continued Tissue expander pain!!

Options
13940424445105

Comments

  • kes
    kes Member Posts: 559
    edited June 2008

    Bsnevada,

    That is great news. Take small fills as they are easier. Tomorrow is the great unveiling of my foobs. I will post and let everyone know. I will be so happy to get rid of the foam across the chest, and surgical tube top. One more baby step in this whole crazy process.

    Kerry

  • Linda54
    Linda54 Member Posts: 2,689
    edited June 2008

    I had my last fill today!!!  My rad breast has 340cc and my other has 320cc so I expect to be a small C which is what I wanted.  I have not had any pain with my fills.  Just tightness for a few days.  I go back to my PS in 4 weeks to see how my rad breast is stretching.  It is just lagging behind.  Still don't know weather to go with saline or silicone.  Hopefully exchange will be in Aug or Sept.  Kerry, hope you are thrilled with your new foobs!

    Linda

  • Dejaboo
    Dejaboo Member Posts: 2,916
    edited June 2008

    Cant wait to hear from you tomorrow Kerry!

    Congrats on your last fill Linda.

    Pam

  • kes
    kes Member Posts: 559
    edited June 2008

    Hi Ladies,

    The great unveiling was today. And I have to tell you all that I am pleased with the results. The most uncomfortable thing was to wear that piece of foam across the top of my chest to keep the implants from creeping up. Even the PS was pleased and said that the foam must have worked. I never thought that they would feel this way. They feel GREAT!! Hang in there all you brave souls because I never thought that I would see this day back in FEB 08. Keep taking the pain pills and go slow and easy with the fills. You will get there and it is ALL worth it in the end. So go for the size that you want. I had anatomical silicone (gummy bears) implants inserted and they feel like boobs. I am amazed!!!! The PS wants to see me in 1 month and she wants me to massage them and wear steri-strips on the incisions for a month. I asked when I could get fitted for a new bra and she said to give it a month for things to loosen up, drop and fluff. No underwire bras for a month as she does not want the wire to push in to the foobs and she thought that I would not be able to feel that. I can't stop looking at them!!!! And I still have the cleavage!! I have a lot more skin sensation than I thought I would and my surgery was only on June 6/08 for the exchange. I am thrilled. This is well worth all the expando pain. Hang in there ladies, it is well worth it. And let me know how the rest of you do. Any questions, just ask. And they are perky.So much more comfortable than the expanders.

    Take Care,

    Kerry

  • sandym
    sandym Member Posts: 101
    edited June 2008

    Kerry,

    Your report is the best news ever. Congratulations.  There is hope! My bilat was 3/6/08 and I'm looking at September for the exchange.  I'm just about done with the fills. I've cancelled my next one and plan to wait until chemo is over.  It was getting to be too much.  You seem to have worked through it all. I haven't gone back since the surgery and then the chemo.  I'm a dental hygienist and it can be very physical plus I had loads of sick time I was losing.  Now I'm off for the summer but I wonder about how much time I'll need in the fall for the exchange surgery?  Have you been working since your surgery 6/8/08 (my birthday, so I remember)?

    Sandy

  • kes
    kes Member Posts: 559
    edited June 2008

    Sandy,

    I had my bilateral mastectomy with tissue expanders on Jan 25/08. I was off of work until May 13/08. Then I went back to work for 4 weeks and now I have taken 2 weeks off of work for the exchange surgery. My PS told me that the exchange surgery was "a piece of cake" and I was very hesitant about another surgery. It was very straightforward and I was only in the O.R. for 1 hour and 15 minutes. Take all the time off that you can. I find that it takes time for the mind to catch up to the body in the healing process. There is hope and the implants are soooo much softer and feel way better than the expanders. I am amazed.

    Take Care,

    Kerry

  • JanCM
    JanCM Member Posts: 62
    edited June 2008

    Kerry, I am so happy for you.  I will be getting my "foobs" Monday and your news really excites me.  Every time I hear of one of you ladies getting the exchange, I get so hopeful and relieved that it is really a fantastic change.  Congrats!

    -Janelle

  • Christianne
    Christianne Member Posts: 76
    edited June 2008

    Kerry,

    You are a huge encouragement to me.  I have had 7 fills so far and the last two have been just about unbearable.  I had my last one learly Friday morning and was in terrible pain Friday, all weekend, eased up somewhat on Monday, and was noticeably better yesterday.  I have called two nurses to ask if waiting longer in between fills would help and both nurses said it would make no difference.  I guess I want to get this over with, so will go ahead and repeat every Friday until I'm done.  I can hardly wait to get this awful expander out!  It is so uncomfortable.  It is so, so, SO encouraging to hear that the final implant is so real looking and feeling.  Are you going to do the nipple thing too?

  • VBG
    VBG Member Posts: 227
    edited June 2008

    hi Ladies,

    A couple of things.....my alloderm was $6324 times 2, one for each breast.

    My worst pain from expansion was the port, which on me is at the top of my breast.  This port was digging into my chest wall, I could not take a deep breath or cough without pain.  The pain was on my rad side where there was no fill coming out of surgery then 100cc on the first and 50cc on the second.  I then pushed for 100cc on the latest fill to help "lift" the port and put more cushion under it.  This worked......finally I am pain free!  I still have a number of fills ahead, especially on my rad side where they are filling slowly.  Now that chemo has started I will fill every 3 weeks.

    Good luck to all!

    Valerie

  • rubytuesday
    rubytuesday Member Posts: 2,248
    edited June 2008

    Kerry, I am sooooooooooooooooooooooo happy for you!!! Welcome to soft foob land!!!  LOL  Now try to keep your hands off of them (at least in public!!!!).  I think I spent more time 'feeling' mine than my DH spent TOTAL in all of the years we've been married.  I just couldn't keep my hands off of them.....ROFL!  ENJOY

  • rubytuesday
    rubytuesday Member Posts: 2,248
    edited June 2008

    Sandy, I took 7 days off for my exchange w/lift & augment on my 'good' side.  I couldn't even tell that I had surgery on my recon side.  Any discomfort I had was on my lifted/augmented side.  I was fine in 7 days to go back...the only problem I had was opening heavy doors.  Best wishes

  • tmac
    tmac Member Posts: 236
    edited June 2008

    Valerie,

    Thanks for the alloderm amt.  My hosp. bill is under review per my request, and I had to practically beg my ins. co. to look into it!  They've already paid their portion, but $31,000 vs. $8 to 12 grand is a BIG difference.  I finally will be able to speak w/my clinical nurse tomorrow (she's been on vacation).

    Teresa 

  • sandym
    sandym Member Posts: 101
    edited June 2008

    Kerry and rubytuesday,

    Thanks for the reassuring reports.  I don't want to wish away the summer but then Sept. can't come soon enough. 

    Sandy

  • kes
    kes Member Posts: 559
    edited June 2008

    Hi Ladies,

    Christianne,   If you wait longer between fills it should make a difference and give your muscles more time to loosen up. I do not agree with those 2 nurses that you asked. I am going to have the nipples done and the tatoos also. My PS told me that she does the nipples in the clinic. I have not asked about them too much. Wanted to let the implants settle and get nice and comfy.

    Ruby,  I cannot stop looking at my implants. Always pulling my top up and looking in the mirror.LOL!!!

    Take Care,

    Kerry

  • tmac
    tmac Member Posts: 236
    edited June 2008

    Kerry,

    I'm LOL, too!  Gives me something to look forward to come August!

    Teresa

  • kes
    kes Member Posts: 559
    edited June 2008

    Teresa,

    It will feel so much different that you will not believe it. August is not that far off. I have to go and look at my new foobs again!!! I keep looking at them, can't believe it!!!

    Kerry

  • JanCM
    JanCM Member Posts: 62
    edited June 2008

    Ok ladies, I have officially began the countdown.  Three more days!! Monday afternoon is my exchange surgery!  I will be getting 550 cc high profile silicone implants.  I no longer know if I will be bigger or smaller than before.  As so many of you have said, "it will be what it will be."  Following all of your stories here on this thread has made my journey much easier.  I am so excited!  Thank you for your willingness to share your experiences on this forum.

    "Bras" off to me now!

    -Janelle

  • bestock
    bestock Member Posts: 322
    edited June 2008

    What exactly is alloderm?

  • bestock
    bestock Member Posts: 322
    edited June 2008

    What exactly is alloderm?

  • bestock
    bestock Member Posts: 322
    edited June 2008

    What exactly is alloderm?

  • tmac
    tmac Member Posts: 236
    edited June 2008
    Check out the alloderm thread and www.lifecell.com if your PS is planning on using it in surgery.  Alloderm is donated human tissue used in the reconstruction process, but also for other procedures, too. 
  • PhyllisCC
    PhyllisCC Member Posts: 397
    edited June 2008

    Janelle,

    Best wishes with your exchange surgery.  It will be so much nicer for you.  I never post on this thread as I was lucky to have very little discomfort with the process.  However...when I had my exchange 5/29....what a difference.  So soft and squishy.  And I slept on my right side and stomach for the first time since Nov 07.  Wow!  I had a unilateral mast with silicon gel implant.  We are still working on getting a match...it's close and I didn't need a lift on the good side (I'm small..nearly B, but had Natrelle 575 mod-profile implant) It's not perfect...and I'm still a bit sore, but my PS says to give it 1-2 months to settle.  I've also decided that I will get the nipples...as I think it will make them more "real" to me.  Good luck to all of you.  The exchange is so much easier than the mast. Phyllis

  • billsgirl
    billsgirl Member Posts: 39
    edited June 2008

    Hi ladies,

    I hope I'm in the right place with my questions/concerns...I just had my exchange surgery June 18 and I will remove my bandages tomorrow. I'm afraid of what I'll see. Will I be disapointed? I keep hearing about "hamburger buns" and "dropping and fluffing".

    I know I should be grateful for my health and feeling great. I'm thrilled to be done with expansion, but after coming through a bilateral mastectomy, expansion and chemotherapy, I was looking forward to a "gift" at the end of the journey - pretty, perky and slightly larger-than-I-started foobs. I can peek down my dressing and they look rather flat and small. They're a pretty shape and soft but much smaller than I expected. I trust my PS implicitly and was sure he understood what I wanted. Agh! Please reassure me Embarassed

  • kes
    kes Member Posts: 559
    edited June 2008

    Hi Ladies,

    Billsgirl,  When you have the bandages off you need to give it sometime to settle and fluff. Things will look different as my implants are not the same size and shape of my natural breasts. Much more perky. I am looking at them a lot right now and I am pleased with the results and I do have a cleavage that I have never had before. This is exciting. I will give it time and if they do not settle and fluff as to what I want then I will ask the PS for an implant swap as I feel that I have been through sooo much as I want to have the best results possible for foobs that I can get. Does that make sense?  But give that whole process time. My foobs are loose on the top, but they are still tight at and aroune the incision lines. Your PS probably knows what you wanted. This is a nervous time right now, not knowing what you will end up with and will I be happy with the results? I hope that things work out and post after the exchange.

    Take Care,

    Kerry

  • billsgirl
    billsgirl Member Posts: 39
    edited June 2008

    Thanks Kerry. I will admit that I was anxious about removing the bandages, but when I did I was pleasantly surprised. No, they are not quite as big as I might have expected, but they are soft, and beautifully shaped and I have cleavage that I never had before. If they "drop and fluff" then they'll be that much better! But meantime, I love how good I feel, how comfortably I slept last night, how nice it is to feel normal. And, silly enough, I love touching them! Is that crazy? I just can't believe that they're mine - after all I've been through, and those crazy hard expanders - this is heaven. Thanks for the encouragement. I need to learn to be patient. I am definitely not a patient patient!!!

  • Dejaboo
    Dejaboo Member Posts: 2,916
    edited June 2008

    Good Luck with your Exchange Janelle!

    Billsgirl Nice to hear you are doing good.

    I have been off my pain pills for 1 full week!

    Still in pain but its doable usually.

    I do wonder about the swellign on my sides though.  Been there from the beginning & that is where alot of my pain is.   It is right where the side of a bra would sit...And goes almost to my back- but not quite.  The left side is worse.  Id say it sticks out almost 1/2" from my side.  I asked my PS about the swelling at week 1 or 2. (its 4wks + now)  And he said it could be from the surgery still.  Or that I always had it there!!  Its like I cant even carry my purse because it catches on the swelled skin area!  No- I did not have that there before.

    In the morning when I wake up the swelling is worse & the pain is greater.

    Thee other day I really felt around there & I can feel the expanders under the swelling.  They go about 1/2 way into the side. 

    I am thinking this will give me problems (both in pain & where the saline sits) all during the expansion & even after my Exchange.  It has me bummed out.  What will my sides look like after my exchange?

    Are expanders only 1 size?  Or did my PS use too big of expanders?

    Anyone else have swelling/expanders on your sides like this?

    Pam

  • cat58879
    cat58879 Member Posts: 22
    edited June 2008

    Pam,

    Expanders come in many different sizes. Mine used 450's on me. She said that she only uses three sizes on her patients. Even though my expanders were small I still got 600cc hp silicone implants. It sounds like yours are way to big.  

    Inger      

  • Looneymom
    Looneymom Member Posts: 144
    edited June 2008

    How do you find out what size you have ? Ask PC? I will not see mine for 30 days if no problems?  My e expanders  are new from surgery o 6/3. I am feeling lots of tightness and sometimes pain mostly in the am and will take a pain pill.  I will not get fills for a month or longer due to may need further treatment. But the expanders  feel very big or wide for my chest. I know he measured a circle of my breast before surgery - so it should be the same diameter  of my old breast? I feel like my body is trying to reject them.  I told me friends I feel like I have tupperware lids under my skin! So I call them my tupperare. Anyway just reading your comments helps me feel a little better.  I am making this question too complex?  

  • dhettish
    dhettish Member Posts: 501
    edited June 2008

    Hi Everybody,

    I had my dbl mast on 9/6/07 and my onc would not let me go with immediate recon because she thought I would have to have rads. As it was, I did not and I am not upset because Taxotere was so hard I don't think I could have endured any more pain.

    I had my expanders put in on 6/10/08 with 50cc and am still in a lot of pain. They gave me hydrocodone which makes me sick to my stomach with vomiting and valium which just puts me to sleep. I go for my first fill on 7/2/08 and am worried since I am experiencing a lot of pain especially between my breast area. What kind of pains meds are others taking. What worked best. I don't tolerate pain meds well and hate ones that put me to sleep. I have been unable to work out since 12/07 due to the chemo fatigue and pain and was just starting to get back into my aerobics when I had my surgery. Now all I can do is sleep and light housework. This journey has been way too long. I am just trying to find out what kind of pain meds will not make me sick or sleepy and allow to me lead some kind of normal life. Hydrocodone stops the pain but the nause is pretty bad. I only have to take in the morning when I wake up with excruciating pain.

    Kerry, congrats and thanks for giving me hope. I just can't wait until I can be there too. I hate wishing my life away but these things hurt.

    Debbie 

  • tmac
    tmac Member Posts: 236
    edited June 2008

    Pam,

    So glad to hear you're feeling better.  No pain meds for a week is a wonderful milestone!  I have expanders, too, and for a couple of weeks (in the middle of my fills) on my non-cancer side the expander was going under my arm.  As I continued to get fills, it eventually all moved back to front & center.  I looked lopsided for a few weeks, bc the cancer side was front & center and the other side, halfway under my armpit.  My PS said that can happen, but as you're continually expanded things can shift.  I'm finished w/my fills, and I am almost perfectly symmetrical, phew.  I didn't have the swelling that you are experiencing, but hope this helps, or at least generates conversation w/your PS.

    Good luck,

    Teresa

Categories