???What other medical conditions do U suffer from???
We all came together on this site due to BC. We all stick together due to the same reason, but I know that some of us have other medical conditions/illnesses that we have to deal with, either before, during or after BC (like in my case).
I for instance suffer from chronic depression since I can remember myself. I was only properly diagnosed at age 25 and since than have been on a gazillion meds. Finally about 7 years ago I was put on a combination of 2 old meds that stabilized me... well, kind of... if anything tragic happens, off my balance goes, and my depression, kicks in... my latest episode was provoked by Kari Lynn's passing... with all the sisters we have lost, I hanged in there but w/ Kari Lynn...
I also have high blood pressure which was diagnosed one year before my BC.
So, what other "medical monsters" do you deal with?
PS:
Here's how I best can describe my "chemical imbalance"/chronic depression, the invisible monster...(don't you think I went off the depend... these analogies are so you can understand better what I go through day in and day out).
On good days, my brain is a square room, my ears are windows wherein the fresh breeze of a beautiful sunny baby blue sky day goes in one window and comes out the other... a cross breeze...the grass is a healthy green, no weeds, and the birds are flying and soaring away...just like the Windows desktop saver.
My bad days: my brain becomes a dark grey foggy room suffocating me... the windows (which are now painted bright white) flap open and close and fight the breeze that tries to come in... or my brain is like a bad carburetor that despite being on its way out, is still running on and off....but not smooth sailing like I would like.
Bottom line... when depressed an immense sadness takes over me... I feel like a run down shoe sole; that shoe still needs to go ahead and walk, but the foot is starting to show... or I feel like an old hunched back very very wrinkle old, old lady, giving baby steps so she can go forward or some kind of stone worn out by the 4 seasons over and over again.
Depression is terrible; still a taboo subject as a lot of people do not understand what goes on in our brains... besides the fact that "that special light I have in my eyes shuts down", says my mom...my look becomes vacant. I have no feelings, I am empty... I just want to go to sleep... sleep forever... but I can't. I will not give in... there's two me fighting against each other... and one has to win... the healthier part of me, I hope... all the times...
What do I do to fight it: hang on to my "sick" humor (believe it or not I love to belly laugh... a sincere and true laugh), I hang on to the fact that no matter how bad it is, there is someone else worse than me at any giving moment....
I talk very open about it, because it alleviates the "luggage" I carry.... I try to pin point, why I am sad/depressed so I may fix the situation and move forward (retrieve, lick my wounds, come up w/ a plan to get up and run again and go for it)... if I have a lot on my plate, I try to "put the dishes away, one by one"...and off course, knowing what meds work best w/ my body helps too.
But before I got here, I went through months/years of hell, and no help... mental health is very complicated... different degrees of depression, different ways of your body reacting to meds A, or B... doctors still see us as guinea-pigs, they state: "snap out of it..." or "take this or that..." or simply don't care... and others are afraid we are crazy.... If this helps you understand better what depression is, used, pass it along, ...share your tricks to cure depression before, during and after BC.
I assure you, I am not crazy... It is just hard sometimes to be me!
Comments
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Hi Naughty,
I've had HBP since my early 20's. It's hereditary, my sister had it (she died at 51 from a heart attack) and my dad had it. We are all very thin, so, at the time I thought that only heavy people could get HBP, but not true. So..I deal with that everyday. Since I've been dx I now have osteoporosis and some depression..from having my ovaries removed. Depression is the worst, as its nothing people can "see" If that makes sense.
g
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High cholesterol that I inherited from my mom. Meds nor diet seem to touch it.
Ames
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Panic attacks and chronic anxiety disorder - which has been under control since I started taking Paxil in 1999. My history of this, however, goes way back to 1986, a few months after my daughter was born. Coincidence?
Clinical depression - currently under control, Paxil helped with this also.
Chronic headaches (migraines in my younger years) - but not so severe in recent years
Lots of pain - lower back, knees, feet/ankles (I'm sure losing weight would correct most of this though).
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I've had migraines since I was in my teens. After chemo and radiation, I developed hypothyroidism and low adrenal function and I'm on medications for these conditions. Chemo ended 17 years ago and my energy levels never went back to what they were before BC treatment. My brain function never quite recovered either!
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Reumatoid Arthritus, Peripheral Neuropathy from my right shoulder to my right toes, Neuropathy in both hands and both feet (toes) Gerd, Peptic Ulcers (constantly) and lower back (deteriorating disks L4 and L5) allergies to a ton of crap and Migraines from Hell and a Hiatal Hernia...other than that, I feel great! LOL! All of this crap came on AFTER BC and treatment with the exception of Migraines, can't help thinking...well you know!
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Ive also had HBP since my mid-20's....stays under control with meds.
One year b-4 bc touched my life I was dx'd with pernicious anemia and have a minor amount of lasting neuropathy to my left hand, so far the PA has been control with shots once in awhile and a pill each day...
Since BC showed up: high choloestrol (possibly due to tamox), am taking meds now. will have blood workup soon to see if its working and hopefully the # has come down.
Allergies??? I never had allergies until earlier this year.......now I sympothize with ALL who have the nasty buggers!!!!!!!!!!
But all in all, Im 47 yrs old and very active, very happy with my life 19 months out of BC, so I cant complain.
Jule
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Just edited my post regarding depression (my darkest monster)... hope it helps someone.
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I'm asthmatic. Diagnosed when I was 15. First attack scared the sh*t out of me - even more than the first lump I found in my breast (a year later, ironically).
My asthma is now under control, but it hasn't always been that way. I've been on a ventilator three times - the second time my doc actually told my then husband to call my family and a priest because it looked so grim. Got it controlled after that, but the third time on the ventilator was because I took ibuprophen - which I am allergic to - by accident when I hurt my back (thought the crap was Tylenol). All that was pre-bc...
My son is also asthmatic. His first attack came after eating strawberries when he was about 5 or so. I know what it feels like to have to breathe like your airway is a clogged straw, but seeing it happen to someone you care about is the absolute most frightening and helpless feeling in the world...
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Since BC in 2005 :
Assorted tendon problems - 2 ganglion cysts, tennis elbow, plantar fasciatis, three trigger fingers, two were surgically released and I'm going to have to get the thumb done.
Joint issues including arthritis in knees, (plus torn cartilege), lower back, ankles.
Breathing problem that after a year of missed dx, during which mets were found during a chest x-ray, and after failing a stress test and getting a cardiac catheterization, was diagnosed (during the heart cath which was normal) as a paralyzed phrenic nerve, resulting in an immobile right diaphragm and partially collapsed lung. The general feeling is of having the wind knocked out of me, and I can't lie flat on my back at all.
Other than that, I'm great. By the way, I'm triple negative, so I didn't have any ant-hormonals that might be associated with joint issues. I've heard, but not confirmed, that the steroids can cause tendon problems.
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all my life: depression, arthritis (spondyloarthritis), irritable bowel
post-childbirth: uterine prolapse, rectocele
post-BC (post-Aromasin): blood pressure and blood sugar creeping up ("pre-diabetes")
Felicia -- my boyfriend of the past 10 years has asthma (as did my college boyfriend of 35 years ago) -- so I know exactly what you mean about watching someone you care about trying to breathe "through a clogged straw" -- take care!
That reminds me -- I have had migraines only very rarely, but my son had extreme migraines frequently from age 10 to 17 -- watching him go through that was horrible.
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I also have Grave's disease (auto-immune thyroid disease).
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Besides a constant battle with weight control, my physical and mental decline began when I turned 40. It started with hbp. I became mildly depressed while my oldest daughter was preparing to go to college. When I was 46 I had a large fibroid in my uterus, so had a hysterectomy. Then my thyroid went crazy (hypo), along with my cholesterol. BC came at age 54. In between came arthritis in knees and hips. I'm just keeping everthing crossed for NED 'til I'm a ripe old age.
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Oh, hell, I forgot to even mention obesity - about 60 pounds worth! Could have a little to do with the arthritis......
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I have Crohn's disease and asthma, both pre-BC. Last week, they discovered that I also had a gallstone, but as long as it is asymptomatic, I am not doing anything about it.
All in all, though, things for me are pretty much well controlled.
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Hypothyriodism I guess that would be the most ongoing one. I did have the whole heart thing but that's over now - just have to have my bicuspid valve looked at once a year. Ok that sounds ongoing doesn't it!
The new one is what is probably ocular migraines. Flashing zig zag lines but no headache.
That's all
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A liver condition; a heart condition; migraines (for which I take meds) and after being very thin for all my adult life - weightgain!! I've jumped a size in a few months.
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Felicia - my asthma was once a lot like yours - I think that one of the nicest things about asthma is that we could go backwards - mine is only severe now. When I start to catch a cold, I no longer have to pack a bag and leave it by the back door so that I can take it with me to the hospital when I can't breathe. I have truly loved my two allergists - they taught me so much about managing a chronic disease, and having a normal life. DD's asthma is an occasional touch now and again - I think it helped her, not growing up with smoking parents like I did.
The steroids for asthma haven't helped my joints and bones any; I got asceptic necrosis in my knee joint, so my orthopedist promised me a new knee whenever I want one.
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Pre-bc: I'm asthmatic which didn't come out til I was pregnant with my second child. Doc thought it was the weight of the pregnancy (I'm small, babies were gigantic) but it never went away. I've been in er for it once. It scared me but the er nurse told me it was nothing compared to some asthmatics that came in so I feel for those who have it worse than I have it. It's under control now but I used to get pneumonia annually and would need a ventilator on a regular basis.
I was diagnosed with Horners Syndrome which led to them finding a dissected carotid artery. This was the thing that scared me more than bc. I felt I was a time bomb for a stroke. They put me on coumadin but now I'm on aspirin and 6-month check ups with no change.
I also had herniated discs in my lower back that were not painful until I finished chemo. I had severe back pain but that has ceased to minor background pain.
I had high cholesterol that was discovered when I was diagnosed with bc but didn't get treated til I was done with treatments.
After bc: hypothyroidism and treatment of the high cholesterol. I tried a strict low fat diet that a dietician gave me but my cholesterol went UP. I'm on meds now. It's hereditary.
I feel good though.
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I had bone cancer in my right jaw when I was 28. I am now 50. I have had surgery to both knees and now have arthritis in both of them. I have some bulging discs in my back which are ok if I can exercise and get regular massages. I am now overweight by about 15 lbs. I have a heart murmer and have had surpassed the lifetime max of adriamycin so only time will tell about my heart. Right now it is great according to the MUGA.
I am a recovering alcoholic with 4 years of sobriety and also suffer from depression although the 12 step program has helped that tremendously. I know longer have to spend days in bed crying. I also take Wellbutrin.
I developed GERD after starting chemo and now have to take Prevacid. It seems to be getting better so I only take it every other day. But I have heard that GERD can lead to esophageal cancer.
I had fibrocystic breast disease which was resolved with a double mast.
I still consider myself in good health. I am suffering from fatigue and have trouble exercising. I enjoy walking and gardening. Can't wait until I can get back to my aerobics and weight training.
Lilia, I love your signature. "Even a kick in the butt pushes you forward". I am going to share that tonight at my 12 step meeting. So True.
Debbie
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Crohns Disease for me dx in 1999 (surgery then)and have not had any other problems with it since then. (basically)
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I was doing fine until I reached the ripe old age of around 37. I started having this "pressure" feeling in my head. I didn't tell anyone. I thought I had a brain tumor. I kept trying to ignore it. That went on for months until one day it was so bad I didn't even want to drive. Took my three dds to soft ball practice and called dh to pick them up. I finally went from doc to doc. No one could figure ME out. So, I just resigned to the fact that I was crazy. Oh, I started having SEVERE ongoing anxiety which led to depression from keeping this bottled up. The ole head still has the pressure..seems like it may be coming from my spine..who knows. I give up and have given up on docs figuring it out. Anyway, I ended up taking Xanax and antidepressants that I fought so long not to take. I have never fully recovered from it and still take meds and I'm now 62..so add the years.
Then I developed hypothyroid and high cholesterol. Both are under control with meds. Have low back pain..degenerative disc. Mild peripheral neuropathy in both feet and hands from chemo. More fatigued AFTER chemo...although was fatigued before. Have had brain fog since all the anxiety/depression crap (was dxd with fibromyalsia...I don't have it). I just try to live each day and hope the next is better. I have a hard time planning things in advance, but somehow get through whatever needs to be done. I am grateful for my wonder daughters who are very considerate of my feelings (most times..LOL). DH..well, it's hard to live with a "chronically ill" person. But he tries to be understanding when I open up to him and blast him! LOL Oh, and I take Toprol for irregulary heartbeat and tachycardia...probably helps the BP too.
Bet'cha got more info that you wanted.
No, I'm not a hypochondriac. I TRY my hardest to stay away FROM doctors.
Shirley
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Ulcerative Colitis and being overweight. Also have anxiety issues that started when I was diagnosed with UC in 2002.
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NbN,
I can't remember your cancer dx, but I too have chronic depression, which has been treated with medication since I was 31. I suffered with it since childhood, undiagnosed.
I call it the "black hole." I recently was without my meds for 3 days (my mistake) and by day 3, I was ready to lay down on the train tracks.
What I am struggling with is that I am ER 100%+ and Tamoxifen and Arimidex brought on terrible depression and agitation, which is normally controlled by my meds, so I quit taking them. I can't take the SNRI's. I have had to choose between my mental health and antihormonals.
Not a great place to be. Now my doc want's me to try Aromasin. I haven't filled the prescription. My brain chemical imbalance appears to also be related to my hormones. I had a total hysterectomy long before b/c, but I was on HRT, which stopped when I was diagnosed.
If you've got any insight ... that would be great.
I like Sheila's serentity prayer ... especially the first part.
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Naughty - Thanks for the details on the depression, very helpful - and no, we don't think you are crazy (except in a good way)! I've had some anxiety in the past myself, which some also consider crazy. There's such a stigma attached to mental/emotional health, as you mentioned "a taboo topic" - now, I think that is crazy!
Like Felicia, Rav and Sue, I am asthmatic. I've had asthma since I've been four. It has gotten much better, some can actually outgrow it, which I did not. When I was a child it seemed as though I was in the ER during the summer months numerous times. Now I use my prophylactic inhaler and am pretty good to go unless I encounter a cat/ragweed/mildew (then out comes the albuterol) and consider myself pretty healthy with the exception of the asthma and bc!
Raye
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My naughty, you are such a good crazy and I love ya.
I have high cholesterol, high blood pressure, diabetes, cataracts, back surgery that left my rt leg numb. overweight cracked dry bleeding vag from arimidex.
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Girls, BinVA, you really had me digging my medical records so I could remember some "stuff" that for whatever reason always "escapes" me! What a trip to memory land and sentences like:
"Portion of right breast tissue... invasive poorly differentiated ductal carcinoma, high nuclear grade with foci of necrosis, with adjacent minor component of intraductal carcinoma, solid type, high nuclear grade with lobular extension..." (blah-blah-blah!).
I had a lumpectomy, followed by four rounds of Cytoxan and Adriamycin and then 33 rounds of radiation. Since I am triple negative, no need for Tamoxifen, which by the way, I found out that the Dr. was going to put me on if my estrogen receptor was positive (and off course I can relay all of this right now b/c the records are before my face). Ask me tomorrow and all will be forgotten b/c I prefer, to a certain degree, to put BC being my back... really, really behind!
I have edited my profile to include my BC data back on 9/2003. Right before the BC diagnosis, I had right sided facial numbness which was all the way to my tonsils, until over night it resolved itself (I guess to give way to BC!).
I forgot to mention before, two sinus surgeries, severe migraines as a teenager and up to age 30 something, now all resolved (I think!) and my forever some degree of acne!
As for depression, every day is a new day... I never know what will come my way, but I hope for the best... the non functional/functional... an eternal optimist...
Thanks for "listening",
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Naughty,
Thanks for your reply ... I forgot that you were trip neg.
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I too have serious liver disease, mainly caused by the treatment frying my liver...7 years ago
peripheral neuropathy in my feet now for seven years...
some kidney stuff...not serious...
Highish blood pressure..well controlled.. also high cholesterol..controlled
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Pre BC - High cholestrol, a little arthritis
Post BC - underactive thyroid.
I have suffered all my life with a phobia and tried to treat with antidepressants but nothing worked, I guess it will never go away.
I am sure I have more issues, this is all I can think of this morning.
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