very old survivor

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aprillouiser
aprillouiser Member Posts: 2
very old survivor

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  • aprillouiser
    aprillouiser Member Posts: 2
    edited April 2008

    ok, a little history....I was first diagnosed with breast cancer at age 30...I had a three old daughter, my mother had died of breast cancer when I was still in college and I was scared as hell when I found I had the same prognosis.  At age 30 I had a mascectomy on one side and then it wasn't too long later that my doctor said we needed to do the other side since it was only logical that the cancer would return and sure enough there was the start of another tumor.  As a result of very aggressive chemo 25 years ago, I'm still here.  The grandmother of twins!

    But just to complicate things....3 years ago I contracted the most "white bread"  form of breast cancer because my original doctor had left a little bit of nipple tissue.....So...now after more surgery, chemo, and now on Arimidex I am moving forward.

    I have survived for over 25 years with breast cancer.  It has not been easy, and certainly this last bout was very hard to swallow, but i will not succumb to this disease.  I want to be a grandmother to my twin grandchildren and be here for my daughter and husband .  I will do my best to put up with Arimidex and all the other crap the medical world throws my way.

    My daughter named her daughter Reagan Hope......Hope was my mother's middle name (who my daughter never knew)  but the reason my daughter chose Hope, was that she hoped someday there will be Hope for all of us that breast cancer is cured.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2008

    (((aprillouiser)))

    All I can say is "welcome welcome welcome".

    You're the stuff that dreams are made of! 

  • lastminuteD
    lastminuteD Member Posts: 333
    edited April 2008

    Thank you for sharing your story aprillouiser!

    You bring hope and sunshine to all of us!

    Congratulations on those grandbabies!

    Dawn 

  • NaughtybyNature
    NaughtybyNature Member Posts: 1,448
    edited April 2008

    A 1,001 CONGRATS TO YOU and many many more to come!

    What a wonderful story.

    (((((((((((((((Hugs))))))))))))))))))

  • wishiwere
    wishiwere Member Posts: 3,793
    edited April 2008

    Wonderful story!  Thank you for sharing it!  And we'll hope and pray along with you, your dd and grandchildren, that none of them will have to face this monster in their lives!

    Wow!   25 years with 3 chances to beat the devil at his play!  WAY TO GO!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2008

    Amazing, aprillouiser! Congratulations! I do want to add, though, that I hope by "very old survivor," you are referring to the "oldness" of your survival and NOT your age in years Surprised? I'm 55 years old too and consider myself just entering "middle age"!!!! Laughing

    ~Marin

  • LUVmy2girlZ
    LUVmy2girlZ Member Posts: 2,394
    edited April 2008

    Apprillouiser ~

    Thank you for posting such wonderful news to us ...and you!!  Congratulations on your 25 years and may there be many many more !

    LUV

  • lemonpie
    lemonpie Member Posts: 183
    edited April 2008

    THANK YOU for sharing your story. I can't tell you how much it means to me to hear such determination and hope.  I'm facing a second diagnoses and like you I want to be around for my grandchildren, my son and my husband.  Thank you for sharing.....  mmc

  • candie1971
    candie1971 Member Posts: 4,820
    edited April 2008

    Thank you for sharing your story with us. Good positive stories are very helpful and up-lifting. Congrats to you on 25 years....many more!!

  • lexi4
    lexi4 Member Posts: 1,074
    edited April 2008

    Thank you so much for sharing your story with us. It will bring much hope to many of us. I wish you many more healthy and happy years ahead!!

    Lexi

  • Jenniferz
    Jenniferz Member Posts: 541
    edited April 2008

    25 years!! Wow!!  Success such as this is the best news ever!

  • lemonpie
    lemonpie Member Posts: 183
    edited April 2008

    Again, thanks for sharing your story but I dont know what "white bread" form means!! 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2008

    mmc...I believe that she means IDC because that is the most commonly occuring form of BC.

    ~Marin

  • lemonpie
    lemonpie Member Posts: 183
    edited April 2008

    Thanks Marin... that makes sense. 

  • faithandfifty
    faithandfifty Member Posts: 10,007
    edited April 2008

    Whoooooooooooo hoooooooooooooooooooooo!!!!!!!!!!!!!!!!!!!!!!!!

    We're so glad that you've found us!! The voice of reason, experience and hope. I'm awaiting the birth of twin grandchildren, any moment now myself. Thrills & chills reading your story.

    Thank you!

  • feg1
    feg1 Member Posts: 16
    edited April 2008

    That is wonderful that you are a longterm survivor.  Are there other stories out there for longterm survivors with stage 3c breast cancer.

  • CalGal
    CalGal Member Posts: 469
    edited July 2008

    Aprillouise -

    Congratulations on being a 25 yr survivor!   That's great.

    If you don't mind, a couple questions for you ...

    - Did you ever consider speaking with a genetics counselor re:  the BRCA test?  Both pre-menopausal bc and bi-lateral bc are red flags for the BRCA mutation.

    - While your recent bc is hormone positive, was your original bc tested for er/pr + or - ?

    - By "white bread" bc, do you meaning IDC that is er/pr + ?  It also sounds like your original bc dx was something different.

    Hope there is no more bc for your family! 

    CalGal 

  • pinoideae
    pinoideae Member Posts: 1,271
    edited July 2008

    Aprillouiser, good to hear a longterm survivor story.  Thank you for sharing that, and congratulations to you.

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