Work - how much are you into it?
Hi all. I feel a pressing need to find out --
How many of you returned to your job after treatment. If so, did you feel the same, could you work the same?
Or -
Have any of you changed careers, changed lifestyles, (husbands , where you live - as a result of your experience?
If you could, please let me know what you did and how you are feeling now. For example, I'm Stage 3c, and am dealing with chronic pain syndrome (but I'm only 40) This is affecting my outlook on my work, my intensity, and has me questioning if I'm really really doing what I want to do with my time.
Please give me some input, I'm really struggling with these questions. Thanks!!!
Comments
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leemarberg: Im 3 years post treatment. I returned to my same job as a nurse, but I must admit its not the same. I dont have the drive and motivation I used to have. I sort of lost my spirit and cant seem to find it. I too have aches, fatigue and pains all the time. I never know from day to day how I will feel.
I to wonder about this chronic pain syndrome. Is it from the chemo? I didnt feel like this before. Im taking each day at a time and trying to enjoy each day for what it is.
Know that you are not alone.
Nicki
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Hi Lee! I am a teacher who was diagnosed at the end of the school year last year. I spent the summer vacation going through chemo. I didn't go back to work until January after my bi-lat mast. I was SO happy to be back. It was really hard, and I have had times when teaching has just been too much and I didn't want to do it anymore, but I was grateful to be healthy enough to go back. It gave me a new appreciation of just being able to get up and go to work! I did have to take it slow and make sure that I didn' t overdo it. Going back to work was the best distraction for me from this shit that we are dealing with. I don't ever forget, but when I was with my kiddos my mind was occupied with things other than bc. I am not as organized now, I am forgetful and have to make notes to myself on everything, and I had to find some creative ways to wear my hair (which grew from stubble in January to a real hairdo by June!). My kindergarteners knew what had happened, but most just thought l liked reallllllllly short hair! Now that I am on vacation again (more surgery...) I find that I am thinking about bc more. Keep busy, get distracted, work may be the answer for you! Oh, and yes my attitude has changed, but I didn't want to change jobs. I can totally see where if you have been unhappy (job, hubby...) that bc makes you re-evaluate your priorities. My favorite motto now is "Life is too short to _________ (dance with ugly men, drink bad beer, not have fun.....)
)
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I worked through treatment and surgeries. For me it was a big mistake because my health continued to deteriorate, I think I worked because I didn't have to think about my health (I was in management and it required a lot of time)...I am five years out from diagnosis on November 3rd.
In the summer of 2006 the cumulative effects of treatments and surgeries finally forced me to take time off and I have not gone back. I was put on long term disability.
I am attending college and am close to a degree in psychology...I am not sure what I will do with this but love learning so will probably go all the way with it. I have a business degree but always wanted to go back for psych, just never took the time. I guess BC rearranged my priorities for me since I never could!
I also sold my condo in the city (Houston) and bought a house near the coast in a small town, no hustle or bustle.
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I worked through surgeries and chemo. I'm about to start rads. I am a social worker and I am not nearly as anxious and driven as I used to be. Cancer tends to put everything into perspective. Now, if something goes wrong at work I don't get too stressed. It's just not worth the energy.
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leemarkberg: Very good questions. I'm getting anxious about returning to work. I do have a job to go back to. I'm trying to make sure I'm somewhat recuperated before I return. Personally speaking, I never fully recovered from my first cancer I had in 1999. I had surgery, chemo, and radiation. Chronic low energy is still my issue and all the things that surround it. (fatigue, depression, anxiety, & menopause (chemopause). I do take medications to help with the symptoms. I was off from work a year at that time; I was 41. I didn't have a job to go back to at that time so I registered with the dept. of rehabilitation.
I went back to work in 2000 and found a job thru the DOR in 2003. I'm currently 50 yrs old. Then I got BC this year (Feb. 2008). I'm doing my best to get motivated about work but it is very hard this time around. My priorities started changing in 1999 and are being re-prioritized again. (like working part-time, finding more meaningful work, etc.)
I think cancer makes you slow down in life and appreciate every day. I always tell myself, "I can't waste a day, because I have to live for the people who didn't make it." Take care.
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Pre cancer I was a slave to the world of retail. I managed multi million dollar high fashion stores, and was responsible for 20 employees and I was only in my early twenties! I was an overachiever, who never took two days off in a row, and worked weekends and holidays. I made a lot of money for the people I worked for and at the end of the day the stress from my 3 hour commute in and out of manhattan, and feeling like I had no life, left me wanting change.
But, the health insurance was a god send. When I got cancer the company was amazing, giving me vacation, FMLA and then short term disability. I went back to work after chemo and reconstruction, while I was still doing Herceptin. When I went back it was different. I did argue to work in Long Island to elliminate the commute from my lifestyle. When I went back 10 months had passed, and so much had changed. I had to take a step back and a small pay cut in order to get my bearings again. I was miserable. I went back to being the same over worked, under appreciated employee, and although I was achieving more at work than I ever had in the past, I was miserable. I would come home at night, and ask myself why did I beat cancer, to only go back to this miserable life?
And it was in that moment, where I sat within myself, and really figured out what I wanted to do that my life changed.
I made a plan. I wrote down what I wanted. I wanted a real man, a job where I actually made a differnce in the world, financial freedom, a new car, and regained life purpose.
While you may snicker at wanting a man, and a car, writing it down made it very real for me. Once I started realizing that I had to live this life for ME, and be true to what my heart wanted, the universe started making things happen.
It almost seemed out of the blue, but I got the man first, then I posed half naked in two major magazines talking about my cancer, from there landed speeches at different cancer events around the country, and from there, the idea to create breastreconstruction.org was born. I got out of debt, got the car, and still have a plan going for the future.
Has it been easy? HELL NO. Is it all worth it? HELL YES. Every tear I cried, all the sweat from hard work (and hot flashes), and feelings of defeat and hopelessness were all worth it for what I've received in return.
You have to look within yourself and decide that you deserve to have a better life. Then you have to get busy and make a plan. Make a contract with yourself to be a risk taker, and give yourself permission to fail along the way, as long as you take with you a valuable lesson.
If you are miserable, then make a change. If you think you should be living a fuller life, than make it happen. Ask yourself what your legacy is. For me, it's not about having children, or making money. When I die I want people to say, that woman inspired me to be more.
I believe that everyone has the choice to live their best life. And it doesn't mean that there won't be serious road blocks along the way.
There is a great quote that I live by:
"There is no medicine like hope, no incentive so great, and no tonic so powerful as expectation of something better tomorrow." --Orison Swett Marden
Be the change you want to see in your life...
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I was worried about going back to work because I was out for almost eight months. I must say that I was very grateful to my company for holding my position and I was anxious to get back into the groove.
Fortunately, I did not have any trouble picking the job back up and being able to do well. I've been back over ten months now and we've had a bunch of recent changes. I'm so glad to be here during this transition.
My job description did change and I'm not required to stand as much as I did in the past. This happened right in time for my decline in health which makes it too difficult to stand for any period of time. It just seems like God is taking care of each problem as it arises.
I don't have a husband, so I have to work. It's just icing on the cake that I love my job and my colleagues.
I'm grateful for every day the Lord has for me. I will say I don't have the energy to do much more than work, so please don't look at my house!
But that's okay, I belong to the just can't get it together group and we're not allowed to do housework anyway.
Miss S
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I retired from my job of 25 years last summer. I had no idea at the time that I would be dealing with BC just 6 months later. Now that I've finished chemo, my life has settled down. I honestly do not miss working, even though I thought I would. I know some people enjoy working, or even need to work, during their tx's, because it helps them focus on something other than cancer. For me, work would have been very difficult to juggle along with my BC treatments. Now that I've finished tx (except for an AI), I have things I really want to do in my life--and my former job is not one of them.
otter
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I went back to work after my mast and first chemo treatment, and am working eight days out of every three weeks during chemo (have chemo on Thursday, go back to work ten days later on Monday). I don't feel the same about it. My job is technical and I just don't argue the technical issues with as much passion as I used to. I am now focused on training my successor/replacement and will retire in January. Plus, conditions at work have deteriorated and relations between labor and management are beyond not good into ugly.
January can't come soon enough for me.
Sue
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I worked all during treatment. I'm a 7th grade English teacher and, at the time, I was sooooo glad I did. I needed to be around those kids and to feed of their energy. Now tho - I'd love to quit my job. I have a one year old, and I feel more this time what I'm missing with him. I worry sometimes about the what if. What if I'm not around when he gets older and I wasted the time I had with him by working. But I can't live in what ifs.
The other fact is - I don't love my job like I did but I'm at a loss as to what to do. I took a class this summer to get my media specialist license but I'm not at a place to want to be back in school. Again I'd rather be spending time with my kids and not yelling at them to leave me alone cuz I have homework to do. What a way to waste time with them! So that's on hold for now.
What i've done instead is looked for ways outside my work to enjoy life more. I'm running again. I started violin lessons (I'm awful!) and I shut the tv off more when the kids and I are home. i've also signed up to be a Chemo Angel again. That kind of stuff. Things to focus more of my contentment on beside my work.
So to answer your question - no career changes but I have made changes in how I enjoy the rest of my life.
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Side note - is that a bichon in your pic? We have one named Whitman. He's 10 and a dumb fluffy sweetheart
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magsandmattsmom:
Yes, now I uploaded a pic of my 3 Bichon's - they're lovable, but a handful.
Everyone, thanks for your input. All of this rings true. And, an answer to chemosabi - I have chronic pain syndrome 1st from some chemo side effects, then nerves growing back funny in my arm after mastectomy and 2 node removals, then I had an oopherectomy and went on Femara which added to my musculoskeletal pain and put some joint pain on top of it. A slew of things combining over time!
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I am a couple of months past rads now, and I'm starting to turn back into an employee.
I know that I am one of the lucky ones - lumpectomy, partial breast rads, and no chemo. [Hardly cancer at all, right!], but it has been hard getting back into being productive at my job. My attention span resembled that of a gnat - all I did was browse the web, and read about, I don't know, maybe breast cancer. I had a major deadline that I almost didn't meet (really not my fault, as they forgot to tell me some of the info I needed to get done), and had to kill myself, and that seems to have gotten me back into my groove.
I appreciate my employer so much more - everyone has been so kind, and my boss has been supportive of "employee noted weeping quietly in her pod" and the tamox mood swings seem to be under control [maybe I shouldn't have said that out loud].
But I no longer want to be super-employee-mom-wife-wonder woman. I want to kick back and enjoy a bit more. That means paying more attention to my physical and emotional health, exercising and eating properly. I have back and knee issues, and I let them get me more and more inert. I have lost over 40 lbs since I found the lump, and now work out 4-5 days a week. We want to do some really good vacations, and I need to be strong to do that.
Maybe, my blessing will be that the cancer was a wake up call, and I will get the rest of my health where it needs to be. That'd be nice.
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OMGosh 3 of them!!!!!!!!!!!! They are so darn cute!!!! I love bichons except that ours is really dumb - I mean dumb. I got lost in the kitchen once when the lights were out!
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I had a bichon growing up-- his name was Frizzle. He was the best dog--
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I worked through chemo and rads. Really liked my job, not love , but like. Now I'm there because I need to be there. Money and all that stuff. I look forward to retiring, but I still have another 10 years to go.
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I went on disability as soon as I had my surgery. My job was very physical and required a lot of strength, agility and stamina (I was an EMT). So I sat on disability for a while, going through chemo and recon. It didn't bother me; I didn't really miss working because I had young children at home and it gave us more time together, as I was a single mom. After my exchange surgery I went back to work part-time, working in the equipment room (inventorying and dispensing equipment) but I really didn't like it. It wasn't the same as being on the truck and doing the fun job.
So I went to school to try to be a teacher, but after working my heart out for almost a year and doing more papers and presentations and journals and what-have-you, while student teaching, I had a kid who accused me of slamming his head through a wall (of course it wasn't true) and I was suspended pending investigation, during which they forgot about me, left me to sway in the breeze, blah blah blah it was soooooooo awful and traumatic I couldn't continue. I'm still suffering emotional fallout from that.
So I took a temp job at a bank, working in HR. I worked as a temp for 4 months and then they hired me, and that's where I am now. It doesn't pay much and I have a lot of responsibility, but it's a paycheck. I still feel like I'm rudderless and don't know where my future lies. Next month will be one year in this job. My diagnosis was almost 4 years ago so you can see how this kind of thing can really derail a life.
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My husband and I are self-employed, so I worked when I felt like it. While I was doing chemo, I didn't work too much---maybe 1 day a week. Finished chemo in March, then bilateral mastectomy and hysterectomy in April, and I'm working several days a week. I love seeing our customers. Gets my mind off my problems.
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Oh!! I wanted to add one more thing. I saw the comments about the cute dogs. I love any kind of dog...and they are adorable. I have two dachshunds (Lucky and Opie) and they are 12 and 13 years old. Actually, they're my sons! I have one daughter too....but she's human and 20 years old
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Thanks for all the comments. I actually laughed out loud at "employee quietly weeping in pod," !! Hormonal changes w/ the entire experience make me feel like an entirely different person. I'm still trying to get to know my "new" self.
I should probably start a thread about the dogs too. We got our eldest, Aldo, during chemo -- how crazy were we!!!?? We can him our "chemo dog" secretly. He's special for us. I wonder how many people had their dogs to Really get them through. I bet a lot. Would have seemed silly to me before ( I never was a dog person), but now seems perfectly reasonable. And yes, Bichon's aren't the smartest, but they are certainly absolutely loveable.
I think I'm going to find a middle ground at work (perhaps people will get it then and stop coming to me like I'm still the superwoman who will solve all problems and is invincible), focus on my new hobbies, and take some time to figure out the future. Good luck to all of you!
Leanne
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Leanne:
We got Casey shortly before my 2nd round of chemo she seemed to know that I was not felling well and would not let me out of her sight. Animals are great therapy!!
Laura
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My friend with a couseling degree told me i have PTSD, for your family it's a bump in the road, now we are feeling better so everything is close to normal, for us it's OMG I'll never be the same again. I am getting ready to change jobs. I work in an office as a bookkeeper and can't wait til the day is over to get out of there! Loved it before BC. Now I'll be teaching at my church's preschool and cleaning our church. Makes me feel like I'll be doing something more worthwhile and not just making someone with lots of money more money. I'm 42 and never have decided what I wanted to be when I grew up so i just do things that make me happy and pay the bills. Fortuntely my husband carries our health insurance. I'd like to be a waitress at some point in my life also kind of like my "bucket list"
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Laura---your story reminds me of one of my dogs. I have two dachshunds (Lucky and Opie). Everytime I came in from a chemo treatment---or even Herceptin----Opie gets up in my lap and smells around my port area. I'm sure it's all the medicine that he smells, but he's so sensitive. It's like he's hugging me to let me know everything will be ok. It just gives me a warm fuzzy
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peapot,
I had to laugh when I read you want to be a waitress at some point in your life:) been doing that since 93. Actually, I really enjoy my job, when I was diagnosed five years ago I couldn't work for seven months, it was hard physically to go back to work, just because it is such a physical job and you're on your feet with no breaks, but it's a fun job and the money's good.
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I have to be honest I threw myself into work after the diagnosis but since the surgery, expander and fills I am honestly not that into it. It seems to lack meaning and I am tired, maybe working the whole time was a bad idea. I think when they do the exchange surgery I will use the vacation time I have.
The start of mean o pause does not help either.....
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Thanks for all your insightful posts. I think for me the "just not that into it," seems to crop up a lot when I ask this in other groups. And this from people who were Very into it before.
This must be the inevitable way that the cancer experience widens our vision about life and then alters some of our perceptions in ways that we could not have thought possible before.
By the way - I was intriqued about how the "pet" topic picked up here. I continued it in another thread "Help Me Get Through Treatment"
Leanne
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