Favor to ask for Chemosabi

Bren-2007
Bren-2007 Member Posts: 6,241
edited June 2014 in Stage IV/Metastatic Breast Cancer ONLY

My dear friend Nicki aka Chemosabi is in the hospital.  She is having a thorentesis today ... as well as the first of 10 WBR treatments.  She found out yesterday while in the hospital she has numerous brain mets.

I was hoping some gals who have had WBR could post some encouragement for her. 

Thank you so much,

love,

Bren

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  • Lifestooshort
    Lifestooshort Member Posts: 159
    edited August 2010

    Hi Nicki,

    I remember you from way back!  I don't post much but get sooo much support from this site.

    In March I was trying to get into a clinical trial for mets to my lung/hilar nodes and just as a last thought my onc threw in a brain MRI.  Much to my surprise, 3 brain mets with scatters throughout.  I did 14 WBR.  Very few side effects.  I just thought it was a drag having to go to the hospital for 14 days in a row...Other than being tired, I did experience nausea after the 3rd one, but a little Decadron helped right away and I was good to go.  They did a follow up MRI  only 14 days after being done with WBR and then we decided to SRS the 3 lesions that were being buggers.  (But really, I don't think we gave the WBR a chance to do it's job).  I just had a follow up MRI and things are either gone or shrinking!!!!   So I've had both procedures.....if you have any questions girl, feel free to ask!

    Hang in there!  You can do this!!

    Laurie

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  • katie11
    katie11 Member Posts: 2,514
    edited August 2010

    I have no words of wisdom for brain mets, Nicki, but wanted you to know that I am thinking of you and sending you positive vibes in your next line of treatment.

    Katie xoxo

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  • chainsawz
    chainsawz Member Posts: 3,473
    edited August 2010

    I am sending her warm thoughts and wishes of peace.  I have brain mets, but only had SRS last year not WBR.

    Laurie (lifestooshort) is a great example of hope!!  We have a buddy on another site who had WBR last year and she is gearing up to go back to her dancing!  I always think of the founder of the her2support.org site.  She had WBR radiation 10 years ago and is still doing great.  I hope your dear friend Nicki can be up and dancing in the near future.  xx00xx lisa

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  • dreamwriter
    dreamwriter Member Posts: 3,255
    edited August 2010

    Chemosabi also goes by Palominoridesagain.

    Dear Chemosabi/Palominoridesagain:

    I have had the thoracenthesis and pleurathesis done and know that they are not fun.  Good luck... sweetie.  As for the brain mets... there is hope as the people above have pointed out.  All my best and hope you are online soon.

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  • mthomp2020
    mthomp2020 Member Posts: 1,959
    edited August 2010

    I didn't realize that Palominoridesagain was Chemosabi - I remember her posting as Chemosabi, and didn't realize that she changed her user name.

    Healing thoughts and vibes going out for Nicki that she breezes through the WBR and it zaps those mets into oblivion!

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  • jeanne46
    jeanne46 Member Posts: 1,941
    edited August 2010

    Nicki, I'm sending you all my best wishes for an easy thoracentesis procedure and an easy WBR. There have been more than a few of us who've gone through it and done well afterwards.  You will too! My recent brain mets were discovered and treated with gamma knife. But who knows what the future holds.  Gentle hugs and a speedy GET OUT OF HOSPITAL card.  Thinking of you and hoping for the best of outcomes!  Jeanne

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  • chainsawz
    chainsawz Member Posts: 3,473
    edited August 2010

    I also didn't know this post was about palaminoridesagain  !!

    She is her2+ like me.  I am on herceptin and tykerb.  Tykerb is believed to get up into the BBB (blood brain barrier) and help with brain mets. 

    Please let her know we are all here for her, and will help with any info.  lisa  

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  • Lowrider54
    Lowrider54 Member Posts: 2,721
    edited August 2010

    Though no brain mets here - palaminoridesagain was another of the first that I met when I joined here....please send my very best wishes and hopes for the wappa zappa on the c cells!  lowrider

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  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited August 2010

    I'm sorry everyone for not putting down "paliminoridesagain."  I've known Nicki for 3 1/2 years and she's always been Chemosabi to me.

    I'll make sure she sees all your wonderful notes to her.  I haven't heard any more today about how the pleural lung procedure or the WBR went.  I believe this is her 4th or 5th thoratensesis (sp).

    Thank you all for sending her your love and good wishes,

    Bren

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  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited August 2010

    awe shit Nicki...WTF??? wishing you great results!!! oxoxoxoxo

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  • flash
    flash Member Posts: 1,685
    edited August 2010

    don't know anything aobut the brain mets but just wishing Palomino/chemosabi good thoughts.

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  • IllinoisLady
    IllinoisLady Member Posts: 29,082
    edited August 2010

    Sending healing prayers all over the universe for your love and comfort, Nicki.  All the gals from the Illinois thread are holding you in their hearts right now and wishing you WELL. 

    Warm healing hugs,

    Jackie

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  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited August 2010

    Nicki is still in the hospital with numerous IV's.  Today is her second WBR.  And a pneumothorax was discovered ... so she's pretty darn sick.

    Sending her love today,

    Bren

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  • sincitydealer
    sincitydealer Member Posts: 2,712
    edited August 2010

    Hope you get back on your feet soon, Nicki.  Please try to hang in there.  I know it's hard.  We're all here thinking of you.

    Peggy

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  • chainsawz
    chainsawz Member Posts: 3,473
    edited August 2010

    Damn it....I am sending her all the healing thoughts I can muster!! 

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  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited August 2010

    hey there NNN....hugs coming your way

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  • candie1971
    candie1971 Member Posts: 4,820
    edited August 2010

    Nicki, prayers continuing for you!

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  • GrammyNancy
    GrammyNancy Member Posts: 666
    edited August 2010

    Nicki,, my prayers are with you.

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  • Leah_S
    Leah_S Member Posts: 8,458
    edited August 2010

    My prayers are also going out for you, Nicki.

    Leah

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  • Jaybird627
    Jaybird627 Member Posts: 2,144
    edited August 2010

    Oh no! Prayers being sent.

     Nicki lives right by me (like a mile or two away?) so if there's anything I can do for her just let me know!

    Janis

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  • mamanmidwife
    mamanmidwife Member Posts: 689
    edited August 2010

    prayer and positive thoughta to you

    gigi

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  • katie11
    katie11 Member Posts: 2,514
    edited August 2010

    Sending healing thoughts to you, Nicki! Stay strong xoxo

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  • olisad
    olisad Member Posts: 377
    edited August 2010

    Joining all the wise women above. Sending positive vibes, warm thoughts your way. Lisa

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  • Nanalinda
    Nanalinda Member Posts: 826
    edited August 2010

    Niki:  Sending love and positive thoughts your way.  Stay strong.  Linda

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  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited August 2010

    Dear Nicki ... I know this morning was very hard for you.  I pray you are able to leave the hospital today and they can get your pain under control.

    Sending you love,

    Bren

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  • chainsawz
    chainsawz Member Posts: 3,473
    edited August 2010

    I also hope they can get your pain under control :<  I'm sending you warm cyber hugs today.....

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  • Welga
    Welga Member Posts: 308
    edited August 2010
    Nicki
    Sending lots of good thoughts, vibes & prayers your way
    Welga
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  • mthomp2020
    mthomp2020 Member Posts: 1,959
    edited August 2010

    More hugs and healing vibes going Nicki's way.

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  • meima-Bev
    meima-Bev Member Posts: 2,432
    edited August 2010

    Sending healing prayers.     Meima

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  • Beesie
    Beesie Member Posts: 12,240
    edited August 2010

    Nicki,

    I am so sad that you are going through this. 

    Sending love and warm, healing thoughts.

    Beese.

    SpiritofHealingBear.jpg Spirit of Healing Bear image by bluekrystal

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