Anyone starting chemo in June 08

Hi Everyone,

I am finally back on here, just got out of hospital which I had been in for 5 days. I think I was on here telling everyone how terrible I felt well my white blood count was at 0. I had a sever case of thrush in the mouth and was severely dehydrated. Just got home yesterday and feels so good. This was the TC which I really do not like the AC for me was much better except they say it can cause heart damage. So who knows. Missed everyone on here have to go back and read some letters when I feel a bit better.

Love you all

Bonnie

Karen,

Yes we are on very similar therapies!  I think Aloxi is the best drug ever.  Did you get that as a pre-med?  My biggest problem so far was constipation.  So once that was taken care of I felt like myself again.  I am having other symptoms but I am attributing them to being pregnant... getting hot, heart burn, constant burping YUCK.  I am a bit more tired and am going to bed around 9pm.  I also got a neulasta shot the day after chemo.  I hope that helps since I am going to try to work as long as possible.  I work in  a pharmacy and those sick people come in there all the time!! 

I ordered a few hats yesterday.  I just can't imagine myself hairless yet.  My DH and I take turns bringing my 19 month old little boy into the shower at night.  He points to my remaining breast and says "boobie" then the mastectomy side and says "boo-boo" then down to the belly and says "baby"  It makes me laugh every time! 

My MD and I are going to have the port discussion on July 7th.  I don't really want one, but if it will make life easier. 

Bonnie, had you gotten a neupogen or neulasta shot before?  How scarey to not have a WBC count!  I am glad you are feeling better.

Ellen

I had my second chemo treatment and then went on vacation in Florida. A little more nausea feeling than the last time, but better in many ways. This trip was planned and tickets bought before I was diagnosed with BC so I was determined to go. Everything I did seemed to be outdoors which made it kind of rough the first couple of days. I wore a big hat and stayed out of the sun as much as possible. My son said I looked like an islander when I wore my scarves. I drank lots of water and stopped to rest when I needed to. I was worried that my port might set off the metal detector at the airport so I took my port card with me. It did not beep. However, I was singled out as a suspicious character on the return trip because I was wearing a head scarf. I thought they might search me or make me take the scarf off in the public airport but they only made me pat the scarf down, then wiped my hands with round pads which they scanned in a machine for residue of some kind. The lady was nice when I told her I was getting chemo and that was the reason for the scarf, but they did the test anyway. I had some sentinel nodes removed with my breast surgery and was concerned about whether I needed to wear a sleeve, but my doctor said no and I had no problems. Now I'm back at work and exhausted.

hey ladies;This liz19 i was also in the Hospital on the twenty of june and i got out on the next tuesday, my  wbc dropped down to .06 when i got to the ER , that was my first treatment , my

DR. said my trreatment might have to be reduced down on other ones. i got bloodwork on tuesday of this week, i got to see my onc dr on thursday still , please pray for my other ones to go better than my first one. talk to you nice ladies soon.      liz19

Bonnie, I have AC also so my doc had me get an echocardiogram(sp). Went fine, I have a great heart.

Started to lose hair. Not a lot just when I run my hands through my hair I get strands that just come out. Went and got my wig ordered. Working wtih a gal who went to school for hair replacement and wigs. She is wonderful. Said she could make be beautiful!! THAT's good as I wasn't before.HAHAHA.

Leaving to go to my Mom's for the weekend.

Everyone have as good a 4th as possible. Keep thinking positive and laughing!!

Bonnie......I'm so sorry that you are having such a rough time.......glad you are back at home......and hoping things get better from here!

Cheers

Jax

Hi, I am from Feb 07 group, and we "alumni" monitor the new sites to see if we can help.

As to the neulasta question, the manufacturer's own website says it should be adminstered 24 hours after chemo.

"The recommended dosage of Neulasta^® is a single subcutaneous injection of 6 mg administered once per chemotherapy cycle. Neulasta^® should not be administered in the period between 14 days before and 24 hours after administration of cytotoxic chemotherapy." http://www.neulasta.com/professional/pi.jsp#dosage_and_administation

It may be an exception due to the holiday, but I remember my onc being very cautious about this. I couldn't get chemo on friday cuz the center was closed on Saturdays, and i wouldn't be able to get my shot.

Checking manufacturer's websites is usually very helpful!

Best of luck to you all... and please reach out if we can help in any way.

crap, head shave tonight.....husband did a great job but I find myself sick to my stomach.  I'm trying to medicate myself with some beers.  This was a little harder than I thought.  Once again..maybe I am a whoosie! HunkyD

Vino/vespa....1

It was day 16 on the nose.  Clumps...couldnt stand it. It is not what I expected at all.  I just could not stand the strands coming out everywhere.  Guess everyone is different though.  All I can say on this board is CRAP.  P.S.  There is a smidge of head pain when it starts going.  Like a bad sunburn to the part in your hair.  That was my experience anyway.  Cheers! HunkyD

Hi everyone. I had my second tx and lost my hair also on day 14. I  was just sitting there talking to my kids and wam out came gobs of hair. I cried, they cried dh grabbed me and said sorry. Now is am like I have a new beginning.

Did anyone out there have any fissure issues? I am having a terrible time. Have one great BC friend helping but just wondering if anyone else can help?

Thanks,

I've definitely been having a lot of headaches, and silly me, I just put it together that it's likely the wig.  It doesn't *feel* that tight going on (just tight enough that I don't worry that the wind will blow it off), but after a day of wearing it, it's a huge relief to get it off.  And yeah, I have indents in my head afterwards.  I haven't reached the point where I'm brave enough to wear just scarves in public.

HunkyD.....I think I will do just that.........thank you for the brilliant idea......I think that will feel........exhilleratiting(sp?)......I'll let you know how it goes........still holding fast.......but I'm only at day 9........pain in lower back.....probably neupogen?......achy......but manageable.......who's experiencing the bone pains.......and what is working for you?

 Happy 4th to the girls to the south!

 Cheers

Jax