before my first meeting at 8 (yes, it's only 5:45 here now).

    Have a great Monday.

  • illimae
    illimae Member Posts: 5,710
    edited April 2021

    Karen, thank you for adding to the metavivor talk. I support them too and do go some friends by choosing them for their Amazon smile charity. I love that they volunteer their time (I was in discussions to drive the metavivor van for a short leg through Texas but covid was just kicking off) and that 100% goes to research.

    No drinks for a few days, got scans on Wednesday and Thursday, I’ll check back in soon.

  • goldie0827
    goldie0827 Member Posts: 6,595
    edited April 2021

    Karen, there are people on these boards that are like that. If you are not stage IV you have no business being on this thread, or you have no business stating "X". Don't let it get to you. How is your SIL doing?

    NM, sorry your weather flopped on you, had you known you could have switched your plans. Ahhh, it changed and became nice out, good deal. Hopefully Sadie will like her new bed, but you know what they say about teaching a new dog old tricks! If she doesn't like it, maybe you can donate it to someone else.

    Jazzy, dry and windy here too. Your outing sounded perfect. So glad you got to see friends and then some you weren't even expecting. The Miss Sweet Pea looks yummy. What was the citrus garnish.

    JCS, sorry about the back. Being lazy was probably the best thing for you to do so it could heal some.

    ED OMG, your FIL was trying to teach your 3 yo to smoke?

    Sandy, I agree with, if you had cancer and are alive, you are a survivor. For me and me only, being stage IV I say I'm SURVIVING.

    Heard from our friend (Tammy) Friday evening via text. I'll be there in the morning! Leaving my house at 3:30 am. Whaaaaat! So I jump up and start cleaning. I was rather pissed, but it's ok and my DH really wanted her to come and bring her little Bentley, the little chocolate poodle, if you remember. So all in all it's ok. Of course I get nothing done! But such is life these days and I need to think of my DH's needs and wants as we go through this terrible disease.

    For my nurse friends. DH is really concerned with coming into great pain with ALS. I have not read much on the disease, but know it's muscle loss. I thought he would just basically be like paralized cuz the muscles don't work, but of course he can still feel (so not paralized), but will it cause great pain?

    Had the gal that is helping me pack orders and her DH over yesterday to plan out a ramp for DH. They are so kind. Tammy will help me today with orders. I was not allowed over the weekend.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited April 2021

    Karen, 4 months is too long between doses--the CDC is saying that 42 days should be the max. interval. Trudeau may know gov't but he apparently doesn't know squat about medicine. IL has opened vax eligibility today to anyone over 16. Chicago is waiting till next Mon. for those over 16 w/o medical risk factors, but Gov. Pritzker & Cook County will have their vaccination centers welcome any Chicagoan not yet eligible to get a shot w/in city limits. Chicago's health commissioner is advising Chicagoans who can't wait to cross the border into IN, where Gary's state-run site has agreed to vaccinate them (20% of IN's shots have already gone to Illinoisans--makes sense, since there's so much cross-border fluidity between IL, IN & WI for work & shopping). The city's positivity rate is up to 5.1, the state 4.4 and test positivity 4.9%. Not good. Mitigations will be tightened again once positivity reaches 8%.

    When it rains it pours. Bob got a very late start today--he cut his earlobe while shaving and it wouldn't stop bleeding. Went (walked around the corner) to Urgent Care, where they glued the cut closed, gave him a tetanus booster, and observed him for 30 min. to make sure the glue held and he didn't get a reaction to the booster. Upside was that by the time he left for work, the Lake Shore Dr. bridge over the river had reopened after repairs, and he didn't need to detour.

    But then I got a text from my BFF. Her husband (my co-BFF), who recently learned last fall he has Parkinson's and not tardive dyskinesia, suddenly began having expressive aphasia (disjointed sentences, no articles or prepositions, just verbs & nouns hesitant & out of place) so they rushed to the ER at Evanston Hosp. He had no other stroke symptoms, and a CT scan came up negative for any anomalies. Awaiting MRI results. He had no brain injuries (no falls) so that was ruled out as a cause of any damage to Broca's area (the part of the frontotemporal lobe that controls speech). We're waiting. She asked me if he has to be admitted whether she can come over for coffee despite being only a week post-second-shot. I told her of course. We have a whole lot of praying to do (she & my HK are Northern Baptists, Bob's Catholic, I'm Jewish but my co-BFF is an atheist--and former Episcopalian divinity student).

    So DOTD will be coffee out on the deck with my BFF.

    Bob had a former colleague with ALS, but they weren't close (the guy had already retired when diagnosed) so we don't know if he felt pain. I do know that perception and the intellect remain razor-sharp till the very end.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited April 2021

    Hi ladies- just a quick pop in. What is with all these judgy people around cancer diagnoses? I do think people who have not had cancer or supported someone through treatment just are clueless about the whole thing, but I think there is a kind of judgemental behavior around things around anyone who has had cancer or living with it. I told few about it at the time, but only shared with a few since and mostly when someone I know got diagnosed and when they needed some support. I had to listen to too much BS early on from some about why I got it, how to treat it, how to keep it from coming back or the ever popular "you are all done with that now" commentary. I cut a few people loose from my life as a result too (and don't miss them). I am sorry for the icky comments on FB friends, and find it is a very mean place anymore where all bullies like to live.

    Ill- you my dear are most certainly thriving despite a lot of the challenges. What good things did you eat lately?

    Goldie- I think that was a peice of dried and sugared tangerine in my drink. I did not eat it, but it was pretty!

    Karen- I heard Canada is a mess. Brazil is so bad with covid right now and their leader is not helping. The world still feels very in trouble with all this to me.

    Back to my Zooms. I know no one is jealous...

  • karen1956
    karen1956 Member Posts: 6,503
    edited April 2021

    Lori - thanks for asking about my SIL. He's been home for 2+ weeks now - he tires easily but is so positive and so happy he can again eat anything without pain.

    Jazz and Sandy - Canada is a big cluster you know what!!!! Trudeau has made a mess of the country and shots. In ON schools are closed again. Who knows when I'll get to see my DD#1 and SIL.

    Sandy sorry to hear about your friend and your husband's trip to urgent care. Glad it wasn't any worse for your husband.

    Cold rainy and maybe snowy weather. 40s today and cloudy and the nicest day of the week.

    Sweet dreams.

  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited April 2021

    Bob says that sometimes stroke evidence (bleeds, infarcts, clots) can take up to 24 hrs. to show up on scans. Our co-BFF, though, had no other symptoms: no paralysis/hemiplegia, no gait disturbance, no pain, no fatigue, no facial droop--just the expressive aphasia. But besides Parkinson's (my second friend to be diagnosed with it at age 65), there are other neuro-degenerative diseases. Keeping our fingers crossed, saying our respective prayers (or wishes for healing vibes).

    Anyway, my co-BFF was discharged from the ER, and his wife didn't want to leave him home alone, so she didn't come over. But if he gets admitted, she will--the coffee will be on and our table will be hers.

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