Mom won't talk to me about her Diagnosis- for the 2nd time

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sadinbaltimore
sadinbaltimore Member Posts: 4

My mother who is probably the youngest most active and healthy 53 yr old nurse around was just diagnosed with breast cancer again.  She was diagnosed 5 years ago and they performed a Masectomy on her right breast.  After reconstructive surgery she was able to create a new breast from fat in other parts.  Now 5 years later we found out from her 6 month check up that she has a mass in her sentinal lyphmatic node in the same breast.  After a biopsy found that it was cancer, she is having a PET (full body) Scan today and awaiting results.  She is lucky to be very good friends with the Head of Oncology for a large hospital in Philadelphia- so she is in a good spot care-wise.  She just won't talk to me abotu it all.  I'm convinved the only reason I know about all of this was because I was with her, shopping at the beach when she got the call from her doctor.

I really don't know much abotu the situation- and she won't give me or my family many specifics in fear we'd worry too much- her first thought after getting off the phone, who will take care of the dog and my dad, and for me to NOT tell my sister, and that we'd wait to tell my dad. 

We all live about 3 hours apart I just happened to be in town (to be there when we got the results good or bad) and my dad, who lives with her is battling his own rare disease in his eye- so she tries to buffer information so he doesn't worry too much.

I feel so lost and I feel like i can't ask her about anything because when I do, I can just hear her voice start to shake and I don't want to make her cry.  I know everyone deals with things differently but after the first time around I just felt like we did everything right- were so precautious, so thankful, it was like a second chance, she was already a really healthy person, eating right, working out, and taking every preventative vitamin, or medication under the sun and I definitely showed my appreciation more...since the first time around i didn't know it was as bad as it was...  but now I feel so lost- I'm right here, matured, and ready to be the shoulder she needs and I want to know everything but she tells me and my father to not go to Apts with her, she takes her sister, since she is a nurse.

I feel really left out- I want to help- All I can do is pray.  Has any other young women been put in the same situation?

Are there certain things I can say besides the obvious that I'm there for her?

I don't want to upset her but I want to be more knowledgeable about everything that's happening. I can't even do the research or anything because I hardly know anything about her condition. 

 Is it regular to breast cancer to occur after a masectomy?

 if it's in the lymph nodes does that mean it will travel quickly in her blood?

What is radiation/chemo? How often does it happen?  1/week 1/month?

Any answers, support and even prayers are Greatly appreciated...

Comments

  • abinneb
    abinneb Member Posts: 550
    edited July 2008

    You are in my prayers sad in baltimore.  I have no experience with recurrence so I am unable to post about that.  So sorry that you have to revisit the awfulness of cancer.  You sound like you are strong and capable of dealing with whatever comes your way and I will continue to say prayers for your mother that she can place some of her cares in your hands.  I know it may sound corny, but I was watching Army Wives and the daughter said to the mother - 'show me the mother and I'll show you the daughter' in saying how she could handle things because of the impact her mother had on her life.  Maybe you could say something like that to your mom?  Tell her that she raised to be to strong and ask to be let in to her circle to help provide support.  Perhaps she is worried that she will fall apart if she shares her worries?  I reallly don't know what to tell you except that you and yours will be in my thoughts and prayers - I will add you to my list and pray for peace and strength for you and your family. 

    I'm so glad I found this site.  It has helped me from the moment I joined.  Continue to post here and ask all the questions you want - you will always find support and prayers - and help - here

    big comforting hugs to you

    Amy

  • roseg
    roseg Member Posts: 3,133
    edited July 2008

    We Mom's can be kind of cagey about ourselves with respect to our kids!

     I know she's not clamming up to shut you out. She has to process things in her own way. She certainly doesn't want you not to live your life the way you would just because of her. 

    I like the book by Susan Love. It's very comprehensive. It's in most libraries, probably even the ones in Baltimore. Why not get that and read it? It will bring you more up to speed about the disease and what she's facing.  Then when you talk with her she won't feel like she has to start from square one in talking with you.

    While 53 probably seems kind of old to you, she's really pretty young. Let her manage herself. Make her proud of you by doing the very best you can at what you're supposed to be doing.  As a Mom myself I know that the last thing I want is for my kids to change their lives because of me. 

  • abinneb
    abinneb Member Posts: 550
    edited July 2008

    Sad in Baltimore, - forgot to tell you to post in this area in the discussion boards "recurrance and metastatic disease" - I'm sure you could find much help there

  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited July 2008

    For someone who is in the throws of scanning and testing and what not, I really don't want to talk about it. Especially to my mother! A little role reversal. She will share when she is ready. Give her some time to digest it herself.

    Janis

  • sadinbaltimore
    sadinbaltimore Member Posts: 4
    edited July 2008

    Thank you so much for all the posts-

     Coming from people who are going through it or have been there- its helpful to see another point of view... it's not about me... I just have to be patient and wait. 

     I'm going to look into that book...

    God bless all of you compassionate women.

  • mary6204
    mary6204 Member Posts: 373
    edited July 2008

    I'm so sorry that you feel so left out.  Hopefully your mom with will discuss it more with you when she's accepted it herself.

    In answer to your questions at the bottom:

    1. My surgeon told me that he has found occurrances in breast that have had mastecomy's, just how common it is I'm not sure.

    2. There are a lot of lympth nodes and it certainly doesn't mean that it has gone beyond that.  Some woman might have cancer in the first couple and the rest are okay.

    3.  Chemo is given in most cases every other week.  The regimen I'm on is every 3 weeks, it will depend on what kind of BC it is.  Chemo is given in an IV form and most woman have around 6 or 7 treatments total.  Radiation follows chemo for most woman.  It's quick and although I hear towards the end the breast can get pretty red and you suffer from a burn like a sunburn, there are products that can help a lot. Radiation is usually 6 weeks, 5 times a week.  It doesn't have as many side effects as chemo, in fact a lot of woman sail through that. 

    Hope that helps, if you have any more question feel free to ask.  Your a good daughter and I'm sure you'll get your answers soon,  Mary

  • sadinbaltimore
    sadinbaltimore Member Posts: 4
    edited July 2008

    Thank you again... got some good news from the PET/CT scan--- all clear today.  Now moving forward with Surgery next week and then Chemo --- Then radiation like you said Mary.  I'm so thankful she's shared all this with me this afternoon- it must've been the prayers because she called me before checking out of the doctors office.  I plan to be in touch over the next few months... I look forward to moving home with Mom & Dad for the Chemo... and living at the beach :)   In addition i was let go from my job the day she had her biopsy--- I think this was all in God's plan...

    Thank you again and to all women of all different faiths on this website I'm thinking and praying of you and your families... and especially your kids.

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