What to do?

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Chris526
Chris526 Member Posts: 52
edited June 2014 in Triple-Negative Breast Cancer
What to do?
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  • Chris526
    Chris526 Member Posts: 52
    edited June 2008

    I posted on another site but it was suggested that I post here because I am triple neg.

    I really have two questions.  I have mets to my liver, bones (including spine), and lungs.  My onc once mentioned getting a biopsy but we decided that  the mets are most likely from the bc.  Should I reconsider a biopsy?

    They also want me to get MRI for possible brain mets. I just can't seem to do that.  I just couldn't handle have brain mets.  what to do?

    chris

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  • Sadie-Rose
    Sadie-Rose Member Posts: 222
    edited June 2008

    Hi Chris,

    I just had an MRI to check to rule out brain mets or MS.  It wasn't a pleasant experience, but the time went by pretty fast.  It only took less than an hour.

    If I listen carefully as I read your message, it sounds more like you don't want anymore negative information right now.  You have already been given news that is difficult to process. 

    As I prepared for my MRI, I read a little bit about brain cancer.  In my little bit of research, I read some articles that stated the prognosis is better if they catch it early.  I don't think this means you have to decide tonight or tomorrow.  Take a few days and catch your breath.  Your fight will come back.  Until is does lean on us.

    I will keep you in my thoughts,

    Warmly,

    Sadie

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  • Chris526
    Chris526 Member Posts: 52
    edited June 2008

    Thank you Sadie, you are exactly right...enough bad news for right now.   I hate MRIs  - but I also understand the need for early detection.  I sound like I know what I am doing :)

    Thanks again

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2009

    Some people get a biopsy of the new mets to recheck the er/pr and her2 status.  There have been cases when these have changed and it can make a difference in choice of treatments.

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  • badboob67
    badboob67 Member Posts: 2,780
    edited June 2008

    Chris,

    One thing you might want to consider is that sometimes the pathology  of the cancer can change over time. If it has been a long time since your first diagnosis and pathology, a biopsy might be a good idea. You want to be sure to take advantage of all the treatments available for your particular cancer. I believe I read that as much as 25% of cancers are found to have a different pathology over time.

    I understand your feelings about an MRI. Having stage IV means we are met with a steady flow of treatment choices and scans. It can produce a lot of anxiety (as I am sure you know!). One thing that might help you with the MRI is to request something like XANAX to help relax you for the scan.  I wish I had more advice for you--MRIs are hard for me too and waiting for the results is even harder.

    (((HUGS)))

    Diane 

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