Jan 2008--Ain't it Great?
Comments
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Congrads Diana - she is finally here. You are so blessed!!! I am so happy for you!!! God bless you and your family, and thanks for always being a friend to me.
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Thank you, she is truly a blessing. I used to tell the chemo nurses, I know you cant see her but I bring an angle with me every week. My daughter found out she was pregnant right after I was dx, I know that she was my little miracle to help get me through chemo.
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It's been a busy weekend (but in a good way!). Went out to dinner last night with our very good friends to celebrate my and dh's anniversary (#8). Went to my fav seafood restaurant and I indulged on shrimp cocktail with a crabcake dinner. Finished it off with a chocolate dessert. Yum! The in-laws watched the kids, so free babysitting! Today dh worked some overtime and I was able to spend time with the kids outside. This afternoon we're going to another friend's house for a dip in their pool.
Carol: We love King Crab legs! I know this hasn't been the first time you've dined on them recently. Are they common there? The only time we get them here is summer (rarely, and at a price). If restaurants have them, they are beaucoup bucks. This area eats a lot of blue crabs, which I don't like nearly as much.
OK, to clarify my comment about "sun worshippers"... you don't qualify in my book. You are out there doing something (golfing, boating, gardening). I mean/was referring to people who are just lying outside baking to get the dark, dark tans-no other reason. They also tend to avoid sunscreens b/c they want to char. A dermatologist once told me, no tan is a good tan. Pigment to the skin (tan) means there's been sun damage. Now trust me, I like a little color too, but I think it's crazy to sit outside idly with oil on to tan!
Cathy-CA: Bravo on the good mammo. My center will also do the look-see while I'm there. I get my "annual" in August. U of U sounds like a place my dh would've loved! He was a ski instructor in MA and loves the outdoor winter stuff. Hope all goes well with your older ds and his sober house.
Diana: Congratulations, Grandma!! What better joy than holding a newborn baby? Enjoy!
Kris: My port is staying in until I finish herceptin (Jan. '09). I'll get it out as soon as I can after that-end of January '09? I have had (knock on wood) no trouble with mine. I carry my kids, lift things, swim, exercise, etc. I just had to watch how I laid down during my recent massage (and she avoided the area over the port)-it hurts if I rub/lay directly on it.
D1: reading your post reminds me... my nails suck right now. None have fallen off (so I shouldn't complain to you), but they all must be at the point where the "bad area" is at the end b/c they are all breaking real low down and look like crap again. Real thin, peely, and brittle. Yikes! I'm loading up on the nail strengthener, and may resort to using the rest of my TTO again (maybe. I hate the smell).
Dana: Good to hear from you, but so sorry you are having a tough time. Court sounds like it will be quite stressful, especially on top of everything else in your life. Do you have a counselor or someone to talk to while you are going through all this? Try to keep your positive attitude. Graduation is something to look forward to. I hope your cancer drugs are working and you get some good news in August.
Hope all the Jewels have a good week ahead. How awesome it is that there's no chemo this week!
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Hi everyone,
Forgive me for not keeping up all the time, so this topic might have come up before. I finish up radiation this Wednesday (and not a day too soon. Jeez, I hate radiation!) So now I want to get my port taken out. The onco said I could do it anytime. Who has had their port out? How did it go? How long should I wait after rads to get it out? The area of the port does not touch the radiated area, though it is on the same side. I am tender and a bit sore where I have been radiated, so I might as well be sore from the port removal at the same time and get it all over with, eh??
Have a good week, everyone!
CHJ
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HI JEWELS,
HOPE EVERYONE IS WELL. I AM DOING OK..GOT A LIL KNEE PAIN. THEY GAVE ME A CORTIZOE SHOT..HURT LIKE HELL. FELT GOOD THE DAY AFTER WHICH WAS FRIDAY..DID TOO MUCH OVER THE WEEKEND AND IT IS SORE AGAIN..I HATE GETTING OLD
I ENDED UP PRESSURE WASHING MY WHOLE DECK. I FINALLY SOLD THE HOT TUB SINCE I AM NOT ALLOWED IN IT ANYMORE ..DR SAID THE HEAT/LYMPHADEMA WORRIES...SO WE SOLD IT!! SHOULD ALSO SAVE ON THE ELECTRIC BILL.NEED TO CONSERVE..DENISE IS WELL, SHE WENT FOR THE ONCO DX TEST. SHE DOESN'T WANT TO DO CHEMO..SHE FEELS SHE HAS DONE ENOUGH..SHE JUST DOESN'T GET IT. SE HAD BOTH BREAST ONE IDC AND THE OTHER LDC...DOESN'T SHE THINK OF THE CELLS THAT COULD OF GOT LOOSE? I WENT THRU HELL FOR A TUMOR THER SIZE OF A PEA AND SHE HAD MUTIPLE TUMORS AND SHE MAY NOT DO CHEMO..DOESN'T SEEM FAIR..SORRY DIDN'T MEAN TO VENT. I HAVE BEEN HOLDING IT IN FOR AWHILE. ALLEN AND I TALK ABOUTH THIS ALL THE TIME..BEING AROUND FOR THE FAMILY HER SON, HUSBAND WHOEVER..OK LOSING MY MIND
TYPING IN CAPS CAN'T SEE THE FRICKIN SCREEN FINALLY GOING TO SEE EYE DOCTOR..WAITED TILL ALL THE TREAMENTS ARE DONE..THE CHEMO MADE MY EYES CHANGE NEED NEW CONTACTS.HOW'S EVERYONE DOING ON TAMOX?
I HAVE TRUELY MISSED YOU JEWELS. I AM SO HAPPY THE LAPTOP WILL BEAT MY COMPANY AT THERE OWN GAME..GAME ON!!!
XXXXXOOOOOO PATTY
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Hi Jewels!! I have been mia for a long time but have been keeping up with the posts, just not very chatty. guess i'm the definition of a lurker.
diane - what a beautiful little girl. you must be so proud. congratulations!
siskim - thanks for the postcard. it brought a smile to my face. you're so sweet.
kris and chj27 - i'm between chemo and rads and had my port out as soon as my counts were up from chemo. my onc wanted to leave it in until after rads "just in case" but i was going on vaca and wanted it out. being bald and water retentive in a bathing suit was enough. they had trouble with my iv vein during the port removal though so maybe leaving it in "just in case" isn't a bad idea!
D1 - i had the genetic testing done. my sister had bc at 33 and now me at 43. it was negative but with 3 daughters, i just needed to know for them and for my own treatment options. i'm a very need to know person. everyone is so different and i'm sure you'll make the best decision for you.
vettegal - it's so hard worrying about someone else and their decisions that we don't agree with. is her doctor recommending chemo and she just doesn't agree? my vision is a mess too. can't wait to get to the eye doctor. another appt. whoopee.
could you ladies tell me what you think of this? i had an mri right after diagnosis but it wasn't readable, too close to my period i think. saw my surgeon after chemo and i suggested another mri now, before radiation, just to make sure. mri comes back with an "enhancement" near my surgery scar and i needed an ultrasound and mammo. that was 7/2 and i'm leaving 7/5 for a weeks vaca, of course everything's closed 7/4. starting rads 7/14 after getting home 7/12. well after stressing like crazy , they get me in for ultrasound and mammo 7/3, before vaca. now the question. those tests showed NOTHING. recommendation is follow-up mri in six months with which my surgeon agrees. i really like my surgeon and trust her judgement but.......i know mri's can show false positives but i would hate to do 7 weeks of radiation just to find more cancer and then have to have a mastectomy and more chemo????!!!!! what do you guys think? i go for my first rads appt tomorrow morning.
it is so encouraging to read about all of the jewels moving on and doing so well. i love being able to come here and read about people experiencing the sames things as me, still. noone else really understands!
hope everyone had a good weekend and thanks for being here!
sista2
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Toenail update (because I know you're all hanging on the edge of your seats for this): I've now lost four! WTF is that all about??!!!
Nats game yesterday was great. My dh's firm has 2 sets of 4 tix in the new ballpark-cheap seats and the really, really pricey ones. My dh bought the cheap seats (that set us back $120-is that really so cheap???), but the office administrator gave him the good seats since no one else bought them (these tix are $300 EACH and come with access to an air-conditioned area AND $35 credit for food and drink!). May I say WOW! The stadium is beautiful (I hadn't been to the new stadium before) and access to the a/c was sublime. The day was hot and muggy (particularly when you're wearing a corset and rubber on your arm), but we would sit outside for 2-3 innings and then head indoors for an inning and have a bottle of water and some ice cream. Of course, the Nats suck (last place right now in all of MLB-not even the Mariners can go that low), but it was a great day.
So Kris, sounds like you're still dealing with the neuropathy. I had tingling for about 6 weeks after I finished chemo. It did go away, so keep the faith. The problem with finishing chemo is that you lose your patience for things "se." Try to keep your focus forward and your se's will begin to abate before you know it. And then, you'll forget how awful they were (kinda like childbirth, IMO).
Carol, your Saturday sounds like it was crazy/sick! Hope you got some time to sit and relax. Did the pancake heal up some over the weekend? Hope so. I remember the first Monday I woke up and realized that my field was still red from the Friday before-that was the week I knew I was in for it! But I kept up the hydration/lubrication/exercise and was okay. You will be too.
Oh, LWDana. Girl, don't you have enough going on? Try to keep everything in perspective as you embark on this new adventure. Keep your faith and stay strong. You can do this.
I am LOVING the baby pix, Diana! She truly is an angel.
Happy anniversary, KathyL! The dinner sounds good. I'm with you on the blue crabs-tasty, but too much work for so little payoff. (Although it's a fun meal when you cover the table with newspaper and everyone is hammering away!) But a king crab (or Dungeness)-now that's a crab! Do you ever watch "Deadliest Catch" on the Discovery Channel? We're hooked on it (no pun intended-although it's a good one). It's all about the crabbing industry in the PNW. Makes you appreciate how hard it is to get those critters on the table. I'll bet the ds would LOVE it.
CHJ-WooHoo on finishing up the rads! I didn't have a port, so I can't help there, but I'm happy to hear another one of us is putting rads behind her!
Hey Patty! Sorry Denise is having such a hard time adjusting to her new reality. Remember, it takes some of us longer than others to go through the 12 step process of acceptance. Whether or not her doc suggests (or she accepts the suggestion) chemo, know that her journey has been difficult for her and that she will do the right thing for her in the end. Try not (you'll see I said "try") to compare your journeys as we are all different. You're doing the right thing for you and trust she will eventually do the right thing for her. Oh, and always vent here.
On the vision thing-my eyes have taken a real beating through this. I haven't worn my contacts since the first of the year-after my first chemo. I hate glasses. And I've gone through so many rx changes that my sunglasses and regular glasses are two different strengths and give me nausea whenever I switch them out (where's my compazine?). I actually think I'm going to break down and get my regular specs redone this week so I can see on vaca-life's too short, ya know what I mean?
Sista! Good to hear from you! Sounds like the MRI thing is confusing. I know they find all kinds of things that aren't significant. I think that's why my own surgeon is hesitant to order them for me. But I think if you trust your surgeon and she's been doing right by you so far, you need to continue to trust. If you feel really shaky about it-take your films (MRI, mammo and ultrasound-the whole shootin' match) to someone else to read them. You can start rads today and still get a second opinion later this week. Important thing is your peace of mind and if you want a second opinion, I think your surgeon will be glad you got one so you can be peaceful.
So the vet's office just called. You all may recall that I was taking my dog in to have her teeth cleaned and was pretty wrapped about it. Well, turns out she needs to have two teeth pulled. A cracked molar in the back and a broken canine tooth (what kind of mother am I that I never noticed it?). I'm really upset for my poor baby. The new estimate for all of this is $620!!!! To all you new dog owners-these lovable fur balls are mighty expensive... I just hope she comes through okay. This Friday is her 9th anniversary with us.
Oh, and speaking of anniversaries, my 26th wedding anniversary is this Thursday and we're taking the girls out to dinner. It's not a fancy restaurant, but I plan on dressing up. I'm even going to wear a real bra and no sleeve-a celebration!!!! Now I just have to figure out how to get some spark back into this relationship. We've fallen into the "best friends" trap following a difficult patch and we really need to get more going on. It took us almost 4 years to get past our rough spot, so I guess I should be patient, but for some reason, the bc has made me want to rush things a little. Whoever said time heals all wounds should be shot.
Okay, I'm off to wring my hangs over my dog.
D1
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Hey Jewels!
Kris60 and CHJ - Doc told me the port would probably stay in for about a year. I have been begging to maybe get it out sooner.
Toenails, I am sure I will lose at least 1 (big toe) and probably a couple of others that are just about black but haven't separated from the nail bed yet. I agree with the WTF!?
D1 - Yup, the furry kids are expensive but so worth it. I am glad your neuropathy has let up. I am 2 months out and I can't see the improvement yet and you are dead on about the impatience. I am "tired of being tired".
Thanks to all for all the wonderful info that is found here. I have become such a lurker (or should I say "soaker up'er" as I try to soak up all the tidbits of info and helpful hints.
Have a question.....has anybody else been diagnosed as vitamin D deficient? I think you are supposed to be 32 or above, I am at 8. Been reading and there are alot of studies going on about the connection to breast cancer and recovery from BC. It also has been noted to help with pain. I am still looking it up and reading about it. I am going on mega dose D once a week and am really hoping that it does help with pain issues because I am sure not doing too well in that category right now. From my hips down, it seems I am always hurting or burning or feeling so over fatigued that I just don't want to do anything. Sometimes it even affects my shoulders. Haven't been on the treadmill hardly at all. My calves and ankles are swollen. Will be asking about that at the LE clinic but that isn't until Aug 5th. Was just wondering if anyone else was having vitamin D issues or was aware of the studies. From what I am reading, everyone should be checked.
Looks like lunch is over. Catch ya'll later!
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Good morning, Jewels!
We left here last Wed. to take dh to Duke and then journeyed on out to the beach for a couple of days with the kids. Dh's niece invited us to use her condo, so no motel bills!
We got good news at Duke. Dh's 2 distinct tumors are still there: one is stable (same size-good for a GBM which can double its size in 2 weeks), the second one is smaller and doesn't look as bright. The 3rd "area of concern" that was spotted on his May & June MRIs is GONE! So, he is responding to the meds and will continue on this trial.
We arrived back home yesterday, dropped dh and ds off at home and then took dd to science camp for the week. Needless to say I am exhausted from all the driving I've done lately-6 hours to Duke, 3 more hours to the beach, 8 hours back home and then 3 hours to shuttle dd to camp and return home last night. Dh is still getting carsick (nausea, but no vomiting, thank God!). I'm going to check out airfares to Raleigh and see if we can start flying down. As it is he's been in the bed since we got home recuperating from the trip.
I've caught up on the threads. Looks like most everyone is doing well... I'll apologize in advance for the length of this post-gotta put my 4 cents in after a long spell of not posting (2 cents never was enough for me).
Carol- I'm looking forward to a good chat this week. Dh has doctor's appointments today and Wednesday, but tomorrow is looking good. Up for a lunchtime chat tomorrow, say around 2pm my time?
Sorry to read about your tenderness/itching. Glad the aloe and grease (aquaphor) are keeping things tolerable for you. And ditch that bra, gf!
Ah! A weekend of boating, good friends and good food (King Crab... YUM!). Sounds like just the ticket for celebrating summer!
CathyCA- I love the nag calendar! I think I'll need one of those for ds next year. Hope you got your older son settled into a good place to continue his rehab and that he continues to do well.
CONGRATS on being finished with rads!! Sounds like the weekend concerts were a nice way to celebrate.
Deb- glad you had a good fishing trip-sounds very relaxing. A catch big enough for the wall, eh? WTG!
And, yes, I'm tired of being tired and feeling achy and walking like my great-grandmother when I first get up from a chair (you shoulda seen me after those marathon driving spells!). I have noticed just this week that my legs aren't giving me as much grief at night. Hope that's a sign of good changes and not just a fluke d/t being so tired from all the traveling.
SisKimberly- great news that PT is improving your ROM so quickly. I enjoyed your Chicago travel logs and all the pics. You look beautiful!
Jenn- I hope you've had that knee looked at and everything is okay with that.
I'm so glad your friend's son is coming around. Hope for another good report on him next time you post!
Looks like you'll be finished with rads this week. I hope your skin holds up well for the last few treatments. I ended up red and a little tender around the nip and under the collarbone. My whole rads area is still peeling and my skin is slowly returning to its normal color. My nip is a hoot (pun intended) right now as the dark skin is peeling away from the inside out, so I have a dark ring around the edge... kinda reminds me of the Target dog, ya know?!
KathyL- happy belated anniversary. Sounds like you had a wonderful evening.
Intolerance issues? Yep, I've got a few... mostly for people who get bent out of shape about little things like waiting in line, etc. I just want to shake them and tell them to GET A GRIP!
I hear you on the career tanners! I love a little color-just enough to take away my Casper look-but I was careful to lotion up with SPF 30 at the beach.
Glad you treated yourself to a massage-bet it won't be the last one!
D1- Cleaning away as always, I see! Glad you had a nice visit with your ds and her family. How nice to watch DC fireworks. I watched a little of them on PBS on the 4th.
FOUR missing nails? That ain't fair atall! I'm still sporting black nails on my pinkie toes. The others are discolored but not black. My fingernails look okay but they're weak and ugly looking.
I am also still on the fence with regards to genetic testing. I will see my surgeon and oncologist again in September and I'm giving myself until then to decide.
I am fortunate to like both my surgeon (he's a babydoc whose specialty is surgical oncology) and my medical oncologist, so I'm going to continue to follow-up with both. They both approach follow-ups differently-surgeon wants scans, onco prefers mammos and bloodwork. Figure I'm getting the full package by continuing with both.
I admire your sensitivity to the snobby boss' wife. Maybe BC will bring about a positive change in her attitude. I hope it is a good experience for both of you.
Joan- hear, hear on the good report from your 6 month check-up! And your puppy is absolutely adorable!
Vettegal- good to hear from you! You, Vetteguy and Denise have been in my thoughts a lot. ((HUGS)) It must be difficult to watch Denise choose a treatment option that you don't agree with. I'm praying that she'll choose the right path for her and that you'll be able to have peace and support her through her treatment.
Hope that knee heals up quickly!
Tinalee- two sons with short-term goals-life is good! So a move is in the cards for you? Colorado is a beautiful state. Hope things move forward smoothly for you!
Julie- glad your trip went well (yep, I'm with the dogs-I was practically barking myself when I pulled into my driveway yesterday!).
Good catch on the Lyme Disease-glad your dh is getting treated early.
CHJ- LOL at your bedhead. I have enough hair now to cover my scalp (finally) and just this morning noticed that it looked messy. Still don't need anything other than my fingers to comb through it though... Does anyone notice the hair is growing in all different directions? My crown is sticking straight up, some goes to the left, some to the right. Not long enough yet to tell if it is going to be curly or not... looks straight for the most part.
Oh yeah! I'm cheering you on through your last week of rads!
Diana- Ariana is beautiful!!!! Congrats to you and your family on the new baby. I know I don't have to tell you to enjoy her!
Kris and CHJ- Both my surgeon and onco agree on wanting me to keep my port until next year d/t my being triple negative and wanting to make sure I'm cancer free for 1 year before they pull it. I don't have any port issues, so I'll go with their recommendation on that.
Dana- I'm so glad to hear from you. You've been in my thoughts and prayers. I can't believe you have to deal with a court case in the middle of cancer treatment and nursing school. It is a testament to your strength and spirit that you are doing well with school in spite of everything. October will be here before you know it! As for the cancer, praying for wonderful news with your scans next month. Glad the ex is being supportive-what a blessing! Keep moving forward, Lil Warrior!
Sista- I'm sorry to read that you have a worrisome enhancement on the MRI. Glad the ultrasound and mammo didn't show anything... what was your surgeon's explanation for the enhancement? Scar tissue? Swelling? Breast changes? All of these could cause some enhancement, I think... Still, I wouldn't hesitate to get a second opinion, like D1 suggested. Good luck as you begin rads this week!
Okey dokey, all caught up! Have a great day, Gems!
Paula
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It's one of those days where I'm taking my "rest" moments with you guys. And I'm glad I am! Paula-that is GREAT news about dh!!! It makes me redouble my "good thoughts" efforts. Oh yay, yay, the drugs are working!!!!
You had me lol, girl, with the thought of you barking along with the dogs as you pulled into your drive! What a vision! Oh man, my hair is all over the place, too. I sure seem to have a boatload of cowlicks. My sister (the one who did chemo 2 years ago) said she didn't think I was going to get curls because she did curl up after chemo and apparently her hair was totally different than mine. I was disappointed at first, but now I'm to the point that I just want hair. I'm starting to get lots of positive comments on it, and I think most people really mean it. I may keep it short for a while-it's SO easy, but maybe not this short...
Thanks for validating my hesitancy on the genetic testing. I'm not sure why I pause...I hope a good reason comes to me soon. Of course, I still have to talk it over with the dh...
Now, Deb, (great pic in the avatar, btw), Vitamin D. I've been doing some reading that indicates vit D is helpful in Tamoxifen metabolism. So maybe we need to revisit the whole sun worshiping thing, since it's been a topic lately.
I have not added vit D to my handful of pills, but I'm going to switch to Citracal w/D as soon as I finish off the calcium chews I have. Turns out it might be a plus for the Tamox, too. I don't know if a D deficiency would explain your burning/hurting. Are you scheduled to see any other people on your med team before Aug. 5? Maybe you could run it by them. I do think getting on that tm is REALLY important (WTF, I'm having a hot flash right now-okay, that was a total sidebar). I'm kinda dismayed by all the pills I take every day, but I'm starting to think the supplements are really important right now. Maybe I'm wrong, but I figure they can't hurt. (btw, those big toenails are ugly when they fall off-I much prefer the others, but who gets a choice in this???)Oh, and update on my beloved Kippy (our dog). She is home now, but really moping around. I have painkillers and antibiotics to give her, as well as canned dog food (special diet) for a couple of days. You can tell she really wants us all to be home because when I opened the door to get the mail, she came out and started crying, thinking something good was about to happen. What a let down that I only came in with mail... I haven't had the heart to pull her lips back to admire her clean teeth, yet. That indignity can wait till tomorrow. But you better believe that at that price, I'm going to be doing a lot of admiring!
Till tomorrow, gang.
D1
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What a great weekend. It was gorgeous in San Francisco. We did some walking around, which is the best way to get around if you can in the city. My dad and step mom live off Pierce, off Lombard, so we stayed in a hotel on Lombard and walked to their home. The sleeping accommodations aren’t comfy…a hide-a-bed thus the hotel. Anyway, had lunch then we went to see an exhibit of women impressionists at the Legion of Honor museum. It was a well put together exhibit and crowded. It was amazing to me that such talented artists had to fight to be recognized and accepted in those days (1870’s), but like so many things, the art world was a glass ceiling women had to break through and these four women did just that.
Afterwards, we got ready for an early dinner on
the Embarcadero. It was a seafood place, new, and a bit pricey for the quality. It wasn’t bad food, it just wasn’t worth $100 each. The good news is they forgot to charge us for the bottle of wine we had ordered. Oh Darn!
After din-din, we strolled along the Embarcadero. Got home after 10pm. Sunday we strolled along Chestnut Street, which runs parallel to Lombard if you know the area at all. It’s a great shopping street with restaurants, shops, salons, markets etc…. I must say that holding my coffee in the left hand made my shoulder ache about a few blocks into the walk. I had to shift hands. Crazy!!!
So, PT is going well. Had myofacial (sp) release today. Ouch, but not as ouchy as the first time he did it. Friday I got a massage…neck and trap muscles…that wasn’t a gentle feel good massage, but afterwards, it did feel better. Of course those muscles are all tight again. Overcompensation for the shoulders he told me. Man, there are se’s everywhere we turn.
So much going on since Friday…
Kathy – I’ll bet there is something to that liking to deal with people when they’re asleep…add to that, or under the influence of really good drugs. HeeHee
Happy belated anniversary. Sounds like you had a great dinner out and with free childcare to boot!
Carol – I love King Crab!!!! We had some last week early in the week. Yummers!!!!
May I just say that I’m glad to be no longer in charge of the nag calendar. There is something to be said for the child being out on his own.
I read with interest the fact that some of your guys’ wives haven’t had a mammo. I was shocked that some of our younger teachers didn’t do self exams as they had no idea they should or how to do one. What’s up with that? What happened to learning about that in school and having the doc asking if you are doing self exams when you’re there to get the annual pap? Is it that under 30’s don’t have paps or see a doc annually?
Thanks for the positive vibes for my sis.
What a busy weekend you had planned…and I’m the social one?
Hope the walk, the boating/dinner with friends, the golfing, and puttering in the yard was exactly what you needed, my friend.
Cathy – WhooHoo…I’m jumping on Julies’ Dance Party a little late.
I miss the Nut Tree, too. Do you remember those awesome gingerbread cookies?
Julie – Gummy foobs…who knew? I hear that silicone is supposed to feel a lot more natural. What’s the rupture rate on those?
Deb – Ariana is gorgeous…both pics are sooo cute!!! My goddaughter is an Ariana. She’s 4 now. She’s Irish and Filipino. Didn’t get anything Irish that I can see, though.
I just read a whole article by Dr. Schwartzbein about Vit D deficiency and the need to take a 1000 to 3000 dose daily with a break on the weekends. A shot? That must be one heck of a dose.
Kris – Whoohoo for you too!!!! No more toxins is right! Getting it out is about drinking lots of water and getting as much exercise as you can…sweating. The neuropathy will dissipate with time. My toes still feel tingly and swollen after long periods on my feet, but it isn’t bad at all. Hoping that feeling goes away soon though, it’s been almost three months…it will be three months on your next appt. the 22nd.
I still have my port in…haven’t gotten a call from my surgeon’s office yet, so I figure it isn’t bugging me, so I’ll ask about it when I see my PS in August since she’s in the same building.
D1- Yeah for having some time with the dh. So, it’s an anniversary this Thursday, eh? I’m hoping you can find a way to get beyond the ‘rough patch’. When it’s all said and done, that rough patch won’t mean diddly, but lovin’ each other will. Rough patches are usually about feeling disconnected, so what better way to reconnect than to remember why you fell in love in the first place, to honor the people you’ve become since being married, and to recommit to putting the relationship first. Sometimes jobs, kids, and life changing events like cancer have a way of pushing the relationship to the bottom of the priority list as if it can survive without being nurtured.
Thanks for the good wishes for SIS Kathleen.
How did those bras work out? Did they arrive yet?
Speaking of leaving my heart in San Francisco, there’s a big bow and arrow statue on the Embarcadero. Love the city to visit, but certainly wouldn’t want to live there especially if you have to drive somewhere. Walking is the best way to go, or public transportation.
Score on the nice seats at the NATS game!!!! Like my upgrade to first class.
Bummer about the nails falling off. The good news is that at least the ones growing in will be healthy, right?
Hope your puppy isn’t too sore after the cleaning and tooth extractions. And don’t wring your hands too much, those nails can’t take it.
LWDana – Good for you for standing up now and speaking out. It doesn’t matter what your friend who works there believes. What matters is that you know what happened and you’re ready to tell your truth to help put this guy out of the doctoring business. I do understand your wanting to stay quiet and feeling ashamed. I was molested by several people from childhood through high school that I should have been able to trust, and when I was able to speak out about it with a counselor when I was in college, he too molested me. I held onto all that into my 30’s because I couldn’t trust people and wasn’t very good at keeping relationships together at that point. I have since had counseling and forgiven those people and myself as I know that at the time I couldn’t have done more than what I did as I didn’t have the tools. I understand how complicated it is…the victim/perpetrator cycle…and taking a stand now is a big step in reclaiming yourself fully, Dana. We already know how strong you are, so I have no doubt that even though this will not be easy, that you will get through this just fine.
CHJ – I’m still with port after three months, so can’t tell ya when to do it. I do understand wanting it out though. I’d wait until the rad skin heals if I were you just to be sure there is no chance of infection.
Hey Patty- Glad your laptop is working out well for you. I’m thinking I won’t be able to login once back at school from work. I think the word breast would be flagged as a no-no.
Hey, sold the ‘cuzzi, eh? Lots more room on the deck, I’ll bet. What will you do with that money? Take Allen somewhere nice or put it in savings and add to it the money saved on water, chemicals, and electricity and take a really nice trip next year, maybe?
Sorry to hear that Denise isn’t seeing eye to eye with you or her onc regarding chemo. The onco-type test will be a good resource for her, though. I do understand her thinking, however, remember I chose not to do rads or HT suppression drugs against my docs wishes. I know you want what is best for her, but it is her body and her life. As long as she’s making these choice based on sound research and not on just wanting to be done, I’d trust her to do what she feels is right for her. “Doesn’t seem fair” was an interesting response. What doesn’t seem fair exactly?
You both had cancer and you both had/have choices to make about treatment.
I hear ya about the eyes. I have to use my readers more these days than ever. Crap. I’m getting my eyes checked next Thursday.
Sista – I’d trust your surgeon’s judgment on this one. Your scar tissue is still healing and MRIs and PET Scans really light up on fast growing cells, which healing tissue is. If there was a concern, the ultrasound would have caught it.
Go for your rads appt and know that rads will kill it if it is cancer, but it is most likely nothing as your surgeon suggested.
Paula- WhooHoo on the news regarding Ed’s health. You must be so relieved to know he’s responding to treatment. And yeah that your rads boob is healing up nicely… the description of your Target Dog nip was LOL.
Man, I’m exhausted just reading about all that driving you’ve been doing. I hope flights will be reasonable.
OK, like you, I’m all caught up, but I think my butt has fallen asleep.
TTFN
SIS Kimberly
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Kim, thank you so much for understanding. It is hard, people ask me over and over why did you go back and I said because I thought I had cancer because my nipple was leaking milk, and my lymph nodes were swollen under my armpit and HELLO I WAS RIGHT. Its crazy, how my friend is trying to justify it but she too will pay the cost of this; another bonus I am free of her relationship too - it was never healthy to start with. I feel so free now, to let it all out but like I said its going to be hard in court not to explode when I am getting questioned by the defense, but God, and that pervert and I know the truth. I cant wait till its all over and done with.
Jewels, thank you all for your kind words and support - I know I can always come here and recieve love!
With all my love,
LilWarrior xoxo
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Last night was fun. We had to drag the kids from the pool. They were so tired, they went right to bed and slept all night until we woke them this morning. Fresh air is gooood for kids! Maybe we should get a pool (when we win Powerball someday). What's up with the Jewels?
CHJ: I think everyone's docs seem to differ on when ports can come out. Mine's coming out ASAP after I finish Herceptin in January.
Patty: I hear your frustration with Denise. I can't imagine how hard this must be for you. Denise has to be comfortable with her decisions (I hope she is). You do not need to agree with her, but hopefully can somehow accept that this choice is hers... even though it is very painful for you after having been through the exact same thing and making a different choice. Glad you came here to vent.
Sista2: It sounds like your first MRI was a false positive, or even now after further testing, that the shading from the first was nothing "exciting". I'd believe this latest test, b/c if there were something there truly on the first it would appear again now. Having said that, I'd probably feel the same apprehension you do now. Maybe your docs can explain/clarify the findings better to reassure you until the next test in 6 months. The other thing I ask to help me while waiting is, "what do I look for to change/happen in the next 6 months in case the first test was true and the second was false?" Hope this helps.
D1: Sounds like you scored some great seats for the game. Poo on the nail situation!
And oh yes, we've watched "Deadliest Catch"! dh loves it. It just about makes me seasick watching!
Good luck with your dog... they are expensive, huh?
Hope you have a great anniversary (fellow July wedding!). Here's to a "new beginning" in that area, too. Enjoy your night out and just see what happens. Maybe you can use the whole BC thing to spark a move in a good direction for your relationship.
Deb: I have not heard about checking a vitamin D level. What prompted your doc to check it? Does it respond quickly to supplements? I've been taking my calcium faithfully, and it contains vitamin D.
Paula: Sooooo great to hear your good news regarding dh. I am thrilled for him (and you), and hope his tx continue to shrink to nothing!
Kim: Sounds like San Fran was another great trip. Someday (after the kids are grown), I'd like to travel to some of these places everyone talks about here.
GTG, tomorrow's my long day.
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Good Eve Gems
Well its me and the wieners tonight, dh is in Long Beach for work, and ds is in Nebraska for the speed skating nationals. Its pretty cool as there is a live web cam at the skate rink, in fact I just watched one of my son's teammate win in the juvenile div. As I'm typing I am listening to the action live, will be bouncing back and forth this eve. My ds doesn't compete until Friday at 11:30, I told my boss I would like to take vacation time to watch, (or if he wasn't opposed to it, I'd tune in from work).
So I've noted that many of us have had complaints about our eyes ... anybody heard if its best to wait any specific amount of time before seeing the eye doc? I've been holding out, thinking I don't want an eye test if things are still out of whack from chemo. I've got one set of lenses left, and need to get checked out, I know my eyes have had a heck of time (although I've been able to wear my lenses), I just can't see worth a hoot out of them, and my glasses which I wear at bedtime are pathetically bad.
Kathy, congrats on #8, and dinner sounded delish (how can you go wrong with shrimp and crab?)
A dip in the pool ... so how are those swim lessons going?
Patty, knowing you just want what you think is best for your sis has got to be difficult to swallow when its not necessarily what you feel is best. As others have mentioned, its definitely an individual decision, just look at all the different plan of attacks this group has had and the decisions that we've all had to make. With her Onco numbers in hand maybe she will then be more apt to make a confident decision that those who love her will be at peace with as well.
So have you had prior problems with your knees?
Dana, thinking of you as you endure yet another difficult time.
Sista, first off, lurk away, that's one of the coolest things about this site. In regards to your MRI/rads, sounds to me like all systems are go to take on your next bit of txt (rads). Being your confident with your surgeon, do you still feel the need to get re-checked. I think D1 had some good thoughts on getting a 2nd if it would put your mind at ease.
D1, so how the little "Kipper" doing? We've experienced the tooth extraction as well. We had given our dogs large beef bones thinking we we're doing them good for their dental hygiene. Ended up costing us a fortune as they both had broken teeth. They do bounce back pretty quickly, I bet by tomorrow she'll be back to herself.
Your outing to the ballpark sounded great, sorry your team sucks!!!
The "pancake" faired pretty darn good over the weekend, in fact, now that I think about it, I havnt had the itches all day today, which also means I have not been "lubricating", I'll pause here for a moment and slather it on (okay done deal).
My dh used to work on a crab boat with one of the guys on "The Deadliest Catch", he told me you'd literally sleep in your raingear when you got the chance topside on the boat during the busy times. Thank god that's not how he's making his living these days.
Ah, I really should do something with my "specs" before my cation as well.
Here's hoping that some sparks begin to fly again with the dh, I know all to well that "best friends" statement from marriage numero uno (which you know is a story in itself).
Deb, don't know much about the mega doses of Vit D, I've just started taking calcium with Vit D in it. Not being much of pill taker, it's a chore for me to remember to take that (okay, another break to take my Vit), geez, what good reminders this posting is.
Paula, was tickled to read your post today, its got to be uplifting to you all that Ed's treatment is showing some encouraging results.
Wow gal, you could have driven to the west coast with all those miles.
The bra is ditched ... along with all of my white shirts!!! Nothing like sporting one high beam. The Target Dog, you crack me up.
Kimberly, sounds like some of your co-workers need to go to a "Check Your Boobies" party. I don't know about you, but I've been going to the doc for that special "annual" visit which has always included a BE since I was probably 20.
I must say that your sharing of your childhood troubles was a shocker. Not even sure how to respond other than by saying, you've come a long ways baby!
Whew, I think the numb butt syndrome headed north along with the stiff neck ... been sitting here since 4:30, with e-mail, 3 day thank you's, bills, watching skating and posting, basically taking total advantage of not having to cook dinner (cold cereal for me), and not feeling guilty spending my eve at the puter.
I'm happy to report that my 16 miler yesterday went well, my friend Ginny is quite an inspiration (she is 68 years young), and has more energy than most of us, some being half her age.
Off to the tub and bed, I am enjoying my 7:30 rad time, gives me one extra hour of sleep in the morning. Gotta look at the positives!!!
Night all, Carol
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2 Rads down, 30-something to go. They didn't have any afternoon appointments, so I'm stuck with 8:40 am. Now, to put that in perspective for you, I USED to get up at 830 to be at work at 10. I just shifted 2 time zones ....
Paula, that's wonderful news about your husband's tumors and I'm so glad for you both. I hope his SEs are minimal or at least bearable, esp. as the drugs seem to be having a very beneficial effect. God bless him for being willing to participate in the trials. Yes, I realize that that might have been the only viable treatment left, but it's still a courageous step to take and I admire his courage.
And what your hair is doing is exactly what mine did a few weeks ago. I think it's one of the normal hair patterns. Don't worry, when it gets a wee bit longer (really just about 3 more weeks of growth) you can actually brush it and it sort of obeys the brush. Somewhat. I've gotten so many complements on my hair ... I'm loving it. Mine is starting to get a wave in the back where it's longest.
Deb, hang in there. It might take your body a little longer to bounce back from the neuropathy, but try to keep being patient. I know for a while I thought my legs were going to be messed up forever. They seemed to get a good bit better all at once, but have held that plateau for a few weeks. They're still swelling up a little each day, and the muscles still get stiff after inactivity, especially in the evening. I'm confident it will get better, for all of us still toughing it out with the taxol/taxotere SEs.
And re Vit. D, I don't think my levels have been checked. I've stopped taking the calcium chews for the duration of my Rads, since they have a good bit of Vit. D in them and the antioxidants are a no-no on Rads. But I take a diff. supplement with 200 mg (or is it IU?) once in the morning, and once at night, and a Flintstones vitamin at lunchtime (I switched to Flintstones from Centrum Silver since the amounts are lower, the Rad. Onc. wants no Vit. D/ Vit E supplements taken). Anyway, that puts my daily amount at ~600 mg I think. I recently heard on ABC news a med report that said that 1000 mg per day is optimal. Are you sure you want to "megadose" it? I don't think megadosing is particularly good for you ... your body probably absorbs smaller amounts throughout the day better than one big horse pill's worth all at once.
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Hello Ladies!
Sounds like most every one is doing well. Dh was on vacation for about a week and a half. We had a very fun 4th picnic at our house with both of our families. Then did fireworks that night. We just did a bit of puttering around the house and trips to Lowes and Home Depot looking around. We did drive up to Cedar Point which is a big amusement park about 2 ½ hours from us in Ohio. Oldest ds won the biggest stuffed gorilla I have ever seen! We put the 3rd row down in our Pilot and stuffed him in. We couldn't see anything out the back window area. He is going to give it to his girlfriend when she gets home from vacation next week. He just flew down to meet her family in Orlando yesterday. It was the first time he has flown by himself and when I left the airport I got a bit misty as I thought about him growing up and going off on his own after next year.
I quit wearing my scarf two weeks ago tomorrow. I had gone to the hairdresser to see if she could highlight it. She said it was still too short. She could have done an all over color, but I opted to wait. So, now I go back to her on the 30th or so. That was the first time I had gone anywhere with out my scarf and I just decided to be done with it. I keep getting comments that I look like Jamie Lee Curtis, or the mom from Zack and Cody or Ann Heche when her hair was short! I am ok with it most days; others I hate it. I think the biggest thing is the no bangs. I have had bangs for years, so if I could just have some coverage on my forehead I would like it better. The back (which much longer than the top) is getting curly where I have always had poker straight hair. Youngest ds still thinks it is too short to go out with!
I did go to my gyne appointment. She said there was no reason to do any hormone tests at this point either.Talked to her a little bit about having the ooph. She thinks I should just get a second opinion and says she doesn't think the insurance would deny it if both doctors think it is a good idea. I really didn't talk to her much about the alternative, though. I think I am going to talk to the breast navigator at the cancer center. I keep going back and forth on what I should do. I did finally start taking the tamoxifen about a week and a half ago, since I have my one month follow-up for it on Thursday! So far I haven't had any se's that I know of. I have been spotting for a few days so I am not in chemopause.
Friday I went with a friend to listen to Bernie Siegel speak. He is the author of the book Love, Medicine and Miracles. It was pretty interesting. I ended up buying the book. It has to do with the mind/body working to heal itself. I also got done reading The Last Lecture. That was a very inspiring book and a quick read.
I still have Deanne Favre's book if anyone is interested in reading it - or I don't know who it actually belongs to, I could send it back to it's owner. Let me know.
My support group is having an acupuncturist speak tomorrow evening. I am looking forward to that. I was all set to get an appointment with her when I heard she was talking, so I put it off. Has anyone had that done?
Thursday one of the local hospitals is doing a survivorship talk down at the beach with music and snacks etc. so I am going to that with a friend. On Sunday, we are doing our photo shoot for the calendar project that I am working on with the young bc survivors. That should be fun.
I would like to get a copy of the addresses, too. Do I get that from Kimberly or Carol?
Carol - "hoot in a box" cracked me up also! Sorry to hear about Ginny's nephew. My dad had tonsil cancer in 03 and had always been a nonsmoker/non drinker too. FWIW he is doing great - only had to do surgery and radiation.
Kimberly - Thank you for the postcard! Sounds like you had a wonderful time. You had me lol with the washcloth comment. Glad your pt seems to be helping you.
WVGirl - So happy you got good news! Hope you are recovering well from your surgery.
D1 - Sounds like you had a great visit with your family. I am still waiting for my big toenail to fall off ( that is the one that had turned black in vegas). I am almost anxious for it - I think it is that whole waiting thing - I'd rather just be done with it. I think you should have been holding up your middle finger instead of your index finger with your surgeon! He probably still wouldn't get it.
Paula - so wonderful your dh got good news! Glad you all have been able to get away and enjoy some down time, too.
Cathy - They didn't give you a mammogram on your bad boob did they? I was scheduled to go down to Pittsburgh for mine today, but in doing some reading saw they recommend not having it done until 6 mo after rads. So, now I got rescheduled for November. I can't imaging how painful it would be having it done now.
Deb - I have been reading about the vitamin D thing. Who did the test for you? Was it just part of your regular blood work? I'd like to find out what mine is.
LJ - I feel you pain! I am not an early morning person either.
Well, I have been thinking of all of you. I have been typing this for about an hour and a half, I have to get off of here and enjoy the day!
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If you are not an information hound, this may bore you but I am finding it very compelling info and worth looking at. Especially tied to triple negatives and fears of recurrence.
As for the Vit D thing. I have been pretty deficient for a while. They first tested me when they ran an endocrine panel for some other things and I was low. When I really started complaining about leg pain, they checked my Vit D and it is supposed to be above 32 and I was at 8. My primary care physician is putting me on a high dose but have not received it yet so not sure what the level will be (VA and they mail rx's). I did find alot of info though when I was googling regarding Vit D and breast cancer and pain. There is good info at http://www.vitamindcouncil.org/ and there are studies going on as more and more women are found to be deficient. Also what I am reading is that toxicity is really not near as big an issue as it used to be. I printed out a report but have it at home. I know it is at http://www.pain-topics.org/ Not trying to panic anyone but there is alot of info regarding low vitamin D making some diseases worse or more likely to return. It also addresses the toxicity issues.
LJ13 - Thanks for the encouragement regarding the leg pain. It is so horrible sometimes and while I do have pain medication for it, I think I have been taking it long enough that it really doesn't last very long anymore. I am hanging in there. I drag myself to work everyday and put my feet up (sometime with shoes, sometimes not). Thank God I have an understanding employer. The megadose Vit D is a once a week pill if I understand my doctor right.
D1 - I am trying to build up on the treadmill, just hard after being at work all day and wanting nothing more than the pain to let up. I will keep trying though. It might help with the swelling. I am almost wishing the toenails would just go ahead and go so the soreness there would go away too. WAAAAAHHHHH!
Ok, got the boo-hoo out. I can go on now. Hope your LE issues are going well. I pick up some fingerless gloves on friday to help my wrist and hand. Not too bad and I want it to stay that way.Better get back to it.
Thanks for listening.
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Good Morning Jewels,
Got a call this morning that my gal isn’t doing my house anymore. Seems the boss realigned the territories, so I’m meeting my new gal at 9am. Then, I’ll be off to the gym, and then going to my ds’s house to take his gf shopping for a few pairs of pants and shorts. She’s having knee surgery next week, and she’s no longer the 2 she was when we first met her…thank goodness, too skinny…so I thought I’d get her a few things as a recovery gift. Afterwards, I’ll hit yoga, have light supper with the gals from my school who are there, and than take my gf home who will be dropped off by her dh on their way home from San Francisco. That should cover my day quite nicely.
I’ve looked at the binders on my shelf that contain curriculum stuff, but I just can’t bring myself to get serious about developing curriculum for next year quite yet. Maybe I’ll be more industrious tomorrow…or not. Heehee
Dana – You’re welcome! Be patient with people who don’t understand the ‘why’ you went back, or the ‘why’ you didn’t tell someone. It truly is too difficult for so many to understand because they’re looking at things from where they are now in their lives rather than from where you were. Deep breaths as you testify! Getting angry will not be helpful to the prosecution, which is why the defense will try to trip you up. Take a deep breath before each answer. Really pay attention to what you’re saying rather than making quick impulsive responses.
Kathy – I soooo agree that fresh air and activity are good for our kids. I remember spending long summer afternoons at the community pool, or a friend’s pool, or at the beach when I was a kid in Aptos near Santa Cruz.
Great questions you offered up to Sista to ask her docs.
Carol – Sometimes it’s so nice to just have the house to yourself and to do whatever it is you want to do without worrying about someone else isn’t it?
What a great idea to have a Check Your Boobies party!!!! I’ll have to go online and check out that website more thoroughly.
Yeah, I don’t just throw that stuff out there unless there’s a need, and LWDana needed to know she wasn’t alone.
I have sooooo come a long way baby since that time in my life, but you know what? Like cancer, I wouldn’t change a thing because those experiences have helped to make me who I am today, and I really like who I am!!!!
LJ13 – Oh man!!!! Changing time zones to make the rad appt isn’t a fun reality, but it will become a habit once you’re in full rads mode, and after rads you can use those extra hours before work to work out or to do something that you’ld be doing after work normally. It could be a good thing in the long run!
Yeah, I haven’t had my Vit level checked either, but I plan to start taking an extra Vit D capsule since reading the article I read yesty. Vit D does a lot for our bodies.
Norma- Wow, you’ve been a busy gal!!!! I love that you’re so involved with your local cancer center and support group. Your calendar project sounds fun!
PM me your email address, and I send the address list along.
Gotta go. The new gal is here.
SIS Kimberly
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My pup is still in mope phase. Those must be strong painkillers...
Your trip to San Fran sounds great, SIS Kimberly! And another score for you on the bottle of wine (frequently the most expensive item on the tab, so WTG!).
No bras, yet. They must be coming by pony express.
Boy, I hope we can reconnect our relationship. It's been too long since we've been in romantic love, if you know what I mean. Our friendship love is quite strong, but we both know there's more to a marriage than that. Our issue is finding/making time for each other.
Another WOW to you on your reply to LWDana. Your advice is always so spot on. I was saddened to read about the hardships you endured as a child, but wonder if that is part of how you have become such a thoughtful advisor. You clearly have spent a lot of time grappling with your feelings about your experiences and have sorted things out to the point where you are able to have healthy relationships with your family and friends. An already impressive woman manages to impress again. I'm honored to know you.
Ah, KathyL, I fondly remember the days when a few hours at the pool would tucker my girls out. In a way, I miss those times (but not the part where I had to get into the water with them...). Enjoy them while they last-it really does pass quickly.
So Carol, how'd the ds do? I know his training regimen wasn't up to his former standard (dastardly jobs get in the way), but was he able to meet his personal goals at Nationals? What a great experience that is.
Oh, you hit the nail right on the head with the bones. The vet said it would be a good idea to skip them from here on out. No problemo, IMO. She'll never miss them. And I won't miss the dental bills!
Are you kidding me? Dh used to work on one of those crabbing boats?! You're lucky to have him in your life, then. That looks like one dangerous job! Thank god he's not doing that anymore.
Ugh, LJ, there's no way I'd have made an 8:40am rads appointment. Mine was at 11:10, which meant I had to get up and get outta the house for the gym by 8:15 so I could shower before rads-but all I had to do to go to the gym was roll outta bed and pull on my gym clothes. If I had to get around for the day in time for an 8:40 appointment, I'd never make it. You have my sympathy.
I second your admiration of Paula's dh's courage. What a great way to put it.
Oh, and I'm getting tons of compliments on my hair, too! I may mess with a shorter style for a while (but not this short...). It's fun.
Ah, PALady, you remind me. I keep meaning to check with Deb on head hair. Deb, PALady and I both experienced new hair growth in areas we'd had laser hair removal. I'm hoping that means you may experience some new hair growth, too. Any luck?
Back to PALady. I LOVE Cedar Point! I haven't been there in at least 30 years, but we went once a year for about 7 years running (I grew up in Flint, MI). I hear it's become quite the place for roller coaster fans.
The tamox hasn't been so bad for me. Just more hot flashes (not life threatening), leg cramps (not life threatening), and an increased urge to cry (not life threatening). It really wasn't what I feared-so far. I hope it goes okay for you.
Sounds like you're doing a lot of things designed to get you back into balance. Good for you.
LOL on using my middle finger with my surgeon! He's such a butt.
Man, Deb, I hear you on the toenails. I know I'm going to lose my other big one and it aches all the time. I'm ready (sort of) for it to fall off so I can get on with it. Boo-hoo any old time! Good job on the preventative work for le. And I know you're going to be on that tm any day now...
Well, my natives are restless and want dinner. Guess I should toddle off and do my thang.
D1
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Doh! (A Homer Simpson moment.) I completely missed SIS Kimberly's post. Sorry about that. Got the water boiling, so I have a sec to send my sympathies on having to break in a new housekeeper. I hope it went well. The rest of your day sounded like your usual hectic stuff and I'm sure you're in the middle of it while I type. Enjoy it. You can do your curriculum later.
Later.
D1
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Kim and Jewels,
Well I went to the DA office today, and after all is said and done, she said it looks like you have a good case but we will let you know by next week if we will file charges on your behalf. Is that crazy or what, you will let me know Hello the man sexually assaulted me. I dont get it! I wonder do I get a Attorney now, even if they dont file a charge against. If they dont file a charge against him I sure am going to wonder where is the justice system??????
I just dead bet out of all this. I will write tomorrow.
God bless,
LilWarrior
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Dana - you are a strong woman. that creep needs to be in prison, not practicing medicine. it makes me ill the things that people can get away with. hopefully this man won't.
Deb - i did a lot of reading on the vit D thing also. very interesting studies correlating to breast cancer. if their results hold to be true then every woman needs to be made aware of the risk of being deficient. i don't know my own (asked my onc, supposed to get tested, didn't, long story) but with all of the skin damage i have from overexposure to the sun during my life, don't know how i could have ever been deficient... yes i've been a sunbaker : ( . and the swelling your having, i'm assuming it's water retention from the taxotere? i started swelling up, the usual ankles and such but an area by my thumb too which gave me the lymphedema scare. my onc prescribed a water pill which has helped and made me feel much better. and the thumb area swelling went away too.
Paula - that is awesome news on the dh. i don't know how you don't stay exhausted with all you have going on. and the hair thing...i wish mine had some spunk to be going every which way. it's just laying there. but it's hair and it's growing, so i'm happy.
about the eyes - i was told six weeks after last tx for getting an exam. man am i ready. don't know how much of it is chemo and how much is just my eyes. my eye doc, who is my age, tells me every time i go now, once we hit 40....i'm so sick of hearing that.
have a good night jewels!
sista2
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Hi Gals,
Just got home from golfing with a gal friend, did the power watering of my pots, snarfed on a bite to eat, and decided to check and see what' up today on the post. The dh won't be home tonight until I'm fast asleep (unless he happens to arrive during one of my many hot flashes that wake me up!!!)
D1, The ds doesn't compete until Friday in a two-man relay, I am listening/looking at the link from the skate rink in Nebraska again tonight as I type here. Chatted with him today, seems he has "misplaced" his wallet. Thank god I had given his coach money to pay for his lodging and meals. Pretty much he is just screwed as far as buying himself any extras. Hoping its not an issue at the airport with no id on his return trip. Who knows, with his disorganization of his things maybe it will show up. If you are really bored here is the link to the meet, it will atleast show you what the heck this sport is about http://tvmr.com/USARS-NET.html
Sorry to hear your little four legged gal is still not up to par, so much for my theory that she'd be up to snuff today. Did you take a look at her pearly whites?
I ditto your comment to SIS Kimberly, I could have spent half the night trying to say the same thing.
So I can't recall if you had mentioned about any couples counseling. Although that would probably not be easy as far as finding the time, just a thought.
Sista, thanks for the eye exam input, made my appt today for the 8th of Aug, hope they will have the contact lenses I need in stock so I will have them in time for cation. My guess is that your eye doc could be right on both counts, age and chemo being tough in the eye dept.
Kimberly, so hopefully the new gal was up to your standards. I cringe anytime my housekeeper calls me, thinking that she's going to say she's movin on. So far I've been lucky and over the past 15+ years I've only had 4 different gals, and they've all been good IMO. As long as I'm not scrubbing potties, and vacuuming/dusting, I'm a happy camper. I'd much rather spend my time outdoors.
Gal, I'd say your "industrious", just not interested in thinking about work just yet. The good news is that it will still be there tomorrow!
Deb, what other place can you boo-hoo and have others totally relate? That's got to be the biggest asset of this site.
Remember baby steps on the TM, in due time your endurance will increase. There's nothing worse than overdoing and then having a negative vibe when looking at the equipment.
Again, all this talk about Vit D reminded me to pop my calcium with Vit D tonight. THANKS!
Norma, great to read your post tonight, sounds like you've been having some fun over the past few weeks. I can just picture the gorilla in the 3rd seat!!!
So what's up with airports and getting misty eyed? We have sent our kids a time or two on a plane home from AZ during some spring breaks, I swear I have had big tears well up each time.
So did your gyn say she thought it would be a good idea to have the oomph? Its so interesting to me the different takes on the subject. Sound like your ovaries are wanting to gear themselves up again to me.
Hey if there are no takers here on the Deanna Favre book, maybe you could take it to your support group and see if anybody is interested in it.
LJ, hmmmm, I asked about continuing my Calcium with Vit D during rads and was told that it was okay. They (both opinions), did say no Vit E during my consult appts. I usually see the rad doc on Weds, I'll be asking her once again, maybe I misunderstood something.
Paula, it was great talking with you today, you sounded as "chipper" as ever. A little down time "on the porch", sounds like exactly what you could use.
Hoping your daughter is settling in as the week moves along.
Okay, going to tune into some skating here on-line, there are a few kids I have gotten to know from the area (not on our team necessarily) but some kids that Zach has gotten pretty acquainted with that are still competing tonight.
Time to lub the chest, and today I was given a bottle of saline solution and it was suggested to wet a washcloth and then soak it with the saline to lay across my charred area. Things we're not looking to bad until this afternoon, made the mistake of looking at the area in a mirror (YIKES) we're getting redder by the day.
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Oooops, wanted to send out a special shout out to Carol (CHJ), I believe tomorrow is your last day of rads. You can kiss your trips to the rad office goodbye girlfriend!!!
Carol
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Carol - thanks for the shout out! Yes, today is the last day for rads, and then I have 3 whole weeks until I set foot into a medical facility again - to get my port out. It's been a wild ride. I know I'll still hate going into the rads place, even though it's my last day. Thanks also for the card (I sent you a PM, hope you got it!)
Now I have to work on getting back into the swing of exercising (need more energy, though) and I need to work on losing a few pounds that have crept on since chemo. I need to define the new "normal", whatever that is. But most of all, I will relax and be glad the worst of it is over.
I know I've been hit-or-miss on this thread, but I lurk regularly, and you all have been such a great support & comfort to me, and I will be forever grateful!!
CHJ
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Ahhhh, it is good to be home! The laundry is all put away, the house is clean, and it looks like it is going to be a lovely Wednesday here. Dh seems to be coming around after being in the bed since Sunday. The Tarceva and Sprycel are working on the brain tumors, but they're also taking a toll on his digestive system. He feels so badly that he is planning his funeral-seriously... Hopefully his onco will prescribe something to help him tolerate the drugs better.
Dd is still at camp-still homesick, mostly for the boyfriend I'm thinking-but still there! Ds is still jobless--he is doing all of his dad's handyman duties around the house, mowing lawns, and working at our church's vacation bible school this week. I've also got him working on scholarship essays this summer and we're scheduling visits to several colleges/ universities. I've pretty much "cut him off" financially in hopes that he would be more motivated to get out there and work... so far he's happy with the small cash infusion he gets from mowing a few lawns in the area! Whatever!
Carol- always great to talk to you-I believe I monopolized the conversation too much (thanks for listening!). I am sure looking forward to meeting you face to face-wish the CA trip would have worked out, but the cancellation was best for our family.
D1- hope Kippy is bouncing back and feeling more like herself today. We learned the hard way on those rawhide bones, too. Our golden has had a couple of broken teeth removed (she's 10).
SISKimberly- San Francisco sounds lovely! (I was ALMOST there... sigh!). Always enjoy your travel reports. I echo the sentiments of D1, Carol and others: what a SHERO you are! (I'm hearing Gloria Gaynor sing "I will Survive" as I write this). I am thankful that you emerged from those dreadful experiences as the vibrant and beautifully expressive woman that you are!
KathyL- the pool comments brought back wistful memories for me, too! I know the phrase is trite and overused, but enjoy the little ones... they really DO grow up so quickly... I love my teens, but they're so into themselves, ya know? Hope your long day went well yesterday.
LJ- another night owl here to commiserate on that early rads appointment-YUCK! Thanks for the comments on dh. I'll pass those on to him when he starts feeling better.
PALady- LOL at the stuffed gorilla! I've been to Cedar Point a couple of times, although it's been years ago since I was last there. I haven't worn a scarf in weeks either, except to protect my scalp at the beach. Jamie Lee Curtis, eh? Funny, I saw her on a commercial just last week and commented that I liked her do. I'd love to see a pic!
Deb- thanks for the information and the links. I'm definitely an info hound. Did you notice the TN Ask-the-Expert Conference on this site tonight? I'll be checking that out.
Dana- you have done what you needed to do-reported the abuse. Whether or not they use your testimony, they're going to nail this guy, right? Leave it in God's hands and keep moving forward, LW!
Sista- have you started rads yet? Hope your first treatments go well.
CHJ- congrats-you're finished!!! A big SISKimberly WOOOHOOO to you!!
Time to take my java and head back out to the porch swing.
TTYL, Paula
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Hi Jewels.
I've been MIA for a few days and have so much to catch up on.
I got word on Thursday that my Dad in Florida had died. He had back surgery recently and a blood clot hit his lung. He was the coolest dad ever. Last July was his 80th birthday and his wife threw him a surprise Luau with a steel drummer and roast pig. He was totally surprised and surrounded by many loving friends. I was lucky enough to be there for it. I was a key player in that I had to keep him busy & out of the house while the party was set up and guests arrived.
This on the heels of losing my best friend Val in April. I'm right in the middle of rads and was advised missing a few treatments wasn't good, but would be understandable. But his wishes were no funeral, no wake, just cremation and burial at sea at a later date. Which I hope will be after rads ends.
I am at wits end as to why this had to happen while I'm in treatment. I mean, that's hard enough. I am almost halfway thru rads and so far just my neck area is turning red.
But my blood pressure feels and reads high, which I guess is understandable.
Oh, Jewels, life can be so hard. I know you guys understand.
Maz
PS--After I wrote the above I had an adventure. I just got back from 2 days in the hospital. Saturday I had chest pains and shortness of breath that was pretty intense and scared me. I even waited all day to see if it was anxiety, but by dinnertime I was feeling no better. I knew I couldn't sleep in that condition. So it was off to the ER and ICU. The good news is that my heart checked out fine, and no blood clots in my lungs. But it took 2 days to do all their tests. And by then the pain was gone. And no definitive dx as to the cause of my pain. I'm just so grateful to feel better.
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Good Morning Jewels,
OK, so this morning is cool and there seems to be a marine layer hanging in the air over Lincoln although the sun is peaking out. Should get up into the mid to upper 90’s today.
I’ve got PT this morning at 9:30, then I’m going to try the Yoga Flo class at 11:30. Afterwards, it’s home to look at this curriculum of min so I can start making a dent in what I want to do with my kiddos this year.
Deb – We must have posted at the same time. Thanks for the links. I’ve downloaded and read them. I’m totally going out to get some Vit D today.
D1- Hope Kippy is up-and-about and more like the pup you know and love today. Poor thing being all drugged up.
I do know what you mean about the ‘friendship’ love vs. the romantic love and finding time commitments getting in the way. Not being romantic or intimate becomes almost a habit that is hard to break doesn’t it? “I hope we can reconnect this relationship”?...Let’s start by changing that to, “I know we can reconnect this relationship.” I’m sending out lots of positive energy your way so that you both feel it in the next few days (it’s a long way to the East coast), and that you get swept away enough to just look into one another’s eyes and let each other know how much you’ve missed being connected emotionally and physically. Of course, someone has to take the first step…what about you?
Wow, thank you so much for the compliment. I really have done a lot of ‘work’ and ‘soul searching’, and made many mistakes/opportunities to grow along the way to get where I am, but we can all certainly say the same thing even though our experiences are different for we are all complex and lovely creatures.
I must say that your humor is something that I wish I had more of at the ready. You crack me up often, and it seems to come so easily.
The new gal was fine. She did a great job. My other gal was trying to get into school to be a stewardess with some international airline that flies to the Ukraine and that area as she speaks English, Romanian, and Ukrainian. So, I’m hoping that’s why she left the company.
LWDana – If they don’t file charges on your behalf, it means they don’t think the case you’re bringing will benefit or add to the one they’ve already got going. In isn’t personal. That doesn’t mean you can’t sue him personally in a civil suit, though, which you could do even if you were part of this criminal trial, if that is something you feel would be in your best interest to pursue. There are attorneys who would take the case with no fees upfront and collect from the settlement at the end. Of course they won’t take the case if they don’t think it’s a slam dunk win. Deep breath…no matter what happens, he will have to deal with his own Karma.
Sista – I think the Vit D issue is important. All the baking you’ve done doesn’t matter today. What matters is that you get it daily. Vit D is a hormone not a vitamin, so our body needs to produce it. The body uses cholesterol to produce Vit D along with the sunlight, so sunblock and cholesterol lowering drugs and low fat low cholesterol diets cause issues too as does stress (coritsol) and liver and kidney issues. As we age, our production decreases.
Carol – A charred pancake is not a good thing! Is it like having a really bad sunburn?
I can’t wait to get back to golfing. I will totally have to start over since I was just a beginner before bc, but that’s OK. Hoping to get back to lessons in August.
You don’t give yourself enough credit, gal. You’ve given many wonderful shout outs to people…even if it takes you longer to figure out what you want to say. Thoughtfulness matters.
CHJ - WhooHoo on the last of your tanning sessions, and your Port is coming out in three weeks…Nice!
Yep, now is the time to just sit back and relax and enjoy your new normal. Discovering what that is will be a new adventure.
Paula – I’m so sorry to hear about your dh’s digestive troubles. Man don’t we all remember that from chemo?
Hope the onc can help with that.
I hear ya on how good it feels after a trip to get the laundry done and put away and tie up all the loose ends.
And thanks to you as well for your compliment. What doesn’t kill ya makes you stronger, right?
Oh, a porch swing sounds nice…aaahhhh.
Well off to get the day started.
Start your day with a heartfelt, “WhooHoo, life is good!”
SIS Kimberly
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Hi Jewels!!! I've caught up on the posts, but don't have much time to write today. My in-laws and nieces left this morning for my sister-in-law's house about 45 minutes away. They're staying there until Saturday. We had a good visit -- all the girls wanted to do was go in the POOL!!!! They're both 5 so they wanted us in with them too. My ds was great with them and played with them for a looooong time so my mil could sit and chat on the deck and take some pics of the kiddies.
The boating trip looks like a "go" for tomorrow --- it's supposed to be 95 and sunny here! We'll have nine total with us so it should be a fun day. The dh is on 'cation through the weekend, so hopefully we'll get some things done around the house too. OH -- I mowed on Sunday for the first time this year -- for FOUR hours!! The ds has taken that chore over since I've been recuperating from chemo and my surgery, but with him in Wisconsin, I decided I'd do it. Totally wore me out -- even though it's on a rider!
I'm right there with some of you on the hair growing every which way! I'm so ready for mine to go the way I want it to go! Right now I feel like Eddie Munster!
Well, girls, better get movin' - the cleaning ladies come tomorrow and I need to get things picked up around the house! Thinking of you all!
Take care!
Julie
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What a lazy day so far. Dd wanted to head to the mall to look at some new shorts (her paychecks are burning a hole in her pocket) and I volunteered to drive her for the company and to let her save the gas. She's such a funny shopper. She goes in and browses for about 30 seconds then tries on a couple of things and gets out. I think we were at the mall for all of 20 minutes and all of the time was in Old Navy, she didn't even shop around! My college girl is just the opposite!
On the way home we stopped at the jewelers and they cleaned my ring for me (and complimented my hair growth, which made me feel good). Tomorrow is my anniversary, so I figured I'd better make it sparkle. While I was there, I looked at the options for a medic alert bracelet. I think I'm going to put it on my Christmas list for next year. I found out you don't have to have that "in your face" red stamp thingy, but you can just do an engraved version-which is more tasteful IMO. I'm thinking I'm going to need one because I cannot have blood pressure, blood draws, or injections on my left arm ever again and if I'm in an emergency I may not be able to communicate that information. Now I have to figure out what I'm supposed to have written on the back as my instructions. I figure I'll check with my legu to see what she recommends.
Thanks, everyone, for your get well wishes for Kippy. Sometime around 4 yesty afternoon she seemed to emerge from the haze. I still have her on the painkillers and I think I'll start weaning her off of those tomorrow (the doc said 3-5 days, so I'll gradually get her off of them, rather than cold turkey and see how it goes). I did sneak a peek at her choppers and had to get my sunglasses!!!
LWDana-Just because they don't file charges doesn't mean they aren't going to use your testimony. They may have other cases that are stronger than yours which they'll use in the charges and just use your account to bolster their case. These guys are playing to win and that's what you want in the end, too, so try not to be so quick to be discouraged. Keep your wits about you and listen carefully to what they're recommending to you and just be honest. The rest will work out.
Sista-you're right on to suggest the swelling as a se of those "t" drugs. Something to throw in to the mix, Deb.
How does one "power water?" The vision in my head is hysterical! I'll have to go check out the link to the skating, Carol, thanks for sharing. You know, we've talked about counseling before, but the dh really doesn't like the idea at all. He says I just need to be more communicative and we can take care of things ourselves. We've been working on this for four years, now, I'm just learning a lot about patience. (And you know, every once in a while things are very, very good. Just today he texted "R U my anniversary buddy?" to me.)
WooHoo to CHJ!!! Rads are done! I know that was not your favorite part, so let's get started putting that memory behind us! The energy will return. Try to exercise as much as you can stand as it will help the energy return a bit sooner. Hit-or-miss and lurking are always welcome, not to worry. Just check in periodically so we know what's up with you.
Ugh, Paula, the dh's tummy must be in a really bad way if he's planning his funeral. Be sure you check with his docs on what he can be taking to alleviate the symptoms. Too many Jewels had tummy troubles with tx, so I'm sure there's a lot of sympathetic moaning going on.
Bummer, it sounds like your cation to CA is off. I know it's probably the best choice for you right now, but I can hear your disappointment. Don't you worry, we'll all get together eventually.
Oh Maz, I'm so sorry to hear about your dad. You've had a rough go of it, haven't you? That just doesn't seem fair. It sounds like everyone should be able to wait till you're ready for the sea burial. What a moving event that will be. Try to take a walk each day to keep your blood pressure under control-this will be over soon (I know, not soon enough). I think maybe a little fresh air and some good old fashioned heart pumping will keep you out of the ER, too. You can do everything that's being asked of you-you're a lot stronger than I think you realize.
SIS Kimberly-observant catch on the "hope" vs. "know." It didn't even register with me when I typed it. See, there's your "work" and "soul searching" benefitting others!
Glad your new housekeeper passed the test. I hate breaking new ones in.
Oh, wow, my dd just got the mail (Kip was even up to bark like a mad dog at the mailman-she's def feeling better), and her AP test scores arrived today. She took 3 AP classes last year (and is taking 3 again next year). In VA, if you score 3 or higher and go to a state school, you get college credit for the AP class. If you attend a college out of state (Vassar, is, of course, out of state for us), then you have to get a 4 or 5 on the AP exam for college credit. A 5 is the highest score you can get. So her results just came in-3 in US/VA History, 5 in Psychology, and 5 in English/Literature. May I say WOW and brag a bit???
Okay, I'm going to run off and straighten up a bit and do some dusting. My curtains arrive today and I want the windows to be clean for the installation. Gosh, I hope we like the fabric done up as a whole curtain, vs. the scrap we held up to the windows...
D1
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