Prophylactic Oohrectomy WTF?

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  • cp418
    cp418 Member Posts: 7,079
    edited June 2008

    Hi LA,

    I was dx April 2006 premenopause (age 49) IDC ER+ PR+ very strong.  I did the chemo as you describe AC plus Taxol and put into chemo pause after 3rd treatment.  My onc also wanted to start me on Lupron shots and Tamoxifen however I wasn't happy with what I read other ladies describe with the side effects.  I insisted on the oophorectomy so I could start AI and not spend 2-3 years with shots and Tamoxifen.  I feel this was the right choice regarding my very strong receptor status.

    I also fear the heart dx issues with family hx and grandfather also passed at age 63 after 3rd heart attack.  Recently I was dx with heart murmur and valve issues so what can I say.  I exercise daily, eat healthy and take omega 3 and co-enzyme Q fo the heart plus my other calcium, vit D supplements.  I'm certainly trying under the circumstances to help my body - - what more can we do?

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  • Annabella58
    Annabella58 Member Posts: 2,466
    edited June 2008

    Hi ladies:

    Dear CP418, I am very interested to read that the Lupron shots must continue for a year or so?  Hm, I'll be having that little "chat" with my onc.  Having been on Lupron for ferility treatments, I was like an insane person.  It was absolutely terrible.  And I am a person who had no side effects from tamoxifen whatsoever.

    Given that, I note your tag line, and I am NOT having Lupron.  I'll go with the ooph (what a name for it, like the sound it makes pulling the plumbing out, presumably..."oooooooophhhh"?)  I'll call it "spayed" like my cat, and tell my onc, get on with it.  My kid is 19, but I want to be here and sane, for my grandkids!

    Good luck all,

    love

    annie

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  • SueYA
    SueYA Member Posts: 7
    edited June 2008

    Dear cp418, does strong ER/PR+ make case for ooph operation?  I am 46, premenopausal, just dx and had lumpect 4 weeks ago. My onc said that mine was highly ER+ and PR+.  I would like to take out the ovaries and use AI, but my onc seems to want just do tamo and then later use AI.  I am lost at the moment about this... but need to have more understanding as to which is better befor seeing her next Tues.

    Sue 

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  • Annabella58
    Annabella58 Member Posts: 2,466
    edited June 2008

    Hi SuperM

    Just checking in to see how you are doing....I've been in chemopause since March and don't notice much of anything.  Well, weight gain and a "menopot" but so what, i'd get that anyway.

    No hot flashes, some disturbed sleep (wake up at 3AM and go back to sleep after an hour or so, not a biggie)

    It's supposed to happen naturally anyway, i like this hurrying it all up!

    You should check out the newsboard on this site  it has a very good article about ovary removal on it, and the results are quite positive and give one an "edge"..check it out and see what you think, I am against Lupron (it's sooo nasty side efffects) and am going to bring it to my onc. to show him.

    Hope you are doing well, I have #7 chemo monday!

    xoxo

    annie

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  • Annabella58
    Annabella58 Member Posts: 2,466
    edited June 2008

    p.s. Sue, see the same article, on the "front page" of the site.

    Yes, ER+ is most helped by it.

    I had ductal carcinoma in situ, one invasive type and 5 years of tamo and the rads treatment, i still got it again.  I am going to *** ing war.

    See what you think.  Helpful article. 

    Stay well all

    xoxo

    annie

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