Dealing when mom has cancer
Comments
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My mother was just diagnosed with breast cancer last week. We will not know the stage until after surgery which is just being scheduled now & will most likely be at some point next week. The doctors are reccomending a partial mastectomy (like a large breast reduction) and radiation so I am thinking it will be no more then Stage 2 hopefully. Originally we were thinking that she should just go ahead now & have a double mastectomy so that it cannot come back, but reading here I see that is not even a certainty. She also has several other medical conditions and we are not sure yet whether they are all related.
I cannot help but worry. Even reading all of these posts that are supposed to be supportive- make me sad and angry. One said "oh, survivors go on for years..." - years? Years are not enough. My mom is young- I am just in my early 20s- and a few years are not enough. Decades. I want decades. And I want to be sure that it won't come back and it won't spread. I want to know that my mom will be here when I get married some day. And I want to know that I won't develop this disease. And that I won't have to tell my daughter someday to start getting mamograms when she is in her 20's because her grandmother died of this disease. But I know that no one can tell me this because no one knows.
All I can do is sit & wait & worry and pray that the surgery comes quickly and the outcome is positive.
My mom is just in shock- it hasn't sunk in yet for her that this is real. It is just very scary and a difficult thing to deal with. It competly consumes my thoughts.
Thank you for giving me a place to vent.
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Dear bcdaughter,
I am very sorry that your Mom was diagnosed with breast cancer recently. When my sister was diagnosed I felt physically sick with worry and heartbreak for a long time. I had trouble swallowing and breathing because i was so upset all the time.
Finally I said to myself one day, if I went on that way, I would get sick and wouldn't be of any use to help my sister if and when she may need my help. The worry and fear was just robbing me of my energy and ability to enjoy life. It's natural for us to worry but then I had to turn my thoughts from all the what if's and wanting the security of definite answers to trying to live in the present and enjoy each day with my sister now and put aside all the worries and fears of what might happen.
It's a major change in life, going from living your life having the secure feeling of your Mother being there throughout your life to the thoughts of not having her there. It's a deep feeling of loss and grief.
As far as the future for you or your children, remember research is happening this very minute and continues...become part of the solution..get active, join one of the organizations that fund raise for a future cure, it's possible within your lifetime.
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Thank you for your kind words.
The situation is completley stressful- I'm just trying to support her & help guide her to what is best.
I hope that your sisters treatment is going along well.
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Did your Mom have her surgery yet? You had mentioned it might be this week. Let us know how it goes.
My sister has a daughter your age, early 20's and I was thinking how scarey this all was for her.
There is alot of waiting in between surgery, test and test results.
My sister's treatment is going well.
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I feel for you and your family. I hope you are all able to pull together though this horrible time.
I to am in my early 20's and have a mother who is struggling with cancer. It's a very tough and hard thing to deal with. As May54 said just make sure you support her and be there for her. I remember a closer friend once saying to me that just being around your loved one is showing you care and love them.
How is your Mum handling it all?
How are you?
Ps This is my first time chatting so Im not sure Im doing it right.I apologies if I'm not.
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Dear Emma,
We all share in this together, you are not alone. Thank you for joining in and making your first comment. I had read other's messages for 3 years and just felt comfortable enough to start posting messages about a month ago myself.
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Cancer is extremely rough on the family. I've been on both sides of the cancer coin, both as patient and as caregiver (both of my parents died of cancer, my mom of bc 15 weeks ago, my FIL, my grandfather and my uncle), and I always felt that it was harder to be the family member/caregiver than the patient.
I understand the frustration of not knowing if/when the cancer will come back, wanting decades with your mom, etc. I felt that way, and I feel that way about my own cancer. The oncs cheerfully talk in terms of 5-10 year survival, which is terrific, except that I'm not even 40 yet, and my kids are 6 and 9.
Even when the patient is older--my dad and FIl were both 72 when they died--one feels like there hasn't been enough time.
Sorry, I guess my post isn't all that cheery, but I guess my point is that it all does sort of suck, and we "get" that here, so you've come to a good place for support.
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I'm at a loss. My mom begins her chemo today and has been told to expect complete hair loss in 17 days. I read the info on hair loss and am stunned at the likely effects. Do I offer her a makeover over the next couple of weeks? Do I send a gift cert for a wig? Just being there is one thing, but what can I actually do to help?
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Dear Kiwtesskate,
Maybe you could ask your mother if she would like to try on a wig or scarves at the store before she loses her hair and see what she is comfortable with and then offer to buy or give her a gift certificate for it.
The family and friends in my life with breast cancer, started with wigs, then within a short period of time went to scarves or baseball caps and then within another period of time , quite a few went without any head covering. They seemed to go through different levels of emotion with dealing with losing their hair.
This was just my observation, I have never dealt with losing my hair myself and do not know how it feels.
Sincerely,
May54
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Wigs are great but I know with my Mum the first one she got was a bit to long, so the second time she got a shorter one. In fact it suits her so much even her hair dresser thought she was cheating on her and seeing someone else for her hair lol
Depending on the weather is whether Mum likes to wear her wig or scarf. But its nice to have both options esp if aspecail event comes up.
I think the hair lose stage is a hard one emotionally. Least it was for my Mum. She was so upset when she lost her hair but having the families support,her wigs and scarves help her to deal with it.
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my mom has breast cancer for almost 6 yrs, we thought that she will be alright after her operation unfortunately the doctor told us that the cancer has spread in her uterus,leg and kidney and she has severe pain everyday ,i'm scare that something can happen at any time i try to be strong infront her but this is in my mind day and night, i still need my mum as she is my only friend my confident.
ps: apologies if i make any mistake
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It is hard to see a loved one go through this disease. I live over 800 miles from my grandma and I feel hopeless. I feel I cannot do anything to help her being so far away, but I have found away to help, I am on this computer 12 hours a day researching and learning this disease, researching side effects on the meds they gave her and what helps the side effects. I have received prayers from many people that my grandmother would not have received had I not been finding sites like this with so many wonderful people.
hope is not lost.
Rhonda
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I have been dating my boyfriend for about five months and he just told me his mother had breast cancer. It's her second time having the breast cancer. We're seventeen and he doesn't know how to handle it. I have no idea how to help him, since his mom is getting continuously worse.His mother is so nice but I don't know how to help them, and my boyfriend doesn't know how to respond to it. It's her second time having the cancer and her chances at living are plummiting.
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lindabutterfly83 - you are in a hard position. As a mother, I would say that the best thing you can do is help your boyfriend keep on track with school or whatever good activities he has. Of course, any help he can be around the house is good and he ought be kind to his mother even when she might be having a tough time. Really, the best help my children can be is to do well with the things they ought to be doing and just to be pleasant no matter what.
bcdaughter - one of the things that worries me is that my daughter and the daughter she is expecting in the fall will have to worry about the same thing. I will be having the test to see if I carry the gene for BC so my daughter (and my sister) will know whether her risk is any greater than any one else. She helps me by promising to have mammograms at the appropriate time so I know that if she does have to deal with this, it will be at an early stage so she can expect to be fine in the long run - just as I plan to see that baby of hers grow up.
kisersassy - your grandmother is lucky to have you! I am quite sure that she would appreciate e-mails (if she does that) or cards or any other little contact from you that probably has nothing to do with breast cancer. It doesn't take much, just a little note or suchlike every once in a while to make the day a whole lot brighter.
kjwtesskate - your mother might like to know about the Look Good Feel Better program. I will try that in a couple of weeks and from what others say, it is a great way to have a makeover with other people in the same situation and, I hear, get a bunch of free makeup. Also I found that having a wig ordered ahead of time and hats all ready to go helped a lot. Free wigs are accessible from the cancer society and/or depending on where you are, insurance often helps pay for one.
I think all of your mothers and grandmothers are very fortunate to have people who care enough to have found this site and to ask questions. (My son found this site for me!) And that's enough from this mother.
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My mother has been diagnosed with breast cancer for the second time. She hides details from me about the cancer. I found out from my older brother that she has been going to chemo for the past two weeks. I understand it's hard for her, but I don't appreciate not knowing what is going on with my mother's life. It's hard for me too; I'm only sixteen and don't know how to handle this.I have a great life, the perfect girlfriend and I feel like I have trapped her with this news. I don't know how to react with my mother's sickness and how to keep living on my life like nothing is wrong. I somewhat feel guilty for loving my girlfriend, when I love my mother, and am watching her with the cancer.I don't know what I'm supposed to do with her sickness. How am I supposed to watch her die? What will I do later? All these questions keep coming and I don't have any answers.
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You all break my heart reading how hard this is for you.I am the Mom with cancer and it was hard for my family but the single thing we did that helped us all was talk about it and cry about it together. I agee too many of us try to protect our kids and grandkids but they all know anyway as your posts make painfully obvious. If your Mom doesn't tell you up front, tell her about how scared you are and that not knowing from her puts your imagination into overdrive. Be prepared for tears,though, because the first time is the hardest.
Italianmikey, we are lucky to live in a time when so much medical help is available. The treatments are hard and seem to take forever but nobody knows how it will all turn out. Waiting and feeling helpless can be the hardest part of all so do what you can to make her day to day life easier even if it's just doing the dishes or keeping the volume of the music down so she can sleep. She really needs to know you are going to be OK and that means you will have to grow up faster than you would have. Posting here and getting the support you need shows me that you are.
I loved getting flowers and cards but simple cuddling with each kid was the best for me. Human touch is marvelously healing so if you can, gentle hugs for your Mom will help both of you. It did wonders for my spirits. I wish all the best for each of you as you help your Moms along her journey. It's your journey, too.
Linda -
How are you suppose to deal with it all? I don't think I can handle the stress anymore! My mother told me over the phone that she had breast cancer. Then she had the surgery. Everything was suppose to be fine but now they are saying that she has to have chemo. My family is very supportive and everyone I know. But the question that everyone ask "Hows your mom?", drives me crazy. I don't want to think about it. Every time I talk to my dad I cry. How do I even talk to my dad when he is in tears every time? I don't know what to do about it. My mom is not really saying anything about it to me. I just want to know how you get through it. I hide all my feelings but when I get home I just break down and cry. I want to know how my mom is doing! I want her to talk to me about it! My cousin told me that I need to sit down and tell her that I am scared for her, that I worry about her all the time. But I don't want my mom to think about it, I don't want her to break down.
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It's hard to know someone (esp. family) with cancer. Especially when you're young!
My mother had cancer when I was a toddler, and since my diagnosis, wants to play social worker (which she is one) with me.
A lady that I'm quite close to (that works at the barn & who has kids practically my age!) mother-in-law is on her final stages of lung and liver cancer (also has had breast). I typically, find myself having trouble on what to say to her or to her children and husband - even though I myself (at the age of 23) have breast cancer.
I think the hardest thing to do is to find a way to bridge the age gap - since often we think that our generation must have zero in common with those our parents ages.
Also, when it comes to family members; it personally drives me up a wall if my mom wants to talk about the cancer, but her presence at doctor appointments, or offering me to move back into my parents while doing treatments says mountains without words...
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I am Mom2Kates daughter....
Hi! My mother was just recently diagnosed with Breast Cancer. Thank God it was found in stage 0!! My friend from school's mother also had Breast Cancer and we've helped each other through it. It really has been hard on us. My friends, family and teachers have helped me through it. Please- stay strong to those of you who have friends and family who have been recently diagnosed. Im sure there are others out there just like me. When your friends or family get strucken by this terrible illness, its devistating to all of us. You feel like your in a dark room and you cant get out. Luckily, I found this website and I can help cope with this and help others cope. Please reply!!
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I am Mom2Kates daughter...
Khristinap-
My mom went for a routine mamogram and came home from it "Honey, me and your father need to talk to you". And then told me that she had Breast Cancer. Im young, I called my friends and family and cried. I really didnt know what to do. There wasnt much I could do except help my mom through it all. She was also down... the whole family was... but you have to turn to God. He said that He would not put us through more than we could take. My mother introduced me to this site to help cope with it all and help others cope- thats what Im here to do and I am gratefull that she did!! Please reply!!
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Hello everyone, you guys arent alone! I am 21 and i have been a caregiver to my mom for the past 2 years. When she was initially diagnosed in May 2007, my dad decided he couldnt handle it and divorced her. She had a mastectomy and she was fine for a year, although she didnt feel fine because of all the stress of the divorce and of her rhumatoid arthritus. Also, the onc surgeon messed up and dyed the wrong side of the lymph nodes! He said he was tired-NICE EXCUSE! They also told her that it was her2neu neg which later she found out that it is her2neu positive. This past september, her cancer she found out her cancer metastisized to the bones. Also, that it probably has been there for a while...anyways she switched doctors and today her cancer is in her liver and her abdominin area as well. My brother just shaved her head last night because she started to loose it from her chemo/herceptin. WOW it has been HARD. I barly leave her side and i try nd be there 100%. I barly talk to my friends anymore...they are all going out and having fun. I feel guilty leaving my mom, its sooo hard watching her suffer. Not to mention in and out of hospitals because of her unmanagable pain! Anyways, I havent cried in front of her, i dont want her to think im worried because she says i am her rock! But i just want to cry and cry and cry every second. It is the hardest thing in the world to say goodnight to her and watch her alone in her bed. Does anyone have any words of encourgement because I have been feeling down all day today. Thanks!
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i am so glad I found this site. My mom is now going into the treatment stage. She had both breasts removed about a month and a half ago. This is the second time she has had it. The found cells in only one out of the ten limph nodes and nothing in the chest cavity. They did however find pre cancer cells in the other breast. My dad has been working in Michigan as we are here in Ohio. So during the week I am the man of the house. My parents want me involved and my opinion on treatments. I know that whatever she picks isn't 100% that it won't come back. I am having a hard time staying strong for her and my dad. I know it is killing him inside leaving every monday to go work. I hit rock bottem when we found out she had it. I spent almost two weeks on vacation at a bar. So now I have gone to AA meetings to cope with stuff. I guess my whole thing is that both my mom and dad have diffrent views on treatments. My dad wants to do everything out there. My mom isn't to keen on chemo. The dr wants to do at least some chemo. I am just lost on the feelings I have. My mom as asked me the question she asks herself. "If I do chemo and it comes back then what, but if I don't and it does how can I look you and you father in the eyes knowing i made the wrong choice." I can't give her an answer on it. I have faith she will make the right choice and I also know that no matter what when the man up stairs wants you thats when you go. I know there is no right answer for the treatment nor is there a question in this whole post. I am just wondering if chemo really is the right choice for her. Thanks for reading this, I am just glad there is a forum for husbands daughters and sons like me. God bless.
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In Dec./08 my mom was diagnosed with stage 4 endometrial cancer and had surgery. She was going through chemo treatments when I was diagnosed with breast cancer in Feb/09. I had my surgery without telling my mom because I didn't want her to worry about me with the chemotherapy she was already trying to deal with. The hardest part was keeping it from my mom and not having her there for support but I did what I thought was best. I shaved her head and took her wig shopping and after my surgery was done, I finally told her. She was upset, but understood. I think my diagnosis helped my mom deal with her cancer alot better. Sort of a blessing in disguise I think.
Telling my kids (age 18 &20) was also a very hard thing to do. They had just gone through their grandmothers cancer and now I had to tell them about mine. I became as informed as I possibly could so I could answer any questions that they had. I've stayed as upbeat and positive as I could for them. I have since had sugery and have just completed my radiation treatments. We all made it through. I have been strong and positive and that same energy has also come from my kids. My mom's tough she'll be okay, they tell anyone who asks. One of them is a daughter, she knows what may be in store for her in the years to come. There is nothing either of us can do to change that.
We can't change ourselves or our loved ones diagnosis of cancer....stuff happens. I think it's what we do with and how we deal with the "stuff" that we're dealt that makes all the difference. Live each day to the fullest and spend less time on the "what ifs" and more on the "what is"
Just wanted to share my story, maybe it can help someone
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Hi! I am new on here and don't really know where to start. So here goes. I am 23 and my mother who is 43 was just recently diagnosed with breast cancer. Just two weeks ago her docs told her she was at stage 0, and after another mammogram and an mri (just to be on the safe side) they have discovered she is at stage 2. Today she got the results from yet another mammogram, which has revelaed that she has a second cluster of cancer cells, right next to the already existing one. So as far as her stage goes, we are uncertain at this point. Both the first and the second cluster of cancer cells has appeared within a matter of weeks, so I have no idea what to expect, and it scares me to death to think that I could possibly lose my mother to this disease. I don't know much about it, but have been trying to research it the best I can. It is really hitting her hard now, and she is a very strong woman. But since her results today, she has been crying a lot and I don't know what I can do to help her other than to comfort her and offer her hope. I feel like there is something I should be doing for her, but physically there is nothing I CAN do for her. I am not dealing very well with the simple fact that she even has breast cancer, so I could really use some advice on what to do to help her, how to cope with it myself when all I can do is cry, and how to keep a positive attitude about the whole situation. She goes in for a lumpectomy on Dec. 11th and radiation treatments following that. She also has mytrovalveprolapse, and I'm not sure if radiation or chemo will have an affect on that as well. Like I said, I'm still learning about this stuff and need some guidance as where to look for reliable info. I would also love to get involved in fundraising for the cause. If there is nothing I can do for my mother, there is something I can do for the cause.
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Hey,
So I'm dating this guy and both of our moms have breast cancer.
I want to help him, but I also have to take care of my mom.
Sometimes he describes his life as "juggling" and I don't want our relationship to be work.
How can I help both?
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Hi,
I'm new to this board. My mother's breast cancer came back after 7 years. She has a large tumor taking up almost half of the right lobe of her liver and mets to her bones so I guess she's stage IV. I feel so helpless because I don't live close to her. She's 81-years-old, but not your typical 81-year-old. She probably gets around better than I do. Will the chemo be hard to take for a person her age, and will it really help her or hurt her worse?
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A few weeks ago, my parents told me that my mom had breast cancer. I was completely devastated. At first, I thought she was going to die. All the movies and TV shows made it seem scarier than it already was. They found my mom's cancer very small, and shes constantly comforting me and telling me that everything is going to be okay. A lot of kids in my class also have had parents with cancer. One of my closest friends mom had breast cancer, and survived. Although I'm getting a lot of support, I'm still a little uneasy about my mom. I really need some assurance and someone to hold me up. Thanks
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Hi SinCity Dealer. This is the first time my mom has had breast cancer, and its hard to imagine going through it a second time with your mom's complications. I'm not a doctor, and I don't know a lot of about cancer, but I really hope the best for her.

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pinky. Sorry to hear that your mom has cancer. You are right, your image of cancer is waaaaaay worse than the actual reality. I see your in New Haven which is near me. There are some groups just for the kids of the breast cancer survivors which meet in New Haven and Bridgeport. Maybe connecting more with kids your age would help? i don't know exacly your age but I will pm you to see if anyone I know might be able to talk to you and help.
flash in fairfield county
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I sent you a private message, just click on the private message box at the top. You will be limited how many public posts you can do for a while but you are not limited on the private messages.
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